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Spina Bifida:     more books (100)

Children with Spina Bifida:A Parents' Guide by Edited by Marlene Lutkenhoff; R.N.; M.S.N., 2007-11-30 Christal: Coping With Spina Bifida by Karen Snyder Travis, 2001-05 Living with Spina Bifida: A Guide for Families and Professionals by AdrianM.D. Sandler, 2004-03-15 Living with Spina Bifida: Speaking Out About My Disability by Larry E. Appelmann, 2006-07-06 Spinabilities: A Young Person's Guide to Spina Bifida Spina Bifida (Genetic and Developmental Diseases and Disorders) by Stephanie Watson, 2008-09 The Official Parent's Sourcebook on Spina Bifida: A Revised and Updated Directory for the Internet Age Spina Bifida: Management and Outcome The teacher and the child with spina bifida by Elizabeth Pieper, 1977 Comprehensive Management of Spina Bifida by Harold L. Rekate, 1990-12-13 Caring for the Child With Spina Bifida: Shriners Hospitals for Children by John F., M.D. Sarwak, Shriners Hospitals for Children, 2002-01 I Have Spina Bifida (One World) by Brenda Pettenuzzo, David Purcell, et all 1987-10 Cody's Story: Living One Day at a Time with Spina Bifida by Janny J. Dicken, 2005-04-18 Prevention of Spina Bifida by Author Unknown, 1983-02-11

lists with details

1. IF - Home
   Its mission is to improve the quality of life of people with Hydrocephalus and spina bifida throughout the world. To decrease the prevalence of Hydrocephalus and/or spina bifida by primary prevention.  
   http://www.ifglobal.org/
   
   Extractions: welcome to our website. Please join the IF global network on Spina Bifida and Hydrocephalus. Sharing knowledge is the is the first step towards limiting the effects of a disability. Therefore we are updating this website regularly and setting up the IF-Knowledge Centre. Please transmit us all your ideas and experiences so we can make this knowledge available to the rest of the world. The Slovak Association for Spina Bifida and Hydrocephalus organises its 2nd conference in the very atractive mountains High Tatry (Vysoké Tatry) in a city Štrpské Pleso. This conference will be attended by IF’s president Pierre Mertens. Read a report by Andrej Drdul here 2nd Conference of Sexuality and Spina Bifida ASBIHP: 2nd conference on sexuality ASBIHP, the spina bifida and hydrocephalus association of Portugal, is going to organise the second National Conference on Sexuality and Spina Bifida, 26 November 2005 in Lisbon. The topics of this conference are, “Male Reproduction system and fertility”, “Female reproduction system and pregnancy”, “Spina Bifida and prevention” and “Incontinence and sexual relations”.

2. Spina Bifida - Keep Kids Healthy
   Information about the most common symptoms and treatment for children with spina bifida, or myelomeningocele.  
   http://www.keepkidshealthy.com/welcome/conditions/spinabifida.html
   
   Extractions: Recommend Us tell a friend about us or email this page to a friend Main Diseases and Conditions Spina bifida is a type of congenital malformation of the central nervous system. In its mildest form, spina bifida occulta , there is a malformation of the vertebral arches of the spinal cord without other problems. This occurs in 5% of the population and does not cause any symptoms or problems and no treatment is required. Some children with this disorder also have a patch of hair or skin discoloration on the skin of the lower back with the defect occurs. Children with spina bifida , or myelomeningocele also have a malformation of the vertebral arches of the spinal cord and they have abnormalities of the spinal cord, in which the spinal cord and nerve roots protrude out. The malformation is most commonly found in the lumbosacral area of the lower back, but it can occur anywhere along the spinal cord. Myelomeningocele occurs in about 1 per 1000 live births in the United States, and although the cause is not known, it does seem to run in certain families. The risk of having a child with myelomeningocele after having a previous child with this disorder is almost 3-4%. It is also known that the use of folic acid by pregnant women, especially if started before conception, decreases the risk of having a baby with neural tube defects.

3. EMedicine Health - Spina Bifida Overview
   Consumer health resource center providing information on the causes, symptoms, and treatment.  
   http://www.emedicinehealth.com/articles/34669-1.asp
   
   Extractions: Spina bifida cystica (myelomeningocele): This is the most complex and severe form of spina bifida. Spina bifida cystica usually involves neurological problems that can be very serious or even fatal. A section of the spinal cord and the nerves that stem from the cord are exposed and visible on the outside of the body. Or, if there is a cyst, it encloses part of the cord and the nerves. This condition, which was documented 4000 years ago, accounts for 94% of cases of true spina bifida. Before antibiotics were available, most children born with myelomeningocele died soon after birth. Those who survived were severely disabled. With modern treatment, almost all children with myelomeningocele survive and most are able to live productive lives with some degree of independence. Even with these treatments, however, most have some degree of permanent leg paralysis and often difficulties with bowel and bladder function. The extent of paralysis depends on which part of the spinal cord is involved. The higher the defect on the body, the more severe the paralysis. About 80% of myelomeningoceles occur in the lumbar (lower back) and sacral (tailbone) regions of the spine. Spina bifida is one of the most common severe birth defects, historically occurring in 1 live birth per 1000 in the United States. The rates of spina bifida are higher in Hispanics and whites of European descent than in Ashkenazi Jews, Asians, and African Americans. Rates are also higher among mothers with certain health problems, such as diabetes or seizure disorders (taking certain anticonvulsants), and significantly higher among couples in which at least one has spina bifida, and among couples who have already had a child with spina bifida.

4. Redirection Vers Spina Bifida (Suisse)
   Site personnel, cr©© par les parents d'un enfant atteint de ce handicap. Suisse.  
   http://www.perso.ch/dupuism/

5. Spina Bifida Association:
   The Mission of the spina bifida Association of America is to promote the prevention of spina bifida and to enhance the lives of all affected.  
   http://www.sbaa.org/
   
   Extractions: You are invited to join us as we roast ABC News veteran Barbara Walters at the 17th Annual Roast for Spina Bifida on October 5 at the Hyatt Regency Washington on Capitol Hill. We will turn the tables on Ms. Walters as political leaders and personalities put her in the hot seat. Funds raised at this gala event will be used to promote the prevention of spina bifida and to enhance the lives of all affected. Purchase your ticket, table or become a sponsor of the 17th Annual Roast for Spina Bifida

6.      Spina Bifida Association Of Kentucky - Site Built And Managed By NextDo
   Educates, supports those affected, and strives to prevent the number one birth defect. Includes programs and member activities, a calendar of events, volunteer opportunities, a newsletter and membership information. Located in Louisville.  
   http://www.sbak.org/
   
   Extractions: Unfortunately computers, like other machines, sometimes break. If your computer stops working, and you need information recovered, NextDoor Networking offers disaster recovery . We attempt to burn your information from your damaged computer onto a CD for you. We also reinstall operating systems, cards, devices and the drivers that make them function. (Windows 95/98/ME fee applies) Our Mission The Spina Bifida Association of Kentucky educates, supports those affected, and strives to prevent the number one birth defect. E ducates, S upports, P revents We are a Kosair Charities supported agency! Thank you Kosair! Contact the webmaster Last modified: Thank you also to the WHAS Crusade for Children for supporting our On-Call Consultant!

7. Arbeitsgemeinschaft Spina Bifida Und Hydrocephalus E.V. (ASbH)
   Verband der Behindertenselbsthilfe f¼r Betreuung, Beratung, Information, Erfahrungsaustausch, Kontakte, Tagungen, Seminare, Freizeitangebote f¼r Betroffene mit spina bifida und/oder Hydrocephalus und Angeh¶rige.  
   http://www.asbh.de/

8. Colorado Spina Bifida Association
   Provides support, information, education, recreation, and advocacy.  
   http://www.coloradospinabifida.org/

9. Spina Bifida Association Of Greater New Orleans; Home Page
   Louisiana s constituency of the national organization. Contact, resource and membership information for individuals with spina bifida and their families.  
   http://www.sbagno.org/
   
   Extractions: Spina Bifida Association of Greater New Orleans Home Betty Matthews Page Newsletter Definition ... Links Last Updated: September 17, 2004 Webmaster: Brent W. Smith Post Office Box 1346 Kenner, LA 70063 Voice: (504) 737-5181 Fax: (504) 349-7931 E-mail: sbagno@sbagno.org T he Spina Bifida Association of Greater New Orleans , associated with the Spina Bifida Association of America ( http:www.sbaa.org ), is a tax exempt, non-profit organization made up of parents, family members, adults with Spina Bifida, and professionals who work together to assist those persons of the New Orleans area born with Spina Bifida and their families. The group is led by a dedicated Board of Directors who see to the day-to-day activities of the organization, and work diligently to aid its members. The SBAGNO is strictly a volunteer organization with no paid staff. Operating expenses are held to a minimum in order to provide quality services on a regular basis. Some of the services provided by the SBAGNO are as follows: Newsletter Annual Summer Camp for children 24 hour telephone answering service Meetings where knowledge of medical, educational, and social programs are shared

10. Spina Bifida Association Of America
    Promotes prevention of spina bifida and addresses needs of people affected.  
    http://tmsyn.an.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

11. Spina Bifida Association:
    Angie fountain The effects of spina bifida are different for every person. Up to 90 percent of children with the worst form of spina bifida have  
    http://www.sbaa.org/site/PageServer?pagename=about_sb

12. Spina Bifida
    Information, causes, and what it is like to have spina bifida.  
    http://www.kidshealth.org/kid/health_problems/bone/spina_bifida.html
    
    Extractions: Andrea is 12 years old and in the 6th grade. She likes to go swimming, play with her dog, and have friends over. She's been in three dance recitals, and she even received a standing ovation once. She's traveled to Canada and many places in the United States, and next summer she hopes to go to Scotland. When she's older, Andrea wants to be a chef. Like you, Andrea is interested in many things and can do a lot of stuff. What might be different from you, though, is the fact that Andrea can't walk. Andrea has spina bifida (say: spy -nuh bih -fuh-duh) and uses a wheelchair to get around. What Is Spina Bifida? Someone born with spina bifida has an opening in the spine. A healthy spine is closed to protect the spinal cord, a bundle of nerves that send messages back and forth between your brain and the rest of your body. The messages tell your muscles to move so you can kick a soccer ball or pick up a pencil. The messages also tell you about sensations on your skin , so you know to pull your hand away from a hot pot.

13. SBH Queensland
    Community organization site with information on spina bifida, hydrocephalus, occulta, education.  
    http://tmsyn.an.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

14. NINDS Forwarding Page
    spina bifida fact sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS).  
    http://www.ninds.nih.gov/health_and_medical/disorders/spina_bifida.htm
    
    Extractions: NINDS has redesigned its website and the URL for the page you were seeking has changed. The new URL for this page is /disorders/spina_bifida/spina_bifida.htm . Please update your bookmark to this page. You will be automatically taken to this page in 5 seconds, or you can click the link to go there now.

15. Spina Bifida And Hydrocephalus Association Of Nova Scotia
    Offers information, lists of members only resources, special events, and links to related sites.  
    http://www.chebucto.ns.ca/Health/SBANS/

16. Children With Spina Bifida A Resource Page For Parents
    This page is a compilation of information and resources intended to be a service to parents of children who have spina bifida.  
    http://tmsyn.an.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

17. Spina Bifida Information Page: National Institute Of Neurological Disorders And
    Information from the National Institute of Neurological Disorders and Stroke.  
    http://www.ninds.nih.gov/disorders/spina_bifida/spina_bifida.htm
    
    Extractions: There is no cure for SB because the nerve tissue cannot be replaced or repaired. Treatment for the variety of effects of SB may include surgery, medication, and physiotherapy. Many individuals with SB will need assistive devices such as braces, crutches, or wheelchairs. Ongoing therapy, medical care, and/or surgical treatments may be necessary to prevent and manage complications throughout the individual's life. Surgery to close the newborn's spinal opening is generally performed within 24 hours after birth to minimize the risk of infection and to preserve existing function in the spinal cord.

18. Spina Bifida Information Page National Institute Of Neurological
    Information about spina bifida by NINDS, the National Institute of Neurological Disorders and Stroke.  
    http://tmsyn.an.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

19. New URL - Children With Spina Bifida
    The Children with spina bifida Web Page has been moved to http//www.waisman.wisc.edu/~rowley/sbkids/. Please update your links and bookmarks.  
    http://www.waisman.wisc.edu/~rowley/sb_kids.htmlx

20. Disability Info Spina Bifida Fact Sheet (FS12)
    spina bifida  
    http://tmsyn.an.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

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