1. Treacher Collins Syndrome - A Personal View Information, personal insight, discussion forum and the exclusive TCS Around the World feature. http://www.treachercollins.co.uk

W hilst searching on the internet for information about Treacher Collins Syndrome I found very little non-technical / clinical information, and even less information from a personal point of view. Most sites I did find were of support groups and most were in the US. W hen I was born with TCS I expect my parents would have appreciated a little more information and advice. I don't think they got much support at all. In fact I think they were faced with many blank looks from people who weren't quite sure what to make of me! A s I have now started my own homepage I thought I would try to compile some information and gather some links that might be of use to people with TCS or their families. I hope it may also be used as a meeting point for those people (Until very recently I had never spoken to anyone with TCS), and also help those who are lucky enough to live without it understand a little more about it. It is amazing how most people are afraid to ask! I would appreciate it if you would sign the guestbook, which can be found in the utilities page, especially if you have TCS or have a family member with it. Please give me feedback on where you are from, how (if at all) you are connected with TCS, how useful you found the site and any suggestions for improvements. Also if you have any further information or links which could be added, please let me know. If you have a TCS related site of your own, please join the

2. Treacher Collins Foundation An organization of families, individuals, and professionals who are developing and sharing knowledge about treacher collins syndrome. http://www.treachercollinsfnd.org/

3. Treacher Collins Syndrome A personal perspective on a little know genetic birth defect. http://www.treachercollins.org/

Reflections on Treacher Collins Syndrome: What matters most is how you see yourself. Click on picture to continue.

4. Treacher Collins Syndrome treacher collins syndrome. treacher collins syndrome is a birth defect that has several characteristic features including underdeveloped cheek and http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

5. Reflections On Treacher Collins Syndrome http://www.treachercollins.org/main.html

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6. Treacher Collins Syndrome An organization of families, individuals, and professionals who are developing and sharing knowledge about treacher collins syndrome. http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

7. Treacher Collins Syndrome treacher collins syndrome, also called mandibulofacial dysostosis, treacher collins syndrome is believed to be caused by a change in the gene on http://www.faces-cranio.org/Disord/Treacher.htm

The National Craniofacial Association P. O. Box 11082 * Chattanooga, TN 37401 Treacher Collins Syndrome What is Treacher Collins Syndrome? Treacher Collins Syndrome, also called mandibulofacial dysostosis, affects the head and face. Characteristics include: down-slanting eyes notched lower eyelids underdevelopment or absence of cheekbones and the side wall and floor of the eye socket lower jaw is often small and slanting forward fair in the sideburn area underdeveloped, malformed and/or prominent ears Most children with Treacher Collins have normal development and intelligence; however, it is important that there be early hearing tests. Most children with Treacher Collins Syndrome benefit from early intervention speech and language programs. Why did this happen? Treacher Collins Syndrome is believed to be caused by a change in the gene on chromosome 5, which affects facial development. About 40 percent of the time, one parent has the Treacher Collins Syndrome gene. Geneticists can now determine whether the Treacher Collins gene is a new mutation or one that has been passed on. Will this happen to children I have in the future?

8. T H E R E A L M E G A website about a young woman with treacher collins syndrome, her interests and music taste. http://hometown.aol.com/imfullofdreams/index.html

htmlAdWH('93212816', '728', '90'); Main My First Home Page Updated: August 2005 Meg's website Welcome to my website, there are some new stuff added on here...check it out! Hello, first I like to thank you for contributing your time and interest to view my Website And learn who is this Meg. As you know, from my pictures you view on here. I look a bit different. Don't let it scare You. I rather you ask if you have any questions concerning my appearance. I have Treacher Collins Syndrome. Treacher Collins Syndrome is a rare disease that an infant is born with out of 10,000 babies. It’s a face deformity. The characteristics of treacher Collins are eyes, ears down slighting eyes, small, no ears and small jaw. Not only TC affects the appearance but also heath problems come with it, such as breathing difficulties, hearing, eating and speech impairment. There are craniofacial surgeries, orthodontics and other treatment to correct the following mentioned problems. Patients with Treacher Collins like myself, are usually treated at much younger age.

9. Treacher Collins Syndrome Reflections on treacher collins syndrome http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

10. Treacher Collins Syndrome treacher collins syndrome (also called mandibulofacial dysostosis and Franceschetti Syndrome) is a highly complex disease process. http://www.erlanger.org/craniofacial/book/treacher/treach1.htm

11. Treacher Collins Connection Building a community of people with treacher collins syndrome and their families in an environment that transforms people through face to face sharing of experiences, heartaches, and love. http://www.tcconnection.org

Learn more about who we are Find the details of our next retreat View our latest sponsors Learn how you can make a difference See pictures from former gatherings Feel free to contact us for more info

12. Reflections On Treacher Collins Syndrome be "normal" since I don't look "normal." I have treacher collins syndrome. More pictures of me treacher collins syndrome is a genetic http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

13. Treacher Collins Syndrome treacher collins syndrome, also called mandibulofacial dysostosis, affects the head and face. Characteristics include http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

14. Treacher Collins Connection Building a community of people with treacher collins syndrome and their families in an environment that transforms people through face to face http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

15. Treacher Collins Foundation Info treacher collins syndrome, also known as mandibulofacial dysostosis or Most people with treacher collins syndrome have normal development and http://www.treachercollinsfnd.org/pamphlet.htm

16. Treacher Collins Family Support Group Home. treacher collins syndrome. Genetics. Hearing Aids. The Support Group. Links. Email Us. Welcome to the new Treacher Collins Family http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

17. Treacher Collins Syndrome Learn about Treacher Collin s Syndrome, its diagnosis and management. http://www.kidsplastsurg.com/treachercollins.html

Treacher Collins Syndrome Treacher Collins Syndrome is a birth defect that has several characteristic features including underdeveloped cheek and jaw bones, misshapen or missing ears and down slanting eyes. It can vary in severity from a very subtle presentation that may go unrecognized to the more severe cases that are noticed immediately and may present with related problems. Treacher Collins Syndrome is a genetic condition occurring in approximately 1 of 10,000 births. It may occur as a spontaneous mutation out of genetically normal parents or it may be inherited from one of the parents. A spontaneous mutation occurs very early in development and presently there is no link between a mothers activities and the condition. If one parent is affected there is a 50% chance of passing it on to the offspring. EVALUATION AND TREATMENT As in all craniofacial deformities, treatment requires a multidisciplinary team working closely together with the family to attain the best functional and aesthetic result possible. In the newborn/infancy period, treatment is aimed at preventing problems with breathing, feeding, and hearing.

18. Treacher Collins Syndrome - A Personal View Whilst searching on the internet for information about treacher collins syndrome I found very little nontechnical / clinical information, and even http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

19. Treacher Collins Syndrome A look at treacher collins syndrome, a syndrome involving facial disfigurement and hearing loss. http://deafness.about.com/cs/featurescauses/a/treachercollins.htm

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20. USATODAY.com - Florida Family Has Daughter Born Without A Face Her birth defect is called treacher collins syndrome. Doctors say it's the worst case they've ever seen. http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

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