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Cystic Fibrosis: more books (100)

With Every Breath: stories by and about people living with cystic fibrosis by Katherine Russell and Margot Russell, 2006-10-25
Living on Borrowed Time: Life with Cystic Fibrosis by Jimmy Pitts, 2007-01-19
Coughing the Distance - from Paris to Istanbul with Cystic Fibrosis by J.J.Walter van Praag, 2009-10-01
A Way of Life: Cystic Fibrosis Nutrition Handbook and Cookbook (3rd Edition) by MS, RD, Lisa Davis, MS, RD, Erin Tarter, MS, RD, Toni Law, MS, RD Mary Marcus, 2008-01-01
Abc Transporters: Atp-Binding Cassette Transporter, Cystic Fibrosis Transmembrane Conductance Regulator, P-Glycoprotein, Abca4, Abcd3, Abcd1
Living With Cystic Fibrosis - A Cystic Fibrosis Guide! by John Picard, 2010-08-12
21st Century Ultimate Medical Guide to Cystic Fibrosis - Authoritative Clinical Information for Physicians and Patients (Two CD-ROM Set) by PM Medical Health News, 2009-04-10
Cystic Fibrosis in the 20th Century: People, Events, and Progress
Gale Encyclopedia of Nursing and Allied Health: Cystic fibrosis by Jr., M.D, Dr.P.H. L. Fleming Fallon, 2002-01-01
Cystic Fibrosis: Medical Care by David Michael Orenstein, Robert C. Stern, et all 2000-04-30
David's Promise: A Young Man's Struggle with Cystic Fibrosis by Kathy Sykes, 2006-04-06
Research on Pathogenesis of Cystic Fibrosis of the Pancreas (Mucoviscidosis)
Recipes for the Specific Carbohydrate Diet: The Grain-Free, Lactose-Free, Sugar-Free Solution to IBD, Celiac Disease, Autism, Cystic Fibrosis, and Oth [RECIPES FOR THE SPECIF]
Meropenem combo better for CF exacerbations: but advantages are short term.(Infectious Diseases)(cystic fibrosis): An article from: Pediatric News by Bruce Jancin, 2003-12-01

lists with details

Cystic Fibrosis International Medical A-Z Directory
Biomedical directory with listings of hospitals, charities, research, and information by topic and location.
http://www.cellscience.com/CFmain.html

Extractions: rating for web sites is intended to serve only as an indication of the design quality, clarity, presentation and style of the URL, and is in no way intended as a judgement of the quality of services or information provided. To have a site listed is itself an indication that the site is of general interest - (Guide: NR Not rated, strong, good, excellent)
Informationdocuments
From the European Thematic Network for cystic fibrosis. In depth information in PDF.
http://www.med.kuleuven.ac.be/cme/cf/Informationdocuments.htm

Extractions: Information documents A manual for Cystic Fibrosis patients and their families A manual for the CF patients and their families has been designed to provide cystic fibrosis-patients and their families a better understanding of the disease. This leaflet is part of a European initiative undertaken by the European Concerted Action for Cystic Fibrosis. The text is based on the manual of the World Health Organisation (WHO) and the International Cystic Fibrosis (Mucoviscidosis) Association (ICF(M)A). The manual includes the following topics: These leaflets are presently available in sixteen languages: English French German Spanish ... Polish and Macedonian version We would like to thank the translators (translation bureau of AstraZeneca Diagnostics, Milan Macek Jr., Katarina Stepankova, Adriana Zigova, Antonija Redovnikovic, Branko Simat, Jadranka Sertic, Zita Krumina, Dragica Radojkovic, Tatyana K. Kascheeva, Ludmila A. Livshits, Natalia V. Gryschenko, Krisztina Nemeth, Gyorgy Fekete, V. Kucinskas, A. Utkus, J. Kasnauskiene, K. Konciute, Michal Witt, Lucyna Majka, Svetlana Koceva) for all their efforts and cooperation, Orchid, Innogenetics and Nanogen for printing these manuals!
Cystic Fibrosis: Diet And Nutrition
Learn what CF teens need to eat more of, supplements that help, and a sample diet.
http://www.kidshealth.org/teen/diseases_conditions/digestive/cf_diet.html

Extractions: Lindsay eats lunch with her friends Lauren and Katie every day, and she hates the conversation they always seem to have: "You're so lucky!" "Yeah, I'd give anything to be able to eat as much as you do and be so skinny!" "Cheeseburgers or mac and cheese every day - that would be great." Lindsay is one of about 30,000 people living with cystic fibrosis (CF) in the United States, and she has to eat high-fat, high-calorie foods just to stay healthy. A lot of the time she just doesn't feel well enough to eat the foods most teens crave. And sometimes, when her schedule's really hectic, she'd love to just skip a meal like her friends do. CF is a genetic disease that affects the body's epithelial cells , which are found in many places, including the sweat glands, the lungs, and the pancreas. An error in these cells causes problems with the balance of salt and water in the body. The body responds by making thick mucus, which blocks the lungs and sometimes other ducts and passageways, causing infections and breathing problems. This mucus can also keep the intestines from absorbing important nutrients like fat and vitamins from food, which means that teens with CF may be short and underweight for their age, and they may get sick a lot because their bodies can't fight infections well. People with CF may need extra calories and nutrients to help them fight infection and keep their lungs strong, particularly if they get sick with colds or the flu.
Planet - 403 Pagina
Actiedag van hulpverleners voor cystic fibrosis.
http://home.planet.nl/~huisj038/
Cystic Fibrosis
cystic fibrosis occurs in about 1 in 2500 births in Victoria. If it has not, the words cystic fibrosis should not be mentioned to the parents.
http://www.med.monash.edu.au/paediatrics/resources/cf.html

Extractions: Skip to content Change text size Medicine home Schools ... Site map SEARCH Medicine Nursing Health Sciences All of Monash enter search terms Cystic fibrosis occurs in about 1 in 2,500 births in Victoria. All patients are seen at the Royal Children's Hospital at the time of diagnosis, which is usually in the first year of life. Some patients living in the south-east of the city or eastern Victoria are cared for jointly by the department of Thoracic Medicine at the RCH and the Department of Paediatric Respiratory Medicine, MMC. The prognosis has improved very considerably over the last 20 years and most patients now reach adulthood. In the ward the resident medical staff will see patients who have acute flare-ups of chest infection and those with severe lung disease. The 50% of patients who have little chest trouble are rarely admitted to the ward, so staff are likely to have a biased view of the condition. The development of a very positive attitude by the parents from the time of diagnosis seems to be very important in the prognosis. The handling of the family at the time of diagnosis is carefully planned. If they are given a gloomy outlook, this can be hard to change.
Connecticut Children's Medical Center - Otolaryngology
Special programs include a pediatric cochlear implant program, endoscopic sinus surgery for children with cystic fibrosis, and a program for management of the pediatric artificial airway.
http://www.ccmckids.org/services/otolaryngology.asp

Extractions: The Department of Otolaryngology maintains a full service pediatric program. Special programs include a pediatric cochlear implant program, endoscopic sinus surgery for children with cystic fibrosis, and a program for the management for the pediatric airway. The service coordinates its activities as part of the craniofacial team to serve these children with special needs. Satellite Offices:
THE MERCK MANUAL, Sec. 19, Ch. 267, Cystic Fibrosis
cystic fibrosis (CF), the most common lifeshortening genetic disease in the white It encodes a membrane-associated protein called the cystic fibrosis
http://www.merck.com/mrkshared/mmanual/section19/chapter267/267a.jsp
Cystic Fibrosis - Information And Support Resources
Page with basic information on cystic fibrosis symptoms, incidence in people of Jewish descent (Ashkenazi Jews), diagnosis, treatment, and screening.
http://www.mazornet.com/genetics/cystic_fibrosis.asp
Pulmonary Medicine At UNC - Cystic Fibrosis Center
The UNC cystic fibrosis Pulmonary Research and Treatment Center is a large, multidisciplinary group focused on the pathogenesis and therapy of cystic
http://www.med.unc.edu/wrkunits/3ctrpgm/cystfib/CFcent.htm

Extractions: The treatment for CF is based upon the clearance of thick airway secretions, using chest percussion (e.g. clapping hands on the back and chest), inhaled treatments, and exercise. Antibiotics that fight the particular bacteria found in CF are used when the amount of infection in the chest becomes problematic, and may be administered by mouth, inhaled, or intravenously. The maintenance of proper nutrition is also essential, and requires a high calorie diet, supplementation of certain vitamins, and the use of enzymes that help to digest meals.
Connecticut Children's Medical Center - Pulmonary Medicine
Provides services for children of all ages with asthma, apparent life threatening events, and bronchopulmonary dysplasia, as well as children and adults with cystic fibrosis.
http://www.ccmckids.org/services/pulmonary.asp

Extractions: The Division oversees a state-of-the-art pulmonary function laboratory that is capable of performing spirometry, body plethysmography, methacholine challenge, cardiorespiratory adaptation and exercise provocation testing in children, and infant pulmonary function testing with passive mechanics and lung volumes. Flexible bronchoscopies are done to evaluate children for dynamic airway narrowing, chronic aspiration, and lower respiratory infections. Sweat tests and allergy skin testing may also be ordered by contacting the Division.
Genome.gov | Learning About Cystic Fibrosis
Answers to frequently asked questions about cystic fibrosis, published by the National Human Genome Research Institute.
http://www.genome.gov/10001213

Extractions: triggerParms["cpp_5"] = "Referer:"+ cppUrlPatch (""); // Optional Home About NHGRI Newsroom Staff ... Specific Genetic Disorders Learning About Cystic Fibrosis What do we know about heredity and cystic fibrosis? Is there a test for the cystic fibrosis gene? NHGRI Clinical Research on Cystic Fibrosis Additional Resources for Cystic Fibrosis Information Cystic fibrosis (CF) is the most common, fatal genetic disease in the United States. About 30,000 people in the United States have the disease. CF causes the body to produce thick, sticky mucus that clogs the lungs, leads to infection, and blocks the pancreas, which stops digestive enzymes from reaching the intestine where they are required in order to digest food. Cystic Fibrosis: A Single Gene Disease Mutations in a single gene - the Cystic Fibrosis Transmembrane Regulator (CFTR) gene - causes CF. The gene was discovered in 1989. Since then, more than 900 mutations of this single gene have been identified. In normal cells, the CFTR protein acts as a channel that allows cells to release chloride and other ions. But in people with CF, this protein is defective and the cells do not release the chloride. The result is an improper salt balance in the cells and thick, sticky mucus. Researchers are focusing on ways to cure CF by correcting the defective gene, or correcting the defective protein.
Genome.gov | Learning About Cystic Fibrosis
Advances in cystic fibrosisThe cystic fibrosis Foundation s home page is a great jumping off point for THE DISCOVERY OF the gene responsible for cystic fibrosis (CF) in 1989 has
http://www.genome.gov/page.cfm?pageID=10001213
Cystic Fibrosis Foundation - Metropolitan Washington Chapter
Works to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease. Features news, volunteer opportunities and events.
http://www.cff.org/chapters_and_care_centers/chapter_detail.cfm?chapterID=18&
Cystic Fibrosis Message Board
Forum for support, and to discuss information, concerns, and treatment options.
http://www.healthboards.com/cystic-fibrosis/

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Cystic Fibrosis
cystic fibrosis is an inherited disease that is relatively common in the US When someone has cystic fibrosis, they often have lots of lung problems.
http://www.usd.edu/~bgoodman/HotT.htm

Extractions: Hot Topic : CYSTIC FIBROSIS By: Dr. Barb Goodman Cystic fibrosis is an inherited disease that is relatively common in the U.S. Cystic fibrosis affects multiple parts of the body including the pancreas, the sweat glands, and the lungs. When someone has cystic fibrosis, they often have lots of lung problems. The cause of their lung problems is directly related to basic problems with diffusion and osmosis in the large airways of the lungs. People without cystic fibrosis have a small layer of salt water in the large airways of their lungs. This layer of salt water is under the mucus layer which lines the airways. The mucus layer in the airways helps to clear dust and other inhaled particles from the lungs. In people without cystic fibrosis, working cystic fibrosis proteins allow salt (chloride) to enter the air space and water follows by osmosis. The mucus layer is dilute and not very sticky. In people with cystic fibrosis, non-working cystic fibrosis proteins mean no salt (chloride) enters the air space and water doesn't either. The mucus layer is concentrated and very sticky. People with cystic fibrosis have lung problems because:
Cystic Fibrosis Foundation - Alabama Chapter
Works to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease. Site includes local events, volunteer opportunities, contact information, and links to the national foundation.
http://www.cff.org/alabama.htm

Extractions: Gourmet by the Sea Seaside, Florida End of Events Great Strides Walks City of Walk Date/Time Anniston - Oxford Lake Park May 2006 Contact Us Birmingham - University Park April 2006 Contact Us Decatur - Delano Park April 2006 Contact Us Huntsville - University of Alabama - Bevill Center May 2006 Contact Us Mobile - Langan Park May 2006 Contact Us Montgomery - The Montgomery Zoo May 2006 Contact Us Scottsboro - Caldwell Park May 2006 Contact Us Tuscaloosa April 2006 Contact Us Our Volunteers Volunteer for the Alabama Chapter. Click here for more information.
USD - Cystic Fibrosis Home Page
/med/sdcfc/images/cysticfibro.gif The cystic fibrosis Foundation assures the development of the means to cure and control cystic fibrosis and to improve
http://www.usd.edu/med/sdcfc/
Hardin MD : Cystic Fibrosis
From the University of Iowa, the *best* lists of Internet sources in cystic fibrosis.
http://www.lib.uiowa.edu/hardin/md/cysticfibrosis.html
Cystic Fibrosis Web Ring
Connects over 50 websites. All sites contain information about cystic fibrosis and personal experiences of people living with CF.
http://azcowboy88.tripod.com/welcome/

Extractions: Cystic Fibrosis Web Ring tweNavbarPreload("../sitebuildercontent/sitebuilderpictures/cf_home3.gif","twe28711A"); tweNavbarPreload("../sitebuildercontent/sitebuilderpictures/cf_home3.gif","twe28711B"); tweNavbarPreload("../sitebuildercontent/sitebuilderpictures/what_cf3.gif","twe28712A"); tweNavbarPreload("../sitebuildercontent/sitebuilderpictures/what_cf3.gif","twe28712B"); tweNavbarPreload("../sitebuildercontent/sitebuilderpictures/cf_purp3.gif","twe28713A"); tweNavbarPreload("../sitebuildercontent/sitebuilderpictures/cf_purp3.gif","twe28713B"); tweNavbarPreload("../sitebuildercontent/sitebuilderpictures/cf_join3.gif","twe28714A"); tweNavbarPreload("../sitebuildercontent/sitebuilderpictures/cf_join3.gif","twe28714B"); tweNavbarPreload("../sitebuildercontent/sitebuilderpictures/cf_memb3.gif","twe28715A"); tweNavbarPreload("../sitebuildercontent/sitebuilderpictures/cf_memb3.gif","twe28715B"); tweNavbarPreload("../sitebuildercontent/sitebuilderpictures/cf_list3.gif","twe28716A"); tweNavbarPreload("../sitebuildercontent/sitebuilderpictures/cf_list3.gif","twe28716B"); tweNavbarPreload("../sitebuildercontent/sitebuilderpictures/cf_ringm3.gif","twe28717A"); tweNavbarPreload("../sitebuildercontent/sitebuilderpictures/cf_ringm3.gif","twe28717B");
Cystic Fibrosis Genetic Testing
Features testing details, patient information, and physician s guide.
http://www.phd.msu.edu/DNA/cf_fact.html

Extractions: TEST INFORMATION FOR: Cystic Fibrosis Hereditary Hemochromatosis Apolipoprotein E Genotyping Fragile X Syndrome Methylenetetrahydrofolate reductase Cystic Fibrosis Cystic fibrosis (CF) is one of the most common autosomal recessive diseases in the Caucasian population, occurring in 1 out of every 2,500 - 3,300 newborns. CF can occur in other ethnic groups, but is most common in Caucasians. CF results from mutations in the CFTR gene, which is important for maintaining chloride balance in the cell. Carrier Risks Vary by Ethnic Group: Ethnic Group Carrier Rate Caucasian (non-Hispanic/non-Ashkenazi Jewish) 1 in 25 Ashkenazi Jewish 1 in 25 Hispanic 1 in 46 African American 1 in 65 Asian 1 in 90 Reasons for CF Testing: Confirmation of diagnosis in affected individuals Carrier identification in persons with a family history Carrier identification in persons currently pregnant or considering pregnancy Screening of sperm and egg donors Abnormal fetal ultrasound (i.e. echogenic bowel)

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