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Von Hippel-lindau Disease: more detail

The Official Patient's Sourcebook on Von Hippel-Lindau Disease: A Revised and Updated Directory for the Internet Age by Icon Health Publications, 2002-09
Von Hippel-Lindau disease: An entry from Thomson Gale's Gale Encyclopedia of Neurological Disorders by Deepti, MS, CGC Babu, 2005
Von Hippel-Lindau's disease: Analysis of age of onset and gene expression in a human genetic disease ([Theses for the degree of Master of Science - University ... of Hawaii ; no. 1644 : Biomedical Sciences) by Margaret Marshall, 1979
Gale Encyclopedia of Cancer: von Hippel-Lindau disease by M.S., C.G.C. Laura L. Stein, 2002-01-01
Genodermatoses: Turner Syndrome, Joubert Syndrome, Neurofibromatosis, Von Hippel-lindau Disease, Tuberous Sclerosis, Freeman-Sheldon Syndrome
Von Hippel-Lindau disease: an overview.(Continuing Nuring Edcuation)(Disease/Disorder overview): An article from: Nephrology Nursing Journal by Michele Inglese, 2007-07-01
Von Hippel-Lindau Disease Tumor Suppressor Gene (Medical Intelligence Unit Series) by E. Maher, 1996-10
VHL Handbook Kids' Edition: A handbook for parents and kids living with von Hippel-Lindau (Volume 0) by Melissa Kruger, 2009-05-18
Von Hippel-Lindau Syndrome - A Bibliography and Dictionary for Physicians, Patients, and Genome Researchers by Philip M. Parker, 2007-07-19
Von Hippel-Lindau syndrome: An entry from Thomson Gale's Gale Encyclopedia of Genetic Disorders, 2nd ed. by Mary, MS Freivogel, 2005
What You Need to Know about VHL: A reference handbook for people with von Hippel-Lindau, their families, and support personnel by VHL Family Alliance, 2009-06-18
von HippelLindau disease: An entry from Thomson Gale's Gale Encyclopedia of Cancer, 2nd ed. by Laura, M.S., C.G.C. Stein, Rebecca, PhD Frey, 2006
Neurocutaneous Disorders: Phakomatoses & Hamartoneoplastic Syndromes

lists with details

Cancer Research Fund - VHL Family Alliance Homepage
Dedicated to improving diagnosis, treatment, and quality of life for individuals and families affected by von hippellindau disease.
http://www.vhl.org/
Von Hippel-Lindau Disease (VHL) Information Page: National Institute Of Neurolog
Information sheet on this disease compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
http://www.ninds.nih.gov/disorders/von_hippel_lindau/von_hippel_lindau.htm

Extractions: Treatment for VHL varies according to the location and size of the tumor and its associated cyst. In general, the objective of treatment is to treat the growths when they are causing symptoms but while they are still small so that they do not cause permanent problems by putting pressure on the brain or spine, blocking the flow of cerebrospinal fluid in the nervous system, or impairing vision. Treatment of most cases of VHL usually involves surgery to remove the tumors before they become harmful. Certain tumors can be treated with focused high-dose irradiation. Individuals with VHL need careful monitoring by a physician and/or medical team familiar with the disorder.
Von Hippel-Lindau Disease (VHL) Information Page National
von hippellindau disease information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126
Von Hippel-Lindau Disease (VHL) French Homepage
Translate this page pour améliorer le diagnostic, le traitement, et la qualité de vie des individus et des famillies atteints de la maladie von Hippel-Lindau
http://www.vhl.org/fr/

Extractions: L'organisation "mère" , le VHL Family Alliance, aux Etats-Unis compte plus de 6'500 membres venant du monde entier; y compris patients, membres de famille, médecins et chercheurs. On estime que 14'000 personnes avec le VHL ont été touchées par l'organisation, dans plus de 80 pays du monde - et le nombre croit tous les jours! forum de discussion sur internet Liste VHLFA francophone , et nous vous aiderons. L'Association VHL France, l' Il y a aussi une bonne organisation canadienne , qui se trouve au Canada.
Alianza Von Hippel-Lindau
Dedicated to improving diagnosis, treatment, and quality of life for individuals and families affected by von hippellindau disease.
http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126
Von Hippel-Lindau Disease (VHL) French Homepage
pour am liorer le diagnostic, le traitement, et la qualit de vie des individus et des famillies atteints de la maladie von HippelLindau
http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126
Von Hippel-Lindau Disease
Article describes von hippellindau disease, its symptoms, diagnosis, and treatment.
http://rarediseases.about.com/cs/vonhippellindau/a/032104.htm

Extractions: var zLb=4; var zIoa1 = new Array('Suggested Reading','Internet links on von Hippel-Lindau disease','http://rarediseases.about.com/cs/vonhippellindau/index.htm'); zJs=10 zJs=11 zJs=12 zJs=13 zc(5,'jsc',zJs,9999999,'') zfs=0;zCMt='a70' About Rare / Orphan Diseases Rare Diseases S - V Rare Diseases: V Von Hippel-Lindau Disease Rare Diseases Essentials Rare Diseases: Basic Information Rare Diseases Support Groups ... Help zau(256,140,140,'el','http://z.about.com/0/ip/417/C.htm','');w(xb+xb+' ');zau(256,140,140,'von','http://z.about.com/0/ip/496/7.htm','');w(xb+xb); Sign Up Now for the Rare / Orphan Diseases newsletter! Suggested Reading Internet links on von Hippel-Lindau disease Most Popular Muscular Dystrophy ALD and Lorenzo's Oil Progeria Syndromes Leprosy (Hansen's Disease) ... The Elephant Man What's Hot Charcot-Marie-Tooth Disease Peyronie's Disease Twin-to-Twin Transfusion Synd Autoimmune Kidney Disease ... Cri-du-Chat Syndrome Related Topics Multiple Sclerosis Parenting Special Needs Sleep Disorders adunitCM(150,100,'x55')
Von Hippel-Lindau Disease
von hippellindau disease
http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126
Von Hippel-Lindau Disease
This inherited disorder of chromosome 3 causes brain, eye, and kidney tumors. The greatest risk of von HippelLindau is the development of kidney cancer .
http://rarediseases.about.com/b/a/073696.htm

Extractions: zJs=10 zJs=11 zJs=12 zJs=13 zc(5,'jsc',zJs,9999999,'') zfs=0;zCMt='a70' About Rare / Orphan Diseases Rare Diseases Essentials ... Help zau(256,140,140,'el','http://z.about.com/0/ip/417/C.htm','');w(xb+xb+' ');zau(256,140,140,'von','http://z.about.com/0/ip/496/7.htm','');w(xb+xb); Sign Up Now for the Rare / Orphan Diseases newsletter! Advertisement Most Popular Muscular Dystrophy ALD and Lorenzo's Oil Progeria Syndromes Leprosy (Hansen's Disease) ... The Elephant Man What's Hot Charcot-Marie-Tooth Disease Peyronie's Disease Twin-to-Twin Transfusion Synd Autoimmune Kidney Disease ... Cri-du-Chat Syndrome Related Topics Multiple Sclerosis Parenting Special Needs Sleep Disorders adunitCM(150,100,'x55') Topic Index Email to a Friend
Von Hippel-Lindau Protein Mutants Linked To Type 2C VHL Disease
von HippelLindau protein mutants linked to type 2C VHL disease preserve the ability to downregulate HIF Michael A. Hoffman1 , Michael Ohh2
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Introduction: Von Hippel-Lindau Disease - WrongDiagnosis.com
Introduction to von hippellindau disease as a medical condition including symptoms, diagnosis, misdiagnosis, treatment, prevention, and prognosis.
http://www.wrongdiagnosis.com/v/von_hippel_lindau_disease/intro.htm

Extractions: Von Hippel-Lindau Disease: von Hippel-Lindau disease (VHL) is a rare, genetic multi-system disorder characterized by the abnormal growth of tumors in certain parts of the body (angiomatosis). The tumors of the central nervous system (CNS) are benign and are comprised of a nest of blood vessels and are called hemangioblastomas (or angiomas in the eye). Hemangioblastomas may develop in the brain, the retina of the eyes, and other areas of the nervous system. Other types of tumors develop in the adrenal glands, the kidneys, or the pancreas. Researching symptoms of Von Hippel-Lindau Disease: Further information about the symptoms of Von Hippel-Lindau Disease is available including a list of symptoms of Von Hippel-Lindau Disease , other diseases that might have similar symptoms in
Contrasting Effects On HIF-1{{alpha}} Regulation By
on HIF1 regulation by disease-causing pVHL mutations correlate with patterns of tumourigenesis in von hippel-lindau disease
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Symptoms Of Von Hippel-Lindau Disease - WrongDiagnosis.com
Symptoms of von hippellindau disease including signs, symptoms, incubation period, duration, and correct diagnosis.
http://www.wrongdiagnosis.com/v/von_hippel_lindau_disease/symptoms.htm

Extractions: Feedback General information about symptoms of Von Hippel-Lindau Disease: The symptom information on this page attempts to provide a list of some possible symptoms of Von Hippel-Lindau Disease. This symptom information has been gathered from various sources, may not be fully accurate, and may not be the full list of symptoms of Von Hippel-Lindau Disease. Furthermore, symptoms of Von Hippel-Lindau Disease may vary on an individual basis for each patient. Only your doctor can provide adequate diagnosis of symptoms and whether they are indeed symptoms of Von Hippel-Lindau Disease. List of symptoms of Von Hippel-Lindau Disease: The list of symptoms mentioned in various sources for Von Hippel-Lindau Disease includes: Symptoms depend on location of the tumors - the symptoms may include: Headaches Balance problems Walking problems Dizziness ... High blood pressure Symptoms of Von Hippel-Lindau Disease:
News - Study Finds Women With Polycystic Ovary Syndrome Are At
Webcasts/CME archive Recent cases Ob/Gyn Other. Osteoporosis and Amenorrhea in a Young Patient with von hippel-lindau disease
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NEJM Plasma Normetanephrine And Metanephrine For Detecting
Abstract Full Text Kashyap, A S, Kashyap, S (2002). von hippellindau disease complicated by pheochromocytoma. Postgrad Med J 78 443-443
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Radiology Von Hippel Lindau Disease
Von Hippel Lindau Disease Genetic, Clinical and Imaging Features
http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126
Arch Surg Abstract Pheochromocytomas And Paragangliomas In Von
Pheochromocytomas and Paragangliomas in von hippellindau disease A Role for Laparoscopic and Cortical-Sparing Surgery
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EMedicine - Von Hippel-Lindau Disease : Article By Arun Gulani, MD
von hippellindau disease - von Hippel disease exhibits the characteristics of congenital capillary angiomatous hamartomas of the retina and the optic
http://www.emedicine.com/oph/topic354.htm

Extractions: (advertisement) Home Specialties Resource Centers CME ... Patient Education Articles Images CME Advanced Search Consumer Health Link to this site Back to: eMedicine Specialties Ophthalmology Phakomatoses Last Updated: March 14, 2005 Rate this Article Email to a Colleague Synonyms and related keywords: von Hippel disease, retinal angiomatosis, capillary hemangiomas of the retina, benign capillary hamartoma, retinal capillary hemangioma AUTHOR INFORMATION Section 1 of 10 Author Information Introduction Clinical Differentials ... Bibliography Author: Arun Gulani, MD , Assistant Professor, Department of Ophthalmology, Director of Refractive Surgery, Chief, Cornea and External Disease, University of Florida at Jacksonville Arun Gulani, MD, is a member of the following medical societies: American Academy of Ophthalmology Editor(s): Michael J Bartiss, OD, MD , Medical Director, Ophthalmology, Family Eye Care of the Carolinas; Donald S Fong, MD, MPH , Assistant Clinical Professor of Ophthalmology, Director, Clinical Trials Research, Department of Ophthalmology, Southern California Permanente Medical Group;
EMedicine - Von Hippel-Lindau Disease : Article By James P Evans, MD, PhD
von hippellindau disease - von Hippel-Lindau (VHL) disease is a rare inherited disorder manifested by visceral cysts, benign masses, and the potential for
http://www.emedicine.com/ped/topic2417.htm

Extractions: (advertisement) Home Specialties Resource Centers CME ... Patient Education Articles Images CME Advanced Search Consumer Health Link to this site Back to: eMedicine Specialties Pediatrics Genetics And Metabolic Disease Last Updated: July 19, 2002 Rate this Article Email to a Colleague Synonyms and related keywords: VHL, von Hippel-Lindau's disease, Hippel disease, Hippel's disease, Hippel-Lindau disease, retinocerebral angiomatosis, Lindau disease, Lindau's disease, von Hippel-Lindau syndrome AUTHOR INFORMATION Section 1 of 9 Author Information Introduction Clinical Differentials ... Bibliography Author: James P Evans, MD, PhD , Director of Cancer Genetics, Associate Professor, Department of Internal Medicine, University of North Carolina at Chapel Hill and University Hospitals Coauthor(s): Cecile Skrzynia, MS, CGC , Genetic Counselor, Clinical Assistant Professor, Department of Internal Medicine, University of North Carolina at Chapel Hill Editor(s): Erawati Bawle, MD, FAAP, FACMG
Von Hippel-Lindau Disease: Definition And Much More From Answers.com
Lin·dau s disease ( lin douz ) n. A hereditary disease characterized by hemangiomas of the retina, the cerebellum and occasionally the spinal.
http://www.answers.com/topic/von-hippel-lindau-disease

Extractions: n. A hereditary disease characterized by hemangiomas of the retina, the cerebellum and occasionally the spinal cord, and also sometimes associated with cysts or hamartomas of kidney, adrenal glands, or other organs. Also called angiophacomatosis Hippel's disease retinocerebral angiomatosis von Hippel-Lindau disease von Hippel-Lindau syndrome Wikipedia Von Hippel-Lindau disease Von Hippel-Lindau disease (VHL) is a rare inherited genetic condition involving the abnormal growth of tumors in parts of the body which are particularly rich in blood supply. Features of VHL are: angiomatosis - little knots of capillaries in various organs. These tend to be cavernous hemangiomas, which are sharply defined, sponge-like tumors composed of large, dilated, cavernous vascular spaces. hemangioblastomas - tumors of the central nervous system (CNS, especially the

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