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Myalgic Encephalomyelitis:     more books (53)

Why Me?: My Journey From ME to Health and Happiness by Alex Howard, 2003-09-01 Diana's Story by Deric Longden, 1993-08-05 Chronic Fatigue, ME, and Fibromyalgia: The Natural Recovery Plan by Alison Adams, 2010-02-02 Reviving the Broken Marionette: Treatments for CFS/ME and Fibromyalgia by Maija Haavisto, 2008-05-12 M. E.: Chronic Fatigue Syndrome: A Practical Guide by Anne MacIntyre, Gill Jacobs, 2001 Post-Viral Fatigue Syndrome by Rachel Jenkins, 1991-05 Surviving M.E.: Practical Strategies for Coming to Terms with Chronic Fatigue (Positive Health) by Joyce E. Fox, 1996-05-02 Living With M.E. by Charles Shepherd, 2009-12-23 Chronic Fatigue Syndrome: Postviral Fatigue Syndrome - M.E. - Your Questions Answered by John Campling, Frankie Campling, 1998-04 Running on Empty: Practical Strategies for Coping with ME by Katrina H. Berne, 1995-09-28 Alternative approaches to ME

lists with details

61. CFS, CFIDS, Myalgic Encephalomyelitis (M.E.) Seminars
    Helpful information on Chronic Fatigue Syndrome (CFS), Chronic Fatigue and Immune Dysfunction Syndrome (CFIDS)-, and myalgic encephalomyelitis (ME)-related  
    http://chronicfatigue.about.com/od/seminars/
    
    Extractions: zJs=10 zJs=11 zJs=12 zJs=13 zc(5,'jsc',zJs,9999999,'') zfs=0;zCMt='a54' About Chronic Fatigue Syndrome / Fibromyalgia Chronic Fatigue Syndrome Seminars Chronic Fatigue Essentials What is Chronic Fatigue Syndrome? What is Fibromyalgia? ... Help zau(256,140,140,'el','http://z.about.com/0/ip/417/C.htm','');w(xb+xb+' ');zau(256,140,140,'von','http://z.about.com/0/ip/496/6.htm','');w(xb+xb); Sign Up Now for the Chronic Fatigue Syndrome / Fibromyalgia newsletter! See Online Courses Search Chronic Fatigue Syndrome / Fibromyalgia Helpful information on Chronic Fatigue Syndrome (CFS)-, Chronic Fatigue and Immune Dysfunction Syndrome (CFIDS)-, and Myalgic Encephalomyelitis (M.E.)-related seminars. Alphabetical Recent Up a category Advances in Understanding and Treating Chronic Fatigue Syndrome and Fibromyalgia Conference ... New York Times Company Hurricane Katrina About's Hurricane Blogs NY Times Coverage Where to Donate Exclusive: One Family's Story ... How to Explain to Kids Related Topics Thyroid Disease Sleep Disorders Exercise Walking Headlines Canadian Support Groups One of the most difficult things to deal with when confronted with a Chronic Fatigue Syndrome, Fibromyalgia, or Myalgic Encephalomyelitis (M.E.) diagnosis is finding the support you need.

62. A CALL FOR ACTION: THE RECOGNITION OF MYALGIC ENCEPHALOMYELITIS AS A SERIOUS AND
    A CALL FOR ACTION THE RECOGNITION OF myalgic encephalomyelitis AS A SERIOUS AND DEBILITATING DISEASE Petition, hosted at PetitionOnline.com.  
    http://www.petitiononline.com/MEitis/petition.html
    
    Extractions: A CALL FOR ACTION: THE RECOGNITION OF MYALGIC ENCEPHALOMYELITIS AS A SERIOUS AND DEBILITATING DISEASE View Current Signatures Sign the Petition To: United States Department of Health and Human Services, National Institutes of Health, and Centers for Disease Control We, the undersigned, respectfully demand that Myalgic Encephalomyelitis (ME), an internationally recognized neurological disease, be also formally recognized as a distinct clinical entity in the United States by the National Institutes of Health and the Centers for Disease Control. It is time to make the case definition/diagnostic criteria explicit in the name. Currently, most patients are diagnosed with Chronic Fatigue Syndrome, a poorly defined, misunderstood, controversial syndrome which remains underfunded and underresearched. The name Chronic Fatigue Syndrome itself has trivialized the illness and further subjected these patients to incredulity and ridicule. The CFS rubric has not only neglected and failed to help those with ME, it has harmed them. ME patients will not improve with cognitive behavioral therapy (CBT) or graded exercise (in fact, exercise will make them worse) - yet these are considered treatments for CFS. Simply "renaming" CFS will not solve this problem. ME should not be considered a subset of CFS, for the hallmarks of ME will not be present in the population of CFS patients once the Ramsay criteria are established in the US. Patients with Myalgic Encephalomyelitis under the CFS criteria must wait for six (6) months before acquiring a diagnosis, a critical period in which possible recovery is diminished by lack of proper treatment. The ME definition does not require a six month wait. (See Ramsay Definition at: http://www.egroups.co.uk/message/ME-itis_NOW/2.)

63. Myalgic Encephalomyelitis And Fibromyalgia (MEFM) Society Of BC
    Provides support for people with myalgic encephalomyelitis (chronic fatigue syndrome) and/or fibromyalgia. Offers public education through phone information  
    http://www2.vpl.vancouver.bc.ca/dbs/redbook/orgpgs/8/898.html
    
    Extractions: Provides support for people with myalgic encephalomyelitis (chronic fatigue syndrome) and/or fibromyalgia. Offers public education through phone information, newsletter, and educational materials. Also provides referrals to support groups and other community resources throughout BC. Membership is $25/year. Subject: EDUCATION (public awareness) , chronic fatigue EDUCATION (public awareness) , fibromyalgia INFORMATION AND REFERRAL , chronic fatigue syndrome INFORMATION AND REFERRAL , chronic fatigue syndrome , support groups ... Vancouver Public Library

64. Home
    The myalgic encephalomyelitis Association of Halton HamiltonWentworth is a charitable organization registered with Revenue Canada.  
    http://www.hwcn.org/link/mehhw/
    
    Extractions: We are a non-profit organization run by volunteers. We have been active in assisting and representing people with M.E. also known as Chronic Fatigue Syndrome. The Association raises funds, fosters and supports research and educates government representatives, medical and educational professionals, and the public on M.E., its debilitating effects, and on the concomitant social and economic consequences. We have an office in Burlington, Ontario. Our office is run by volunteers. We have many resources, such as books, copies of medical journals and magazine articles relating to this illness. Please phone before you drop in. Telephone FAX Postal address 2230 Mountainside Drive Unit 5 Burlington, Ontario , L7P 1B5, Canada Electronic mail General Information: me-cfs@hwcn.org

65. A Hummingbirds Guide To M.E. :: Information On Severe Myalgic Encephalomyelitis
    In short, myalgic encephalomyelitis (ME/ICDCFS*) is a debilitating acquired illness which has been recognised by the World Health Organisation (WHO) since  
    http://www.ahummingbirdsguide.com/
    
    Extractions: Home Hummingbirds A Million Stories Untold What is M.E.? ... The Guestbook Why this is a 'Hummingbirds' guide to M.E.... Because hummingbirds are tough little things with a lot more strength, bravery and determination than most people ever give them credit for - a lot like many of the people who have severe Myalgic Encephalomyelitis (M.E.) Why put together a website at all? The general public worldwide - including sufferers themselves - have been lied to repeatedly about the reality of Myalgic Encephalomyelitis. The idea behind this site was to try to create a guide to M.E. which doesn't just mindlessly repeat the same useless and inaccurate myths and propaganda again and again and instead focuses on the available facts: The fact is that there is now an abundance of irrefutable hard scientific evidence that proves beyond a doubt that M.E. is a severely debilitating (and potentially fatal) organic neurological illness that has occurred for centuries in both epidemic and sporadic forms. Enough evidence exists now to prove this literarally more than a THOUSAND times over.

66. A Hummingbirds Guide To M.E. :: Information On Severe Myalgic Encephalomyelitis
    Design 4 Justice for people with myalgic encephalomyelitis WHOICD-10 93.3 The idea that myalgic encephalomyelitis (ME) is a fatiguing illness is not  
    http://www.ahummingbirdsguide.com/activismgear.htm
    
    Extractions: Home Hummingbirds A Million Stories Untold What is M.E.? ... The Guestbook Activism gear - tell the WORLD about ME/ICD-CFS! Items available for purchase are stickers, bags, a variety of shirts, buttons, magnets, mousepads, journals and coffee mugs . Each item is available in a variety of different designs. Profits made on all items are marginal and 100% of what there is will go towards research into ME/ICD-CFS. These items are made available for sale by CafePress.com. As a general guide to pricing; stickers, buttons and magnets start at $1.50, t-shirts start at $10 and so on (prices quoted in US dollars.) See below for further purchasing information. These are the designs available so far, as you can see, each design comes in two colours: Special offer for May, 5$ off orders over $50, just quote the code below! List of available slogans/designs... Design 1: Fatigue Shmatigue: ME/ICD-CFS has nothing to do with 'fatigue' Design 2: F#*% 'fatigue': ME/ICD-CFS has nothing to do with 'fatigue' Design 3: Exercise 'improves' Myalgic Encephalomyelitis like eating cream buns 'improves' Diabetes. Design 4: Justice for people with Myalgic Encephalomyelitis WHO-ICD-10 93.3

67. Chronic Fatigue Syndrome / Myalgic Encephalomyelitis
    Full title Chronic fatigue syndrome / myalgic encephalomyelitis (or encephalopathy); diagnosis and management. The full scope for this guideline can be  
    http://www.nice.org.uk/page.aspx?o=111636

68. Chronic Fatigue Syndrome/Myalgic Encephalomyelitis Remit
    Chronic fatigue syndrome/myalgic encephalomyelitis remit. Chronic fatigue syndrome/myalgic encephalomyelitis remit Chronic fatigue syndrome/Myalgic  
    http://www.nice.org.uk/page.aspx?o=111641

69. Myalgic Encephalomyelitis Sufferers And Support
    Providing support, advice and information to those with ME as well as their carers families.  
    http://www.bordersdisabilityforum.org.uk/members/mess.html

70. MERGE - Myalgic Encephalomyelitis Research Group - Patient UK
    MERGE myalgic encephalomyelitis Research Group - Patient UK. A directory of UK health, disease, illness and related medical websites that provide patient  
    http://www.patient.co.uk/showdoc/27000345/
    
    Extractions: The primary aim of the Myalgic Encephalomyelitis Research Group for Education and Support (MERGE), a national UK charity, is to commission and fund biomedical esearch into the causes and treatment of ME/CFS and related conditions. They also provide high quality scientific and policy information on all aspects of the illness. On their website you will find research news, educational literature, and information.

71. CFS/ME Chronic Fatigue Syndrome / Myalgic Encephalomyelitis - Patient UK
    CFS/ME is a condition where you have longterm disabling tiredness (fatigue). Most people with CFS/ME also have one or more other symptoms such as muscular  
    http://www.patient.co.uk/showdoc/27000752/
    
    Extractions: Chronic Fatigue Syndrome / Myalgic Encephalomyelitis CFS/ME is a condition where you have long-term disabling tiredness (fatigue). Most people with CFS/ME also have one or more other symptoms such as muscular pains, joint pains, disturbed sleep patterns, poor concentration, headaches, etc. The cause is not known. Treatments which may help in some cases (but not all) include a programme of graded exercise, cognitive behaviour therapy, and 'pacing'. What is CFS/ME? CFS/ME is a condition that causes marked long-term fatigue and other symptoms (which are not caused by any other known medical condition). However, there is controversy about the nature of this condition. There is no test to diagnose the condition. The diagnosis is made in people who have a certain set of symptoms (which can vary in their type and severity). There is even controversy about what to call this condition. The term CFS is often used by doctors. This is because the main symptom is often fatigue and the condition is chronic (persistent). Also, there is no evidence of inflammation in the brain or spinal cord which is implied by the term encephalomyelitis.

72. Chronic Fatigue Syndrome (Myalgic Encephalomyelitis)
    Its full title is chronic fatigue syndrome/myalgic encephalomyelitis . What is fatigue? In normal circumstances the feeling of physical tiredness is  
    http://www.tiscali.co.uk/lifestyle/healthfitness/health_advice/netdoctor/archive
    
    Extractions: CFS/ME is a major world-wide public health problem. There are considerable difficulties in establishing good figures for the number of people affected, but accepting that the figures are approximate, the following generalisations can be made regarding the UK: CFS/ME affects between 2 and 4 people per 1000 of the population it affects people of all ages, including children as young as five years old the commonest age of onset is between the early twenties to mid-forties CFS/ME is diagnosed about twice as often in women compared to men it affects all social classes. There are therefore as many as 200,000 people with CFS/ME in the UK alone  a staggering number for a condition that has attracted so little serious enquiry until recently. Definitions From the point of view of conducting research on a condition, it is essential that agreement exists on what it is that is being studied, or conclusions made in one centre will have no relevance to anywhere else. Several groups around the world have therefore worked to produce definitions of CFS/ME that attempt to encapsulate the necessary features of the condition. The most widely used are those of the Centre for Disease Control (1994) in the USA, which are:

73. Managing Chronic Fatigue Syndrome (myalgic Encephalomyelitis)
    Managing chronic fatigue syndrome (myalgic encephalomyelitis). Written by Dan Rutherford, GP We don t know why people get CFS/ME, but it happens every day.  
    http://www.tiscali.co.uk/lifestyle/healthfitness/health_advice/netdoctor/archive
    
    Extractions: Accept the illness. Accept the equal importance of mind and body. Get connected to other people with CFS. Get a good doctor. Make sure family and friends understand CFS. Map out what you could do before CFS; compare it to what you can do now. Set priorities for improvement. Make a recovery plan. Sort out employment issues. Sort out pain control. Look at your illness beliefs and reactions. Allow time for relaxation. Consider complementary treatments.

74. Myalgic Encephalomyelitis
    Directory of charities and support organisations providing support and information on myalgic encephalomyelitis.  
    http://www.supportfind.com/category/Myal01.asp
    
    Extractions: Westcare UK was established in 1989 to provide specialist, high quality services for people with Chronic Fatigue Syndrome (CFS) also known as ME (Myalgic Encephalomyelitis). Westcare UK also provides services for health professionals involved in CFS/ME. These services have been highly valued by the people who have used them.

75. A New Siber Imaging Web Site Is Coming Soon!
    Providing patients nationally and internationally who suffer from Chronic Fatigue Syndrome, myalgic encephalomyelitis, Fibromyalgia, Adult ADD,  
    http://www.siberimaging.com/

76. Chronic Fatigue Syndrome - Myalgic Encephalomyelitis - Fibromyalgia - Neurothera
    Providing patients nationally and internationally who suffer from Chronic Fatigue Syndrome, myalgic encephalomyelitis, Fibromyalgia, Adult ADD,  
    http://www.siberimaging.com/about_us.asp?id=2

77. Chronic Fatigue Syndrome/Myalgic Encephalomyelitis
    myalgic encephalomyelitis (ME) is used in most other countries. It can be best understood when broken down into its individual parts.  
    http://www.nsnet.org/idacan/pain.html
    
    Extractions: Definition: Chronic Fatigue Syndrome (CFS) is one of fifty names for an illness that has caused suffering since the 1850s. Some other names for this illness are Chronic Epstein-Barr Virus Disease, Chronic Fatigue, and Immune Dysfunction Syndrome (CFIDS), and Post-Viral Fatigue Syndrome (PVFS). The emphasis is put on 'fatigue'. Chronic means ongoing and therefore refers to a fatigue that is long-lasting. The term Chronic Fatigue Syndrome is used primarily in North America. Myalgic Encephalomyelitis (ME) is used in most other countries. It can be best understood when broken down into its individual parts. As you look at the term it becomes clear that the emphasis is on the central nervous system. My - muscle itis - inflammation Neither term is satisfactory. People with CFS have many other symptoms contributing to their disability besides fatigue. Seldom is an infection in the brain found in those who have ME as was once suspected. CFS/ME affects thousands of men, women and children. The majority of sufferers seem to be women between the ages of 30 and 50. Generally these people are high functioning, productive individuals. There are some differences in how children of different age groups are affected by the illness. This topic is dealt with later.

78. Inclusive Technology - Myalgic Encephalomyelitis (ME)
    myalgic encephalomyelitis (ME). A medical condition effecting the immune and central nervous systems. The cause is not clear, but onset is linked in most  
    http://www.inclusive.co.uk/support/me.shtml
    
    Extractions: home catalogue search downloads ... support organisations A medical condition effecting the immune and central nervous systems. The cause is not clear, but onset is linked in most cases to an acute infection, although some people experience a slow insidious onset, and there is some evidence implicating various common viruses in the development of the syndrome. It is thought to effect 2-3 per 1000 of the population. Onset can occur at any age, but it is most common in persons aged 20-40 years, and in those whose employment exposes them to infection, such as health professionals. The person with ME experiences a disabling, exercise-induced muscle fatigue, muscle pain (myalgia), often severe, a 'flu-like' malaise, an abnormal exhaustion unrelieved by sleep, and various symptoms which indicate a disturbance in brain function (encephalitic symptoms), including loss of concentration and short term memory, dyslexia, nausea, clumsiness and disturbed balance, sensitivity to light and other problems with vision, sensitivity to noise, misjudgement of distance, and sometimes depression, mood swings, and problems with bladder control and bowel disturbance.

79. Discovery Home & Health Website
    Its full title is ‘chronic fatigue syndrome/myalgic encephalomyelitis’. What is fatigue? In normal circumstances the feeling of physical tiredness is  
    http://www.discoveryhealth.co.uk/encyclopaedia/default.asp?type=atoz&storyid=117

80. Myalgic Encephalomyelitis
    friendship, support and vital contact to children and young people with myalgic encephalomyelitis (ME); Daniela Busse s Home This site has a very good,  
    http://www.reference.com/Dir/Health/Conditions_and_Diseases/M/Myalgic__Encephalo

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