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Cystic Fibrosis:     more books (100)

Cystic Fibrosis (Genes and Disease) by Sharon Giddings, 2009-06-30 Cystic Fibrosis: A Guide for Patient and Family CF vs Us: The Story of a Battle Between a Family and Cystic Fibrosis by Karen Dohren, 2008-01-29 The Power of Two: A Twin Triumph over Cystic Fibrosis by Isabel Stenzel Byrnes; Anabel Stenzel, 2007-10-05 Taking Cystic Fibrosis to School by Cynthia S. Henry, Cynthia S. Henry, et all 2000-09 Understanding Cystic Fibrosis (Understanding Health and Sickness Series) by Ph.D.Karen Hopkin, 1998-07-01 Cystic Fibrosis: Everything You Need To Know (Your Personal Health) by Wayne Kepron MDFRCPC, 2004-01-29 Cystic Fibrosis: Handbook for Patient and Family Cystic Fibrosis (Oxford Respiratory Medicine Library) by Alex Horsley, Steve Cunningham, et all 2010-11-01 The Troubled Dream of Genetic Medicine: Ethnicity and Innovation in Tay-Sachs, Cystic Fibrosis, and Sickle Cell Disease by Keith Wailoo, Stephen Pemberton, 2006-04-20 Cystic Fibrosis: Etiology, Diagnosis and Treatments (Genetics-Research and Issues Series) Cystic Fibrosis by Margaret Hodson, Duncan Geddes, et all 2007-07-05 The Stones Applaud: How Cystic Fibrosis Shaped My Childhood by Teresa Anne Mullin, 2007-03-16 Cystic Fibrosis (Lung Biology in Health and Disease) by Davis, 1993-03-31

lists with details

161. Cochrane Cystic Fibrosis & Genetic Disorders Homepage
     An international network of health care professionals, researchers and consumers preparing, maintaining, and disseminating systematic reviews of randomised control trials in the treatment of cystic fibrosis and other genetic disorders.  
     http://www.liv.ac.uk/CFGD/
     
     Extractions: Cystic Fibrosis . Phenylketonuria . Sickle Cell . Haemophilia . Other Genetic Disorders Activities of the Group are co-ordinated by its Editorial Base, located within the Department of Child Health, University of Liverpool, United Kingdom. We very much welcome interest from new consumers, referees and potential reviewers. A list of our priority review titles can be accessed by clicking here . Further information can be found here or by contacting the group The Group has 52 reviews, 11 protocols and 6 titles published on Issue 3, 2005 of The Cochrane Library . The production of these reviews involves a network of 250 authors, consumers and referees throughout the world. Last reviewed 17 June 2002.

162. ClinicalTrials.gov - Information On Clinical Trials And Human Research Studies:
     Search results for cystic fibrosis ALLFIELDS are shown below. Conditions Bronchiectasis; cystic fibrosis; Pancreatic Insufficiency  
     http://www.clinicaltrials.gov/search/term=cystic fibrosis

163. Cystic Fibrosis Foundation Of St. Louis
     Contact and service information.  
     http://www.tenholder.net/gatewaycff/

164. Cystic Fibrosis Services, Inc. - Home
     A subsidiary of the cystic fibrosis Foundation and a national pharmacy that specializes in providing medications to individuals with cystic fibrosis (CF).  
     http://www.cfservicespharmacy.com/

165. UK Cystic Fibrosis Gene Therapy Consortium
     It was established in 2001 on the initiative of the cystic fibrosis Trust. The Consortium’s work is currently funded mainly by the cystic fibrosis Trust  
     http://www.cfgenetherapy.org.uk/
     
     Extractions: Home Members Research Publications ... Vacancies About the Consortium The UK Cystic Fibrosis Gene Therapy Consortium (UK CFGTC) is the unified research programme of the three leading gene therapy groups in the UK. It was established in 2001 on the initiative of the Cystic Fibrosis Trust. The three member research groups are headed by Prof. David Porteous at the University of Edinburgh, Drs Deborah Gill and Steve Hyde at the University of Oxford and Prof. Eric Alton at Imperial College in London. Our Aim T he UK has always been at the forefront of gene therapy for cystic fibrosis (CF) and the members of the Consortium have already demonstrated proof-of-principle of correction of the underlying defect in the airways of CF subjects. The aim of the Consortium is to combine the intellectual and practical resources of the three groups and avoid duplication of efforts thereby enhancing progress towards clinically relevant gene therapy for CF. Communication Core Facilities To ensure standardisation of results and high throughput, core facilities staffed by dedicated technicians have been set-up for the assessment of pre-clinical gene transfer. We would be interested to hear from any researchers who would like to test a gene transfer agent in these core facilities. For more information contact products@cfgenetherapy.org.uk

166. Canadian Cystic Fibrosis Foundation - Ottawa Chapter
     Volunteer organization to aid afflicted individuals, families and care givers. Profile, events and resources information.  
     http://www.ccffottawa.ca/

167. My Cystic Fibrosis - Log On For Living With Cystic Fibrosis
     An online resource that helps people with cystic fibrosis (CF) monitor their health and improve their understanding of this chronic disease through support  
     http://www.mycysticfibrosis.com/

168. Canadian Cystic Fibrosis Foundation
     Support and resources. Located in Toronto, Ontario.  
     http://www.cysticfibrosis.ca/

169. BUBL LINK: Cystic Fibrosis
     cystic fibrosis Foundation The mission of the cystic fibrosis Foundation is to Includes chronic bronchitis and emphysema, cystic fibrosis, influenza,  
     http://bubl.ac.uk/link/c/cysticfibrosis.htm
     
     Extractions: BUBL LINK Catalogue of Internet Resources Home Search Subject Menus Countries ... Z Titles Descriptions Cystic Fibrosis Foundation Cystic Fibrosis Trust IACFA Cystic Fibrosis Links LungNet ... OMNI Subject Listing for Digestive System Comments: bubl@bubl.ac.uk The mission of the Cystic Fibrosis Foundation is to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease.

170. Canadian Cystic Fibrosis Foundation
     Works to raise funding for cystic fibrosis research and care, and lists upcoming events, describes the disease's symptoms and treatments.  
     http://www.ccfftoronto.ca/

171. Esmerel's Collection Of Cystic Fibrosis Resources
     This page is dedicated to cystic fibrosis resources. This list is growing constantly. If you know of any other resources or have suggestions, please email  
     http://www.esmerel.org/specific/cystic.htm
     
     Extractions: (Courtesy of Esmerel: Home of Unicorn Quest : The Kids' Typing Tutor Game for One or Two Hands ) Welcome to another part of Esmerel's Collection of Disability Resources. This page is dedicated to cystic fibrosis resources. This list is growing constantly. If you know of any other resources or have suggestions, please email Heather.

172. Cystic Fibrosis Research Center
     Research and Clinical Cores The cystic fibrosis Research Center at the University of Inhaled Bicarbonate for cystic fibrosis PI Joseph M. Pilewski  
     http://www.cbp.pitt.edu/centers/cfrc.html
     
     Extractions: Cystic Fibrosis Research Center with an award of $1.2 million grant over a three-year period in 1997. This innovative CF Research Center consists of investigators brought together in a multidisciplinary approach to cystic fibrosis (CF) research. By creating this Center, the University took advantage of several unique opportunities present at The School of Medicine and the Children’s Hospital at the University of Pittsburgh. These two entities provided a large and accessible patient population for pre-clinical and clinical studies. Greater than 50 lung transplants per year enable access to patient tissue. They also provided the opportunity to engage new, high quality investigators in CF research in an institution that ranks 10 th nationally in extra-mural support by the NIH. The CF Research Center is co-directed by Raymond A. Frizzell, Ph.D., and Robert Bridges, Ph.D, both leaders in CFTR research, and Chairman and Vice-Chairman, respectively, of the Department of Cell Biology and Physiology School of Medicine. The Center is housed in the Department of Cell Biology and Physiology in its 3rd floor Biomedical Science Tower facility.

173. CNN - Potential New Approach To Cystic Fibrosis Treatment Reported - October 9,
     http://www.cnn.com/HEALTH/9910/09/cystic.fibrosis/index.html
     
     Extractions: SEATTLE (CNN) Researchers have discovered that high doses of a specific fatty acid can reduce symptoms of cystic fibrosis in mice a finding that potentially could lead to a treatment for a disease that is now incurable in humans. People with cystic fibrosis exhibit high levels of arachidonic acid (AA) and low levels of docosahexaenoic acid (DHA). Researchers who bred mice with the genetic defect that causes cystic fibrosis found that the mice exhibited the same imbalance of fatty acids. But in mice that were fed large doses of DHA for a week, the imbalance was corrected and signs of cystic fibrosis in the pancreas, intestines and lungs were reversed, researchers said.

174. Cystic Fibrosis Clinical And Research Center - Children's Hospital And RegionalM
     cystic fibrosis Research Center Adult and Pediatric cystic fibrosis Therapeutics Development Network Coordinating Center Suites 90, 122 and 228  
     http://depts.washington.edu/cfcenter/

175. Chicago CF Awareness Homepage
     Provides information about the annual educational awareness day for people with CF and their families living in the greater Chicago area. Includes links, clinical trial and archives.  
     http://chicagocfawareness.org
     
     Extractions: Here, you will find information about the Chicago CF Awareness Day, an annual seminar that helps individuals and families become more aware of CF, more aware of each other as a community, and more aware of living life in the midst of disease. By attending Awareness Day, people with CF (along with their friends and families) can learn about the latest medical research on CF, attend educational sessions about managing different aspects of life with CF, and learn about new products and treatments. Most important: they can meet, share their experiences, and ask questions about CF-related issues in a supportive setting. This site continues to serve the Chicago CF community throughout the year. Check here for contact information for the CF clinics in the greater Chicago area, links to many supportive CF sites on the internet, and local items such as clinical trials and our

176. U.S. Study Backs Early Check For Cystic Fibrosis
     http://cnn.com/2001/HEALTH/01/09/health.cf.reut/index.html

177. Concerned Friends Of Cystic Fibrosis In Israel
     Charitable organization that helps families in Israel who have a member suffering from CF. Includes news, medical equipment needed, and donation information.  
     http://www.cfcfisrael.org
     
     Extractions: Helping CF Children In Israel Breathe Easier! Home A Father's Letter CFCF In Israel Picture Gallery ... Contact Us Help Sarah... ...take another breath. Learn more about CFCF Israel. Concerned Friends of Cystic Fibrosis (CFCF) , established in April 1997, is a non-profit organization dedicated to meet the challenge of aiding CF children and their families in Israel.

178. Finding May Shed New Light On Cystic Fibrosis
     http://cnn.com/2001/HEALTH/conditions/03/01/cystic.fibrosis.ap/index.html

179. The Genentech Endowment For Cystic Fibrosis
     An independent, nonprofit endowment dedicated to expanding access to Pulmozyme® (dornase alpha) therapy to qualifying un-insured and under-insured CF patients. Find the eligibility and how to apply.  
     http://www.genentechcfendowment.org

180. Home Of The New Jersey State Organization Of Cystic Fibrosis - NJSOCF
     NJSOCF provides direct, hands on financial assistance to CF patients throughout the state, counseling, referrals and educational materials to patients and their families. Includes a Q A's, news, services offered and coming events.  
     http://www.njsocf.org
     
     Extractions: Updated: June 23, 2005 Home NJSOCF Services Adult Program People Coming Events Scrapbook Application Forms Pathmark Stores, NJ Donations Links Contact WHO WE ARE: The New Jersey State Organization of Cystic Fibrosis was founded in 1977 to provide direct, "hands on" financial assistance to cystic fibrosis patients throughout the state. NJSOCF also provides counseling, referrals and educational materials to patients and their families. NJSOCF is a not-for-profit organization that uses its donated dollars to purchase the daily necessities of living for patients with the disease. These include prescription drugs, medical equipment, nutritional supplements and extra nutritious foods. Services are available to patients from birth to adulthood. Adult patients receive services through a special state-funded program specifically for adults with cystic fibrosis. OUR MISSION: To ease the heavy financial burdens placed on CF patients and their families and to provide needed information.

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