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Rombergs Syndrome:     more detail

The Official Patient's Sourcebook on Parry-Romberg Syndrome: A Revised and Updated Directory for the Internet Age by Icon Health Publications, 2002-10 Beneficial effect of immunosuppressive drugs on Parry-Romberg syndrome: a case report and review of the literature.(Case Report): An article from: Southern Medical Journal by Cengiz Korkmaz, Baki Adapinar, et all 2005-09-01

lists with details

41. Sickkidslinks
    rombergs syndrome Anon fiberous dysplagia Matt crohns ChinaRose Endometrosis Kristie KleinLevin syndrome Shirley  
    http://hometown.aol.com/sharonw1124/page15.html

42. LOG OPENED Wed Jan 13 190005 1999 - Participants Disabled
    Kaz Has anyone got Parry rombergs syndrome here? Its quite rare. eve in ithink communications is the key In my hubby does not treat me any differant  
    http://www.disabilities-r-us.com/meetings/view/01-13-1999.txt
    
    Extractions: *** LOG OPENED: Wed Jan 13 19:00:05 1999 - Participants: disabled ChanServ (nanook@eskimo.com) Lily Lonewolf Mooooooo (azdse@uswest.net) deadheadf - *** In has joined #Disabled-RT *** T_J has joined #disabled-rt *** MsAmazin has joined #disabled-RT *** cher has joined #disabled-rt *** sweet-e has joined #Disabled-RT *** HelloKit has joined #Disabled-RT ok are e ready to begin? yep yes yes Being disabled effects everything we do, who we are and how we handle our lives. When the disability is present most of our lives, we often enter into relationships with all the problems out front so to speak. For discussion's sake, let's divide our relationships into 3 groups: a: family b: friends c: mates 1. If your disability has been present for most of your life: Has it effected your family life? What has the effect been on friendships-harder to make friends? Have you been able to find a mate or does your disability prevent this? Let's start at the beginning Those of you that have had a disability for life how has it effected your family life *** wacky has joined #Disabled-RT over protection parents?

43. Home Health Support Groups Conditions And Diseases
    Apert Syndrome, Cleft Lip and Palate, Craniosynostosis, LangerGiedion Syndrome,Parry-rombergs syndrome, Stickler s Syndrome, more  
    http://www.weisspinselaffen.de/EN/Health/Support-Groups/Conditions-and-Diseases/

44. PillSupplier.com - Health Resources "P"
    Paroxetine Parryrombergs syndrome Passive-Aggressive Pathological Gambling Pathology Pathology Patient Patient Education Patient Education  
    http://www.pillsupplier.com/dir/index_P.html

45. Excite Italia - - P > Conditions And Diseases > Health (Directory)
    Parryrombergs syndrome@ ( 4) Passive-Aggressive Personality Disorder@ ( 5)Patellofemoral Disorder@ ( 7) Pathologic Nystagmus@ ( 6)  
    http://www.excite.it/directory/Health/Conditions_and_Diseases/P

46. RockyMountainNews.com
    HI SWEETIE, I AM THE MOTHER OF A CHILD WITH rombergs syndrome. I have readyour article your mom sent me on the Parry Romberg Syndrome and your story.  
    http://cfapp.rockymountainnews.com/kelley/messages.cfm
    
    Extractions: Click here Beyond the mirror Click Here to enter a message. Sort messages by: Sender To: Kelley From: Sarah Hi kelley!! I have had parry-romberg since I was 2. I know what it feels like to have people stare. However just keep in the back of your mind that God made you special for a reason. People stare because they are curious. You are a very beautiful girl. Keep your head high and always know that even though you may look different you a a person just like everybody else. Sarah Forrest Age 21 To: Kelley From: wkaresARK.-USA

47. Differences Facial Diseases And Conditions Groups Support Health
    LangerGiedion Syndrome (2). Parry-rombergs syndrome (4). Stickler s Syndrome (4).Treacher Collins Syndrome (6). Web Sites. Beneath the Surface - Offers  
    http://odp.webwombat.com.au/WW58483.HTM
    
    Extractions: Entertainment Finance Games Lifestyle ... Auctions You are here: Home / World Directory Daily Resources Holiday Ideas Daily Horoscopes Weather by the hour What's on TV ... Hot Links Web Wombat Advanced Submit a Site 20,000,000+ Australian Pages: Supporting Open Directory since 1999 World Directory Top Health Support Groups Conditions and Diseases

48. NORD - National Organization For Rare Disorders, Inc.
    rombergs Connection RothmundThomson syndrome Pages Sarcoidosis Online Sites Society for Progressive Supranuclear Palsy  
    http://www.rarediseases.org/nord/programs/links/disease

49. Rombergs Connection
    Our primary purpose is to locate other people with Romberg s syndrome, (alsoknown as ParryRomberg s syndrome or Progressive Facial Hemiatrophy ) and  
    http://www.pslgroup.com/dg/3d7b2.htm

50. Page 2
    Parryrombergs (rombergs) National Organization of Rare Disorders Online Mendelian NINDS rombergs Connection. Pfeiffer syndrome MacKenzie s Page  
    http://members.tripod.com/~Craniofacial/page2.htm
    
    Extractions: setAdGroup('67.18.104.18'); var cm_role = "live" var cm_host = "tripod.lycos.com" var cm_taxid = "/memberembedded" Search: Lycos Tripod Murderball Share This Page Report Abuse Edit your Site ... Next The Craniofacial Disorders indexed on this page are: Jackson-Weiss, Langer-Geidon, Parry-Rombergs, Pfeiffer, Pierre-Robin, Russell-Silver, Saethre-Chotzen, Sagittal Synostosis, Shprintzen-Goldberg, Stickler, and Treacher-Collins. Page 1 includes Antley-Bixler, Apert, Arhinia, Baller-Gerold, Carpenter, Craniosynostosis, Crouzon and Goodman. Jackson-Weiss

51. Canadian Directory Of Genetic Support Groups
    rombergs Connection (Parry Romberg syndrome) (Romberg syndrome) RubinsteinTaybisyndrome (Canada) (Rubinstein-Taybi syndrome)  
    http://www.lhsc.on.ca/programs/medgenet/r_sup.htm

52. Let's Face It: Resources For Specific Conditions
    Proteus syndrome. rombergs. Scleroderma. Sjogren s syndrome. Stickler. TMJ.Treacher Collins syndrome. Trigeminal Neuralgia. Vascular Birthmarks  
    http://www.faceit.org/spc_org.html

53. Neuro
    Call for Abstracts First International Angelman syndrome Medical and ScientificSymposium rombergs Disorder Sensation Disorders Sensation Disorders  
    http://www.fortunecity.com/roswell/spells/260/neuro.html

54. 04.26.2004
    Romberg syndrome. Romberg s syndrome, anyone(art1995) rombergs DisorderNeurologyWebForum Page Romberg s disease-complications(abs1995)  
    http://genetics.rusmedserv.com/catalog/syndlist/
    
    Extractions: E-mail: A B C D ... Z A Aase syndrome Aase syndrome - Pediatric Encyclopedia Acanthosis Nigricans Acanthosis Nigricans Maligna-DermIS Online Atlas Acanthosis Nigricans Benigna-DermIS Online Atlas Achondrogenesis Achondroplasia Acrodermatitis Enteropathica Acrodysostosis Acromegaly Acromesomelic Dysplasia Acromicric Dysplasia ADAM COMPLEX

55. Ro : On Medical Dictionary Online
    RomanoWard syndrome Romanomermis Romberg Disease Romberg Facial Hemiatrophy rombergs Disease Rompun Rondex Rondomycin Roniacol Ronicol  
    http://www.online-medical-dictionary.org/ro.asp?q=~Ro

56. BrainTalk Communities - Moebius Syndrome
    Threads in Forum Moebius syndrome, Forum Tools, Search this Forum RepetitiveStrain Injury, Restless Leg syndrome, rombergs Disorder, Schizophrenia  
    http://brain.hastypastry.net/forums/forumdisplay.php?f=177

57. BrainTalk Communities - Ramsey Hunt Syndrome
    Threads in Forum Ramsey Hunt syndrome, Forum Tools, Search this Forum Repetitive Strain Injury, Restless Leg syndrome, rombergs Disorder, Schizophrenia  
    http://brain.hastypastry.net/forums/forumdisplay.php?f=219

58. Abortion Abortion (spontaneous) Abortion Habitual Abortion
    syndrome romanoward syndrome romberg atrophy romberg disease romberg facial romberg s disease romberg s syndrome romberg s trophoneurosis rombergs  
    http://www.sims.berkeley.edu/~rosario/is290/tables/Sensitive_Diseases_names_from
    
    Extractions: renal failure chronic uremia renal failure following crushing injury renal failure secondary to liver disease renal failure secondary to liver disease hepatorenal syndrome renal failure syndrome renal failures renal glucosuria renal glycosuria renal hyperchloremic acidosis renal hypertension renal hypertensions renal insufficiencies renal insufficiency renal insufficiency acute renal insufficiency chronic renal insufficiency syndrome renal medullary necrosis renal neoplasia renal neoplasm renal neoplasms renal oculocerebrodystrophy renal osteodystrophies renal osteodystrophy renal papillary necrosis renal papillitides renal papillitis renal papillitis necrotising renal papillitis necrotizing renal rickets renal sclerosis renal shutdown acute renal stone renal stones renal syndrome renal thrombotic thrombocytopenic purpura 2 12

59. COST Of Testing For Fragile X Syndrome ? - BrainTalk Communities
    What is the usual fee charged for the Fragile X syndrome test(s)? RepetitiveStrain Injury, Restless Leg syndrome, rombergs Disorder, Schizophrenia  
    http://neuro-mancer.mgh.harvard.edu/ubb/Forum245/HTML/000031.html

60. NBCCS/ GORLIN SYNDROME MEETING - BrainTalk Communities - Neurology
    Medical Conferences and Meetings NBCCS/ GORLIN syndrome MEETING RepetitiveStrain Injury, Restless Leg syndrome, rombergs Disorder, Schizophrenia  
    http://neuro-mancer.mgh.harvard.edu/ubb/Forum187/HTML/000017.html

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