41. Healthubs.com A brief definition of, followed by links to overviews, research articles, case reports and images. http://www.healthubs.com/tuberous

Click here to go to healthubs.com Click here to go to healthubs.com

42. Tuberous Sclerosis tuberous sclerosis. Alicia Zukas. tuberous sclerosis (TS), or Bourneville disease, covers a broad range of afflictions, but neurologically afflicts 1/6000 http://serendip.brynmawr.edu/bb/neuro/neuro99/web2/Zukas.html

Biology 202 1999 Second Web Reports On Serendip Tuberous Sclerosis Alicia Zukas Tuberous Sclerosis (TS), or Bourneville disease, covers a broad range of afflictions, but neurologically afflicts 1/6000 newborns in the United States . Its name derives from the "tuber-like growth, on the brain which calcify with age and become hard or sclerotic" . Brain tubers have no distinction between white and gray matter, as indicated by the arrow in the biopsy. TS was first observed by von Recklinshausen in 1862, and was named by Bourneville as tuberous sclerosis in 1880; he described it as a "'tuberous sclerosis of the cerebral circumvolutions' for the unique cerebral pathologic changes he found in the brain of a 15 year-old epileptic and mentally handcapped girl" . The patient's face was also scarred with lesions, now know as facial angiofibroma . By the early 1900's TS was made according to evidence of what is known as the Vogt triad, including seizures, mental retardation, and the facial angiofibroma. It is now known that this triad is not necessarily needed to diagnose TS. The current diagnosis is based upon the following: Multiple ungual fibroma

43. National Library Of Medicine A list of synonyms, a summary and major features of tuberous sclerosis. http://www.nlm.nih.gov/cgi/jablonski/syndrome_cgi?term=tuberous sclerosis&fi

44. Tuberous Sclerosis And Your Baby Familydoctor.org Information for parents about tuberous sclerosis from the American Academy of Family Physicians. http://familydoctor.org/496.xml

Advanced Search familydoctor.org Home For Parents Special Conditions in Children Tuberous Sclerosis What is tuberous sclerosis? How did my child get this disorder? What are the signs of tuberous sclerosis? How is tuberous sclerosis treated? Tuberous Sclerosis and Your Baby Printer-friendly version Email this article What is tuberous sclerosis? Tuberous sclerosis causes growths in the brain, eyes, heart, kidney, skin or lungs. These growths are usually benign (not cancer). The first signs may be seizures and spots on the skin. Some people who have tuberous sclerosis may have learning problems or seizures that are hard to control. Tuberous sclerosis isn't common, but it isn't rare either. Up to 40,000 people in the United States have it. The disorder occurs in both sexes and in people of all races and ethnic groups. Return to top How did my child get this disorder? About half of the time, tuberous sclerosis is passed from a parent to a child, or inherited. If one parent has tuberous sclerosis, every child born to that parent has a 50% chance of inheriting it. However, in about half the children who have tuberous sclerosis, the mother and father have no signs of it. It seems that sometimes a normal gene changes (mutates) to the abnormal form that causes tuberous sclerosis.

45. Team Tamara Home Nonprofit dedicated to raising awreness about tuberous sclerosis Complex; raising fund for The Children's Hospital of Phila., The Epilepsy Foundation, The tuberous sclerosis Alliance. Includes info links and Tamara's health updates. http://www.team-tamara.org

We're starting to see results from this family charitable effort! Our goals are to raise awareness about Tuberous Sclerosis Complex and to raise funds for research, awareness, and treatment programs for Tuberous Sclerosis Complex and Epilepsy. NEW STUFF: 2005 5K results! View Photos from 2005 5K Walk/Run View Photos from 2004 5K Walk/Run View Photos from Penndale Penny Wars ... Major Funding Approved for TSC Research - click to read more In an effort to provide as much information as possible, we've included links to The Children's Hospital of Philadelphia, The Epilepsy Foundation ®, and The Tuberous Sclerosis Alliance. We plan several fundraisers throughout the year, so click on the Upcoming Events button for the latest information. The "How's Tam" button will give periodic updates on Tamara's progress. Please remember, although this site does contain information about Tuberous Sclerosis Complex, it is not a medical site. We do not intend to provide diagnosis/treatment information except in the way in which it relates to Tamara and her family. Please discuss any concerns, and information you find here, with your pediatrician/physician. If you need additional information, please telephone Team Tamara at 877-TAMARA1 or click the following E-mail link:

46. Tuberous Sclerosis tuberous sclerosis information, links lay advocacy groups and genetic support groups. http://www.kumc.edu/gec/support/tuberous.html

Tuberous sclerosis Tuberous Sclerosis Alliance (National Tuberous Sclerosis Association prior to Dec 2000)) 801 Roeder Road, Suite 750 Silver Springs, MD 20910 Phone: (800) 225-6872 E-mail: ntsa@ntsa.org Web Site: www.tsalliance.org Links to related web sites Clinical Manifestations Fact Sheet for Teachers: Tuberous Sclerosis Seizure First aid: what do do when someone has a seizure Tuberous Sclerosis Canada Sclerose Tubereuse 2443 New Wood Drive Oakville, ON L6H 5Y3 CANADA International Organizations Tuberous Sclerosis Association (TSA), United Kingdom Tuberous Sclerosis International (TSI) Swedish Tuberous Sclerosis Association Australasian Tuberous Sclerosis Society Israel Association Of Rare Diseases (Eitan) New Zealand Tuberous Sclerosis Support Group Also See: National organizations regarding genetic conditions or birth defects Brain Tumor Resource Guide , Massachusetts General Hospita l Tuberous Sclerosis , National Institute of Neurological Disorders and Stroke Tuberous Sclerosis , radiology, University of Iowa Tuberous Sclerosis , french Epilepsy Foundation of America American Epilepsy Society Autism Society of America National Attention Deficit Disorder Association ... American Academy of Dermatologists To locate a genetic counselor or clinical geneticist: Professional Genetics Societies Genetic clinics, centers, departments

47. Tuberous Sclerosis Penn State Hershey Medical Center provides world class care and services to patients. http://www.hmc.psu.edu/healthinfo/t/tuberoussclerosis.htm

48. GeneReviews: Tuberous Sclerosis Complex Your browser does not support HTML frames so you must view tuberous sclerosis Complex in a slightly less readable form. Please follow this link to do so. http://www.geneclinics.org/profiles/tuberous-sclerosis/

Your browser does not support HTML frames so you must view Tuberous Sclerosis Complex in a slightly less readable form. Please follow this link to do so.

49. Recognizing An Index Case Of Tuberous Sclerosis - February 1, 2000 - American Ac A patient information handout on tuberous sclerosis, written by the authors Characteristic signs of tuberous sclerosis vary widely in severity and can http://www.aafp.org/afp/20000201/703.html

Advanced Search AAFP Home Page Journals Vol. 61/No. 3 (February 1, 2000) Recognizing an Index Case of Tuberous Sclerosis JOSEPH S. HURST, M.D., Columbus Regional Family Practice Residency Program, Columbus, Georgia SUSAN WILCOSKI, M.D., Swedish Covenant/Chicago Medical School Family Practice Residency Program, North Chicago, Illinois A patient information handout on tuberous sclerosis, written by the authors of this article, is provided on page 710. Tuberous sclerosis is the most common neurocutaneous syndrome after neurofibromatosis. Dermatologic manifestations may be the only clues the family physician has to the diagnosis of the disorder, which is also marked by childhood seizures and mental retardation. Characteristic signs of tuberous sclerosis vary widely in severity and can include hypopigmented "ash-leaf spots," fibrous plaques on the forehead, angiofibromas on the face (adenoma sebaceum), a shagreen patch on the lower back and fibromas of the nails. Computed tomographic scanning or magnetic resonance imaging reveal subependymal nodules or cortical "tubers" in the brain. Associated cardiac, retinal, renal and pulmonary pathology can increase morbidity and mortality. Genetic counseling is helpful but has limited use because of the variation in genetic expression and the frequency of new gene mutations that cause this disorder. (Am Fam Physician 2000;61:703-8,710.) T he term "tuberous sclerosis" was first used in 1880 to describe a syndrome consisting of seizures, mental retardation and facial rash in a young girl. However, this complex disorder was initially identified in 1862, and an association between seizures, mental retardation and facial angiofibromas (adenoma sebaceum), referred to as "Vogt's triad," was established in 1908.

50. Tuberous Sclerosis And Your Baby - February 1, 2000 - American Academy Of Family People in the same family who have tuberous sclerosis may have no Your doctor may suspect tuberous sclerosis if your baby has a condition called cardiac http://www.aafp.org/afp/20000201/20000201b.html

Advanced Search AAFP Home Page Journals Vol. 61/No. 3 (February 1, 2000) Please note: This information was as current as we could make it on the date given above. But medical information is always changing, and some information given here may be out of date. For regularly updated information on a variety of health topics, please visit familydoctor.org , the AAFP patient education Web site. An article on this topic is available in this issue of AFP Tuberous Sclerosis and Your Baby What is tuberous sclerosis? Tuberous sclerosis causes growths in the brain, eyes, heart, kidney, skin or lungs. These growths are usually benign (not cancer). The first signs may be seizures and spots on the skin. People in the same family who have tuberous sclerosis may have no learning problems or mild learning problems, or they may have serious learning problems, with seizures that are hard to control. Tuberous sclerosis isn't common, but it isn't rare either. Up to 40,000 people in the United States have it. The disorder occurs in both sexes and in people of all races and ethnic groups. How did my child get this disorder?

51. Pediatric Oncall- TUBEROUS SCLEROSIS Problems of a child with tuberous sclerosis Information at www.pediatriconcall.com. http://www.pediatriconcall.com/forpatients/commonchild/tuberous_sclerosis.asp

PARENT CORNER Search GO Home Back Search for Pediatricians Hospitals Special Schools Baby Names Holistic Medicines Alternative Medicine Home Made Remedies Guest Book Guest Book Discussion Boards Share Experience Post Query ... Specialist Answers TUBEROUS SCLEROSIS Q1). What is tuberous sclerosis? EVERY INDIVIDUAL WITH TUBEROUS SCLEROSIS IS AFFECTED DIFFERENTLY. SOME INDIVIDUALS ARE TOTALLY UNAFFECTED WHEREAS SOME PEOPLE ARE MORE SEVERELY AFFECTED. Q2). How common is tuberous sclerosis? A 2). Out of every 6000 newborns, one may have tuberous sclerosis. More than 1 million people around the world are known to have tuberous sclerosis. These may still be many undiagnosed cases and mild forms of the disease. Q3). How does a person with tuberous sclerosis present? The disease spectrum of tuberous sclerosis is very diverse. Some may present with a very severe form whereas some may be totally unaffected.

52. The Australasian Tuberous Sclerosis Society ATSS aims to support TSC families, educate and inform health professionals and the community. http://www.atss.org.au/members/

ATSS Articles Regional Contacts for ATSS Profiles of our current committee members Overview of ATSS What is Tuberous Sclerosis? Main Menu Home Browse Articles Contact ATSS Stories Archive ... Your Membership Happy 21st Birthday Elizabeth! It is always easier to think about the negative aspects of life rather than the positives: the things we don’t have, rather than all the things we do have, the characteristics we lack rather than the ones we actually possess. The following story is one of great courage and determination, of will to achieve, of the ability to enjoy life even though the casual observer may judge that there isn’t much to enjoy. Posted by clare on Wednesday, August 17 @ 13:24:50 EST (30 reads) Read More... New Year’s Eve Celebrations The Sydney Lord Mayor’s New Year’s Eve Picnic is celebrating its 10th Year. Plan now to spend the early evening on the lawns of the Botanic Gardens, enjoying a barbeque, concerts and a range of free activities for children. Posted by clare on Friday, July 15 @ 09:35:28 EST (22 reads) Read More...

53. Tuberous Sclerosis UCLA, Pediatric Neuropsychiatry Web site. http://www.npi.ucla.edu/PEDSNEUROPSYCH/Tuberous_Sclerosis/tuberous_sclerosis.htm

54. Tuberous Sclerosis tuberous sclerosis is inherited as an autosomal dominant trait. The symptoms of tuberous sclerosis, however, vary considerably from minimally affected http://www.npi.ucla.edu/PEDSNEUROPSYCH/Tuberous_Sclerosis/body_tuberous_sclerosi

Tuberous Sclerosis Treatment Definition An inheritable disorder characterized by skin lesions , varying degrees of mental retardation , and seizures Causes, incidence, and risk factors Tuberous sclerosis is inherited as an autosomal dominant trait. It is one of a group of diseases described as neurocutaneous syndromes because of extensive involvement of both the skin and the central nervous system (brain and/or spinal cord). The symptoms of tuberous sclerosis, however, vary considerably from minimally affected people with normal intelligence and no seizures to severely affected people with profound retardation and frequent, difficult-to-control seizures. The disease is named after the typical brain lesion which is called a tuber. Severely affected people may develop seizures shortly after birth that are characterized by infantile spasms (hypsarrhythmia). Later seizures tend to be myoclonic. Mental retardation becomes evident as infants begin to miss their normal developmental milestones Several different skin lesions are common in tuberous sclerosis.

55. TOUS: CAS TUBEROUS SCLEROSIS Les dossiers classés en tuberous sclerosis . ANGIOMYOLIPOMA . CT,tuberous sclerosis,ANGIOMYOLIPOMA. BRAIN . BRAIN, CT,tuberous sclerosis http://www.med.univ-rennes1.fr/cerf/iconocerf/idx/tous/TUBEROUS_SCLEROSIS.html

ANGIOMYOLIPOMA : CT,TUBEROUS SCLEROSIS,ANGIOMYOLIPOMA BRAIN : BRAIN, CT,TUBEROUS SCLEROSIS CT : BRAIN, CT,TUBEROUS SCLEROSIS CT,TUBEROUS SCLEROSIS,ANGIOMYOLIPOMA Total: 2 cas cliniques Sommaire des Index de Radiologie

56. ► Tuberous Sclerosis A medical encycopedia article on the topic tuberous sclerosis. http://www.umm.edu/ency/article/000787.htm

var MenuLinkedBy='AllWebMenus [2]', awmBN='530'; awmAltUrl=''; Disease Nutrition Surgery Symptoms Injury ... Z Maryland Medical Center Programs Maryland Heart Center UM Hospital for Children Home Medical Reference ... Encyclopedia (English) Toggle English Spanish Tuberous sclerosis Overview Symptoms Treatment Prevention Definition: A group of 2 genetic disorders characterized by problems with the skin, brain/nervous system, kidneys and a predisposition to tumors. The diseases are named after a characteristic abnormal growth in the brain in the shape of a tuber. Alternative Names: Adenoma sebaceum Causes, incidence, and risk factors: Tuberous sclerosis is inherited as an autosomal dominant trait although a high percentage of cases are due to new mutations, so there usually is no family history of the disease. It is one of a group of diseases described as neurocutaneous syndromes because of extensive involvement of both the skin and the central nervous system (brain and/or spinal cord). The symptoms of tuberous sclerosis, however, vary considerably from minimally affected people with normal intelligence and no seizures to severely affected people with profound retardation and frequent, difficult-to-control seizures or serious tumors.

57. Tuberous Sclerosis Alliance Of New England The tuberous sclerosis Alliance does not promote or recommend any treatment WEB LINKS The tuberous sclerosis Alliance provides links to other Web sites http://tsalliance.easycgi.com/pages.aspx?content=100

58. What Is TSC? tuberous sclerosis complex (TSC) is a genetic disorder that causes tumors to You will see it referred to both as tuberous sclerosis (TS) and tuberous http://tsalliance.easycgi.com/pages.aspx?content=2

59. CNS Pathology This area of firm, whitened gyri that are broader than surrounding normal gyri is typical for tuberous sclerosis. http://www-medlib.med.utah.edu/WebPath/CNSHTML/CNS080.html

This area of firm, whitened gyri that are broader than surrounding normal gyri is typical for tuberous sclerosis.

60. CNS Pathology Here is another tuber with tuberous sclerosis. The distinction between grey and white matter is lost. These patients can also have cardiac rhabdomyomas, http://www-medlib.med.utah.edu/WebPath/CNSHTML/CNS079.html

Here is another tuber with tuberous sclerosis. The distinction between grey and white matter is lost. These patients can also have cardiac rhabdomyomas, renal angiomyolipomas, adenoma sebaceum of the skin, and pancreatic cysts.

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