Alstrom Syndrome UK Support Group Information centre and discussion forum for anyone with an interest in this disorder. http://www.alstrom.org.uk/
Alstrom Syndrome Supporting those affected by alstrom syndrome photographs of five children with Alström Syndrome International. alstrom syndrome International logo http://www.jax.org/alstrom/
Extractions: Alström Syndrome is a very rare, hereditary genetic disorder first described by C.H. Alström in Sweden in 1959. Since then, there have been only 91 cases reported in the medical literature. We currently have identified 322 individuals with Alström Syndrome in thirty-nine different countries. Alström Syndrome is progressive. The first sign observed in infants is usually extreme light sensitivity (photophobia) and a wobbling of the eyes (nystagmus). Another of the first signs MAY be dilated cardiomyopathy and congestive heart failure in infants under 1 year of age. Children rapidly gain weight during their first year and become obese as young children. Later, multiple organ systems in the body can be affected resulting in blindness, hearing impairment, type 2 diabetes, heart failure, liver disease, urological dysfunction, pulmonary fibrosis, and renal failure. For additional information see Clinical Features and Gene Reviews Alström Syndrome International Our mission
Alstrom Syndrome Clinical Features Mode of Inheritance Alstrom Research Medical Literature alstrom syndrome International ASI Conferences For Professionals Memorials http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126
Extractions: Click on the image below to download the reader. Mission To provide support, information, and coordination world-wide to families and professionals in order to treat and cure Alström Syndrome Alström Syndrome International was formed in August, 1995 at the First International Alström Syndrome "Reunion" in Yarmouth, Nova Scotia. Alström Syndrome International is intended for families, friends, and professionals worldwide whose lives have been touched by Alström Syndrome. Alström Syndrome International is reliant on membership and charitable contributions to continue to foster its goals, and is a registered nonprofit corporation. Alström Syndrome International Board of Directors
Alstrom Syndrome International Medical Literature. alstrom syndrome International ASI 2004 Conference For Professionals Memorials Resources alstrom syndrome. We subscribe to the http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126
? Alstrom Syndrome A medical encycopedia article on the topic alstrom syndrome http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126
AllRefer Health - Alstrom Syndrome alstrom syndrome information center covers causes, prevention, symptoms, diagnosis, treatment, incidence, risk factors, signs, tests, support groups http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126
Alstrom Syndrome UK Support Group Support for people with Alstr m Syndrome and their carers This website is under constructions. http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126
That Stinks People With Rare Obesity Syndrome Can't Sense Odors alstrom syndrome Genetics Studied At Jackson Laboratory (July 20, 1998) Scientists at The Jackson Laboratory are working towards http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126
Alstrom Syndrome / Family Village Library Learn More About It * Web Sites * Search Google for alstrom syndrome Web http//www.jax.org/alstrom/. Alström Syndrome International (formerly known http://www.familyvillage.wisc.edu/lib_alst.htm
Extractions: Web: http://www.jax.org/alstrom/ Alström Syndrome International (formerly known as Society for Alström Syndrome Families) was formed in August, 1995 at the First International Alström Syndrome "Reunion" in Yarmouth, Nova Scotia. Alström Syndrome International is intended for families, friends, and professionals worldwide whose lives have been touched by Alström Syndrome. Alström Syndrome International is reliant on membership and charitable contributions to continue to foster its goals, and is a registered nonprofit corporation. Alström Syndrome discussion group
Alstrom Syndrome Canada Home Page. What is Alstr m Syndrome? About Alstr m Syndrome. ASC Objectives. Director's Remarks. ASC Initiatives. What's new? http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126
Alstrom Syndrome links to national and international support groups, clinics with genetic counselorsand geneticists. http://www.kumc.edu/gec/support/alstrom.html
MedlinePlus Medical Encyclopedia Alstr M Syndrome Support Groups Alstr m Syndrome International 14 Whitney Farm Road Mount Desert, Maine 04660 Expectations (prognosis) http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126
Alstrom Syndrome / Family Village Library Who to Contact Where to Go to Chat with Others Learn More About It Web Sites Search Google for "alstrom syndrome" http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126
► Alstrom Syndrome A medical encycopedia article on the topic alstrom syndrome. http://www.umm.edu/ency/article/001665.htm
Alstrom Syndrome alstrom syndrome Support Group, United Kingdom. Alstr m Syndrome Canada Genetic counselors and clinical geneticists http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126
NORD - National Organization For Rare Disorders, Inc. Synonyms of alstrom syndrome. ALMS. Disorder Subdivisions. General Discussionalstrom syndrome is a rare genetic disorder most often characterized by vision http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Alstrom Syndr
NORD - National Organization For Rare Disorders, Inc. alstrom syndrome UK is an international voluntary health organization dedicated alstrom syndrome is a rare genetic disorder characterized by progressive http://www.rarediseases.org/search/orgdetail_full.html?org_name=Alstrom Syndrome
Extractions: AllRefer Channels :: Yellow Pages Reference Health Home ... Contact Us Quick Jump ADD/ADHD Allergies Alzheimer's Disease Arthritis Asthma Back Pain Breast Cancer Cancer Colon Cancer Depression Diabetes Gallbladder Disease Heart Attack Hepatitis High Cholesterol HIV/AIDS Hypertension Lung Cancer Menopause Migraines/Headaches Osteoporosis Pneumonia Prostate Cancer SARS Stroke Urinary Tract Infection 1600+ More Conditions Alternative Medicine Health News Symptoms Guide Special Topics ... Medical Encyclopedia Go To Main Page Alstrom Syndrome Treatment There is no specific treatment for this syndrome. Diabetes can be treated with oral medications, insulin, or a combination of both. Cholesterol can be reduced with medications. Hearing can be augmented with hearing aids. If heart abnormalites are present, medications such as ACE inhibitors, beta-blockers, or spironolactone can be given to improve heart function. Hypothyroidism can be treated with thyroid hormone replacement.
