Extractions: The views expressed in this website do not necessarily represent the views of the coordinators, professional advisors or any of the Reaching Out members. Check with your doctor before trying anything new with your child. The WAGR Network We are the proud parents of a little boy diagnosed shortly after birth with WAGR Syndrome, resulting from a deletion of his 11th chromosome (p12p14). WAGR Syndrome is a very rare disorder. In 1996 when our son was diagnosed with this genetic disorder we were left with more question than answers. Today we are very proud of our network and the group of people with whom we are associated. WAGR is an acronym which stands for the following: ( W )ilms' Tumor, ( A )niridia, ( G )enitourinary anomalies/gonadoblastoma and Mental ( R )etardation. A combination of 2 or more of these symptoms must be present for an individual to be diagnosed with WAGR Syndrome. The only feature that has been present in all documented cases of WAGR Syndrome, with only one known exception, is aniridia. Mental retardation, Wilms' Tumor, and/or gonadoblastoma may or may not be present in affected individuals. WAGR is a rare genetic disorder that is thought to affect males more frequently than females.
Content GENETICS OF wagr syndrome PARENT INFO PACKET ANIRIDIA GROUPS RESOURCES FREQUENT ? s THE R IN wagr syndrome http://www.wagr.org/pages/432549/page432549.html?refresh=1119017809288
WAGR SYNDROME DESCRIPTION SUPPORT FOR WILMS/ANIRIDIA wagr syndrome FAMILIES nonprofit organization helping families find information and providing support. WAGR Support group http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126
Extractions: (advertisement) Home Specialties Resource Centers CME ... Patient Education Articles Images CME Advanced Search Consumer Health Link to this site Back to: eMedicine Specialties Pediatrics Oncology Last Updated: September 26, 2002 Rate this Article Email to a Colleague Synonyms and related keywords: Wilms tumor, aniridia, genitourinary malformations, mental retardation, Wilms' tumor, adenomyosarcoma, embryoma of the kidney, mesoblastic nephroma, nephroblastoma, GU malformations, AGR syndrome AUTHOR INFORMATION Section 1 of 10 Author Information Introduction Clinical Differentials ... Bibliography Author: Steven K Bergstrom, MD , Clinical Instructor, Department of Pediatrics, Division of Hematology-Oncology, Deaconess Medical Center Steven K Bergstrom, MD, is a member of the following medical societies: Alpha Omega Alpha American Society of Hematology , and American Society of Pediatric Hematology/Oncology Editor(s): Stephan A Grupp, MD, PhD , Director, Stem Cell Biology Program, Children's Hospital of Philadelphia; Assistant Professor, Department of Pediatrics, Division of Oncology, University of Pennsylvania;
Entrez PubMed Congenital diaphragmatic hernia in wagr syndrome. Scott DA, Cooper ML, congenital diaphragmatic hernia can be associated with wagr syndrome and suggest http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=1
Extractions: This page contains links to pages with supplemental photographs of the various diseases described in Medical Genetics. By clicking on a link you will go to a page that has all of the photographs of that particular disease. Click on the photographs to see a larger version. The following is an alphabetical list of various genetic diseases: achondroplasia
WAGR Syndrome Links to information and resources for wagr syndrome. http://rarediseases.about.com/cs/wagrsyndrome/
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WAGR Syndrome International network. 3 affiliated groups. Founded 2000. Provides informationand support to persons http://my.webmd.com/hw/health_guide_atoz/shc29wag.asp
Extractions: The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information. For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp