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Arthrogryposis: more books (21)

Freeman-Sheldon syndrome: An entry from Thomson Gale's <i>Gale Encyclopedia of Genetic Disorders, 2nd ed.</i> by Lisa Fratt, 2005
Series of casts straightens ligaments: correcting clubfoot without surgery.(Clinical Rounds)(Ponseti method): An article from: Pediatric News by Anne Scheck, 2004-05-01
Amyoplasia: An entry from Thomson Gale's <i>Gale Encyclopedia of Genetic Disorders, 2nd ed.</i> by Mary, MS, CGC Freivogel, 2005
Just a Krooked Kid by Goodwin Hale, 1994-12-15
Some Crawl and Never Walk by Celestine Tate, 1995-06
Brittany: Child of Joy by Anne Adams, 1987-02

lists with details

Avenues: A National Support Group For Arthrogryposis Multiplex Congenita
Avenues a national support group for arthrogryposis. Networking MedicalProfessionals Research Publications Other Resources
http://sonnet1.sonnet.com/avenues/
Avenues: A National Support Group For Arthrogryposis Multiplex Congenita
A support group for individuals, families, and medical professionals interested in arthrogryposis Multiplex Congenita (AMC).
http://www.sonnet.com/avenues/
ARTHROGRYPOSIS Contact A Family - For Families With Disabled
more about us using this site how you can help Did you find this page helpful? yes no arthrogryposis arthrogryposis Multiplex Congenita;
http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126
Arthrogryposis Clinics
avenues national support group for arthrogryposis networking medicalprofessionals research publications other resources about us site
http://sonnet1.sonnet.com/avenues/medpros/clinic.htm
Arthrogryposis Multiplex Congenita (AMC)
Syndrome arthrogryposis multiplex congenita (AMC) Synonyms Spine Scoliosis and kyphosis. Bones and joints arthrogryposis.
http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126
Kassandra's Arthrogryposis Page
For those that do not know me and about my disability, I will tell you my story.
http://hometown.aol.com/arthrogryposisc/index.html

Extractions: Hello My Name is Kassandra Ahuero. I am fifteen years old I am A Nineth Grader at Lowry High School In Winnemucca Nevada. I am going to tell you a little about me. For those that do not know me and about my disabilaty I will tell you my story. I was Born on December 25th 1984 In Austin,Texas. I was 5lbs 2oz. My mom said I came fast,It only took 18 miniutes for me to be deliverd. When I came out the Doctors looked at me and rushed me out of the delivery room. My mom told me that she Got rely scared. It was about two hours later before my mom was allowed to see me. The doctor told her that when I cam out I was all Twisted up , My hands were curled under And my feet were turned in. At that tme my mom was very upset. She asked the doctor what was wrong with me. The doctor said" I think she has a rare condition called Arthrogryposis Multiplex Congentia. It came to be that it was my initial diagnosis. I also had an intestinal blockage as well. I have the condition named above. This condition is Multible joint contracures that are present at birth. Wich causes
Arthrogryposis Multiplex Congenita
arthrogryposis Multiplex Congenita, a rare disorder that is present at birth (congenital), is characterized by reduced mobility of many joints of the
http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126
Arthrogryposis - DrGreene.com - Caring For The Next Generation
Although arthrogryposis is not a familiar term to most people, arthrogryposismultiplex congenita (AMC) affects about 3 out of 1000 people, or about 750000
http://www.drgreene.com/21_107.html

Extractions: QUICK SEARCH A - Z Guide ADHD Allergy Care Guide Allergies Asthma Care Guide Asthma Bedwetting Breastfeeding Childhood Obesity Diabetes Care Guide Ear Infections Environmental Health Genetics Infectious Diseases Medical Treatment Mental Health Multimedia Library Potty Training Rashes Safety Sleep About DrGreene.com Archives About Us Context Reviews Awards Readers Comments Press Room Partners and Supporters Children's Health Topic Centers Contact Us Professional Resources Dr. Greene's Welcome Analytical Chemistry Business: Healthcare Cardiology Clinical Pharmacology Clinical Trials Mgmt Cosmetic Surgery Dermatology Diabetes Drug Discovery Emergency Medicine Endocrinology Family Practice Gastroenterology Geriatrics HIV/AIDS Infectious Disease Internal Medicine Managed Care Neurology Nursing Ob/Gyn Oncology Ophthalmology Orthopedics Pediatrics Pharma Marketing Pharma Sales Pharma Science/Tech Pharmacy Psychiatry Pulmonology Radiology Residents / Students Rheumatology Surgery Urology Pediatric Information A-Z Guide Allergy Care Guide Asthma Care Guide Diabetes Care Guide Discussion Boards Dr. Greene´s Chats
Kassandra's Arthrogryposis Page
For those that do not know me and about my disability, I will tell you my story.
http://hometown.aol.com/arthrogryposisc/

Extractions: Hello My Name is Kassandra Ahuero. I am fifteen years old I am A Nineth Grader at Lowry High School In Winnemucca Nevada. I am going to tell you a little about me. For those that do not know me and about my disabilaty I will tell you my story. I was Born on December 25th 1984 In Austin,Texas. I was 5lbs 2oz. My mom said I came fast,It only took 18 miniutes for me to be deliverd. When I came out the Doctors looked at me and rushed me out of the delivery room. My mom told me that she Got rely scared. It was about two hours later before my mom was allowed to see me. The doctor told her that when I cam out I was all Twisted up , My hands were curled under And my feet were turned in. At that tme my mom was very upset. She asked the doctor what was wrong with me. The doctor said" I think she has a rare condition called Arthrogryposis Multiplex Congentia. It came to be that it was my initial diagnosis. I also had an intestinal blockage as well. I have the condition named above. This condition is Multible joint contracures that are present at birth. Wich causes
Jamie-Lee's Arthrogryposis Multiplex Congenita Page
Includes information, photographs and useful links.
http://www.geocities.com/SouthBeach/Surf/7325/jamielee.html

Extractions: Hello fellow cyber users! Im Jamie-Lee. This is a picture of me advertising for the Crippled Children's Association in South Australia. It's a few years old now, but a favourite. I am 11 years old, and I am new to the internet. I was born with Arthrogryposis Multiplex Congenita. Basically, this mean that my joints (i.e. elbows, knees....etc) are fixed. They don't bend....and I can't walk. Last year, I came to live with my Dad (Scott) and his wife Karen. Karen left her job so she could take the best possible care of me and my brothers and sister. Karen has made this page for me to try and locate anyone else in the world with the same condition as me. If there is anyone out there who has this condition, or knows of someone else who has, please, please email us below and tell us how it has affected you. In particular, if you are a doctor or physiotherapist who has treated anyone with this disability, also, please contact us. You may recognise me from the commercials for the "Down Every Street Appeal".
Arthrogryposis Multiplex Congenita / Family Village Library
Learn More About It * Web Sites * Search Google for arthrogryposis MultiplexCongenita arthrogryposis Multiplex Congenita, Neurogenic Type from OMIM
http://www.familyvillage.wisc.edu/lib_arto.htm

Extractions: http://sonnet1.sonnet.com/avenues/ Avenues is a national support group that provides education and networking for parents and medical professionals concerned with Arthrogryposis. They have local chapters, with a directory available, and will provide parent-to-parent matching. Avenues publishes a bi-annual newsletter, Avenues , and a brochure, "What is Arthrogryposis?" This is offered in English and Spanish. Additionally, they have a new parent packet, that includes the newsletter, and brochure. Avenues has a bibliography of abstracts that are available to members and audio Cassettes for distribution. They collect information on physicians and researchers who treat/study the condition and disseminate this information to its membership. They also offer a resource packet that includes interested doctors, therapists, families, pen pals, support groups and clinics. Avenues
Victoria's Story With Arthrogryposis
Living with arthrogryposis.
http://members.aol.com/_ht_a/crazyus5/myhomepage/family.html

Extractions: Victoria was born full term weighing 5 IBs 2.5 ounces, on April 1st 1997, born with Arthrogryposis. For those of you who may not know, arthrogryposis is the precense multiple joint contractures. Victoria had them, and at every joint ex. her ankles, knees, hips, shoulders, elbows, wrists, and fingers all ten... Arthrogryposis is corrected by therapies, braces, splinting and surgery as a last resort. Victoria was transferred to Miami Childrens Hospital when she wa only 3 hours old was Victoria's 1st surgery was when she was 7 months old she had a ten hour surgery with 2 surgeons. An orthopedic and a plastic/hand specialist. They both worked together in the O.R. She had a bilateral club foot release and a right thumb release with skin graphs from her groin area. Pins were placed in her hand at 2 places and her legs. She wore casts for 6 weeks. See more family home pages
Arthrogryposis
arthrogryposis information and international support groups, clinics with geneticcounselors and geneticists.
http://www.kumc.edu/gec/support/arthrogr.html
Arthrogryposis Multiplex Congenita (AMC)
Summary, arthrogryposis marked by congenital contractures involving two or more Distal arthrogryposis is further divided into two types At least 3
http://www.nlm.nih.gov/mesh/jablonski/syndromes/syndrome039.html

Extractions: Syndrome arthrogryposis multiplex congenita (AMC) Synonyms Guérin-Stern syndrome Otto syndrome Rocher-Sheldon syndrome Rossi syndrome amyoplasia congenita congenital arthromyodysplastic syndrome congenital articular rigidity congenital contractures of extremities multiple congenital articular rigidity multiple congenital contractures myodysplasia fibrosa multiplex myodysplasia foetalis deformans myodystrophia foetalis deformans neuro-arthromyodysplasia pterygium universale pterygo-arthromyodysplasia congenita Summary Major Features Head and neck: Facial asymmetry, micrognathia, immobile facies, notched chin, and malar hypoplasia. Ears: Low-set ears posteriorly angulated ears, and overfolded helices. Eyes: Keratoconus, downslanting palpebral fissures, blepharoptosis, hypertelorism, ophthalmoplegia, and retinopathy. Nose: High nasal bridge. Mouth and oral structures: Highly arched palate, cleft lip, cleft palate, and trismus. Neck: Short neck, fused cervical vertebral, and pterygia.
LittleDeniseandherfamily
My name is Denise and I was born with arthrogryposis.
http://www.geocities.com/denisecsus/LittleDeniseandherfamily.html

Extractions: At birth my feet were clubbed, my hands were in an abnormal position and I had a cleft pallate, acutally three of them. I have had numerous surgeries and only some of them were successful. Years of physical and speech therapy proved to be the most helpful intervention for me. Therapy only worked for me because it began at a very early age, I was still an infant. I can speak with out any type of defect and I am mobile. I discontinued physical therapy as a pre-teen. I have since suffered for that decision. I have lost fleibility and range of motion. I have recently tried to stretch my joints but I am very forgetful and need to motivate or pay the price even further.
Www.nlm.nih.gov/cgi/mesh/2K/MB_cgi?term=Arthrogryposis
JamieLee s arthrogryposis Multiplex Congenita Pagearthrogriposis, arthrogryposis, arthrogriposis multiplex congenita, arthrogryposismultiplex congenita, Disabled, disability, crippled, wheelchair,
http://www.nlm.nih.gov/cgi/mesh/2K/MB_cgi?term=Arthrogryposis
Desertroses_Page
I was born with a condition called arthrogryposis multiplex congenita.
http://www.geocities.com/desertroze2000/Desertroses_Page.html
Dan's Place
Adult male in Kentucky with arthrogryposis shares his interests.
http://www.dango727.com

Extractions: The article is below. The funny thing about it is the pic they show is not of me, the dog, or its owner. Oh well, it's about me though, so here it is for your reading pleasure. Dan's CD's - My favorite type of music is Hip-Hop. I've been into it since the early 80's. I am always looking to expand my CD collection. If you are interested in trading CD-R's with me, check out the link. Dan's Autographs - One of my biggest hobbies is collecting autographs. I don't buy, sell, or trade autographs, but if you're interested in looking at whose autographs I've obtained, check out the link.
Arthrogryposis
Article describes arthrogryposis, its diagnosis, and treatment.
http://rarediseases.about.com/cs/arthrogryposis/a/121403.htm

Extractions: var zLb=4; var zIoa1 = new Array('Suggested Reading','Internet links on arthrogryposis','http://rarediseases.about.com/cs/arthrogryposis'); zJs=10 zJs=11 zJs=12 zJs=13 zc(5,'jsc',zJs,9999999,'') zfs=0;zCMt='a70' About Rare / Orphan Diseases Rare Diseases A - B Rare Diseases: A Arthrogryposis Rare Diseases Essentials Rare Diseases: Basic Information Rare Diseases Support Groups ... Help zau(256,140,140,'el','http://z.about.com/0/ip/417/C.htm','');w(xb+xb+' ');zau(256,140,140,'von','http://z.about.com/0/ip/496/6.htm','');w(xb+xb); Sign Up Now for the Rare / Orphan Diseases newsletter! Suggested Reading Internet links on arthrogryposis Most Popular Muscular Dystrophy ALD and Lorenzo's Oil Progeria Syndromes Leprosy (Hansen's Disease) ... The Elephant Man What's Hot Muscular Dystrophy Autoimmune Kidney Disease Minamata Disease Charcot-Marie-Tooth Disease ... Meckel-Gruber Syndrome adunitCM(150,100,'x55') From Mary Kugler
Arthrogryposis
Links to articles, information, and resources for arthrogryposis.
http://rarediseases.about.com/cs/arthrogryposis/

Extractions: zJs=10 zJs=11 zJs=12 zJs=13 zc(5,'jsc',zJs,9999999,'') zfs=0;zCMt='a70' About Rare / Orphan Diseases Rare Diseases Essentials ... Help zau(256,140,140,'el','http://z.about.com/0/ip/417/C.htm','');w(xb+xb+' ');zau(256,140,140,'von','http://z.about.com/0/ip/496/6.htm','');w(xb+xb); Sign Up Now for the Rare / Orphan Diseases newsletter! New York Times Company Hurricane Katrina About's Hurricane Blogs NY Times Coverage Where to Donate Exclusive: One Family's Story ... How to Explain to Kids Related Topics Multiple Sclerosis Parenting Special Needs Sleep Disorders Headlines Cystic Fibrosis Foundation helps Hurricane Katrina victims Robert J. Beall, Ph.D, President and CEO of the Cystic...

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