1. Tuberous Sclerosis Association, UK UK charity supporting sufferers, promoting awareness, and seeking the causes and best possible management of this genetic disease. Resources for patient families and information on this condition. http://www.tuberous-sclerosis.org/

The Tuberous Sclerosis Association TSA information: Home About the TSA Research Appeals ... Publications Search Zones: People with TSC Parents Doctors Carers ... Discussions About this site The top row of the menu bar takes you to useful information about the Tuberous Sclerosis Association (TSA) and the services it provides. The bottom row allows you to examine resources tailored to your needs. Don't forget to register for occasional updates and news about Tuberous Sclerosis and about the TSA. The Tuberous Sclerosis Association Welcome to the Web site of the Tuberous Sclerosis Association, the UK charity that supports sufferers, promotes awareness, and seeks the causes and best possible management of Tuberous Sclerosis (TSC). Consensus clinical guidelines - summary A summary of a paper on the consensus clinical guidelines for assessment tests needed for the behaviour and cognition problems in TSC is available on this Web site. Sponsored run for TSA, 4 Sept 2005 Please support a TSA member who is undertaking a sponsored run for the TSA. UK to Madrid Cycle Ride 24Aug-8Sep 2005 Please support a TSA member who is planning to ride from the UK to Madrid to raise funds for the TSA.

2. Tuberous Sclerosis - Lisa's Site An incurable genetic condition that causes tumors to grow in various places in the body. http://www.title14.com/ts/

Site Directory Tuberous Sclerosis Links My Family Story My Laser Surgery Experience Photo Album ... Lisa and Pat got married!! What is Tuberous Sclerosis? Tuberous Sclerosis is a genetic disorder that causes benign tumors on various organs, including the brain, kidneys, heart, skin and lungs. Seizures also occur in some people with TSC, as does mental retardation. Tuberous Sclerosis And My Family There is a very strong occurance of Tuberous Sclerosis (TSC) in my family. You can read about how my family is affected here. Update 5/7/97 with story of my kidney tumor bleed Update 11/19/99 with cluster seizure story Update 12/8/99 with cluster seizure story - Part 2 Update 7/29/00 with Jen's graduation/trasition to 'real life' Update 7/16/02 with boring everyday stuff :-) Update 10/17/02 with seizure report for Lisa Update 9/5/04 - just a basic update for Lisa and Jen View my CT scans here! This page may take a couple of minutes to load. View my Renal Ultrasound A Word Of Thanks I would like to say thank you for all the wonderful messages you all have sent me over the years! I read each and every one and sometimes get teary-eyed reading them... but I love them all. I'm so happy to be able to make a difference in some of your lives... you have done the same for me just by writing. Thank you! Photo Album and Laser Surgery Page Our photo album - Come see Jen, Pat, Aura, Jas, Dutchess, Fluff, Lulu, and...me!

3. Tuberous Sclerosis Alliance US advocacy and support organization provides information about tuberous sclerosis complex, research on its genetics and treatment, and support for patients http://www.tsalliance.org/

Countdown to National TSC Conference days hours mins. sec. Tuberous Sclerosis Alliance 801 Roeder Road Suite 750 Silver Spring, MD 20910 T: 301.562.9890 F: 301.562.9870 Toll: 1.800.225.6872 Email: info@tsalliance.org Julianne Moore and Tommy Click here for a personal message from Julianne Moore Events Calendar Publications En Espanol ... Contact Us Search TS Alliance Earns 4-Star Rating!  The TS Alliance recently received a  4-star rating from Charity Navigator, America 's premiere independent charity evaluator, which independently assesses the financial health of nearly 4,500 of America's largest charities.  According to Trent Stamp, Executive Director, "In earning our highest 4-star rating,  the TS Alliance has demonstrated exceptional financial health, outperforming most of its peers in its efforts to manage and grow its finances in the most responsible way possible. A 4-star rating from Charity Navigator means your supporters can be assured that the TS Alliance is worthy of their trust and commitment.” TSC In the News . . .

4. NINDS Forwarding Page Developed by the National Institute of Neurological Disorders and Stroke (NINDS). http://www.ninds.nih.gov/health_and_medical/pubs/tuberous_sclerosis.htm

NINDS has redesigned its website and the URL for the page you were seeking has changed. The new URL for this page is /disorders/tuberous_sclerosis/detail_tuberous_sclerosis.htm . Please update your bookmark to this page. You will be automatically taken to this page in 5 seconds, or you can click the link to go there now.

5. NORD - National Organization For Rare Disorders, Inc. Offers alternative names, a general discussion and further resources. http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Tuberous Scle

6. Tuberous Sclerosis Information Page National Institute Of tuberous sclerosis information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS). http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

7. Tuberous Sclerosis Fact Sheet National Institute Of Neurological More about tuberous sclerosis Studies with patients Research literature Press releases. Disclaimer Search NINDS (help) http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

8. Warning Signs In Tuberous Sclerosis The tuberous sclerosis Association, UK Supporting sufferers, promoting awareness, and seeking the causes and best possible management of Tuberous http://www.tuberous-sclerosis.org/publications/warning.shtml

The Tuberous Sclerosis Association TSA information: Home About the TSA Research Appeals ... Publications Search Zones: People with TSC Parents Doctors Carers ... Discussions TSA publications The TSA produces a highly regarded set of publications on TSC. Here you will find medical information, practical advice, fact sheets and newsletters. Useful resources on this site: Publications main page Key info on TSC The most recent edition of our newsletter SCAN Warning Signs in Tuberous Sclerosis Introduction The following are some things that can act as warning signs of serious problems in Tuberous Sclerosis. Many of them can occur for a variety of other reasons that may be more trivial but they can all be a warning of a much more serious problem and should be discussed with your doctor. Further information and advice can also be obtained through the Tuberous Sclerosis Association and their panel of expert advisers. Development and Behaviour Pre-School Development Problems with development and behaviour are very common in Tuberous Sclerosis and can be helped by early pre-school programmes as soon as late milestones are noticed. Delayed speech is a particular problem in TS and should lead not only to speech therapy but also to an assessment for autism which can be done from 18 months of age. Help with autism and with concentration problems should not be left until the child starts school. Further help should be sought if you have any suspicion of delayed speech, behaviour problems or if your child seems to be in a world of their own.

9. ^i^ Christopher Scott Golden ^i^ Christopher was born and passed away on September 7, 1993, due to tuberous sclerosis. http://www.geocities.com/Heartland/Woods/3102/christopher.html

^i^ Christopher Scott Golden ^i^ Christopher was born/died September 7,1993. I didn't know it was possible to be so happy and sad in the same day. Doing this page about him has helped tremendously in the healing process. It has been almost 7 years and at times can still seem like yesterday. You can learn more about Tuberous Sclerosis here at NTSA (the NTSA website is currently down no word yet on when it will be back up) His Story~ Memorial Pictures Our Family Guest book Bradley Nicholas ^i^ Christopher James ... Graphics coming soon ? Photos @ Yahoo! coming soon ? Moms with all boys Yahoo! CLUBS Close Sibs This Empty Arms Ring site is owned by Jennifer Click for the [ Previous Random NextSite Skip Next Click here for info on how to join Empty Arms Ring Artwork by Cia. Angel Baby Background from: Backgrounds by Marie

10. Tuberous Sclerosis Alliance US advocacy and support organization provides information about tuberous sclerosis complex, research on its genetics and treatment, and support for http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

11. Team Ninja - DC With A Twist This is the home of Team Ninja, a team that pursues distributed computing projects. We currently work on Distributed Folding tuberous sclerosis Complex (TSC) http://www.team-ninja.com/

Sep-09-2005 If you are looking for the site of the company which creates games such as Ninja Gaiden then please go to Tecmo Inc Main Menu Home Articles Reviews News ... Web Links Login Form Username Password Forgotten your password No account yet? Create one Whos Online lechumbl Nanobot Current Topics iTunes V5 and QuickTi... Who will *not* be buy... FEMA Aid Site Blocks ... Competitive Programmi... ... An Open Email from MY... Microsoft Closes Activation Loophole Written by Jules Friday, 25 February 2005 By Nate Mook and David Worthington, BetaNews February 24, 2005, 8:05 PM Microsoft is closing a loophole that enabled unscrupulous resellers to use Windows XP product keys that were stolen from large OEMs. The result: customers who purchase Windows on a new PC will not be able to activate, nor reinstall their operating system without first calling Microsoft. The problem lies in the Certificate of Authenticity (COA) labels on PCs, which often contain unused unique product keys because OEMs preinstall Windows and bypass product activation. These keys could easily be copied and sold by a smaller computer dealer complete with a counterfeit COA. Because the product key was never actually used by an end-user, a customer would have no trouble activating Windows via the Internet and never know the difference.

12. Tuberous Sclerosis Association, UK Supporting sufferers, promoting awareness, and seeking the causes and best possible management of tuberous sclerosis. http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

13. Tuberous Sclerosis Information Page: National Institute Of Neurological Disorder tuberous sclerosis information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS). http://www.ninds.nih.gov/disorders/tuberous_sclerosis/tuberous_sclerosis.htm

Accessible version Science for the Brain The nation's leading supporter of biomedical research on disorders of the brain and nervous system More about Tuberous Sclerosis Studies with patients Research literature Press releases Search NINDS... (help) Contact Us My Privacy NINDS is part of the National Institutes of Health You are here: Home Disorders Tuberous Sclerosis NINDS Tuberous Sclerosis Information Page Condensed from Tuberous Sclerosis Fact Sheet Get Web page suited for printing Email this to a friend or colleague Table of Contents (click to jump to sections) What is Tuberous Sclerosis? Is there any treatment? What is the prognosis? What research is being done? ... Additional resources from MEDLINEplus What is Tuberous Sclerosis? Tuberous sclerosis (TSC) is a rare genetic disease that causes benign tumors to grow in the brain and on other vital organs such as the kidneys, heart, eyes, lungs, and skin. It commonly affects the central nervous system. In addition to the benign tumors that frequently occur in TSC, other common symptoms include seizures, mental retardation, behavior problems, and skin abnormalities. TSC may be present at birth, but signs of the disorder can be subtle and full symptoms may take some time to develop. Three types of brain tumors are associated with TSC: cortical tubers

14. The Rothberg Institute: Community TSC: Overview Help make drugs to treat patients with TSC, tuberous sclerosis. http://www.childhooddiseases.org/community_tsc.html

Community TSC Overview Science Targets Drug Development Visualization ... Corporate Support Target 1: PTEN Target 2: P13K Target 3: FRAP (=mTOR) Target 4: EIF4E Target 5: Akt (=PKB) Overview The Rothberg Institute is funding some of the best researchers at Harvard, Yale, and the Fox chase cancer center to find new targets for intervention in the treatment of TSC. Those targets are fed into drug development programs right at the ICCB at Harvard, as well at the Rothberg Institute. Read more about libraries of chemical compounds. (PDF) 05/2002 The science of using computers to screen for potential drugs from large collections of candidates against targets that have had their structures determined is known as "Virtual Library Screening". Read more about the science of Large Scale Virtual Screening. (PDF) 01/22/2001 Since D2OL™ is actually a computing and graphical framework that allows us to use the best software as it is created anywhere in the world to do drug design, we will be both improving the Virtual Screening programs as well as adding programs to do atom-by-atom "de novo" drug design. In addition to taking existing small molecule compounds found in chemical libraries and fitting them to targets that we discover are related to TSC we plan on taking a parallel approach based on making new drugs atom-by-atom to fit into the targets we discover. While this approach seems like science fiction, recent advances by a new member or our scientific advisory board suggest that this approach may have significant advantages of any approaches taken to date. So stay tuned....

15. Http//www.ntsa.org/ http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

16. Www.ntsa.org/ eMedicine tuberous sclerosis Article by Rabindranath Nambi, MD tuberous sclerosis - tuberous sclerosis is a genetic disorder affecting cellular differentiation and proliferation, which results in hamartoma formation in http://www.ntsa.org/

17. Tsctalk.com tuberous tuberous+sclerosis http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

18. EMedicine - Tuberous Sclerosis : Article By David Neal Franz, MD tuberous sclerosis In 1880, Bourneville first described the cerebral manifestations of this disorder, applying the term “sclerose tubereuse” to indicate http://www.emedicine.com/neuro/topic386.htm

(advertisement) Home Specialties Resource Centers CME ... Patient Education Articles Images CME Advanced Search Consumer Health Link to this site Back to: eMedicine Specialties Neurology Pediatric Neurology Tuberous Sclerosis Last Updated: July 14, 2005 Rate this Article Email to a Colleague Synonyms and related keywords: tuberous sclerosis complex, Bourneville disease. Bourneville's disease, epiloia, Vogt triad, Vogt's triad, angiomyolipoma, lymphangiomyomatosis, polycystic kidney disease, renal cell carcinoma, intractable epilepsy, medically refractory epilepsy, mental retardation, adenoma sebaceum, hamartoma, subependymal nodule, subependymal giant cell astrocytoma, SEGA AUTHOR INFORMATION Section 1 of 11 Author Information Introduction Clinical Differentials ... Bibliography Author: David Neal Franz, MD , Director, Tuberous Sclerosis Clinic, Associate Professor, Departments of Pediatrics and Neurology, University of Cincinnati College of Medicine, Children's Hospital Medical Center of Cincinnati Coauthor(s): Tracy A Glauser, MD

19. The Sweetest Sound The Miracle Of Taylor Hess The Hess family must come to grips with the reality that their daughter has tuberous sclerosis. http://www.taylorsmiracle.com

About Taylor's Family Photo Gallery How to order the book Online Resources ... The Sweetest Sound: The Miracle of Taylor Hess Taylor Hess at 18 months Sheryl Hess’s, The Sweetest Sound: The Miracle of Taylor Hess, is the inspiring account of the Hess family coming to grips with the reality that their beloved infant daughter has Tuberous Sclerosis. The story begins with Dave and Sheryl Hess hearing the diagnosis from physicians that their precious baby, Taylor, may never walk, talk, or have much function at all. After the initial shock wears off, the Hesses set out to dispel this declaration armed with early intervention therapies, medicines, and most of all, love. Sheryl sets up "Taylor Command Central" where she bombards Taylor with physical therapy, occupational therapy, speech therapy, and developmental therapy. There is an army of people who come into Taylor’s life to help this little girl be her best. All are touched by Taylor’s sweet nature and motivation to succeed. SEARCH More Search options 1up! Software

20. The Cardiff-Rotterdam Tuberous Sclerosis Mutation Database The CardiffRotterdam tuberous sclerosis Mutation Database http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

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