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Spina Bifida: more books (100)

Child With Spina Bifida by Betty Pieper, 1980-06
Spina Bifida for the Clinician. Clinics in Developmental Medicine No. 57 by Gordon, ed Brocklehurst, 1976-01-01
Moving teens with spina bifida to adult health care.: An article from: Pediatric News by Gale Reference Team, 2007-05-01
The physical, psycho-social, and vocational progress in congenital paraplegia due to spina bifida cystica by John Hamilton Allan, 1961
Spina Bifida: Interdisziplinare Diagnostik, Therapie Und Beratung
Gale Encyclopedia of Medicine: Spina bifida by Roger E. Stevenson, 2002-01-01
Preventing Secondary Conditions Associated with Spina Bifida or Cerebral Palsy: Proceedings and Recommendations of a Symposium, February17-19, 1994.
Malformation Du Système Nerveux: Spina Bifida, Lissencéphalie, Malformations Congénitales Du Système Nerveux Central, Syndrome de Joubert (French Edition)
Spinal Dysraphism: An Account of 100 Cases of Spina Bifida Occulta Submitted to Laminectomy by Christopher Compton Michael James, Laurance Philip Lassman, 1972-01
Unborn Babies with Spina Bifida Find Hope in Fetal Surgery.: An article from: National Right to Life News by Liz Townsend, 1999-12-01
21st Century Ultimate Medical Guide to Spina Bifida - Authoritative Clinical Information for Physicians and Patients (Two CD-ROM Set) by PM Medical Health News, 2009-07-03
Addressing sexuality in spina bifida.(Special Needs: Realizing Potential): An article from: Pediatric News by Eric Levey, 2007-08-01
PROCEEDINGS OF A SYMPOSIUM ON SPINA BIFIDA by Unknown, 1965
STUDIES IN HYDROCEPHALUS AND SPINA BIFIDA by Unknown, 1975

lists with details

Latex Allergy Links - Spina Bifida
Links to latex allergy sites on the Internet, particularly those pertaining to spina bifida.
http://latexallergylinks.tripod.com/sb.html
BrainTalk Communities - Spina Bifida
Threads in Forum spina bifida, Forum Tools, Search this Forum Seeking information on spina bifida. bmc79. 0728-2005 1145 PM
http://brain.hastypastry.net/forums/forumdisplay.php?f=235
Spina Bifida Connection - Powered By VBulletin
Message forum to discuss related issues with others.
http://spinabifidaconnection.com

Extractions: Welcome to the Spina Bifida Connection. This discussion forum hopes to connect people who are in some way affected by spina bifida and it's related conditions. If this is your first visit to our community, be sure to check out the FAQ by clicking the link above. You will have to register before you can post. Don't worry, registration is free and fairly painless. Click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Forum Last Post Threads Posts Neighborhood Corner Say hello, share a story, or tell a joke. This is the area to stop by and chit chat. Welcome Mat! (2 Viewing) Please come in and introduce yourself! Hello, I'm New Here by 18 Minutes Ago The Playground You finally have a place to share that funny email, tell a new joke, or share your latest story! Mothers Of Handicapped Kids by 22 Hours Ago Spina Bifida Health related discussions about all topics related to spina bifida. Bowel and Bladder Can There Ever Be Dry Days...
ClinicalTrials.gov - Information On Clinical Trials And Human Research Studies:
Search results for spina bifida ALLFIELDS are shown below. Recruiting, Genetics of spina bifida Condition spina bifida
http://www.clinicaltrials.gov/search/term=Spina Bifida
AZSBA
Programs include housing, urinary supplies, and free cycles.
http://azspinabifida.org

Extractions: *Notice: The information provided here is for informational, educational and entertainment purposes only. It is not intended to replace, and should not be interpreted or relied upon as, medical or professional advice. Your use of this site means that you agree to the terms and conditions detailed in our SB FACTS Welcome Baby Housing CRS Lunch Urinary Supplies ... En Espanol
Spina Bifida
national and international spina bifida resources, support groups, genetic clinics with genetic counselors and geneticists.
http://www.kumc.edu/gec/support/spinabif.html

Extractions: Telefon (0231) 86 10 50-0 - Telefax (0231) 86 10 50-50 Scottish Spina Bifida Association Also See: National organizations information on genetic conditions or birth defects Anencephaly information Arnold Chiari Malformation Association Association for Spina Bifida and Hydrocephalus of England Associazione Piemontese Spina Bifida e Idrocefalo , Italy Arbeitsgemeinschaft Spina bifida und Hydrocephalus (ASbH e.V.), Germany
Standing Frames, Standers, Assistive Technology Made By Altimate Medical
Standers and mobility aids for persons with cerebral palsy, muscular dystrophy, spina bifida, and multiple sclerosis.
http://www.easystand.com

Extractions: The Ovation Strap Stand is different from other Altimate Medical standers. It is considered a "sit to stand" stander even though a padded strap lifts the user into the standing position instead of seat. Here is how it works: the user places the strap underneath their buttocks, positions their wheelchair so their feet and knees are secure in the Ovation, attaches the strap to the Ovation's lifting arms, and pumps up to standing! It is ideal for nursing homes, rehab facilities, and individuals who do not require a lot of additional support options. Ovation Strap Stand Altimate Medical's new EasyStand Evolv with Shadow Support Tray option follows and supports the user in all positions from sitting to standing. As the user rises to the standing position, the tray and chest pad follow, creating a "shadow" effect. EasyStand Evolv Shadow Support Tray Visit our Booth at Medtrade in Atlanta Attend a Standing 101 Seminars in Your Area New EasyStand Evolv - literature now available. ... Demonstration models for sale at reduced prices- Contact Kevin Markgraf for details 800-342-8968 ext. 32 "Standing is important to me because of the physical, cognitive, and emotional benefits it provides. Physically, standing helps my bones, muscles, posture, and circulation. It also is a pain management strategy and benefit for me. Mentally and emotionally, standing helps me because I am not sitting all the time. I am able to look at people in the eyes while I am standing and I feel delighted to be on my feet."
Disability Awareness Kit
spina bifida is a developmental defect which occurs within the first six weeks of pregnancy, Many children with spina bifida attend regular preschool,
http://www.openroad.net.au/access/dakit/physical/phhandout4.htm

Extractions: Physical Disability SECTION HOME Spina Bifida is a developmental defect which occurs within the first six weeks of pregnancy, caused possibly by a combination of genetic and environmental factors. Some of the spinal bones which normally protect and cover the delicate nerves of the spinal cord do not close. Consequently the spinal nerve tissue protrudes through this gap and forms an open swelling on the back. This could occur anywhere from the back of the head to the lowest part of the spine. Even though surgery at birth closes the gap, the damage to the spinal nerve tissues can never be repaired. The degree of paralysis will depend on the extent of damage to the spinal cord and the position of the lesion. Usually there is some paralysis and loss of sensation in the legs and lower trunk. This could result in: a need to use a mobility aid such as callipers, crutches, a walking frame, walking sticks or a wheelchair various degrees of bowel and bladder incontinence. There are several methods available to manage this problem.
Massachusetts Spina Bifida Association
Sponsors social events, clothing and equipment program and scholarships. Includes map to locate other members.
http://www.msbaweb.org/

Extractions: Jump to the Links Page The MSBAYA Planning Committee needs your help! With the recent growth in MSBAYA membership and participation, the MSBAYA Planning Committee is looking for volunteers to assist with activities including coordinating events, transportation, flyer preparation and moderating its online Yahoo!Group
InteliHealth: Spina Bifida
InteliHealth Featuring Harvard Medical School s consumer health information. For more than 550 diseases and conditions, learn What Is It?, Symptoms,
http://www.intelihealth.com/IH/ihtIH/WSIHW000/9339/9619.html

Extractions: Spina Bifida What Is It? Symptoms Diagnosis Expected Duration ... Additional Info What Is It? Meningoceles and myelomeningoceles may appear as saclike structures on an infant's back at birth. When most people refer to spina bifida, they are referring to the most severe form, myelomeningocele, which occurs in about one in 1,000 births.
Spina Bifida
Includes and updated directory of spina bifida associations, a glossary of It is important to understand the impact that spina bifida has on sexuality.
http://www.eplibrary.com/spinabifida/

Extractions: This revised edition is a comprehensive guide written for families and professionals who care for children, adolescents, and adults with spina bifida. While covering the key medical, habilitation, and emotional issues of each developmental stage, with special sections written for and by parents of children with spina bifida, it is balanced, accurate, and up to date, with positive and practical advice on daily living, family relationships, building a strong parent-professional partnership, education and work. Includes and updated directory of spina bifida associations, a glossary of useful terms, along with suggestions for further reading and more than 100 helpful line drawings, diagrams, and charts.
Spina Bifida
Article describes spina bifida, its symptoms, diagnosis, and treatment.
http://rarediseases.about.com/cs/spinabifida/a/101902.htm

Extractions: var zLb=13; var zIoa1 = new Array('Suggested Reading','Internet links on spina bifida','http://rarediseases.about.com/cs/spinabifida','Internet links on hydrocephalus','http://rarediseases.about.com/cs/hydrocephalus','Internet links on Chiari malformation','http://rarediseases.about.com/cs/chiarimalform'); var zIoa2 = new Array('From Other Guides','AFP Testing','http://pregnancy.about.com/cs/afp/'); var zIoa3 = new Array('Elsewhere on the Web','Spina Bifida Association of America','http://www.sbaa.org/','NINDS Spina Bifida Page','http://www.ninds.nih.gov/disorders/spina_bifida/spina_bifida.htm'); zJs=10 zJs=11 zJs=12 zJs=13 zc(5,'jsc',zJs,9999999,'') zfs=0;zCMt='a70' About Rare / Orphan Diseases Information by Disease Type Brain and Nervous System Spina Bifida Rare Diseases Essentials Rare Diseases: Basic Information Rare Diseases Support Groups ... Help zau(256,140,140,'el','http://z.about.com/0/ip/417/C.htm','');w(xb+xb+' ');zau(256,140,140,'von','http://z.about.com/0/ip/496/7.htm','');w(xb+xb); Sign Up Now for the Rare / Orphan Diseases newsletter!
SPINALCORD: Spina Bifida
The spina bifida Assoc of American promotes the prevention of spinal bifida and Part 1 Your Health Personal Care includes effects of spina bifida,
http://www.spinalcord.uab.edu/show.asp?durki=21760&site=1021&return=24203
National Center For Medical Rehabilitation Research (NCMRR)
Funds research in the rehabilitation of impairment, disability and handicap; including that due to spinal cord injury, brain injury, stroke, amputation, cerebral palsy, spina bifida, and other disabling conditions.
http://www.nichd.nih.gov/about/ncmrr/ncmrr.htm

Extractions: History and Mission The National Center for Medical Rehabilitation Research (NCMRR) was established within the National Institutes of Health (NIH) by legislation (P.L. 101-613) passed in 1990. The Center is a component of the National Institute of Child Health and Human Development (NICHD). The mission of NCMRR is to foster development of scientific knowledge needed to enhance the health, productivity, independence, and quality of life of persons with disabilities. This is accomplished by supporting research on enhancing the functioning of people with disabilities in daily life. A primary goal of the Center is to bring the health related problems of people with disabilities to the attention of America's best scientists in order to capitalize upon the myriad advances occurring in the biological, behavioral, and engineering sciences.
OTdirect Occupational Therapy Revision Notes: Spina Bifida
Occupational Therapy Revision Notes spina bifida.
http://www.otdirect.co.uk/bifida.html

Extractions: Spina Bifida Please note: This is a basic revision aid, not a comprehensive and reliable statement of medical fact. These notes should not be used to guide treatment. For reliable information and advice, consult a qualified practitioner. Images on this page are used courtesy of the Association for Spina Bifida and Hydrocephalus (ASBAH) Spina Bifida is an umbrella term that covers three conditions of varying severity: Spina Bifida Occulta, Spina Bifida Cystica Menigocele and Spina Bifida Cystica Myelomenigocele. These are described in more detail below. Spina Bifida is a neural tube defect or spinal dysraphism a failure of normal closure of the neural tube during the development of the embryo. The other neural tube defect is anencephaly, but as this is fatal before or very shortly after birth, it has little relevance for occupational therapy. Spina Bifida Occulta , where there is only a minor deficiency of the posterior part of the vertebrae and no damage to the meninges or spinal cord. It presents no symptoms or difficulties in the vast majority of cases, though in some cases the spinal cord may become tethered against the vertebrae, with possible impairment of mobility or bladder control. This is often treated with corrective surgery. Often the only sign of spina bifida occulta is hair or a dimple at the site of the lesion. Many people live their lives unaware that they have the condition. Spina Bifida Cystica has two forms, both of which involve a blister-like sac on the back, where the meninges, or meninges and spinal cord, have ballooned out through the gap in the vertebrae:
Spina Bifida - Thames Valley Children's Centre
spina bifida. Boy self propelling wheelchair. spina bifida or split spine is a genetic birth defect that occurs when the fetus is only 2628 days old.
http://www.tvcc.on.ca/newdocs/spina.html

Extractions: Go To Top Spina Bifida or "split spine" is a genetic birth defect that occurs when the fetus is only 26-28 days old. The mother may not even know that she is pregnant yet. It is the second most common birth defect in man and occurs in one in every 750 babies born in Canada. The neural tube, or what will eventually develop into brain, spinal cord and vertebral column, fails to close completely, leaving an opening through which the spinal cord and/or the lining of the spinal cord may protrude. The spinal cord is the pathway for messages to be passed back and forth between the brain and different parts of the body. If the spinal cord is affected, there can be full or partial disruption of these messages. Therefore, paralysis and/or loss of sensation can occur to the areas affected, usually, but not always, below the level of lesion of the back. There can be "sparing" of some nerves, causing a confusing and mixed picture, ie., where one leg functions differently than the other. Infants often (80-90%) go on to develop hydrocephalus and may have other problems as they develop and grow.
Welcome
Features information about spina bifida and other disabilities.
http://webpages.charter.net/kpiskur/
Thames Valley Children's Centre - Spina Bifida - Spina Bifida...
whl_race.gif spina bifida or split spine is a genetic birth defect that occurs when the fetus is only 2628 days old. The mother may not even know that
http://www.tvcc.on.ca/gateway.php?id=31&cid=2
Spina Bifida Association Houston Gulf Coast
The Mission of the spina bifida Association is to promote the prevention of spina bifida and to enhance the lives of all affected.
http://www.sbahgc.org/

Extractions: and site news. The Mission of the Spina Bifida Association is to promote the prevention of spina bifida and to enhance the lives of all affected. Spina Bifida is the most common of the neural tube defects and is one of the most devastating of all birth defects. The National Institutes of Health state that Spina Bifida will occur in 1 of every 1000 births in the U.S. It occurs more frequently than Muscular Dystrophy and Multiple Sclerosis combined and cripples more children than Polio at its peak. It results from the failure of the spine to close properly during the first month of pregnancy. In severe cases, the spinal cord protrudes through the back and may be covered by skin or a thin membrane. Surgery to close a newborn's back is generally performed within 24 hours after birth to minimize the risk of infection and to preserve existing function in the spinal cord. Children born with Spina Bifida experience varying degrees of paralysis, loss of sensation in the lower limbs, difficulties with bowel and bladder, hydrocephalus, learning disabilities and latex allergies. The challenges brought about by Spina Bifida continue throughout life. To live independent and fulfilling lives, people with this birth defect may need extensive medical, psychological, and educational therapy.
SBA Of The Roanoke Valley
Resource for securing necessary care, equipment and training to meet the needs of members and others throughout Virginia.
http://www.sbarv.org/

Extractions: Contact Us! "Hope sees the invisible, feels the intangible, and achieves the impossible." - anonymous The Spina Bifida Association of the Roanoke Valley exists to provide encouragement, education and support for those living with spina bifida and their caregivers and families. We serve as the resource for securing necessary care, equipment and training to meet the needs of our members and others throughout Virginia who are living with spina bifida. Our membership includes children and adults with spina bifida and their caregivers, family, friends and others committed to making a difference in the lives of those with spina bifida. Date: Saturday, September 17, 2005 Time: 3:30 pm Place: Blue Ridge Independent Living Center in Roanoke, Virginia Directions Map Program: SBAA National Conference Recap, updates on how to help the SB Community affected by Hurricane Katrina, as well as some time for support discussion. Complete SBARV Meeting and Events Calendar Telephone (Voice Mail): +1 (540) 342-1231, Ext. 4010

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