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Rett Syndrome:     more books (46)

Your Daughter Has Been Diagnosed With Rett Syndrome by Kim Isaac Greenblatt, 2006-01-01 Understanding Rett Syndrome: A Practical Guide for Parents, Teachers, And Therapists by Barbro Lindberg, 2006-05-15 Pathways to Learning in Rett Syndrome by Debbie Wilson, 1998-05-01 The Rett Syndrome Handbook by Kathy Hunter, 2007-01 The RETT Syndrome handbook, in Words You Can Understand from Those Who Understand by Kathy Hunter, 1999 Rett Syndrome - Clinical and Biological Aspects: Studies on 130 Swedish Females (Clinics in Developmental Medicine (Mac Keith Press)) Rett Syndrome - A Medical Dictionary, Bibliography, and Annotated Research Guide to Internet References by Health Publica Icon Health Publications, 2003-11-13 The Making of a Syndrome: The Case of Rett Syndrome (Genetics and Society) by Katie Featherstone, Paul Atkinson, 2011-04-28 The Official Parent's Sourcebook on Rett Syndrome: A Revised and Updated Directory for the Internet Age by Icon Health Publications, 2002-11-18 The Rett syndrome Rett Syndrome: Therapeutic Interventions Rett Syndrome Medical Guide by Qontro Medical Guides, 2008-07-09 Autism: Asperger Syndrome, Fragile X Syndrome, Hyperlexia, Rett Syndrome, Sensory Integration Dysfunction, Autism Therapies Genetic Test for Rett Syndrome Now Available.: An article from: Family Practice News by Barbara Baker, 1999-12-01

lists with details

1. Rett Syndrome Information And Resources
   rett syndrome International rett syndrome Assoc (IRSA) offers family resources and support, research, information, discussion forum, publications,  
   http://www.rettsyndrome.org/
   
   Extractions: Thursday September 08, 2005 International Rett Syndrome Assn Care Today...Cure Tomorrow As the most comprehensive worldwide organization dedicated to Rett syndrome, the International Rett Syndrome Association proudly continues its 21st year providing important programs of: I nformation IRSA has disseminated timely, accurate, objective information on Rett syndrome throughout the world to people who need information and resources and to researchers who can make a difference R esearch IRSA has lobbied for nearly $55 million in medical research and directly funded $4 million in scientific research solely on Rett syndrome, including the important gene discovery and the new IRSA MECP2 Mutation Database and InterRett - IRSA Phenotype Database. S upport IRSA provides books and materials, annual conferences, regional seminars, quarterly newsletters, a website with more than 2 billion hits last year, RettNet, a toll free help line, a listening ear and a caring heart so you know you are not alone

2. Rett Syndrome Research Foundation: Welcome
   Promotes biomedical research for the treatment of rett syndrome, often misdiagnosed as Autism and Hypotonia. Offers detailed information, links, studies, support groups, and information on the rett syndrome gene MECP2 recently discovered.  
   http://www.rsrf.org

3. Rett Syndrome
   Facts and various information containing links.  
   http://expage.com/page/curerettnow

4. NINDS Forwarding Page
   An in depth look at this syndrome prepared by the National Institute of Neurological Disorders and Stroke (NINDS).  
   http://www.ninds.nih.gov/health_and_medical/pubs/rett.htm

5. Home
   The rett syndrome Association UK, a registered charity, is dedicated to the support of girls and women, together with their families and carers,  
   http://www.rettsyndrome.org.uk/
   
   Extractions: Rett syndrome is a complex neurological disorder. It affects mainly girls . Although present at birth, it becomes more evident during the second year. It could occur in any family at any time. Something goes wrong with the genetic makeup of the cells which become the baby. Whilst there is variability in the severity of the disorder, most people with Rett syndrome are profoundly and multiply disabled and highly dependent on others for all their needs throughout life. We are a national charity . We offer information, advice, practical help, friendship and support to people with Rett syndrome, their families and carers We rely almost entirely on donations and grants for our income R egistered charity no: 327309

6. Center For The Study Of Autism
   The Autism Research Institute distributes an information packet on rett syndrome.  
   http://www.autism.org/rett.html
   
   Extractions: Center for the Study of Autism, Salem, Oregon Rett Syndrome was first recognized by Andreas Rett in 1966 and is a neurological disorder affecting primarily females. Autopsies on the brains of these individuals indicate a pathology different than autism; however, children afflicted with Rett Syndrome often exhibit autistic-like behaviors, such as repetitive hand movements, prolonged toe walking, body rocking, and sleep problems. The prevalence of Rett Syndrome is similar to the prevalence of autism; that is, estimates are between 1 in 10,000 births and 1 in 15,000 births. Typical characteristics: In most cases, there is a regression in cognition, behavior, social, and motor skills throughout their lifetime.

7. Rett Syndrome Association Of Illinois
   State organization that provides support for those affected by this neurological disorder that occurs predominantly in girls. Includes an events calendar, programs and services, and contacts.  
   http://www.rettillinois.org/

8. Rett Syndrome Parent
   Contact and help for parents of a child with rett syndrome.  
   http://www.webspawner.com/users/rettsyndromeparent/

9. Rett Syndrome Information And Resources
   Information about rett syndrome and the IRSA.  
   http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

10. Rett Syndrome Fact Sheet National Institute Of Neurological
    More about rett syndrome Studies with patients Research literature Press releases. Disclaimer Search NINDS (help) Contact Us My Privacy  
    http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

11. Rett Syndrome Information Page: National Institute Of Neurological Disorders And
    rett syndrome information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.  
    http://www.ninds.nih.gov/disorders/rett/rett.htm
    
    Extractions: Rett syndrome is a childhood neurodevelopmental disorder that affects females almost exclusively. Loss of muscle tone is usually the first symptom. Other early symptoms may include problems crawling or walking and diminished eye contact. As the syndrome progresses, a child will lose purposeful use of her hands and the ability to speak. Compulsive hand movements such as wringing and washing follow the loss of functional use of the hands. The inability to perform motor functions is perhaps the most severely disabling feature of Rett syndrome, interfering with every body movement, including eye gaze and speech. Is there any treatment?

12. Rett Syndrome Information Page National Institute Of Neurological
    Information in rett syndrome, treatment and prognosis.  
    http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

13. Rett Syndrome - Description, Links And Books
    , Links and Booksrett syndrome  
    http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

14. Rett Syndrome
    The Autism Research Institute distributes an information packet on rett syndrome.  
    http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

15. Helping Girls With Rett Syndrome Improve Growth / February 23, 1999 / News From
    February 23, 1999. News from the USDA Agricultural Research Service.  
    http://www.ars.usda.gov/is/pr/1999/990223.htm
    
    Extractions: February 23, 1999 A long-running energy deficit may play a role in the hampered nutrition and growth caused by Rett Syndrome, according to studies by a pediatrician with the in Houston, Texas. Rett Syndrome, a debilitating disorder that strikes only girls, causes mental retardation and growth failure. There is no cure. The CNRC is a cooperative research facility run jointly by the USDA Agricultural Research Service and Baylor College of Medicine . The Rett studies were done by CNRC pediatric gastroenterologist Kathleen J. Motil, M.D, Ph.D.,and pediatric neurologist Daniel Glaze , M.D., of The Rett Center at Baylor College of Medicine. Motil, Glaze and colleagues compared the energy balancecalories consumed minus calories usedof healthy girls to those of children with Rett. The girls with Rett Syndrome had a positive energy balance, but it was lower than average for girls their age. It's possible this subtle, long-running energy deficit plays a role in slowing growth. Motil and her colleagues have been testing new therapies to help girls with Rett Syndrome. She has had success with a gastrostomy button. This surgically implanted device allows nutrients to be delivered to the body while the girls sleep. One patient, aged seven, increased her weight from 31 pounds to 48 in a year, allowing her to sit up for the first time.

16. San Diego Run For Rett
    A 5k charity run/walk in San Diego. Includes volunteer opportunities, registration details, stories of children suffering from rett syndrome,  
    http://www.sdrett.org

17. Rett Syndrome Research Foundation Welcome
    Promotes biomedical research for the treatment of rett syndrome, often misdiagnosed as Autism and Hypotonia. Offers detailed information, links  
    http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

18. Our Rett Syndrome Web Site
    rett syndrome is a neurological disorder occurring primarily in girls, Diagnostic Criteria (Required for the recognition of rett syndrome)  
    http://www.bundlings.com/irsg.htm
    
    Extractions: selectCSS(document.URL,1); Rett Syndrome: Main RS Site Index Calorie Boosters Claire's Story ... Tips document.write(''); Rett syndrome is a neurological disorder occurring primarily in girls, in which individuals exhibit reduced muscle tone, autistic-like behavior, stereotyped hand movements consisting mainly of wringing and waving, loss of purposeful use of the hands, diminished ability to express feelings, avoidance of eye contact, a lag in brain and head growth, gait abnormalities and seizures. Hypotonia (loss of muscle tone) is usually the first symptom. The syndrome was first recognized in 1966 by Dr. Andreas Rett, however it was not until a paper was published by Dr. Bengt Hagberg in 1983 that the disorder was made widely known in medical circles. The syndrome affects approximately 1 in every 10,000-15,000 live female births, with symptoms usually appearing in early childhood. Diagnostic Criteria: (Required for the recognition of Rett Syndrome) A period of normal development until between 6 - 18 months Normal head circumference at birth followed by a slowing of the rate of head growth with age (starting between 6 months and 4 years) Severely impaired expressive and receptive language Intellectual development appears to be severely delayed, but true intelligence is difficult to measure

19. Our Rett Syndrome Web Site
    Our rett syndrome Web Site  
    http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

20. Rett Syndrome Links
    rett syndrome Links. Similar Disabilities Angelman Syndrome This condition is very similar to rett syndrome, but can appear in boys, too  
    http://www.bundlings.com/rslinks.htm

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