Health Library - 12.31.13.113/library/healthguide/enus/SelfHelp/to Web site InformationRosen, AC, Newby, R., Lubinsky, R., Saur, C. (1998) floating-harbor syndrome in CM, Rosen, AC, Newby, RF, and Lubinsky, MS floating-harbor syndrome in a http://12.31.13.113/library/healthguide/en-us/illnessconditions/topic.asp?hwid=n
CP References - Papers In Which CP Was Cited J Speech Hear Res 38 (6) 13031318 Dec 1995; Muir NY, Allard GB, Greenberg C.Oral language development in a child with floating-harbor syndrome. http://www.computerizedprofiling.org/references_papers.html
Extractions: email: help@computerizedprofiling.org Page last modified: August 05, 2004 Channell, R. (2003) Automated Developmental Sentence Scoring using Computerized Profiling software. Am J Speech-Language Pathology, 12, 3, 369-375 Chapman KL, Graham KT, Gooch J, et al. Conversational skills of preschool and school-age children with cleft lip and palate. Cleft Palate-Cran J 35: (6) 503-516 Nov 1998 Chapman KL, Hardin MA Phonetic And Phonological Skills Of 2-Year-Olds With Cleft-Palate Cleft Palate-Cran J 29: (5) 435-443 Sep 1992 Cochran PS, Masterson JJ Not Using A Computer In Language Assessment Intervention - In Defense Of The Reluctant Clinician Lang Speech Hear Ser 26: (3) 213-222 Jul 1995 Fey ME, Cleave PL, Long SH, et al. 2 Approaches To The Facilitation Of Grammar In Children With Language Impairment - An Experimental Evaluation J Speech Hear Res 36: (1) 141-157 Feb 1993
Links: - Alabama Council For Developmental Disabilities Kindler Syndrome An article and case study of this rare disease. FamilialDysautonomia Fanconi Anemia floating-harbor syndrome Friedreich Ataxia http://www.acdd.org/Links/conditions/Rare_Disorders.htm
Extractions: On this page: Cherubs - A non-profit support group for the families and medical care providers of children and adults born with Congenital Diaphragmatic Hernia. Contact a Family - Information about this organization as well as the CaF directory of specific conditions and rare disorders. Also details about the Rare Disorders Alliance - UK. Fibrous Dysplasia Support Online - For those seeking support and information concerning the rare bone diseases: fibrous dysplasia, McCune Albright Syndrome and Cherubism. Human Growth Foundation - Information about growth-related disorders through education, research, and advocacy. Member driven organization. International Rare Disease Support Network - A community providing more than a 1000 different links to support groups for the people of all nations. Kindler Syndrome - An article and case study of this rare disease. Includes links. National Organization for Rare Disorders, Inc.
Floating Harbor Syndrome / Family Village Library Web Sites. Floating Harbor syndrome Support Group of North America Floating Harborsyndrome Contact Group UK. Back to E - F. Family Village Home http://www.familyvillage.wisc.edu/lib_fharbor.html
Extractions: Web: http://hometown.aol.com/jdswanson/ The support group was founded when one mom contacted another mom whose child also had Floating Harbor Syndrome. Our desire is to help others find a diagnosis and to offer solutions that we have found helpful in dealing with our own kids who have this syndrome. Floating Harbor Syndrome Discussion Group A group open to anyone interested in sharing information and/or support for persons affected by "Floating Harbor Syndrome." Floating Harbor Group
Specific Diagnoses (E - F) Fibrodysplasis Ossificans Progressiva Fibromyalgia syndrome (FMS) Floating Harbor syndrome Fragile X syndrome FreemanSheldon syndrome http://www.familyvillage.wisc.edu/card_ef.htm
Floating Harbor Syndrome Support Group Of North America Floating Harbor syndrome is a rare genetic disorder that was named for the first two As there is no treatment per se for Floating Harbor syndrome, http://hometown.aol.com/jdswanson/
Floating Harbor Syndrome National network. Founded 1999. Provides mutual support and networking forparents of children with http://my.webmd.com/hw/health_guide_atoz/shc29flo.asp
Extractions: The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information. For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
Floating Harbor Syndrome Floating Harbor syndrome (FHS) is an extremely rare disorder characterized byshort stature, delayed http://my.webmd.com/hw/raising_a_family/nord934.asp
Extractions: Floating-Harbor syndrome (FHS) is an extremely rare disorder characterized by short stature, delayed language skills, and a triangular shaped face. A broad nose, deep-set eyes and a wide mouth with thin lips give an affected individual a distinct appearance. FHS was named after the hospitals at which the first two cases were seen: the Boston Floating Hospital and Harbor General Hospital in California. The cause of this disorder is not known. Resources
Extractions: Detail Sourcebook Listing Title: Floating Harbor Syndrome Support Group of North America Description: Provides mutual support and networking for parents of children with Floating Harbor syndrome. Newsletter, literature, phone support, photos of children with FHS. Scope: National network Founded: Address: c/o Deana Swanson
Floating Harbor Syndrome - [Support Group] This information is provided as a resource and does not constitute an endorsementfor any group. It is the responsibility of the reader to decide whether a http://www.bchealthguide.org/kbase/shc/shc29flo.htm
Extractions: var hwPrint=1;var hwDocHWID="shc29flo";var hwDocTitle="Floating Harbor Syndrome";var hwRank="1";var hwSectionHWID="shc29flo-Header";var hwSource="en-caQ2_05";var hwDocType="Shc"; This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site. National network. Founded 1999. The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information. For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
Hill Health Topics A-Z List: F : Support Groups Floating Harbor syndrome, Top. Floating Harbor syndrome Support Group FloatingHarbor syndrome. FO. FOD Family Support Group - Fatty Oxidation Disorder http://www.healthwise.net/hillhealth/Find/list.aspx?LETTER=F&FILTER=Support Grou
Extractions: Text Size A A A Front Page ... Genetic Disorders : Floating-Harbor Syndrome Mayo Clinic Develops New Coma Measurement System (September 8, 2005) full story Nitric Oxide Could Extend Fertility (September 8, 2005) Biochemistry , an American Chemical Society journal. full story UCLA Study Helps ER Physicians Identify Previously Undetectable Spinal Injuries (September 7, 2005) full story New Observations Show Dynamic Particle Clumps In Saturn's A Ring (September 6, 2005) full story Flipped, Expelled, Copied, And Shrunk: Researchers Document Dramatic Genome Alterations During Primate Evolution (September 6, 2005) Genome Research presents a series of studies that provide insight into the evolution and variation of primate genomes. The issue will appear online and in print on September 1, concomitant with the publication of the chimpanzee genome sequence in the journal Nature full story Discovery Will Aid Identification Of Misregulated Genes In Rett Syndrome (September 4, 2005)
Extractions: Text Size A A A Front Page ... Conditions and Diseases : Genetic Disorders Prions Rapidly 'Remodel' Good Protein Into Bad, Brown Study Shows (September 8, 2005) full story Detecting Brain Infections Without Surgery (September 7, 2005) full story Breast Cancer Gene Increases Risk Of Several Cancers In Men (September 6, 2005) Journal of Medical Genetics . The mutation in the BRAC2 gene may also increase the risk of bone and throat cancers, the data suggest. full story Study Reveals Genomics Of Inflammation From Severe Injury (September 6, 2005) full story Marijuana-derived Drug Suppresses Bladder Overactivity And Irritation In Animal Models (September 6, 2005) full story RNA Research Reveals New Responsibilities (September 6, 2005) full story Flipped, Expelled, Copied, And Shrunk: Researchers Document Dramatic Genome Alterations During Primate Evolution (September 6, 2005) Genome Research presents a series of studies that provide insight into the evolution and variation of primate genomes. The issue will appear online and in print on September 1, concomitant with the publication of the chimpanzee genome sequence in the journal
Health Library - Floating Harbor syndrome. Synonyms Disorder Subdivisions FloatingHarborsyndrome (FHS) is an extremely rare disorder characterized by short stature, http://yalenewhavenhealth.org/library/healthguide/en-us/illnessconditions/topic.
Floating Harbor Syndrome, Eastern Carolina Floating Harbor syndrome University Health Systems of Eastern Carolina servestarboro, ahoskie, edento, winsor, maxhead, dear county, outebanks counties http://www.uhseast.com/117686.cfm
Extractions: Information about national and local self-help organizations and support groups. This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site. National network. Founded 1999. The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information. For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
Floating Harbor Syndrome Synonyms, Eastern Carolina Floating Harbor syndrome Synonyms University Health Systems of Eastern Carolinaserves tarboro, ahoskie, edento, winsor, maxhead, dear county, http://www.uhseast.com/112884.cfm
Extractions: It is possible that the main title of the report Floating Harbor Syndrome is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report. Floating-Harbor syndrome (FHS) is an extremely rare disorder characterized by short stature, delayed language skills, and a triangular shaped face. A broad nose, deep-set eyes and a wide mouth with thin lips give an affected individual a distinct appearance. FHS was named after the hospitals at which the first two cases were seen: the Boston Floating Hospital and Harbor General Hospital in California. The cause of this disorder is not known. Human Growth Foundation
Floating Harbor Syndrome ThirdAid.com the world s first dedicated online patient to patient medical helpcommunity. http://www.thirdaid.com/conditions/Floating_Harbor_Syndrome.htm
Geneticalliance.org Floating Harbor syndrome Support Group of North America 160 Guild NE Grand Rapids,MI 49505 Phone 616.447.9175 Fax http://www.geneticalliance.org/ws_display.asp?filter=support_groups_by_disease&t
