Down's Syndrome Association Provides information, counselling and support for people with down s syndrome,their families and carers, as well as for professionals. http://www.downs-syndrome.org.uk/
UK Resources For Downs Syndrome A comprehensive set of addresses and links for down's syndrome on the web in the UK on the web. Includes links to government agencies, voluntary organisations and the full text of the 1996 Education Act. http://www.43green.freeserve.co.uk/uk_downs_syndrome/ukdsinfo.html
Extractions: Our kids' photos Memories If you are a new parent, MANY CONGRATULATIONS! You may find Welcoming Babies with Down Syndrome encouraging and useful. If you want to talk to fellow parents, try the UK DS e-mail list For members of the UK list and others, our kids' photos and members' contributions This is the main British organisation for DS. The headquarters is shown below, but there are local branches all over the UK, run by parent volunteers. Has expert advisers on tap, publishes newsletter and lots of leaflets/booklets/videos. It also includes people with DS on its board of trustees as it wants to become an organisation
Extractions: We are supporting The John Muir Trust This site provides essential information for healthcare professionals on 'best practice' medical care for people with Down's syndrome in the UK and Ireland. It has been produced by the UK Down's Syndrome Medical Interest Group (DSMIG), a network of doctors whose aim is to ensure equitable provision of medical care for all people with Down's syndrome in the UK and Republic of Ireland. The site includes: A medical library providing access to the full range of information developed specifically by DSMIG as well as selected information from other sources. DSMIG Information Resources , including: DSMIG's special insert for the parent held personal child health record ( PCHR ) - the Red Book - and the new UK Down's syndrome growth charts Guidelines for basic essential medical surveillance which set out a minimum standard of basic medical surveillance which we consider essential and realistically achievable within the framework of healthcare services in the UK and Ireland.
Angel Down Under Australian couple chronicles their experience raising a child with Angelman syndrome. Mailing list. General information. http://usrwww.mpx.com.au/~altona/
Extractions: BUPA Health insurance Financial protection Hospitals Care homes ... International cover Individuals Business Intermediaries Health professionals ... BUPA members Find local health and fitness facilities BUPA services around the world at bupa.com health information health factsheets Published by BUPA's Health Information Team June 2003 Carpal tunnel syndrome is a fairly common condition that occurs when there is too much pressure on a nerve in the wrist. There is usually aching, numbness or tingling in the thumb, some of the fingers and sometimes part of the hand. Carpal tunnel syndrome affects about 1 in 100 people at some point in their life. Men and women of any age can develop it, but it is most common in women in their 30s, 40s and 50s. Sometimes carpal tunnel syndrome is triggered by a persons occupation, and can lead to the person being unable to work. Most cases of carpal tunnel syndrome can be prevented by stopping or reducing the activity that stresses the fingers, hand, or wrist, or by changing the way in which activities are done. Where is the carpal tunnel?
Down's Syndrome Scotland down s syndrome Scotland aims to improve the quality of life for everyone in More babies with down s syndrome are born to younger than older women. http://www.dsscotland.org.uk/
Extractions: Jump to main content Need to speak to someone? Phone our information line 0131 313 4225 or email us Search for: Down's Syndrome Scotland aims to improve the quality of life for everyone in Scotland with Down's syndrome Define Down's syndrome . If you are looking for information or help, this site is a good place to start. Share views and experiences. Here are some quick links for... What's new...
Untitled Document Collaboration between the down's syndrome Association and St George's Hospital Medical School, University of London, has produced a comprehensive information resource, with particular emphasis on the ability of medical professions to empower their patients. http://www.intellectualdisability.info/
Down Syndrome - MayoClinic.com A description of the disease plus complications, risk factors, diagnosis and treatment. http://www.mayoclinic.com/home?id=5.1.1.4.5
Extractions: Affiliation to the Down's Syndrome Association applied for. New parents page STUDENTS AND RESEARCHERS PLEASE NOTE THAT WE ARE PRIMARILY A SUPPORT SERVICE FOR PARENTS IN LONDON, SO PLEASE FOLLOW OUR "LINKS TO OTHER DOWN'S SYNDROME SITES AND INFORMATION" BELOW FOR GENERAL INFORMATION ABOUT DOWN'S SYNDROME The Down's Syndrome Association London Branch was formed in June 2000 to try to meet the needs of a number of young children with Down's Syndrome and their families. Along with most other DSA branches we have now become a seperate entity as requested by the DSA this year. This will enable us to fundraise from sponsors who do not give to branches of national charities and handle our own financial affairs. If you are interested in helping us please contact. during awareness week last year. The exhibition is entitled "Shifting Perspectives" and shows work by seven London photographers whose children have Down's syndrome. This work offers alternative representations of both adults and children with Down's syndrome and challenges conventional attitudes and prejudices. It is hoped that the exhibition will tour the UK in 2004 Click to see more of the exhibition
Extractions: Registered Charity Number 1095603 Welcome to the website of the Lincolnshire Down's Syndrome Support Group This branch is a non-profit making organisation which exists to provide help, advice and support for people with Down's syndrome, their family and friends. The branch itself covers most of Lincolnshire. All of the committee are parent members and we are constantly on the lookout for new ideas and new members to help take the branch forward into the 21st century. The majority of the pictures on this site are of my daughter Danielle, though there are one or two pictures of other members' children. Please navigate the site using the buttons on the left. If you have the time please sign our guestbook. Steve B
New Home Page Offers support and information to families who have a member with down's syndrome and congenital heart defects. Forum and contact details. http://www.downs-heart.downsnet.org/
Extractions: The Down's Heart Group is a UK charity which offers support and information to families who have a member with Down's Syndrome and congenital heart defects On this site you will find information about heart defects, tests and procedures, and other topics of interest, as well as details of the support and information available from the Down's Heart Group Everyone involved with the Group is themselves a parent (if not natural, then foster or adoptive), or in a few cases a grandparent. We have all found it helpful to be in contact with other families, perhaps it would help you too. Contact Information If you feel we may be able to help you or someone you know, please contact us. Telephone FAX Postal address 17 Cantilupe Close United Kingdom Electronic mail Downs_Heart_Group@msn.com Mailing List You might like to subscribe to the Downs-Heart mailing list which is specifically for those interested in the heart problems associated with Down's Syndrome. Particularly useful for asking questions and sharing experiences with other families from all over the world.
GMDSA Home Page Provides information on down's syndrome and support to parents, carers and professionals. Online newsletter, and list of resources. http://members.aol.com/GMDSA/
Extractions: Reg. Charity 1061474 email us The Greater Manchester Branch of the Down's Syndrome Association, now has a presence on the World Wide Web. The GMDSA is a parent led support group to provide information for parents, carers and professionals on all matters concerning Down's syndrome. On our Web site you can: We are a group of parents who live in the Greater Manchester area. Most of us care for a child or adult who has Down's syndrome. We provide information and advice through our courses, newsletter and library. Social events for the family are arranged so that families can meet one another. Committee members meet regularly and anyone is welcome to attend and lend a hand. We can arrange for new parents to be introduced to other parents for advice or just a listening ear. Who's who and who we are Visitors since 23th June 1998 Web Search Engines Google Last updated 8th June 2002
Dsa-northeast.org.uk Branch of the down's syndrome Association offers parental counselling, subsidised leisure activities, Christmas parties and events, playgroups, and newsletters to people with down's syndrome, their families and their carers. http://www.dsa-northeast.org.uk/
PODS (Parents Of Down's Syndrome) Provides support, friendship and information for parents and carers of children with down's syndrome in Barnet and surrounding areas. Information on activities, stories, and contact details. http://www.pods.org.uk/
Ups And Downs A support group of parents of children with down's syndrome in Southampton. Information about activities and resources, with contact details. http://mysite.wanadoo-members.co.uk/UpsandDowns/
Initiative For People With Down's Syndrome Includes photos of children from around the world, and an online exhibition entitled Variety Enriches Our World. http://members.aol.com/InitiativeDown/index.htm
Extractions: Exhibition Gallery UPPS Initiative for people with Down's Syndrome Ultrasound picture of a child with Down's syndrome in the .week of pregnancy Initiative for people with Down's Syndrome Dr. med. Bernhard Möller und Isabella Möller Kiefernweg 26D - 33014 Bad Driburg Germany to the german version of this site I n December 1998 founded association in Germany, which wants to inform the public about and support people with Down's syndrome. D own's syndrome is no disease, but a variant of the human chromsomes with the chromosome 21 present in each cell three times (instead of otherwise twice). It is usually not hereditary, but emerged by chance. Children with Down´s syndrome show a slower development, which extent is individually different. No one knows, which possibilities of development exist with appropriate help. W e would like to encourage affected parents, to accept their child as it is, in order to say"Yes". We fight for these right to live and will never let the human dignity of our sons and daughters be undermind. We think it is not acceptable, that today in 98 % pregnancy is interrupted after prenatal diagnosis of down's syndrome.You must remember, that according to the law in Germany an abortion is possible from medical indication until the moment of birth.
Downs Syndrome Leicestershire Group Information about the support and advice network offered by this parents' group. Includes details of resources and services available to families affected by Downs syndrome. http://www.leicesterdownsgroup.co.uk/dsindex.html
Extractions: Home INFO Toy library Speech Therapy ... Links HOME PAGE The Leicestershire Downs Syndrome Group has recently become a charity in its own right. For over 20 years it was a branch member of the Downs Syndrome Association, a national charity with its Headquarters in London. Due to policy changes of the National group Leicester and many of its other 90 branches are now standing on their own two feet, whilst remaining affiliated to the Downs Syndrome Association. The Leicester group is run by a dedicated team of unpaid volunteers, mostly parents, but all who have a child with Down's Syndrome as a member of their family. The Leicester Group was founded in 1981 by a small group of mothers who met during the early days of their children's lives, to give each other the support, that was unavailable elsewhere. From there the group has grown to provide a large support and advice network to many families right across Leicestershire. Work is ongoing, as our volunteers strive to carry on providing the current services in place and aim to expand into the future with new projects.
Down Syndrome Webring CERI downs syndrome PageFeatures articles and interviews about the use of vitamins and supplements inmanaging the condition. http://www.webring.org/cgi-bin/webring?home&ring=downsyn
