1. Cancer Research Fund - VHL Family Alliance Homepage Dedicated to improving diagnosis, treatment, and quality of life for individuals and families affected by von hippellindau disease. http://www.vhl.org/

Cancer Research Fund / VHL Alliance Dedicated to improving diagnosis, treatment, and quality of life for individuals and families affected by Von Hipp e l-Lindau disease Join the VHL Family Alliance mailing list Email: See what's happening on eBay Free coffee and a donut for Mom August/Sept newsletter online VHLFA honored ... About this site Language s: auf deutsch dansk Belgie Canada ... European Countries Last updated 30-Aug-2005

2. Von Hippel-Lindau Disease (VHL) Information Page: National Institute Of Neurolog Information sheet on this disease compiled by NINDS, the National Institute of Neurological Disorders and Stroke. http://www.ninds.nih.gov/disorders/von_hippel_lindau/von_hippel_lindau.htm

Accessible version Science for the Brain The nation's leading supporter of biomedical research on disorders of the brain and nervous system More about Von Hippel-Lindau Disease (VHL) Studies with patients Research literature Press releases Search NINDS... (help) Contact Us My Privacy NINDS is part of the National Institutes of Health You are here: Home Disorders von Hippel-Lindau Disease NINDS Von Hippel-Lindau Disease (VHL) Information Page Synonym(s): Angiomatosis Get Web page suited for printing Email this to a friend or colleague Table of Contents (click to jump to sections) What is Von Hippel-Lindau Disease (VHL)? Is there any treatment? What is the prognosis? What research is being done? ... Organizations What is Von Hippel-Lindau Disease (VHL)? Is there any treatment? Treatment for VHL varies according to the location and size of the tumor and its associated cyst. In general, the objective of treatment is to treat the growths when they are causing symptoms but while they are still small so that they do not cause permanent problems by putting pressure on the brain or spine, blocking the flow of cerebrospinal fluid in the nervous system, or impairing vision. Treatment of most cases of VHL usually involves surgery to remove the tumors before they become harmful. Certain tumors can be treated with focused high-dose irradiation. Individuals with VHL need careful monitoring by a physician and/or medical team familiar with the disorder.

3. Von Hippel-Lindau Disease (VHL) Information Page National von hippellindau disease information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke. http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

4. Von Hippel-Lindau Disease (VHL) French Homepage Translate this page pour améliorer le diagnostic, le traitement, et la qualité de vie des individus et des famillies atteints de la maladie von Hippel-Lindau http://www.vhl.org/fr/

171 Clinton Road, Brookline, MA 02445-5815 USA Fax: +1-858-712-8712 sans frais U.S., Mexico, Canada: info-fr@vhl.org Soutien en d'autres langues in english auf deutsch dansk Belgie ... Bulletin d'Adhesion Groupes de Soutien Dans le monde Etats Unis Contactez Nous 18-Jul-2005 L'organisation "mère" , le VHL Family Alliance, aux Etats-Unis compte plus de 6'500 membres venant du monde entier; y compris patients, membres de famille, médecins et chercheurs. On estime que 14'000 personnes avec le VHL ont été touchées par l'organisation, dans plus de 80 pays du monde - et le nombre croit tous les jours! forum de discussion sur internet Liste VHLFA francophone , et nous vous aiderons. L'Association VHL France, l' 18 juin 2005 rapport pourquoi Une info de Gilles Bohlinger 18 mai 2005 Une rencontre vendredi 18 mars 2005 Voir l'introduction de Il y a aussi une bonne organisation canadienne , qui se trouve au Canada.

5. Alianza Von Hippel-Lindau Dedicated to improving diagnosis, treatment, and quality of life for individuals and families affected by von hippellindau disease. http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

6. Von Hippel-Lindau Disease (VHL) French Homepage pour am liorer le diagnostic, le traitement, et la qualit de vie des individus et des famillies atteints de la maladie von HippelLindau http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

7. Von Hippel-Lindau Disease Article describes von hippellindau disease, its symptoms, diagnosis, and treatment. http://rarediseases.about.com/cs/vonhippellindau/a/032104.htm

var zLb=4; var zIoa1 = new Array('Suggested Reading','Internet links on von Hippel-Lindau disease','http://rarediseases.about.com/cs/vonhippellindau/index.htm'); zJs=10 zJs=11 zJs=12 zJs=13 zc(5,'jsc',zJs,9999999,'') zfs=0;zCMt='a70' About Rare / Orphan Diseases Rare Diseases S - V Rare Diseases: V Von Hippel-Lindau Disease Rare Diseases Essentials Rare Diseases: Basic Information Rare Diseases Support Groups ... Help zau(256,140,140,'el','http://z.about.com/0/ip/417/C.htm','');w(xb+xb+' ');zau(256,140,140,'von','http://z.about.com/0/ip/496/7.htm','');w(xb+xb); FREE Newsletter Sign Up Now for the Rare / Orphan Diseases newsletter! See Online Courses Search Rare / Orphan Diseases Stay up to date! Compare Prices Email to a friend ... Print this page Suggested Reading Internet links on von Hippel-Lindau disease Most Popular Muscular Dystrophy ALD and Lorenzo's Oil Progeria Syndromes Leprosy (Hansen's Disease) ... The Elephant Man What's Hot Charcot-Marie-Tooth Disease Peyronie's Disease Twin-to-Twin Transfusion Synd Autoimmune Kidney Disease ... Cri-du-Chat Syndrome Related Topics Multiple Sclerosis Parenting Special Needs Sleep Disorders adunitCM(150,100,'x55')

8. Von Hippel-Lindau Disease von hippellindau disease http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

9. Von Hippel-Lindau Disease This inherited disorder of chromosome 3 causes brain, eye, and kidney tumors. The greatest risk of von HippelLindau is the development of kidney cancer . http://rarediseases.about.com/b/a/073696.htm

zJs=10 zJs=11 zJs=12 zJs=13 zc(5,'jsc',zJs,9999999,'') zfs=0;zCMt='a70' About Rare / Orphan Diseases Rare Diseases Essentials ... Help zau(256,140,140,'el','http://z.about.com/0/ip/417/C.htm','');w(xb+xb+' ');zau(256,140,140,'von','http://z.about.com/0/ip/496/7.htm','');w(xb+xb); FREE Newsletter Sign Up Now for the Rare / Orphan Diseases newsletter! See Online Courses Search Rare / Orphan Diseases Von Hippel-Lindau Disease Rare/Orphan Diseases Blog Main March 21, 2004 Von Hippel-Lindau Disease This inherited disorder of chromosome 3 causes brain, eye, and kidney tumors. The greatest risk of von Hippel-Lindau is the development of kidney cancer. Email a Friend Display Latest Headlines Read Archives Advertisement Most Popular Muscular Dystrophy ALD and Lorenzo's Oil Progeria Syndromes Leprosy (Hansen's Disease) ... The Elephant Man What's Hot Charcot-Marie-Tooth Disease Peyronie's Disease Twin-to-Twin Transfusion Synd Autoimmune Kidney Disease ... Cri-du-Chat Syndrome Related Topics Multiple Sclerosis Parenting Special Needs Sleep Disorders adunitCM(150,100,'x55') Topic Index Email to a Friend Our Story Be a Guide ... Patent Info.

10. Von Hippel-Lindau Protein Mutants Linked To Type 2C VHL Disease von HippelLindau protein mutants linked to type 2C VHL disease preserve the ability to downregulate HIF Michael A. Hoffman1 , Michael Ohh2 http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

11. Introduction: Von Hippel-Lindau Disease - WrongDiagnosis.com Introduction to von hippellindau disease as a medical condition including symptoms, diagnosis, misdiagnosis, treatment, prevention, and prognosis. http://www.wrongdiagnosis.com/v/von_hippel_lindau_disease/intro.htm

Home Symptoms Diseases Risks ... Diseases Search our medical database Subscribe to our free Newsletter sample Send this page to a friend Condition Lists By Organ By Symptom By Class By Prevalence ... List A-Z Current chapter: Von Hippel-Lindau Disease Next sections Basic Summary for Von Hippel-Lindau Disease Prevalence and Incidence of Von Hippel-Lindau Disease Prognosis of Von Hippel-Lindau Disease Symptoms of Von Hippel-Lindau Disease ... Diagnostic Tests for Von Hippel-Lindau Disease Next chapters: Zollinger-Ellison syndrome Fibrosarcoma Osteosarcoma Chondrosarcoma ... Feedback Introduction: Von Hippel-Lindau Disease Von Hippel-Lindau Disease: Genetic disease causing multiple benign tumors Von Hippel-Lindau Disease: von Hippel-Lindau disease (VHL) is a rare, genetic multi-system disorder characterized by the abnormal growth of tumors in certain parts of the body (angiomatosis). The tumors of the central nervous system (CNS) are benign and are comprised of a nest of blood vessels and are called hemangioblastomas (or angiomas in the eye). Hemangioblastomas may develop in the brain, the retina of the eyes, and other areas of the nervous system. Other types of tumors develop in the adrenal glands, the kidneys, or the pancreas. Researching symptoms of Von Hippel-Lindau Disease: Further information about the symptoms of Von Hippel-Lindau Disease is available including a list of symptoms of Von Hippel-Lindau Disease , other diseases that might have similar symptoms in

12. Contrasting Effects On HIF-1{{alpha}} Regulation By on HIF1 regulation by disease-causing pVHL mutations correlate with patterns of tumourigenesis in von hippel-lindau disease http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

13. Symptoms Of Von Hippel-Lindau Disease - WrongDiagnosis.com Symptoms of von hippellindau disease including signs, symptoms, incubation period, duration, and correct diagnosis. http://www.wrongdiagnosis.com/v/von_hippel_lindau_disease/symptoms.htm

Home Symptoms Diseases Risks ... Von Hippel-Lindau Disease Search our medical database Subscribe to our free Newsletter sample Send this page to a friend Condition Lists By Organ By Symptom By Class By Prevalence ... List A-Z Current chapter: Von Hippel-Lindau Disease Next sections Diagnostic Tests for Von Hippel-Lindau Disease Complications of Von Hippel-Lindau Disease Misdiagnosis of Von Hippel-Lindau Disease Inheritance and Genetics of Von Hippel-Lindau Disease ... Treatments for Von Hippel-Lindau Disease Next chapters: Zollinger-Ellison syndrome Fibrosarcoma Osteosarcoma Chondrosarcoma ... Feedback Symptoms of Von Hippel-Lindau Disease General information about symptoms of Von Hippel-Lindau Disease: The symptom information on this page attempts to provide a list of some possible symptoms of Von Hippel-Lindau Disease. This symptom information has been gathered from various sources, may not be fully accurate, and may not be the full list of symptoms of Von Hippel-Lindau Disease. Furthermore, symptoms of Von Hippel-Lindau Disease may vary on an individual basis for each patient. Only your doctor can provide adequate diagnosis of symptoms and whether they are indeed symptoms of Von Hippel-Lindau Disease. List of symptoms of Von Hippel-Lindau Disease: The list of symptoms mentioned in various sources for Von Hippel-Lindau Disease includes: Hemangiomas - tumors from blood vessel overgrowth: Eye hemangiomas Cerebellum hemangiomas Symptoms depend on location of the tumors - the symptoms may include: Headaches Balance problems Walking problems Dizziness ... High blood pressure Symptoms of Von Hippel-Lindau Disease:

14. News - Study Finds Women With Polycystic Ovary Syndrome Are At Webcasts/CME archive Recent cases Ob/Gyn Other. Osteoporosis and Amenorrhea in a Young Patient with von hippel-lindau disease http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

15. NEJM Plasma Normetanephrine And Metanephrine For Detecting Abstract Full Text Kashyap, A S, Kashyap, S (2002). von hippellindau disease complicated by pheochromocytoma. Postgrad Med J 78 443-443 http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

16. Radiology Von Hippel Lindau Disease Von Hippel Lindau Disease Genetic, Clinical and Imaging Features http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

17. Arch Surg Abstract Pheochromocytomas And Paragangliomas In Von Pheochromocytomas and Paragangliomas in von hippellindau disease A Role for Laparoscopic and Cortical-Sparing Surgery http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

18. EMedicine - Von Hippel-Lindau Disease : Article By Arun Gulani, MD von hippellindau disease - von Hippel disease exhibits the characteristics of congenital capillary angiomatous hamartomas of the retina and the optic http://www.emedicine.com/oph/topic354.htm

(advertisement) Home Specialties Resource Centers CME ... Patient Education Articles Images CME Advanced Search Consumer Health Link to this site Back to: eMedicine Specialties Ophthalmology Phakomatoses von Hippel-Lindau Disease Last Updated: March 14, 2005 Rate this Article Email to a Colleague Synonyms and related keywords: von Hippel disease, retinal angiomatosis, capillary hemangiomas of the retina, benign capillary hamartoma, retinal capillary hemangioma AUTHOR INFORMATION Section 1 of 10 Author Information Introduction Clinical Differentials ... Bibliography Author: Arun Gulani, MD , Assistant Professor, Department of Ophthalmology, Director of Refractive Surgery, Chief, Cornea and External Disease, University of Florida at Jacksonville Arun Gulani, MD, is a member of the following medical societies: American Academy of Ophthalmology Editor(s): Michael J Bartiss, OD, MD , Medical Director, Ophthalmology, Family Eye Care of the Carolinas; Donald S Fong, MD, MPH , Assistant Clinical Professor of Ophthalmology, Director, Clinical Trials Research, Department of Ophthalmology, Southern California Permanente Medical Group;

19. EMedicine - Von Hippel-Lindau Disease : Article By James P Evans, MD, PhD von hippellindau disease - von Hippel-Lindau (VHL) disease is a rare inherited disorder manifested by visceral cysts, benign masses, and the potential for http://www.emedicine.com/ped/topic2417.htm

(advertisement) Home Specialties Resource Centers CME ... Patient Education Articles Images CME Advanced Search Consumer Health Link to this site Back to: eMedicine Specialties Pediatrics Genetics And Metabolic Disease von Hippel-Lindau Disease Last Updated: July 19, 2002 Rate this Article Email to a Colleague Synonyms and related keywords: VHL, von Hippel-Lindau's disease, Hippel disease, Hippel's disease, Hippel-Lindau disease, retinocerebral angiomatosis, Lindau disease, Lindau's disease, von Hippel-Lindau syndrome AUTHOR INFORMATION Section 1 of 9 Author Information Introduction Clinical Differentials ... Bibliography Author: James P Evans, MD, PhD , Director of Cancer Genetics, Associate Professor, Department of Internal Medicine, University of North Carolina at Chapel Hill and University Hospitals Coauthor(s): Cecile Skrzynia, MS, CGC , Genetic Counselor, Clinical Assistant Professor, Department of Internal Medicine, University of North Carolina at Chapel Hill Editor(s): Erawati Bawle, MD, FAAP, FACMG

20. Von Hippel-Lindau Disease: Definition And Much More From Answers.com Lin·dau s disease ( lin douz ) n. A hereditary disease characterized by hemangiomas of the retina, the cerebellum and occasionally the spinal. http://www.answers.com/topic/von-hippel-lindau-disease

showHide_TellMeAbout2('false'); Business Entertainment Games Health ... More... On this page: Medical Wikipedia Mentioned In Or search: - The Web - Images - News - Blogs - Shopping Von Hippel-Lindau disease Medical Lin·dau's disease lĭn douz n. A hereditary disease characterized by hemangiomas of the retina, the cerebellum and occasionally the spinal cord, and also sometimes associated with cysts or hamartomas of kidney, adrenal glands, or other organs. Also called angiophacomatosis Hippel's disease retinocerebral angiomatosis von Hippel-Lindau disease von Hippel-Lindau syndrome Wikipedia Von Hippel-Lindau disease Von Hippel-Lindau disease (VHL) is a rare inherited genetic condition involving the abnormal growth of tumors in parts of the body which are particularly rich in blood supply. Features Features of VHL are: angiomatosis - little knots of capillaries in various organs. These tend to be cavernous hemangiomas, which are sharply defined, sponge-like tumors composed of large, dilated, cavernous vascular spaces. hemangioblastomas - tumors of the central nervous system (CNS, especially the

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