Geometry.Net - Health_Conditions: Deafblindness

A-Z To Deafblindness
Understand more about deafblindness, and the people who live with it, includinginformation about how to communicate with a deafblind person.
http://www.deafblind.com/

Extractions: Please feel free to come in and browse around. Information About Deafblindness. The Deafblind Manual Alphabet. [D] A Person with a Red and White Cane is a deafblind person. Some other Resources on the net for Blind or Deaf people. You can also read A-Z to Deafblindness in French, German, Italian, Portuguese or Spanish. Go to AltaVista's Translator, and enter http://www.deafblind.com I would like to take this opportunity to welcome you to A-Z to Deafblindness, and to thank you for visiting my modest and humble little Web Page. So come on in and make yourself at home, you will be made very welcome. My name is James Gallagher and I am deafblind myself. This site is here to try and offer some help to Blind or deaf people, and especially deafblind people, and those who provide specialised services for those who are deafblind. A-Z to Deafblindness is also here, to make people more aware about deafblindness.
A-Z To Deafblindness
Understand more about deafblindness, and the people who live with it, including information about how to communicate with a deafblind person.
http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126
Information About Deafblindness
I would like to welcome you to this page of AZ to deafblindness, And thank you Now for the information which you have visited AZ to deafblindness for.
http://www.deafblind.com/info-db.html

Extractions: Information About Deafblindness. [D] The Deafblind Manual Alphabet. Hello There, It's James here, I would like to welcome you to this page of A-Z to Deafblindness, And thank you for being interested in finding out more about us, A special welcome to fellow deafblind people, blind, and of course our deaf friends as well. By coming to this particular page you must be interested in learning how we, the deafblind, communicate with each other, and to our family and friends and to the hearing seeing world which we all live in. I sincerely hope that with the information which is below you will, at the end of this page, become more aware about deafblindness, and perhaps you may have learned how to communicate to a deafblind person, or a deaf person when you meet them. A little info about me, My name is James Gallagher, and I live in the United Kingdom. I am totally blind and almost profoundly deaf. I have to wear two powerful hearing aids which are linked up to a piece of equipment called a "hearit". This equipment which is worn around my neck and is placed on my chest, amplifies the hearing aids which then in turn allows me to hear a little. If someone wishes to speak to me they have to speak directly into the "hearit". This method is cumbersome for them and me, but not everyone knows the deafblind manual and without my hearing aids I am totally deaf.
Dobrodosli / Welcome @ Dodir's Homepage
About Croatian deafblind people, news, information about deafblindness and Usher syndrome, photo album. Croatian, English
http://www.dodir.hr
A Deafblindness Web Resource
A deafblindness Web Resource. Welcome to A deafblindness Web Resource site. My name is James Gallagher and I am the owner of these pages.
http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126
A Deafblindness Web Resource
Welcome to A deafblindness Web Resource site. My name is James Gallagher and I There is little information available on the network about deafblindness
http://www.deafblind.co.uk/

Extractions: What's New Terminology Internet Resources Videos about Deafblindness. Service providers ... There is little information available on the network about deafblindness compared to that available about deafness or blindness.. The largest source of information is the DEAFBLND mailing list, but a few other sites have useful information. has put a lot of work in to make a WWW accessible archive of postings from the time that he joined the list. The official WWW accessible archives are now avialable at the hosting site, the Teaching Research Division of Western Oregon University going back to when Randy Klumph took over the list from Bob Moore. The revised announcement of the list describes how to join it, and what it covers, etc. There is now a copy of the DEAFBLND FAQ available for comment.
Sense - UK Deafblind Charity
Organisation for people who are deafblind or have associated disabilities.
http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126
Deafblindness Bibliography - Unsorted
Contains three programs produced as part of a deafblindness If I hear there is nothing on deafblindness in here I will remove this one.
http://www.deafblind.co.uk/biblio_unsorted.html

Extractions: Thank you to : leslieg@fstr.wosc.osshe.edu Martha Lewis Randy Klumph klumphr@fstr.wosc.osshe.edu and others for the information here. This is currently full of duplicates and possibly errors. Please let me have any corrections you may have. Thank you Title: ABLE STUDENT, ABLE TEACHER Author: Kinney, Richard (Deaf-Blind) Publication: (THE LION, March 1966, pg.8) Date: 1966 Description: Brief sketch of Richard Kinney's life. Title: ANECDOTES OF THE DEAF, DUMB AND BLIND Author: Chambers Miscellany. Publication: (CHAMBERS MISCELLANY, v.3, 1845, p. 32) Date: 1845 Description: Tells about James Mitchell, a deaf-blind man. Title: ART OF ADVERSITY Author: Gardner, Raymond. Publication: (NEW BEACON, v.LIV, no.636, April 1970, pp.89-90) Date: 1970 Description: A biographical sketch of Ronald Scriven, a deaf-blind man. Title: BECOMING A TEACHER Author: Adamescu, Vasile (Deaf-Blind) Date: 1991 Publication: (DEAF-BLIND EDUCATION, (January-June 1991):20-21) Desctiption: Vasile Adamescu is deaf and blind. This has not stopped his ambitions, and he is now a teacher in the school for blind children in Clui, Romania. Title: BEING DEAF-BLIND IS LIKE THIS Author: Sculthorpe, Arthur (Deaf- Blind)
The Usher Syndrome Page
An in depth article by Mary Guest, Head of Usher Services at Sense, about Usher syndrome. Includes detailed description of what it is, the symptoms, genetics, transmission, the problems associated with it and what can be done.
http://www.deafblind.com/usher.html

Extractions: What is it ? Usher syndrome is an inherited condition which results in hearing loss and a progressive loss of vision from Retinitis pigmentosa (RP). The hearing loss is thought to be congenital, and ranges from moderate to profound. RP can occur without hearing loss. The condition is named after a British ophthalmologist, C.H. Usher, who in a paper in 1914 described several cases in which the link between congenital deafness and RP was stressed. However, as far back as 1860 workers such as von Graef and Liebreich in Berlin were aware of the link between congenital deafness and RP, especially in consanguinous marriages. This term describes not one disease but a group of hereditary diseases of the retina. The retina is the light sensitive tissue inside the eye in which the first stages of 'seeing' take place. With RP the retina slowly degenerates and loses its ability to transmit pictures to the brain. In advanced stages characteristic clumps of pigment appear on the retina and can be seen through an ophthalmoscope.
Deafblind International Home Page
What is DbI? Management/Council What is deafblindness? Bibliographies DbI Members DbI Contacts DbI Review
http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126
DeafBlindInfo.org, Minnesota's Online DeafBlind Resource
Information on dual sensory loss of all kinds. Resource listings for Minnesota, the USA, and the world. Includes specialized consumer resource guides
http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126
DeafBlindInfo.org | Publications | FAQ
deafblindness is a combination of vision loss and hearing loss that prevents For individuals of all ages, deafblindness is a unique experience separate
http://www.deafblindinfo.org/FAQ.asp

Extractions: No. It is common for people who are DeafBlind to have some residual hearing and/or vision. Definitions Deafblindness is a combination of vision loss and hearing loss that prevents access to communication, the environment, and people. A person who is DeafBlind may or may not have other physical or cognitive disabilities; each individual is different. For individuals of all ages, DeafBlindness is a unique experience separate from Deafness and from Blindness. You can read more information in What is DeafBlindness?
Sense Scotland - The Helen Keller International Award
The Helen Keller award is a biannual award presented to the artist with the best submission, in any medium on the subject of deafblindness.
http://www.sensescotland.org.uk/helenkeller

Extractions: Skip to content Search this site: Back to navigation Dr Helen Keller, the deafblind woman known worldwide for her inspirational life and work, visited Scotland in 1933 with her teacher Anne Sullivan to accept an honorary degree from the University of Glasgow. On this trip she established a trust fund to be applied in the interests of deafblind people. Sense Scotland became trustees of this fund in 1989, transforming it from an annual essay competition, into the Helen Keller Award, a multi-media art competition open to professional and non-professional artists. Now coordinated biannually, the Award attracts an ever-increasing number of entries from artists across the world. The competition brief has always been a broad one - all work submitted should challenge perceptions of deafblindness. This is interpreted in many different ways, eliciting a diverse array of artwork in a broad range of media. It also includes the submission of work by artists who are deafblind themselves. The competition is unique in that the identity of artists remains undisclosed until after judging is complete - work is judged solely on its artistic merit.
Deafblind Children
Information and support for parents of deafblind children.
http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126
A Deafblindness Web Resource
Internet Resources relating to deafblindness. a copy of the DEAFBLND FAQ AZ to deafblindness An excellent UK site by James Gallagher, who is deafblind.
http://www.eng.dmu.ac.uk/~hgs/deafblind/

Extractions: This page will now be at http://www.deafblind.co.uk/index.html The remaining text will disappear as I find homes for it on the rest of my site. This page is not an official page of the hosting site, and is in no way endorsed by them. The information here is provided in good faith, but no liability will be accepted for loss or damage resulting from its use, by the author of this page or the hosting organisation. Corrections to inaccurate or obsolete information, and new items, are welcomed; please send them to Hugh Sasse . Thank you. contains downloadable .EXE files which unpack into documents, and references to other sources.
See/Hear Newsletters Index
Free newsletter for families and professionals on visual impairments and deafblindness. Articles on an array of topics, with extensive archives. English, Spanish
http://www.tsbvi.edu/Outreach/seehear/index.htm
Deafblind UK - Welcome
National charity providing support services to, and campaigning on behalf of, deafblind adults and their carers. Includes information about the
http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126
Deafblindness
deafblindness is a unique disability; it has its own concepts and Familyoriented,stories of other children with deafblindness, and links to various
http://www.pacifier.com/~mstephe/irddb.htm

Extractions: COMBINED HEARING AND VISUAL IMPAIRMENTS IN THE PEROXISOMAL BIOGENESIS DISORDERS One of the major effects of infantile Refsum Disease (as well as the other peroxisomal biogenesis disorders) is the combination of significant audiory and visual impairments. These sensory losses vary in severity from child to child, and these diseases do not necessarily lead to total deafness and/or total blindness. In fact, it is entirely possible that the child will retain some useful vision and hearing. However, in combination, these impairments of the distal senses cause serious developmental delay in the child; affecting cogntive and social development, orientation and mobility, and the acquistion of communication and language. The disabling condition caused by combined hearing and visual losses is deafblindness (or deaf-blindness, equally correct). A deafblind child cannot be thought of as blind and also deaf, nor as deaf and also blind. She is deafblind. Deafblindness is a unique disability; it has its own concepts and terminology, its own methods of assessment and education, and its own modes of communication which distinguish it from blindness and deafness understood separately. It is not a medical concept, the ophthalmologist and the audiologist observe within their respective spheres, and the strictly medical literature never refers to deafblindness. It's a developmental concept, and without it the nature of the disability cannot be understood.
Australian DeafBlind Council
Information on Usher's syndrome. Membership includes people with deafblindness, family, carers, support workers, professionals and service organisations.
http://home.connexus.net.au/~dba/
Welcome To Deafblind Scotland Website
About us What's new deafblindness Support Us Information. Text version Parliament debate deafblindness 9th March 2005 PDF, Video
http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

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