Extractions: Corner of Mayfair Gardens, London N17 7LN Tel: E-Mail: tgrant@hitsuk.freeserve.co.uk Website: www.e-fervour.com/hits HITS (UK) was fully established in February 2000 and we are currently in the process of becoming a registered charity. We can offer support by letter, e-mail, internet chat site with monthly "live chats", telephone and family days. We also produce a newsletter 3 times a year. The aim of HITS (UK) is to enrich the lives of children and families affected by Hypomelanosis of Ito by encouraging communication, facilitating the flow of information between families and health professionals, and generally reducing the sense of isolation patients and families may experience. We are a voluntary, not-for-profit organisation, and we are holding the first ever "Children of Ito" Family day on July 15th 2001. We hope to hold the 2nd Children of Ito Family day in July 2003, for more information please contact Terri Grant at
Incontinentia Pigmenti This Web resource on incontinentia pigmenti (also known as BlochSulzbergerSyndrome) is produced by the National Institute of Neurological Disorders and http://omni.ac.uk/browse/mesh/D007184.html
Extractions: low graphics other: Dermatitis, Atopic Ehlers-Danlos Syndrome Epidermolysis Bullosa NINDS : incontinentia pigmenti information page This Web resource on incontinentia pigmenti (also known as Bloch-Sulzberger Syndrome) is produced by the National Institute of Neurological Disorders and Stroke (NINDS). A description of incontinentia pigmenti is provided, and available treatments, prognosis, and current research activities are all discussed. Links to related organisations are provided. This resource has a US focus. Patient Education Handout [Publication Type] Incontinentia Pigmenti
Hereditaere Vaskulaere Netzhauterkrankungen Bloch-Sulzbergersyndrome; Häufigkeit selten; Genetik X-chromosomal chromosomale http://www.retinascience.de/krank_kell/heredit_vask.html
