41. Otology & Neurotology - UserLogin The vater syndrome was described by Quan and Smith (1) as an association of anomalies (3) found the malformation of the inner ear in vater syndrome, http://otology-neurotology.com/pt/re/otoneuroto/fulltext.00129492-200401000-0000

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42. Patient Success Story: Benjamin Mayforth Not all children with vater syndrome are born with all of these abnormalities.Ben, however, had enough of the VATER defects for Voigt to recognize the http://www.umm.edu/pediatrics/mayforth.html

var MenuLinkedBy='AllWebMenus [2]', awmBN='530'; awmAltUrl=''; Hospital for Children Request An Appointment About UMHC... Divisions/Specialties ... Residency Program Translate using Google to Spanish German French Italian Portuguese //var DOCUMENTGROUP=''; //var DOCUMENTNAME=''; //var ACTION=''; Hospital for Children Patient Success Story: Benjamin Mayforth Having undergone 13 surgeries to correct multiple birth defects, this charismatic 8-year-old is an inspiration to all who know him. University of Maryland Medical System Web Site Writer Watching 8-year-old Benjamin Mayforth shoot hoops with his sister Bailey in front of their home at the edge of a leafy cul-de-sac, it is hard to imagine all of the medical intervention he has had to endure to have the kind of innocent fun most children take for granted. With 13 surgeries behind him, Ben has suffered more physical setbacks in his young life than most adults nearing retirement age. Born with various defects, Ben has never known a life unencumbered by trips to the doctor and hospital stays. Hours after he was born at the Harford Memorial Hospital in Havre de Grace, Maryland, he was rushed to Baltimore to the University of Maryland Hospital for Children's (UMHC) neonatal intensive care unit (NICU). There, doctors discovered his congenital defects, which include missing ribs, an underdeveloped lung, clubfeet, and a malformed spine the result of spina bifida.

43. Blackwell Synergy - Cookie Absent She was born with vater syndrome, a condition characterized by the sporadic Our patient has vater syndrome and it is likely that her repeated surgery in http://www.blackwell-synergy.com/doi/abs/10.1111/j.1365-2230.2004.01708.x

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44. Opera Directory Top Health Conditions and Diseases Rare Disorders vater syndrome Support organization created by parents of children diagnosed with VATER http://portal.opera.com/directory/?cat=122885

45. Public Information Links Esophageal AtresiaTEF-vater syndrome Familial Polyposis Syndromes Food AllergyGastroparesis General Information GERD Inflammatory Bowel Disease http://www.naspghan.org/sub/publicinfolinks.asp

Note: Links lead to other WWW sites on the Internet. NASPGHAN has not endorsed and makes no warranty as to the accuracy of the information contained within them and assumes no liability related to their use. NASPGHAN has not endorsed, and is not responsible, for the content of any of these linked, third-party websites. NASPGHAN has not endorsed any products advertised on any of the linked third-party websites. Public Information Links This page contains names and addresses of organizations prepared to answer questions and supply information about the following gastrointestinal conditions. Anorectal Malformations Celiac Disease Cyclic Vomiting Cystic Fibrosis ... TPN and Enteral Nutrition Category Organization Description Web Link Anorectal Malformations Pull-Through Network Parent/patient information and/or support group http://www.pullthrough.org Anorectal Malformations The Family Village Online discussion group http://www.familyvillage.wisc.edu/lists/ anorect.htm Celiac disease Canadian Celiac Association Parent and Professional information http://www.celiac.ca

46. The Journal Of Urology - UserLogin All patients with VATER s syndrome should be evaluated prospectively for It has been shown that patients with the vater syndrome are at increased risk http://www.jurology.com/pt/re/juro/fulltext.00005392-200410001-00023.htm

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47. The Journal Of Urology - UserLogin There was 1 case each of the vater syndrome, Sommer Young syndrome, arthrogryposisand WolfHirschorn syndrome, and 1 had trisomy 18. http://www.jurology.com/pt/re/juro/fulltext.00005392-200009020-00016.htm

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48. August List Disability VACTERL or vater syndrome. Lives. Barry and I (his mom) are writingthis together. He s only five and a half years old and was born with http://www.geocities.com/dfriendswebpals/augustlist.htm

Just click on the E-mail address of the person you would like to contact. Don't forget to mention that you got the E-mail address from Disability Friends. August List E-mail: CoronetAspen@peoplepc.com Name: Dr. Ley Rose Disability: Spinal Cord and advanced arthritis Lives: Perkinston MS I'm a Disabled vet, minister, married two children, and I review Christian Literature and distribute Chistian books and literature Free. Many organizations send me materials to review/distribute. I live in Perkinston MS, close to the coast. E-mail: npfeffer@advancenet.net Name: Barry and his mom, Melody Disability: VACTERL or VATER syndrome Lives: Barry and I (his mom) are writing this together. He's only five and a half years old and was born with VACTERL or VATER syndrome. VACTERL is an acronym. Each letter stands for a part of the body born with an anomaly. Example: V for vetebral. Barry's includes a tethered spinal cord, heart, bowel/bladder, and bony anomalies. He takes numerous medications and physical therapy. Future surgeries are possible. We were seeking either or both parent and child to keep in touch with either the same syndrome or similar problems. Barry likes to read and be read to, play video games, and is a Spiderman collector. E-mail: apaws2chat@aol.com

49. Asociación VATER/VACTERL Translate this page Extending the scope of the VATER association definition of a vater syndrome . McConkie-Rosell A, Chen Y VATER and hidrocephalus distinct syndrome? http://www.geocities.com/HotSprings/Villa/1333/vater.htm

Asociación VATER/VACTERL Dr. Manuel A. Rodríguez Lanza Hospital Militar "Dr. Carlos Arvelo" Para buscar en este sitio DEFINICION La asociación o síndrome VATER está dada por defectos vertebrales, ano imperforado, atresia esofágica con fístula traqueoesofágica y polidactilia (1). Luego se incluyó la polioligodactilia (2), la displasia radial y renal y se utilizó el acrónimo VATER para designar esta asociación no casual. En 1974, se asociaron los defectos cardíacos y una sola arteria umbilical, así como la deficiencia prenatal del crecimiento, siendo rasgos no casuales de este patrón de anormalidades, cambiando el acrónimo por VATERS (4). En la década de los ochenta, se comienza a utilizar el nombre de síndrome de VACTERL para denominar los defectos vertebrales, la atresia anorectal, las anomalías cardíacas, la fístula traqueoesofágica con atresia esofágica, anomalías renales y defectos en miembros superiores (5). Mas recientemente se ha asociado con hidrocefalia manteniéndose hasta ahora como una entidad aparte. EPIDEMIOLOGIA Incidencia: rara. Se han reportado alrededor de 250 casos en todo el mundo.

50. Delayed Development Tuberous Sclerosis vater syndrome WerdnigHoffman Disease Williams Syndrome;Wilson Disease; Wolman Disease and Cholesteryl Ester Storage Disease http://www.rogerknapp.com/medical/eci.htm

Delayed Development Evaluating children for proper development is sometimes difficult since there is such a wide variety in the rate of different children. Check with your doctor or compare your child with others of the same age. If you have concerns then you should call this Early Childhood Intervention (ECI) line and have your child evaluated. It can't hurt. Satisfy yourself that your child is in the normal range. ECI is paid by the government and can give your child therapy if they are behind the normal range of development or have disabilities. They serve up to age three. ECI services for children: Screenings and assessments, including hearing and vision. Physical, occupational, speech and language therapy. Activities to develop learning and eating skills. assistive technology. moving on to school or other services as needed at age 3 or when graduating from the program. nutritional services. supporting child care or preschool teachers of enrolled children. ECI services for families: education and counseling.

51. SNAP Online: Newsletter I was born with something called vater syndrome (I told you, you hadn’t heard ofit) VATER stands for a group of birth defects that can happen together, http://www.snapinfo.org/News/Docs/spring2005explain.htm

Back to SNAP Report Newsletter Information for Families Who Have Children of All Ages with Special Needs SPRING 2005 By: Amy McElroy V stands for vertebra, the vertebra is malformed; A stands for anorectal, a part of the colon or intestines is malformed; T stands for trachea, the trachea is malformed; E stands for esophageal atresia, malformed or no esophagus: R Fecal incontinence is when nerves are damaged and the body can no longer process nerve signals fast enough to tell when you have to go. Well, not always, but sometimes. I have a morning routine that helps me manage this, but it is not 100% guaranteed to work every day. Some mornings I will be coming in late or there may be a time when I have to leave the room. This is probably because I had a problem during my routine, but I assure you I will be fine. Amy McElroy is now attending High School where she is in the 9th grade. In addition to her school and church activities Amy is co-chair of the Teen Network of the United Ostomy Association ( www.uoa.org

52. Guestbook My cousin has a rare disease called vater syndrome, and I wish people would him normally or find out about vater syndrome so they understand him better. http://library.thinkquest.org/5696/gather/cgi-bin/gbook.html

Guestbook Thank you for visiting this team entry. We would appreciate it if you would Add to this guestbook! This is a wonderful web site. Thankk you for sharing this information. What law prevents Kelsey from marrying and/or having children? Ruth Las Vegas, NV USA - Hi! I like your website. My cousin has a rare disease called vater syndrome, and I wish people would treat him normally or find out about vater syndrome so they understand him better. G2G Bye! Kelsey G. WI USA - i like this page cuz i feel that many people should no about this syndrome!! ashton h. vidor, tx USA - Hi this is Alison I am doing a science project and I chose this disease along with my partner. I am in 7th grade and if I met Kelsey I would enjoy her a lot. I have some friends with down syndrome. I treat them just like ordinary people and I think that that is very wrong for you not to be able to get married. My cousin Lauren is with me and when we saw that website about Kelsey and what she said we both said that the law is wrong. Well I have to go and finish my report. Thank you. PS I enjoyed this web site Alison Briscoe Alison B Maineville, Oh USA -

53. Single Unilateral Ectopic Bifid Ureter With Contralateral Orthotopic Quadrufid U inconsequential variety of spinal anomaly and variant of vater syndrome.The most frequently encountered congenital anomalies in this syndrome are anal http://www.jpgmonline.com/article.asp?issn=0022-3859;year=1997;volume=43;issue=4

54. Health Care Traveler - A Touch Of Home vater syndrome kept Gavin in the hospital for the first 11 months of his life.When he was sent home, he still needed intensive medical care due, in part, http://www.healthcaretraveler.com/healthcaretraveler/article/articleDetail.jsp?i

55. VATERS Syndrome (VAFN) My daughter Tiara Rose was born with vater syndrome in December of 1996. I was born with vater syndrome 23 years ago and back then they did not know http://groups.msn.com/vaterssyndromevafn/memberdetails.msnw?action=view_list&vie

56. MSN Groups vater syndrome family support group (52 members). i am aiming to create a groupfor families of children With vater syndrome can talk and share stories I http://groups.msn.com/browse.msnw?catid=96&sortby=2&alphastart=V

57. TOFS FORUM vater syndrome/TOF/OA In Australia. TOFS FORUM Introductions/new parents/generalchat vater syndrome/TOF/OA In Australia http://www.tofs.org.uk/discus/messages/4/287.html?1037012135

58. TOFS FORUM Hi Iam Janette, our son Fletcher has a tof and vater syndrome. At present he eatsmushy food and Iam trying to add texture, when can we start to see http://www.tofs.org.uk/discus/messages/6/351.html?1118840125

59. Netwd Health Directory: VATER Syndrome Information and resources from Netwd health directory vater syndrome. http://netwd.com/diseases/genetic-disorders/vater-syndrome.html

Netwd Health Directory VATER Syndrome EA/TEF Family Support Connection Formed by and for families of children born with EA/TEF (Esophageal Atresia and Tracheoesophageal Fistula) and the medical professionals who treat them. A Problem Shared The TOFS Support Group was founded in 1982 in response to the needs of children born with Tracheo-Oesophageal Fistula and associated conditions. VATER Association Description and clinical synopsis, plus links to articles and research abstracts. The Vater Connection Support organization created by parents of children diagnosed with VATER Association Zoe Lambert Personal account of this condition, and surgery to receive titanium rib implants. Did you know? The problem in type-2 diabetes is not lack of insulin production; most of these patients produce variable, even normal or high, amounts of insulin. The first stage in type-2 diabetes is the condition called insulin resistance. Main Page Eosinophilia Hemochromatosis Lymphedema ... Thalassemia Help build the largest human-edited directory on the web. Submit a Site Open Directory Project Become an Editor

60. Tables 2, 10, F, 14.3, Congenital scoliosis, vater syndrome, GERD, FTT, VSD 17, 19,F, 15.8, Congenital scoliosis, vater syndrome, TEF s/p repair, http://www.medscape.com/content/2004/00/47/09/470990/470990_tab.html

Tables for: Outcome of Pediatric Patients With Severe Restrictive Lung Disease Following Reconstructive Spine Surgery Table 1. Demographics of Patient Population Patient No. Age (yr) Gender BMI Diagnosis Associated Conditions M Muscular dystrophy Hypoventilation, clubfoot F Congenital scoliosis VATER syndrome, GERD, FTT, VSD F Congenital scoliosis Aortic regurgitation, mitral regurgitation, left ventricular hypertrophy F Neuromuscular lordoscoliosis Asthma, MVP, aortic regurgitation, depression, NIPPV at night F Thoracic kyphoscoliosis, arthrogryposis congenital multiplex Escobar syndrome, anxiety disorder F Congenital idiopathic kyphoscoliosis RAD F Astrocytoma T5 Postlaminectomy/kyphoscoliosis, hemiparesis F Congenital nemaline myopathy, neuromuscular kyphoscoliosis NIPPV at night, RAD, s/p G-tube F Hypotonia, congenital scoliosis GERD, allergic rhinitis, cavus foot deformity F Congenital scoliosis, tethered cord s/p unilateral release Restrictive lung disease s/p tracheal vent-dependent, Arnold-Chiari type II, pulmonary HTN F Neuromuscular infantile scoliosis Marfan's syndrome, aortic dilatation

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