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Rombergs Syndrome: more detail

The Official Patient's Sourcebook on Parry-Romberg Syndrome: A Revised and Updated Directory for the Internet Age by Icon Health Publications, 2002-10
Beneficial effect of immunosuppressive drugs on Parry-Romberg syndrome: a case report and review of the literature.(Case Report): An article from: Southern Medical Journal by Cengiz Korkmaz, Baki Adapinar, et all 2005-09-01

lists with details

Health/Support Groups/Conditions And Diseases/Facial Differences/Parry-Rombergs
Stories from people affected by Parry Romberg syndrome, support and information.url www.cannylink.com/diseaseparryromberg.htm; Parry Romberg syndrome
http://www.thedoctorslounge.net/dir/Health/Support_Groups/Conditions_and_Disease
Neurology -- Sign In Page
ParryRomberg syndrome (PRS) is a rare neurocutaneous disorder characterized by ParryRomberg syndromeClinical characteristics of 205 respondents*
http://www.neurology.org/cgi/content/full/61/5/674

Extractions: This Article Abstract Figures Only Full Text (PDF) ... Alert me if a correction is posted Services Email this article to a friend Similar articles in this journal Similar articles in PubMed Alert me to new issues of the journal ... Download to citation manager PubMed PubMed Citation Articles by Stone, J. Related Collections All Clinical Neurology To view this item, select one of the options below: Sign In User Name Sign in without cookies.
Burn Support Groups Database
ParryRomberg s syndrome International Support Group. The Parry-Romberg s syndromeis a degenerative disease thats eats away the tissues, muscles and bones
http://www.burnsupportgroupsdatabase.com/files/south-af.htm
Burns/Disfigurement Etc. Support Group Database
ParryRomberg s syndrome. The Parry-Romberg s syndrome is a degenerative diseasethats eats away the tissues, muscles and bones of the face.
http://www.burnsupportgroupsdatabase.com/files/australi.htm
World Craniofacial Foundation
Parry Romberg syndrome, I am Marilyn Neal. I would like to make you aware of theRomberg s Connection Support Group.
http://www.worldcf.org/support_groups.cfm

Extractions: The World Craniofacial Foundation is dedicated to helping children and familes who experience deformities of the head and/or face by providing support and access to life-changing procedures. Reconstruct a face; create a new life. Today, we have the knowledge and technology to make these children look and feel normal. It is now possible to acheive excellent outcomes in the treatment of even the most complex craniofacial deformities. For the task ahead, support and participation is needed from all of us in order to transform the lives of those who need help.
Rocky Mountain News: State
ParryRomberg syndrome. What is it? A rare disease characterized by the slow Some doctors refer to the disease as Romberg syndrome, Romberg s, PRS,
http://www.rockymountainnews.com/drmn/state/article/0,1299,DRMN_21_3847292,00.ht

Extractions: Special reports In-depth and investigative reports from the pages of the Rocky Mountain News. Click here Denver Square See Colorado life through the pen of News editorial cartoonist Ed Stein. Click here . Stein also draws "Stein's View" for the opinion page. Click here. E-newsletters Sign up for daily e-News updates and receive the latest local news. June 11, 2005 WINDSOR - Kelley Sperry packed heavily so she could shine this weekend: Seven outfits for four days, including a new pink-and-white dress to wear with her first heels, which lift her only a nudge but still require practice so she won't stumble. There's also makeup to match every mood, along with three irons to curl her hair and another to straighten the waves, just in case.
Face Value
It was a challenge, because ParryRomberg syndrome is so rare that we don tlearn about it in medical school, says the Lithuanian-born family physician,
http://www.rd.com/content/openContent.do?contentId=15796
Welcome To The Romberg's Connection Guestbook
Comments Hello, Just found out today that I have Romberg syndrome and I had never heard of ParryRomberg syndrome. I was well informed by your site.
http://guestbooks.pathfinder.gr/read/rombergs01?pass=&page=1
Welcome To The Romberg's Connection Guestbook
Comments Hello, Just found out today that I have Romberg syndrome and found yourweb site because I wanted to know more. Thanks for all the effort put into
http://guestbooks.pathfinder.gr/read/rombergs01?pass=&page=0
Scleroderma (in Children)
Scleroderma (in children) Perry Romberg syndrome P Perry Romberg syndromefrom OMIM This syndrome, described in the last century by Perry (1825) and
http://ibis-birthdefects.org/start/sclerode.htm

Extractions: Scleroderma in childhood may occur as localized morphea, linear scleroderma, progressive systemic sclerosis or the CREST syndrome ... begin as areas of either increased or decreased pigmentation which are reddish at first and then become progressively hardened and "shrunken" ... no intervention is warrented unless the area of involvement overlies a joint ... progressive tightening of the skin and underlying tissues may produce flexion contractures ... Sclerodermatomyositis is an infrequent, but well - described entity ... characteristic changes of linear scleroderma accompanied by a dermatomyositis - like rash, weakness, and muscle inflammation ... Progressive systemic sclerosis and CREST syndrome are potentially severe, life threatening illnesses in children ...
Parry-Romberg Syndrome
Online. Founded 1997. Mutual support for persons affected by Parry Romberg ssyndrome (aka progressive facial hemiatrophy or Romberg s syndrome), a rare,
http://hw.healthdialog.com/kbase/shc/shc29par.htm

Extractions: Mutual support for persons affected by Parry Romberg's Syndrome (aka progressive facial hemiatrophy or Romberg's Syndrome), a rare, genetic disorder, their families and friends. Aim is to locate affected persons and offer strength, hope, courage and friendship. Pen pal program online and via mail. Some face to face meetings. Phone support network in U.S. Future newsletter planned. The above information is based upon information available through the "verified" date at the end of each listing. Since American Self-Help Group Clearinghouse's resources are limited; it is not possible to keep every entry in the American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information. For additional information and assistance about self-help groups, please contact the American Self-Help Group Clearinghouse in Cedar Knolls, New Jersey, by email at: info@selfhelpgroups.org
Medical Science: Reference, Search & Databases
Resources for Chronic Fatigue syndrome (CFS) Fibromyalgia (FMS) RombergsDisorder * Schizophrenia New 1/6/98 * Shy Drager * Silicone Related
http://graham.main.nc.us/~bhammel/med.html

Extractions: Any sugesstions for additions to this page are welcome. I've tried to weed out crackpot left and right nonscience and pseudoscience while retaining alternative points of view in terra incognita. Quackery is, I hope, avoided while not throwing out possibly cutting edge advancements. This amounts to judgment call on my part; I'm not infallible. Medical science, in spite of over 4000 years of physicians, has gotten real only within the past 150 years. Though the body of medical knowledge is now staggering, it is still only in its infancy. As in physics, the hardest of hard sciences, despite the number of answers, they are outweighed by questions and unknowns.
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Translate this page The summary for this Korean page contains characters that cannot be correctly displayed in this language/character set.
http://www.chi2ko.com/tool/yixue-1.htm

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