Anencephaly Of The Brain anencephaly of Brain From the Virtual Pathology Museum, Department of Pathology, University of Connecticut Health Center. http://radiology.uchc.edu/eAtlas/CNS/441.htm
Show HD Leaflets anencephaly is a neural tube defect (a disorder involving incomplete anencephaly occurs when the cephalic or head end of the neural tube fails to http://www.healthtouch.com/bin/EContent_HT/showallLfts.asp?lftname=NINDS194&cid=
Michaela Hope Bucher Lost to anencephaly February 18, 1999. Michaela's story, photos, and poems. http://www.angelfire.com/mn/michaelashope/index.html
Extractions: Anencephaly is a neural tube defect that causes the brain and skull to stop developing, very early, in fetal development. Anencephaly has no treatment, or cure, and is always fatal. Roughly 1 in every 1,000 pregnancies is affected by this or another neural tube defect, such as Spina Bifida. Consequently, many parents face difficult and heart wrenching decisions regarding their baby's life. They must often make these decisions with very little information about anencephaly itself which is why we have chosen to share our story. In September of 1998 a "routine" ultrasound revealed that our baby's brain and skull had not developed. Not wanting to believe that anything could be wrong with OUR baby, we searced for answers and sought second and third opinions. Doctors explained that Michaela was lacking the upper portion of her skull at about the eyebrow level and that at best, she might live for 48 hours. I was about 20 weeks pregnant at that time and our options were as follows: to have a partial birth abortion, to induce labor, or to continue with the pregnancy. We already had two beautiful healthy little boys at home, ages 4 and 19 months and couldn't imagine life without any of our children, including this one. Faced with the reality that our baby would die, Joey and I did a lot of soul searching, and after several weeks, decided to continue with the pregnancy. The decision gave us peace of mind and allowed us to focus on our baby, and the best way to love her, for however long she might be with us. Having made that decision, we contacted Doctors at Mayo Clinic in Rochester, MN and sought consultation. After a lengthly ultrasound, and discussion with both a perinatologist and a neonatologist, we left Rochester confident in our decision to carry our baby girl to term.
Anencephaly anencephaly is a neural tube defect a disorder involving incomplete development of the brain, spinal cord, and/or their protective coverings. http://healthlink.mcw.edu/article/921383913.html
Extractions: Subscribe now >> Anencephaly is a neural tube defect (a disorder involving incomplete development of the brain, spinal cord, and/or their protective coverings). The neural tube is a narrow sheath that folds and closes between the 3rd and 4th weeks of pregnancy to form the brain and spinal cord of the embryo. Anencephaly occurs when the "cephalic" or head end of the neural tube fails to close, resulting in the absence of a major portion of the brain, skull, and scalp. Infants with this disorder are born without both a forebrain (the front part of the brain) and a cerebrum (the thinking and coordinating area of the brain). The remaining brain tissue is often exposednot covered by bone or skin. The infant is usually blind, deaf, unconscious, and unable to feel pain. Although some individuals with anencephaly may be born with a rudimentary brain stem, the lack of a functioning cerebrum permanently rules out the possibility of ever gaining consciousness. Reflex actions such as respiration (breathing) and responses to sound or touch may occur. The cause of anencephaly is unknown. Although it is believed that the mothers diet and vitamin intake may play a role, scientists believe that many other factors are also involved.
Anencephaly Detailed information on anencephaly, including causes, symptoms, diagnosis, and treatment. http://www.healthsystem.virginia.edu/uvahealth/peds_neuro/anenceph.cfm
Extractions: [ Skip Navigation ] Topics Adolescent Medicine Allergy/Asthma/Immunology Blood Disorders Burns Cancer Common Injuries/Poison Tips Craniofacial Anomalies Dermatology Diabetes/Endo/Metabolism Eye Care Genitourinary/Kidney High-Risk Newborn High-Risk Pregnancy Infectious Diseases Medical Genetics Mental Health Nervous System Disorders Normal Newborns Oral Health Orthopaedics Pediatric Surgery Respiratory Disorders Terminal Illness in Children Transplantation Search This Site Anencephaly is a condition present at birth that affects the formation of the brain and the skull bones that surround the head. Anencephaly results in only minimal development of the brain. Often, the brain lacks part or all of the cerebrum (the area of the brain that is responsible for thinking, vision, hearing, touch, and movement). There is no bony covering over the back of the head and there may also be missing bones around the front and sides of the head. What causes anencephaly?
Calebs Memorial Memorial to Caleb who was lost to anencephaly on March 30, 1999. http://www.geocities.com/angel33099/
Extractions: Welcome To Calebs Memorial This Memorial Site is for our baby Caleb, he was diagnosed with Anencephaly when I was 4 months pregnant. On that day we had a very hard decision to make but there was no doubt in my mind that I would try and carry our baby to term. There isn't a decision to me that can be the wrong decision to make, we all love our precious babies very much and will do what we feel is best. This decision is the first hard one we had to make as parents. I have made this site not only in the memory of my little angel, but for other parents who are hurting and need support. I want them to know that they are not alone, we do care. I want them to know that we know and feel their pain, and it's hard. This site is for ALL the Mommy's and Daddy's that have lost a baby to Anencephaly. May God Bless you and give you strength in your time of need. Where would you like to go? SITE MAP Please stay awhile a browse through our pages, I'm sure you'll enjoy your stay. Many thanks to Sassy for this wonderful gift!!! Feel free to place this banner on your website with a link back to this page.
Extractions: rdering information available on FBR Order Form (154K PDF) Understanding Anencephaly and Understanding Spina Bifida These two pamphlets sensitively describe the etiology, diagnosis, and prognosis of these two disorders. Line drawings gently portray the distinctive changes seen in the formation of the skull or spinal column. Reference is made to the feelings and emotions experienced by parents faced with these diagnoses prenatally or neonatally. Written at a 9th grade reading level, each pamphlet encourages discussion with genetic specialists to help provide a fuller understanding and acceptance of the situation. The use of folic acid is mentioned as a means to minimize recurrence. Internet resources are also provided. An order form (154K PDF) is available to request copies of these pamphlets. Understanding Ventral Wall Defects The distinctions between omphalocele and gastroschisis are described, including prognosis. Sensitive line drawings are used to help parents understand the diagnosis. Reference is made to the feelings and emotions experienced by parents faced with this diagnosis prenatally or neonatally. The pamphlet, written at a 9th grade reading level, encourages discussion with genetic specialists to help provide a fuller understanding and acceptance of the situation. An order form (154K PDF) is available to request copies of this pamphlet.
Anencephaly Provides an article about anencephaly. http://www.healthlink.mcw.edu/article/921383913.html
Extractions: Subscribe now >> Anencephaly is a neural tube defect (a disorder involving incomplete development of the brain, spinal cord, and/or their protective coverings). The neural tube is a narrow sheath that folds and closes between the 3rd and 4th weeks of pregnancy to form the brain and spinal cord of the embryo. Anencephaly occurs when the "cephalic" or head end of the neural tube fails to close, resulting in the absence of a major portion of the brain, skull, and scalp. Infants with this disorder are born without both a forebrain (the front part of the brain) and a cerebrum (the thinking and coordinating area of the brain). The remaining brain tissue is often exposednot covered by bone or skin. The infant is usually blind, deaf, unconscious, and unable to feel pain. Although some individuals with anencephaly may be born with a rudimentary brain stem, the lack of a functioning cerebrum permanently rules out the possibility of ever gaining consciousness. Reflex actions such as respiration (breathing) and responses to sound or touch may occur. The cause of anencephaly is unknown. Although it is believed that the mothers diet and vitamin intake may play a role, scientists believe that many other factors are also involved.
EMedicine - Anencephaly Article By Robert G Best, PhD anencephaly anencephaly is a neural tube defect (NTD) in which the brain and cranial vault are grossly malformed. The cerebrum and cerebellum are reduced http://www.emedicine.com/neuro/topic639.htm
In Loving Memory Of Annalise Memorial to this child lost August 14, 1998, to anencephaly and spina bifada. http://www.geocities.com/simonmanz/
Extractions: I live in Tasmania, Australia, and all of the personal stories on the internet are written by other Mothers who, as far as I am aware, live in America. By writing of my journey through the weeks after the diagnosis till Annalise's eventual death, I hope my story will be of encouragement to other mothers carrying their babies to term with anencephaly or any fatal defect.
NORD - National Organization For Rare Disorders, Inc. anencephaly is a disorder involving the incomplete development of major parts or anencephaly is classified as a neural tube defect (NTD), and that term http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Anencephaly
Gross Specimens - Anencephaly anencephaly is characterized by the absence of scalp, calvarium, and normal brain, which is replaced by an angiomatous mass. The typical appearance of the http://almashriq.hiof.no/ddc/projects/health/specimens/gross-specimens/fetuses/a
Extractions: Anencephaly "Anencephaly is characterized by the absence of scalp, calvarium, and normal brain, which is replaced by an angiomatous mass. The typical appearance of the face (batracian phenotype) is due to absent frontal bones and shallow orbits causing protrusion of the eyeballs." Potter's Pathology of the Fetus and Infant
For Hope. . .Index Memorial to this daughter who died four hours after birth due to anencephaly. Hope's story, photos, and poems. http://www.angelfire.com/in2/forhope6396/
Gross Specimens - Anencephaly anencephaly. from the Gross Specimens collection, courtesy of AUBMC, Department of Pathology. Photography by Børre Ludvigsen, July 1997 http://almashriq.hiof.no/ddc/projects/health/specimens/gross-specimens/fetuses/a
Margo's Faith Faith was diagnosed with anencephaly while still in the womb. Her mother, Margo, chose to carry her to term. Faith was born in March of 2001, and lived until October, 2003. http://faithaminah.tripod.com/
Extractions: March 26, 2001 - October 4, 2003 At 20 weeks inside the womb, Faith Aminah Shabazz was diagnosed as having anencephaly. Anencephaly is a neural tube defect where a major portion of the brain and skull is not developed. Rahim comforted me as I cried and cried and prayed to God not to let this happen to us. The maternal fetal medicine specialist said that most people terminate their pregnancy. We both said that terminating the pregnancy was out of the question. The doctor then said that Faith Aminah would either be stillborn, or die within a few hours, which is typical for anencephalic babies. We kept right on praying to God for the healing of our baby. Visit after visit we kept praying for a change on the ultrasound. The result appeared to always be consistent. We told our family and friends what we were told by the doctor. Their hearts and prayers went out to us. During this time my cousin Armi was reading a Jet magazine. She called me up to share a story about having hope and faith, and believing that what God had done for Olympia McGill and her baby, Felici, he could do the same for me. After reading Olympia's story, I called information for her phone number. I left several messages for her. I was anxious to share my story after hearing how God had healed her baby. She said the doctors had also told her that her baby had no chance of survival. As months passed, Olympia and I became great friends. She was here for the birth of Faith Aminah, along with my mom. Rahim and Olympia were at my side in the delivery room.
Anencephaly - Lucile Packard Children's Hospital anencephaly is a condition present at birth that affects the formation of the brain and anencephaly results in only minimal development of the brain. http://www.lpch.org/diseaseHealthInfo/HealthLibrary/neuro/anenceph.html
Extractions: Stanford, Lucile Packard Researchers Uncover Mystery Behind How Skull Plates Fuse Anencephaly Anencephaly is a condition present at birth that affects the formation of the brain and the skull bones that surround the head. Anencephaly results in only minimal development of the brain. Often, the brain lacks part or all of the cerebrum (the area of the brain that is responsible for thinking, vision, hearing, touch, and movement). There is no bony covering over the back of the head and there may also be missing bones around the front and sides of the head. Anencephaly is a type of neural tube defect. Neural tube defects, spina bifida (open spine) and anencephaly (open skull) are seen in one per 1,000 live births. During pregnancy, the human brain and spine begin as a flat plate of cells, which rolls into a tube, called the neural tube. If all or part of the neural tube fails to close, leaving an opening, this is known as an open neural tube defect, or ONTD. This opening may be left exposed (80 percent of the time), or covered with bone or skin (20 percent of the time). Anencephaly and spina bifida are the most common ONTDs, while encephaloceles (where there is a protrusion of the brain or its coverings through the skull) are much rarer. Anencephaly occurs when the neural tube fails to close at the base of the skull, while spina bifida occurs when the neural tube fails to close somewhere along the spine.
Loren Memorial to this son lost September 20, 1999, to anencephaly. Loren's story, photo, and poems. http://www.geocities.com/simonmanz/friend.html
Extractions: I was so thankful for Carol's presence! I was moved to antepartum, where the nurse tried several times with difficulty to get Loren's heartbeat to pick up on the fetal monitor. Dr. Petty planned an ultrasound AND an amniocentesis as he said many times pre-term labor is caused by intra-uterine infections, which the amnio would pick up. I was very hesitant about having one done, but he advised me it would be best, so I agreed. The ultrasound tech had lovely long hair and a grumpy attitude. She scanned my belly then told me we were having a boy! What pleasure I felt...I had been correct all along in my intuition! She left the room soon after beginning the scan, which I didn't even notice as I was still excited about the gender. The radiologist came in and he started scanning, asking me to turn way over on my left side as he "could not get a
