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Rombergs Syndrome:     more detail

The Official Patient's Sourcebook on Parry-Romberg Syndrome: A Revised and Updated Directory for the Internet Age by Icon Health Publications, 2002-10 Beneficial effect of immunosuppressive drugs on Parry-Romberg syndrome: a case report and review of the literature.(Case Report): An article from: Southern Medical Journal by Cengiz Korkmaz, Baki Adapinar, et all 2005-09-01

lists with details

21. Health/Conditions And Diseases/P -- The Doctors Lounge(TM)
    Parryrombergs syndrome@ 4; Passive-Aggressive Personality Disorder@ 4;Patellofemoral Disorder@ 5; Pathologic Nystagmus@ 5  
    http://www.thedoctorslounge.net/dir/Health/Conditions_and_Diseases/P/index.cgi

22. CleftClub.com - Cleft Lip & Palate Support Group And Information Center - Web Li
    Support site for those facing the conditionCategory Main/Other Craniofacial Conditions/Parryrombergs syndrome The Romberg s Connection  
    http://www.cleftclub.com/modules.php?name=Web_Links&l_op=viewlink&cid=51

23. Friendly Faces :: Resource Links
    NORD Entry for Oral Facial Digital Syndrome. PARRYrombergs syndrome The Romberg sConnection NORD Entry for Parry-Romberg Syndrome. PIERRE ROBIN SEQUENCE  
    http://www.friendlyfaces.org/resources.html

24. CCDD: Physician: References: Links: Syndromes
    Romberg s Connection, An international support group made up of over 200 individualsand families whose lives are affected by rombergs syndrome  
    http://www.hopkinsmedicine.org/craniofacial/References/LinkList.cfm?Category=Phy

25. The Personal Side Of Craniofacial Differences
    JacksonWeiss; Langer-Geidon; Parry-rombergs syndrome; Pfeiffer Syndrome;Pierre-Robin Syndrome/Sequence; Saethre-Chotzen Syndrome; Sagittal Synostosis  
    http://members.tripod.com/~Craniofacial/
    
    Extractions: setAdGroup('67.18.104.18'); var cm_role = "live" var cm_host = "tripod.lycos.com" var cm_taxid = "/memberembedded" Search: Lycos Tripod Star Wars Share This Page Report Abuse Edit your Site ... Next This page is dedicated to all of the people whose lives are affected by Craniofacial Disorders. If you are one of these people - this page is for you. Please look upon this page as "yours." I will need assistance from everyone to help locate as many personal pages on these disorders as we can find. We are starting out with just 15 disorders, so please feel free to e-mail me with any craniofacial disorders that are not listed here. Thanks to all who have sent me links already. Page 1 Page 2 * Website updated March 18, 2002 *

26. Welcome To Friends' Health Connection - Friends' Make All The Difference
    Parry rombergs syndrome PelizaeusMerzbacher Pelvic Inflammatory Disease (PID)Pericarditis Perimenopause Peripheral Neuropathy  
    http://www.friendshealthconnection.org/illnesses.php

27. Craniofacial Anomalies
    Goodman Syndrome Page 2 Jackson – Weiss Langer – Geidon Parry – rombergs syndromePfeiffer Syndrome Saethre – Chotzen Syndrome Sagittal Synostosis  
    http://ibis-birthdefects.org/start/craniofa.htm

28. Facial Difference / Disfigurement / Scars Deformity - Dr.Bermant's Plastic Surge
    The Rombergs Connection http//www.geocities.com/HotSprings/1018/ internationalsupport group for people whose lives are affected by rombergs syndrome.  
    http://www.plasticsurgery4u.com/web_links_folder/facial_difference.html
    
    Extractions: Fax: (416) 650-5073 " Ability OnLine is an electronic mail system that connects young people with disabilities or chronic illness to disabled and non-disabled peers and mentors. This easy-to-use network gives "wings" to thousands of children and adolescents by removing the social barriers that can come with having a disability and illness, and by providing opportunities to form friendships, build self-confidence, exchange information, and share hope and encouragement through E-mail messages

29. All Showcase - Health Disease And Health Conditions
    Parryrombergs syndrome (4). Passive-Aggressive Personality Disorder (4).Patellofemoral Disorder (5). Pathologic Nystagmus (5). Pathological Gambling (28)  
    http://www.allshowcase.com/Health_and_Fitness/Conditions_and_Diseases/P/

30. Gigablast Search Results
    Paresthesia@ (2); Parkinson s Disease@ (92); Parryrombergs syndrome@ (4);Passive-Aggressive Personality Disorder@ (4); Patellofemoral Disorder@ (5)  
    http://dir.gigablast.com/Health/Conditions_and_Diseases/P/

31. The Info Service
    Rombergs Connection rombergs syndrome Smiles Spina Bifida Association ofAmerica Spina Bifida Association of Greater New Orleans  
    http://info-s.com/birthdefects.html
    
    Extractions: Info Service Categories all free arcade interactive art now ask the expert automobile computer problems e-text and e-books ebay site map entire subject list for kids! games and more! genealogy world great outdoors health and fitness history archive home decorating home pages plus icw info search it's fun law enforcement let's travel library of congress malls and stores meal time mega sites mega sports main page motorcycle my hobbies newstand our awards our home pets world programming random play reference desk say cheese software stop super sites the beatles the earth the military the outreach the web helper triplet color chart weather station what's new

32. FND / PEN Library Listing
    171, Craniofacial syndromes or anom, Parryrombergs syndrome, HTML (online). 172,Craniofacial syndromes or anom, Pfeiffer Syndrome, HTML (online)  
    http://fndfl.org/PEN/Library/library_COM_DEA.htm
    
    Extractions: FND / PEN RESOURCE LIBRARY LISTING OF PUBLICATIONS From "COMMUNITY AWARENESS" to "DEAF / DEAF-BLIND / DEAFNESS" Note: You can click on "Edit" and "Find" to search for key words. If you would like to "check out" item(s) from the FND / PEN library, and you live in Florida, place a checkmark next to the item(s) you want, then scroll to the bottom of the page. SUBJECT (first 30 characters) TITLE FORMAT Going Public: Introducing Your Child to the Community ARTICLE Going Public: Introducing Your Child to the Community ARTICLE Community Consolidated School Q & A: Has the "poisoned waters" doctrine of the 7th Circuit's 1991 decision, which gave hostile parents an "absolute veto" against a ...district...spread widely? ARTICLE Inclusive Recreation: At the Pool, Playground, Little League, or Ballet Lessons ARTICLE Community integration Beyond Benevolence: Creating a Community Where ALL Belong WORKSHOP Community integration Communitas Community Inclusion Series and Whole Community Catalogue CATALOG Community integration Mainstreaming Your Child FACT SHEET Community integration Materials on Integrated Education BIBLIOGRAPHY Resources and Reports on Community Integration BIBLIOGRAPHY Culturing Commitment ARTICLE Unfolding Capacity: People with Disabilities and Their Allies Building Better Communities Together

33. JustCan.com Disability Directory
    Paresthesia@ (2); Parkinson s Disease@ (78); Parryrombergs syndrome@ (4);Passive-Aggressive Personality Disorder@ (4); Patellofemoral Disorder@ (5)  
    http://directory.justcan.com/odpphp/odp.php?browse=/Health/Conditions_and_Diseas

34. Casa Limiar
    The children who now have come to CASA LIMIAR have many needs and concernsrombergs syndrome, Muscular Dystrophy, epilepsy, hearing loss, congenital birth  
    http://www.limiar.org/our_work/projects/CasaLimiar_000.html
    
    Extractions: Casa Limiar Sao Paulo In September 2003, the first child entered CASA LIMIAR, a home for 15 abandoned and/or disabled children in Sao Paulo city.  That date marked the culmination of a dream that began 21 months earlier: to create a home for the most forgotten child and to nurture and nourish until he has reached his physical potential, seeing that a future with promise lies ahead. The home is located in the southern part of the city.  It contains 5 bedrooms, 4.5 bathrooms, living room, dining room, and more plus a beautiful yard with fruit trees, singing birds and even an occassional small monkey!  Our vision had been to rent a house, but  because of the generosity of many, we were able to puchase this building and property!  The last several months have been spent in modifications to the building - widening doorways and walkways, lowering sinks, mounting handrails and window protection, and building ramps at entrances. The children who now have come to CASA LIMIAR have many needs and concerns: Rombergs Syndrome,  Muscular Dystrophy, epilepsy, hearing loss, congenital birth defects such as club feet or open palate.  Each child sees various medical specialists, some need surgery, some need therapies, some need special classes at school...but each needs a chance to be a child.  What we do for our children, we will do for these children.  There will be birthday parties, outings to the zoo and beach, summer camps, Sunday School attendance, school uniforms and supplies, good manners taught and encouragement given. The objective is to put them on the parth to good health, education and independence  with the knowledge that God loves them and that God's people care for them.

35. Opera Directory
    Craniosynostosis LangerGiedion Syndrome Parry-rombergs syndrome Stickler s Syndrome Moebius Syndrome support, information and resource site.  
    http://portal.opera.com/directory/?cat=58483

36. HEALTHMEDNET ILLNESS DISEASE URL DIRECTORY
    Parryrombergs syndrome http//directory.ansme.com/health/168.html. Parry-RombergsSyndrome (4) http//directory.google.co.nz/Top/Health/  
    http://www.healthmednet.com/PARE-PEP.htm

37. The World Diseases A 2 Z Names By Countrylinks And Dr Impex
    Parryrombergs syndrome. Patellofemoral Disorder. Pathological Gambling Robinow Syndrome. Rocky Mountain Spotted Fever. Romberg s Syndrome. Rosacea  
    http://www.countrylinks.biz/diseases.htm
    
    Extractions: Country Links Dr Impex free on-line Services Note: search with CTRL + F A Aarskog Syndrome Aase Syndrome Abetalipoproteinemia Ablepharon-Macrostomia Syndrome Achilles Tendonitis Achondroplasia Acoustic Neuroma Acromegaly Activated Protein C Resistance Acute Idiopathic Polyneuritis ADD and ADHD Addiction and Recovery Addison's Disease Adiposis Dolorosa Adjustment Disorders Adrenoleukodystrophy Agnosia Agoraphobia Aicardi Syndrome AIDS Alagille Syndrome Albinism Alcoholism Alexander Disease Alkaptonuria Allergies Alopecia Alpers' Disease Alpha1 Antitrypsin Deficiency Alport Syndrome Alstrom Syndrome Alternating Hemiplegia Altophobia Alzheimer's Amblyopia Amputee Amyloidosis Amyoplasia Congenita Amyotrophic Lateral Sclerosis Anal Fissures Anemia Anencephaly Aneurysm Angina Pectoris Anophthalmos Anorexia Anosmia Anterior Knee Pain Syndrome Antiphospholipid Syndrome Anxiety Aortic Valve Disease Apert Syndrome Aphasia Aplastic Anemia Apnea, Sleep Appendicitis Arrhythmia Arteriohepatic Dysplasia Arthritis Arthrogryposis Asbestosis Asperger's Syndrome Aspergillosis Asthma Atherosclerosis Athlete's Foot Atrial Fibrillation Attachment Disorder Attention Deficit Disorder Autism Auto Immune Disorders Aviophobia Aviatophobia B Bacillary Angiomatosis Back Disorders Bad Breath Balanitis Baldness Barth Syndrome Bassen Kornzweig Syndrome Batten Disease Beckwith-Wiedemann Syndrome Behcet's Syndrome Bell's Palsy Benign Breast Lumps Benign Prostatic Hyperplasia Berger's Disease Beriberi Beryllium Disease

38. ScienceDaily -- Browse Topics: Health/Support_Groups/Conditions_and_Diseases/Fac
    Parryrombergs syndrome Smith-Magenis Syndrome Stickler s Syndrome Moebius Syndrome - Moebius Syndrome support, information and resource site.  
    http://www.sciencedaily.com/directory/Health/Support_Groups/Conditions_and_Disea
    
    Extractions: Text Size A A A Front Page ... Conditions and Diseases : Facial Differences Symbols Can Help Children Control Impulses, Get More Of What They Want (September 8, 2005) full story NASA's Deep Impact Team Releases First Snapshot Of Comet Tempel 1 (September 7, 2005) Science and presented at the Division for Planetary Sciences meeting. Peter Schultz, professor of geological sciences at Brown University, was a co-investigator on the mission team. full story Flipped, Expelled, Copied, And Shrunk: Researchers Document Dramatic Genome Alterations During Primate Evolution (September 6, 2005) Genome Research presents a series of studies that provide insight into the evolution and variation of primate genomes. The issue will appear online and in print on September 1, concomitant with the publication of the chimpanzee genome sequence in the journal Nature full story Big Differences In Duplicated DNA Distinguish Chimp And Human Genomes (September 2, 2005)

39. Discovery Health :: Infopop :: Community
    No New Content, Discussion Topic Need help in getting Perry rombergs syndromeRecognised! firehotsw23, 0, 156. 0405-05 0429 PM  
    http://community.discovery.com/groupee/forums/a/frm/f/585109341
    
    Extractions: Search current forum only Advanced Search New Since your Last Visit Today's Active Topics in this Category Help ... Login/Join Welcome, Logout Topic Topic Starter Replies Views Rating Last Post Breast Reduction Post Op Problems auntilu document.write(''+ myTimeZone('Fri, 19 Aug 2005 16:33:02 GMT-0700', '08-19-05  07:33 PM')+''); 08-19-05 07:33 PM

40. CleftClub.com - Cleft Lip & Palate Support Group And Information Center - Web Li
    Crouzon Syndrome, · Crouzon Syndrome. · Parryrombergs syndrome, · Pierre Robin.· Temporo-Mandibular Joint Syndrome - TMJ, · Treacher Collins Syndrome  
    http://cleftclub.com/modules.php?name=Web_Links&l_op=viewlink&cid=7

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