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Neurofibromatosis:     more books (99)

Neurofibromatosis: Trusting God in the midst of NF by Renee B Wilson, 1999 Neurofibromatosis: A Handbook for Patients, Families and Health Care Professionals Neurofibromatosis - A Medical Dictionary, Bibliography, and Annotated Research Guide to Internet References by ICON Health Publications, 2004-02-13 Neurofibromatosis Type 1: From Genotype to Phenotype (Human Molecular Genetics) by MEENA UPADHYAYA, 1998-05-01 Neurofibromatosis: Phenotype, Natural History, and Pathogenesis (Johns Hopkins Series in Contemporary Medicine and Public Health) Neurofibromatosis (von Recklinghausen disease): Genetics, cell biology, and biochemistry (Advances in neurology) Neurofibromatosis Type I: From Genotype to Phenotype (Human Molecular Genetics) Living with Genetic Disorder: The Impact of Neurofibromatosis 1 by Joan Ablon, 1999-08-30 Neurofibromatosis Medical Guide by Qontro Medical Guides, 2008-07-09 Neurofibromatosis Type 1 - A Bibliography and Dictionary for Physicians, Patients, and Genome Researchers by Philip M. Parker, 2007-07-18 Neurofibromatosis Type II Neurofibromatosis Type I Neurofibromatosis Type 2 - A Bibliography and Dictionary for Physicians, Patients, and Genome Researchers by Philip M. Parker, 2007-07-20 21st Century Ultimate Medical Guide to Neurofibromatosis - Authoritative Clinical Information for Physicians and Patients (Two CD-ROM Set) by PM Medical Health News, 2009-05-30

lists with details

1. Neurofibromatosis, Inc.
   Support and information for those with neurofibromatosis.  
   http://www.nfinc.org/
   
   Extractions: Welcome to the Neurofibromatosis, Inc. (NF, Inc.) website. We are a national, tax-exempt, charitable organization whose mission is to create a community of support for those affected by NF, through education, advocacy, coalitions, and supporting research for treatments and a cure. We encourage you to explore our site, check back often, and contact us if you need further information.

2. Neurofibromatosis(Von Recklinghausen's Disease) MEDSTUDENTS-NEUROLOGY
   neurofibromatosis(Von Recklinhausen disease) A review of the most important aspects on physical examination, classification and treatment.  
   http://www.medstudents.com.br/neuro/neuro7.htm
   
   Extractions: NF is divided in two Types: Neurofibromatosis 1(NF1) is characterized by spots of increased skin pigmentation(café au lait spots), combined with peripheral nerve tumors and a variety of others dysplastic abnormalities of the skin, nervous system, bones, endocrine organs and blood vessels. Etiology The reponsible gene is located on the long arm of chromosome 17 Epidemiology Its incidence is 1 per 3.000 births and present in about 30 persons per 10.000 population. It is inherited as an autosomal dominant trait, but about 50 percent of cases arise as mutations. Pathology The peripheral nerve tumors of two types, schwannomas and neurofibromas. Both types of tumor occasionally become malignant. Clinical Manifestations The pigmented spots are irregular in shape with relatively even borders, vary in size, and are of brownish coffe color(café au lait). They are most proeminent over the trunk, in the axilla(axillary freckles), and about the pelve.

3. Index1
   Information about the UK Association, including family support, membership details and local group contacts.  
   http://www.users.zetnet.co.uk/neurofibromatosis/

4. British Columbia Neurofibromatosis Foundation -
   BCNF is a membership driven organization, which empowers individuals with NF and their families to reach their full potential by providing support, education and research funding.  
   http://www.bcnf.bc.ca
   
   Extractions: associated with Neurofibromatosis Type 1 This guide is designed to act as a resource for parents of children with both NF1 and learning disabilities – at all school ages. Whether your child is just entering kindergarten, or is into his/her high school years, you will find relevant material to address his/her educational needs in this guide. Cost $8.00 Canadian dollars per guide

5. Neurofibromatosis Clinics Association
   A nonprofit organization for people with NF and their families.  
   http://www.nfpittsburgh.org/

6. M. D. Anderson Cancer Center - Neurofibromatosis (NF) Clinic
   Information about neurofibromatosis and details of the center which provides diagnosis, treatment, patient education, and relevant research.  
   http://www.mdanderson.org/departments/neurofibrom/
   
   Extractions: Care Center Information A to Z Department List Breast Center Cancer Prevention Cardiopulmonary Gastrointestinal Genitourinary Gynecologic Oncology Internal Medicine Plastic Surgery Radiation Treatment Sarcoma Thoracic Alopecia Areata Angiogenesis Inhibitors Aplastic Anemia Basal/Squamous Cell Carcinomas Bladder Blood Stem Cell Transplant Bone Cancer Bone Marrow Failure (pediatric) Bone Marrow Transplants Brain Brain Tumors (pediatric) Breast Cancer Burkitt's Lymphoma Cancer Survivorship Carcinoid Tumors Cardiovascular Diseases Central Nervous System Cervical Chemoprevention Chest Wall and Sternal Tumors Childhood Cancers Colorectal Complementary/Integrative/Alt Med Dermatology - General Endometrial Esophageal Ewing's Sarcoma - pediatric Eye Cancers Eyelid/Orbital Tumors Fallopian Tube Germ Cell Tumors (pediatric) Gestational Trophoblastic Disease Graft Vs. Host Disease (GVHD) Head and Neck Cancers Hematologic Malignancies Hereditary Gynecologic Cancers Hodgkin's Disease Hodgkin's Disease (pediatric) Idiopathic Hypereosinophilic Synd Kidney Larynx Leptomeningeal Disease Leukemia Leukemia (pediatric) Liver Cancer Lung Lymphoblastic Lymphoma Lymphoma Lymphoma - Cutaneous T-Cell Mediastinal Tumors Medulloblastoma (pediatric) Melanoma Melanoma (eye) Melanoma (head and neck area) Mesothelioma Multiple Endocrine Neoplasias Myelodysplastic Syndrome Myeloma - Multiple Myeloproliferative Disorders Nasopharynx Neuroblastoma (pediatric) Neurofibromatosis (pediatric) Non-Hodgkin's Lymph. (pediatric)

7. Home Page - Neurofibromatosis Association Of Australia Inc.
   Support group for people with neurofibromatosis. Has a medical and scientific advisory board and close affiliation with similar NF groups overseas.  
   http://www.nfaa.org.au/

8. Neurofibromatosis Recklinghausen
   Om foreningen, kalender, sygdommen, butikken, kontakter og presseklip.  
   http://www.nfrecklinghausen.dk/

9. Neurofibromatosis European Associations
   Links to European neurofibromatosis laygroups.  
   http://www.neurofibromatosis-network.org/eur-ass.htm
   
   Extractions: Person of contact: Alena Petrakova, Tel. +0042 24 255 8433 Czech Republick Dansk Forening for Neurofibromatosis Recklinghausen Denmark Suomen Neurofibromatoosiyhdistys r.y. Finland Association Neurofibromatoses et Recklinghausen France Ligue Française contre les Neurofibromatoses France Neurofibromatose - Arbeitskreis Berlin/Brandenburg Germany Neurofibromatose Selbsthilfegruppen Germany Ireland's Web Centre Neurofibromatosis Ireland Associazione Neuro f ibromatosi Italy Lottiamo Insieme per la NeuroFibromatosi Associazione Italy Vereniging Ziekte von Recklinghausen of de Nederlandse neurofibormatose patiëntenvereniging Netherlands Norsk Forening for Nevrofibromatose Norway Association in Portugal

10. ::: Asociación Argentina De Neurofibromatosis
    Asociaci³n cuyo prop³sito es el estudio y la difusi³n de la enfermedad neurofibromatosis . NF1, NF2.  
    http://www.aanf.org.ar

11. The Children's Tumor Foundation Ending Neurofibromatosis (NF)
    Comprehensive information sponsored by the National neurofibromatosis Foundation for people with NF, and links to other sites.  
    http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

12. NF, Inc. Homepage - Ann-Marie Yest, M.D.
    NF1, which was known as Peripheral neurofibromatosis, is much more common than NF2. It occurs in 1/4000 births, whereas NF2 occurs in 1/40000.  
    http://www.nfinc.org/text/neuro1.html
    
    Extractions: Mary Ann Wilson: George Washington University Hospital still has its affiliation with Children's National Medical Center which is the pediatric unit of George Washington University. Our chapter has a long standing relationship with George Washington University. One thing you may have realized in thinking about medical care for someone with neurofibromatosis (NF) is that you might not really know when a neurosurgeon should be called in to be part of the team. We thought it might be helpful to know just what a neurosurgeon does. It is different with NF1 and different with NF2. Dr. Yost will be talking about both NF 1 and NF2. Dr. Yost: I want to thank you for the opportunity to pinch-hit for Dr. Martuza. He has some really big shoes to fill. I am not going to deal with the areas of genetic research and genetic therapy. I will just talk to you about what we as neurosurgeons have to offer for the patients with NF1 and NF2. I'll start with NF1. I assume that most of you are familiar with the criteria for diagnosis. NF1, which was known as Peripheral Neurofibromatosis, is much more common than NF2. It occurs in 1/4000 births, whereas NF2 occurs in 1/40,000. They both have an autosomal dominant form of genetic transmission. This means that a child has a 50% chance of inheriting the disease if one parent has it and that inheriting the gene definitely means getting the disease. The abnormality in NF1 is found on a very large gene on chromosome 17 which has a very high mutation rate. Although in both NF1 and NF2, 100% of the people who have the genes are affected by the disorder, there is a much higher degree of variability in the symptoms of NF 1, because the mutations can occur in different spots on the larger gene (variable penetrance).

13. The Children's Tumor Foundation: Ending Neurofibromatosis (NF) Through Research
    Comprehensive information sponsored by the National neurofibromatosis Foundation for people with NF, and links to other sites.  
    http://www.nf.org/

14. Neurofibromatosis Information Page National Institute Of
    neurofibromatosis information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS).  
    http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

15. The Children's Tumor Foundation: Ending Neurofibromatosis (NF) Through Research
    A nonprofit 501(c)(3) medical foundation, dedicated to improving the health and well being of individuals and families affected by the neurofibromatosis or  
    http://www.ctf.org/

16. Neurofibromatosis Webring
    Promotes education, enlightenment, and encouragement. Open to organizations, medical sites, and personal homepages. Sites pertaining to all aspects of the disorder are welcome, including associated conditions.  
    http://r.webring.com/hub?ring=neurofibroma&list

17. Neurofibromatosis Fact Sheet National Institute Of Neurological
    More about neurofibromatosis Studies with patients Research literature Press releases. Disclaimer Search NINDS (help) Contact Us My Privacy  
    http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

18. The Children's Tumor Foundation: Ending Neurofibromatosis Through Research
    From the laboratory to the bedside, breakthroughs in neurofibromatosis (NF) research by Foundationfunded scientists have revolutionized our understanding  
    http://www.ctf.org/research/
    
    Extractions: CTF funds scientific research, currently focusing on encouraging young investigators early in their careers to carve out a career in NF research. CTF convenes world-class meetings to bring together scientists to share ideas and scientific meetings and develop collaborations. CTF works closely with government funding agencies to share information and resources. Our efforts help secure special congressional NF research funds each year that make a real difference to the progress of research - $25 million in 2005!

19. Neurofibromatosis, Inc.
    Support and information for those with neurofibromatosis.  
    http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

20. MedlinePlus: Neurofibromatosis
    neurofibromatosis. From the National Institutes of Health; neurofibromatosis (National Institute of Children; neurofibromatosis (Nemours Foundation)  
    http://www.nlm.nih.gov/medlineplus/neurofibromatosis.html
    
    Extractions: Also available in: Spanish What is Neurofibromatosis? (Dolan DNA Learning Center) What Is NF? (Children's Tumor Foundation) Diagnosis/Symptoms Diagnosis of NF1 (Children's Tumor Foundation) Diagnosis of NF2 (Children's Tumor Foundation) Disease Management Managing NF1 (Children's Tumor Foundation) Managing NF2 (Children's Tumor Foundation) Specific Conditions Manifestations of NF1 (Children's Tumor Foundation) Manifestations of NF2 (Children's Tumor Foundation) (Children's Tumor Foundation) Schwannomatosis (Children's Tumor Foundation) Vestibular Schwannoma (Acoustic Neuroma) and Neurofibromatosis (National Institute on Deafness and Other Communication Disorders) Clinical Trials ClinicalTrials.gov: Neurofibromatoses

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