Fanconi Anemia / Family Village Features contact information for the Fanconi anemia Research Fund. Links topersonal accounts and areas where one can learn about the disease. http://www.familyvillage.wisc.edu/lib_fanc.htm
Extractions: Web: http://www.fanconi.org/ The Fanconi Amenia Research Fund raises money for research which can lead to discovery of defective genes and the development of treatments or a cure. They also mantain a growing communication support network of parents and adults with Fanconi Anemia. FARF supports the development of life-saving gene transfer therapies, and sponsers and conducts scientific symposia. They distribute support materials for affected families and their physicians. The Fund develops and maintains a growing communication support network, here parents and clinicians receive research updates, families may find expert care, cell lines are submitted for research, and parents locate others in their area for support or to develop joint fundraising projects. The FA Handbook , the FA Family Newsletter Scientific Supplement , and Bulletin all provide up-to-date education and links to latest research findings. The Fund maintains a family directory by alphabetical and geographical lists and refers families to each other according to similiar needs or age groups.
Extractions: This article originally appeared in the May 1996 FDA Consumer and contains revisions made in December 1997 and February 1999. The article is no longer being updated. New Hope for People with Sickle Cell Anemia by Eleanor Mayfield In tropical regions of the world where the parasite-borne disease malaria is prevalent, people with a single copy of a particular genetic mutation have a survival advantage. Over time, people from these regions have migrated, had children, and in some cases married each other. Some of their children inherit two copies of the mutation. While inheriting one copy of the mutation confers a benefit, inheriting two copies is a tragedy. Children born with two copies of the genetic mutation have sickle cell anemia, a painful disease that affects the red blood cells and is curable only in rare instances. In February 1998, the Food and Drug Administration approved the drug Droxia (hydroxyurea) for reducing painful episodes in adults with a severe form of sickle cell anemia. The drug doesn't cure the disease. Hydroxyurea also is approved under the name Hydrea for treating certain cancers. Genetic Defect Changes Cell Shape The genetic defect that causes sickle cell anemia affects hemoglobin, a component of red blood cells. Hemoglobin's job is to carry oxygen to all the cells and tissues of the body. Red blood cells that contain normal hemoglobin (such as the one pictured top right) are soft and round. Their soft texture enables them to squeeze through the body's small blood vessels.
OHSU Division Of Hematology & Medical Oncology An in depth study and article about anemia by Thomas G. DeLoughery, Associate Professor of Medicine. http://www.ohsu.edu/som-hemonc/handouts/deloughery/anemia.shtml
Extractions: "The disease of cancer will be banished from life by calm, unhurrying, persistent men and women, working with every shiver of feeling controlled and suppressed in hospitals and laboratories, and the motive that will conquer cancer will not be pity or horror; it will be curiosity to know how and why."
Extractions: Home Search Alternative Medicine Stress Management ... Media Health Problems Conventional, Holistic, and Integrative Treatments for Anemia Anemia Description Herbal Medicine Homeopathy Conventional Treatment ... HolisticOnLine Home Description of Anemia Iron deficiency anemia is the most common nutritional disease in the world. Anemia literally means, "without blood", and is a deficiency of red blood cells, or the presence of abnormal red blood cells due either to reduced production, abnormal production, excess destruction, or blood loss. Symptoms of Anemia Tiredness, dizziness, headaches, depression, slow healing, loss of sex drive, bruising, nervousness, shortness of breath, pallor and palpitation. Main Causes of Anemia: Iron deficiency Vitamin B-12 or folic acid deficiency Vitamin C deficiency Vitamin E and B-6 deficiency Thyroid disorders Alcoholism Lead Toxicity Infectious diseases such as malaria Seek Professional Help When... Your skin is pale and you feel weak, tired and out of breath. Your tongue is slick or smooth.
Anemia In The Cat ~ Pawprints And Purrs, Inc. anemia is a reduced number of red blood cells or hemoglobin or both. It is nota specific disease but the result of some disease process. http://www.sniksnak.com/cathealth/anemia.html
Extractions: Any health care links located here are NOT to replace a veterinarian visit; please take your cat to a vet immediately at any sign of odd behavior or any symptoms of illness or injury. Call your vet and describe your cat's symptoms with any of your concerns about the cat's well-being. Your veterinarian may discover changes in your cat's health that you have overlooked. It is always better to err on the side of caution.
Extractions: CNN.com Health Writer ATLANTA, Georgia (CNN) - Although research continues, sickle cell anemia remains an "orphan disease" attracting little notice despite its harvest of pain and early death. But a new film documentary may help to educate viewers about the disease, which affects about 80,000 people in the United States and millions worldwide. Called "Sickle Cell: The Forgotten Disease," the film will air at 10 p.m. EST on the Discovery Health Channel. It is being co-produced by the Dr. Spock Company. "It's hard to get funding or people interested in trials," said Dr. James Eckman, director of the Georgia Comprehensive Sickle Cell Center at Grady Health System. "But because this is a lifelong, chronic problem, it has a greater impact." CONDITION CLINIC Sickle Cell disease A genetic disorder, sickle cell disease attacks red blood cells, making them rigid and distorting their normally round shape into crescents and points. These misshapen cells can easily clog tiny blood vessels and deprive organs and tissues of vital oxygen, causing intractable pain crises. In addition, children with sickle cell are more prone to stroke, pneumonia, infection and other long-term complications.
Hemic And Lymphatic Diseases About the Epidemiology of anemia Supercourse Lecture/U of Pittsburgh (US) Information on Aplastic anemia from Johns Hopkins/Sidney Kimmel Center http://www.mic.ki.se/Diseases/C15.html
Extractions: Diseases and Disorders Links pertaining to Hemic and Lymphatic Diseases Alert! Patients and laypersons looking for guidance among the target sources of this collection of links are strongly advised to review the information retrieved with their professional health care provider. Start Page Contents: Afibrinogenemia Afibrinogenemia Afibrinogenemia Anemia ... von Willebrand Disease Hemic and Lymphatic Diseases BloodBook .com Human Blood [D O'Neil] - Palomar College (US) Normal Blood - HMDS (UK) Cells of the Blood [clickable map] - University of Leicester (UK) A Demo module Montandon et al. ] from HemoSurf/IMC About Erythrocytes , and Leukocytes - Encyclopedia.com About some Hematological Laboratory Tests - ASCLS An Educational Presentation of Basic Hematology - Puget Sound Blood C.(US) Haem.net [laboratory hematology] HemoSurf , an interactive hematology atlas [Woermann et al.] Morphological Cell Atlas [registration required, no charge] - CellaVision AB Some Blood Chemistry Definitions - Carbon Based Corp.
NCCN Patient Guidelines CancerRelated Fatigue and anemia Treatment Guidelines for Patients VersionII / April 2003. Click here to begin, American Cancer Society http://www.nccn.org/patients/patient_gls/_english/_fatigue/contents.asp
Fanconi Anemia Disease Fact Sheet on this anemia with emphasis on FANCC variant of disease being a Jewish Genetic Diseases, including support resources. http://www.mazornet.com/genetics/fanconi_anemia.htm
Anemia anemia is defined as lowering of red blood cells and disruption of their mostimportant Damage and destruction of the red blood cells can cause anemia. http://www.tirgan.com/anemia.htm
Extractions: Anemia Anemia is defined as lowering of red blood cells and disruption of their most important function carrying oxygen. In cancer patients, it may be mild to severe and may be attributable to a variety of causes. Severity of anemia may increase as the disease progresses. Causes: Reduced production of blood from bone marrow, which is normally due to suppression of bone marrow by the cancer. Some cancers produce substances with a direct negative impact on the bone marrow; other cancers can spread and occupy the bone marrow space and interfere with blood production. In most instances, treatment of cancer also harms the bone marrow. Chemotherapy and Radiation therapy may both cause anemia. Bleeding may occur in cancer patients and result in anemia. Blood loss could be directly from the cancer site, as in colon cancer where bleeding occurs inside the large bowel. It may also be due to other causes. Cancer treatment can cause lowering of platelets which can make patients prone to bleeding. Most common sites for this kind of bleeding are the stomach and bowels, under the skin, gums, in the urine, etc.
Fanconi Anemia Web An informational site for this disorder. http://members.tripod.com/fanconianemiaweb
Extractions: var TlxPgNm='index'; setAdGroup('67.18.104.18'); var cm_role = "live" var cm_host = "tripod.lycos.com" var cm_taxid = "/memberembedded" Search: Lycos Tripod Star Wars Share This Page Report Abuse Edit your Site ... Next Quality Web Site Design that is helping to save terminally ill kids lives by donating 15% of their web design fee to The Fanconi Anemia Research Fund! Fanconi Anemia is a rare and terminal genetic childhood disease that results in death due to Bone marrow failure. See Tucker's "Tucker Time!" photo page My baby boy Tucker's fatal Fanconi Anemia diagnosis totally devastated and encompassed my life with despair...Never have I experienced such a profound weeping of my soul... The only way I Knew that I was going to be able to break the paralyzing depression I was in, was to try to turn my despair into Hope . By devoting myself to "Taking Action" And doing all I can to offer help and resources to others dealing with this heartbreaking disease, and to provide up to date access to medical documentation for Doctors, researchers, medical students and anyone seeking knowlege on this very rare genetic childhood disease. I pray there is a "Miracle" behind the tragedy of this disease...for it is well documented that researchers world wide are learning more and more that equal to the extreme rareness of Fanconi Anemia is counter matched by concentrated properties and similarities that with continued research could unveil a cure for cancer and Leukemia as well. That truly would be a breakthrough for all mankind not just the rare several thousand Fanconi Anemia cases reported globally. The urgency of continued research is also why I created this Web Site to generate a comradery of Fundraising efforts, volunteers and contributions to The Fanconi Anemia Research Fund. I also donate 20% of my web site design fee to the Research Fund as well at my other site:
Welcome To The DBA Foundation! OUR MISSION The mission of the Diamond Blackfan anemia Foundation, ABOUT DBADiamond Blackfan anemia (DBA) is a rare red blood cell anemia usually http://www.dbafoundation.org/
Extractions: OUR MISSION: The mission of the Diamond Blackfan Anemia Foundation, Inc. (DBAF) is "to collectively and actively generate funds for the charitable and scientific purpose of furthering, by clinical study, laboratory research, publication and teaching, the knowledge of the disorder known as Diamond Blackfan Anemia (DBA). Our intentions are to share this knowledge, to inform, to lend support, and to communicate with all families of DBA patients." THE DBAF TODAY: The DBAF supports itself solely through donations and is staffed exclusively by volunteers. The DBAF also funds medical research projects approved by its scientific advisory board. It organizes family meetings, publishes a semi-annual newsletter, and provides literature for those directly affected by DBA.
Iron Disorders Institute Disorders Iron Deficiency Anemia Iron Deficiency anemia (IDA) is a condition where one has inadequate amounts of iron Among other causes of anemia are disorders such as problems of iron http://www.irondisorders.org/disorders/ida/
Hope For Henry This web site is dedicated to helping people learn more about what a special young man Henry is and to educate everyone about the disease he is fighting, Fanconi anemia. http://www.hsg.org/
Extractions: Henry Strongin Goldberg was born on October 25, 1995. Henry knows all there is to know about Pokémon, believes that Disney World is the best place on earth, plays soccer, worships superheroes and wrestles with his younger brother Jack way past bedtime. Everything he does makes his parents smile. In these and so many other ways, Henry is a lot like other boys his age. But this lover of life and everything Batman is different from other kids because Henry has a horrible disease that threatens his life. After a scary and difficult five years of endless waiting rooms, doctor's visits, blood tests, EKG's, bone marrow aspirations, IV's, surgeries, transfusions, drugs, scars and a bone marrow transplant in July 2000 that met with innumerable complications, Henry faces a very uncertain future. This web site is dedicated to helping people learn more about what a special and brave young man Henry is and to educate everyone about the disease he is fighting, Fanconi anemia (FA). Through raising awareness and money for research and encouraging people to register to be a bone marrow donor, our family strives to give Hope for Henry and other children suffering from this killer. We welcome you to the site and encourage you to tell others about it and to bookmark this page so you can keep abreast of Henry's progress.
WELCOME TO FANCONI CANADA Canadian charity whose mission is to fund medical research into finding a cure for Fanconi anemia and to serve as a support network for affected Canadian families. http://www.fanconicanada.org
IBMFS - Diamond-Blackfan Anemia DBA patients have only low red cell counts (anemia). The rest of their bloodcells (the platelets and the white cells) are normal. ~25% of DBA patients have http://marrowfailure.cancer.gov/DBA.html
Extractions: Other Bone Marrow Failure Syndromes DBA patients have only low red cell counts ( anemia ). The rest of their blood cells (the platelets and the white cells ) are normal. ~25% of DBA patients have physical abnormalities, often involving malformations of the thumbs. Most patients are diagnosed within the first year of life. Detecting a mutation in the one known DBA gene confirms the diagnosis. However, failure to find a mutation in this DBA gene does not eliminate the diagnosis of DBA. This is because the one gene which has been identified so far explains only ~25% of the disease occurrences. A second gene has been located but not yet identified, and there appears to be at least a third gene, not yet discovered, which can cause DBA. Currently, DBA is diagnosed by clinical findings after exclusion of other known causes of pure red cell anemia . Males and females are affected equally. What are the major findings on physical examination?
Fanconi Anaemia Resource Page A rare disorder found in children that involves the blood and bone marrow. The symptoms include severe aplastic anemia, hypoplasia of the bone marrow, and patchy discoloration of the skin. http://www.cancerindex.org/ccw/fanconi.htm
Extractions: Fanconi Anaemia Menu Cancer-Types Fanconi Anaemia Fanconi Anaemia is a rare disorder found in children that involves the blood and bone marrow. The symptoms include severe aplastic anemia , hypoplasia of the bone marrow, and patchy discoloration of the skin. This is an autosomal recessive condition, affected children usually develop severe aplastic anemia by age 8 to 9 years. Treatment usually consists of bone marrow transplant. Fanconi Anaemia is not a cancer, though recent research has shown an association between Fanconi Anaemia and leukaemia. There are 8 types of Fanconi Anaemia; known as complementation groups A through to H. Some definitions: Anemia below normal levels of erythrocytes (red blood cells) Aplastic anemia anemia that is resistant to treatment; often accompanied by deficiencies of other blood cells. Hypoplasia incomplete / under development of a part of the body. Pancytopenia deficiency of all types of blood cells. Recessive (genetics) if the required allele (a type of gene) is not present in both members of a pair of chromosomes then that allele is not expressed.
NCCS: Palliative Care & Symptom Management - Side Effects - Anemia anemia caused when there are not enough red blood cells in the body occursin the The most common causes of anemia for people with cancer are http://www.canceradvocacy.org/resources/essential/effects/anemia.aspx
