1. Syringomyelia Facts What is syringomyelia? (searIN-go-my-ELL-ya). syringomyelia (SM) is a disorder in which a cyst forms within the spinal cord. This cyst, called a syrinx, http://www.syringo.org/

Possible Symptoms of Syringomyelia Back pain; headaches; stiffness, weakness or pain in the back, shoulders, arms or legs; loss of the ability to feel extremes of hot or cold, especially in the hands? You may have Syringomyelia (SM) You are visitor number to this site since Jan. 1, 1997. What is syringomyelia? (sear-IN-go-my-ELL-ya) Syringomyelia (SM) is a disorder in which a cyst forms within the spinal cord. This cyst, called a syrinx , expands and elongates over time, destroying the center of the cord. Since the spinal cord connects the brain to the nerves in the extremities, this damage may result in pain, weakness, and stiffness in the back, shoulders, arms or legs. Other symptoms may include headaches and loss of the ability to feel extremes of hot or cold, especially in the hands and disruption in body temperature. SM may also adversely affect sweating, sexual function and bladder and bowel control. What causes Syringomyelia? Trauma to the spinal cord or congenital developmental problems of the brain and/or spinal cord may result in SM. Spinal cord trauma such as a car accident or serious fall may manifest years later as SM.

2. American Syringomyelia Alliance Project Inc, To Improve The Lives Of Persons Aff Information about ASAP and its goals, news, chiari manifestation, doctors corner and additional resources. http://www.asap4sm.org

Home About Us Message Board Research ... Contact Us RESOURCES Free info packet Expert Advisor Informational Videos Shop Our Store ... Other Resources RESEARCH Member Surgery Outcome Study Duke Genetic Research Study CNS Neurosurgical Fellowships More Information... INFO FOR PROFESSIONALS Medical Alliance Research Grant Guidelines Technical Articles OUR ORGANIZATION Organization / History Board of Directors Medical Advisory Board Professional Staff Our Mission To improve the lives of persons affected by syringomyelia, Chiari malformation and related disorders while we find the cure. So You’ve Just Been Diagnosed What is Syringomyelia? Syringomyelia is a chronic disorder involving the spinal cord. Cerebrospinal fluid enters the spinal cord, forming a cavity known as a syrinx. This syrinx often expands and elongates over time, destroying the center of the spinal cord. More...

3. Syringomyelia Facts What causes syringomyelia? Trauma to the spinal cord or congenital developmental problems of the brain and/or spinal cord may result in SM. http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

4. American Syringomyelia Alliance Project Inc, To Improve The Lives Of Persons Aff syringomyelia Information Page National Institute of Neurological syringomyelia information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS). http://www.asap4sm.com/

Home About Us Message Board Research ... Contact Us RESOURCES Free info packet Expert Advisor Informational Videos Shop Our Store ... Other Resources RESEARCH Member Surgery Outcome Study Duke Genetic Research Study CNS Neurosurgical Fellowships More Information... INFO FOR PROFESSIONALS Medical Alliance Research Grant Guidelines Technical Articles OUR ORGANIZATION Organization / History Board of Directors Medical Advisory Board Professional Staff Our Mission To improve the lives of persons affected by syringomyelia, Chiari malformation and related disorders while we find the cure. So You’ve Just Been Diagnosed What is Syringomyelia? Syringomyelia is a chronic disorder involving the spinal cord. Cerebrospinal fluid enters the spinal cord, forming a cavity known as a syrinx. This syrinx often expands and elongates over time, destroying the center of the spinal cord. More...

5. NINDS Forwarding Page Fact sheet compiled by the National Institute of Neurological Disorders and Stroke. http://www.ninds.nih.gov/health_and_medical/pubs/syringomyelia.htm

NINDS has redesigned its website and the URL for the page you were seeking has changed. The new URL for this page is /disorders/syringomyelia/detail_syringomyelia.htm . Please update your bookmark to this page. You will be automatically taken to this page in 5 seconds, or you can click the link to go there now.

6. Syringomyelia Fact Sheet National Institute Of Neurological More about syringomyelia Studies with patients Research literature Press releases. Disclaimer Search NINDS (help) Contact Us My Privacy http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

7. Syringomyelia Fact Sheet: National Institute Of Neurological Disorders And Strok Other, more common disorders share the early symptoms of syringomyelia. About 21000 American men and women have syringomyelia, with symptoms usually http://www.ninds.nih.gov/disorders/syringomyelia/detail_syringomyelia.htm

Accessible version Science for the Brain The nation's leading supporter of biomedical research on disorders of the brain and nervous system More about Syringomyelia Studies with patients Research literature Press releases Search NINDS... (help) Contact Us My Privacy NINDS is part of the National Institutes of Health You are here: Home Disorders Syringomyelia Syringomyelia Fact Sheet Get Web page suited for printing Email this to a friend or colleague Request free mailed brochure Table of Contents (click to jump to sections) What is syringomyelia? What causes syringomyelia? What are the different forms of syringomyelia? How is syringomyelia diagnosed? ... Where can I get more information? What is syringomyelia? Syringomyelia (sear-IN-go-my-EEL-ya) is a disorder in which a cyst forms within the spinal cord. This cyst, called a syrinx, expands and elongates over time, destroying a portion of the spinal cord from its center and expanding outward. When a syrinx widens enough to affect nerve fibers that carry information from the brain to the extremities, this damage results in pain, weakness, and stiffness in the back, shoulders, arms, or legs. Other symptoms may include headaches and a loss of the ability to feel extremes of hot or cold, especially in the hands. Each patient experiences a different combination of symptoms depending on where in the spinal cord the syrinx forms and how far it expands.

8. Karine's Chiari Page For Teens A website for teens who have Chiari Malformation and syringomyelia. http://www.angelfire.com/hi3/teenchiaripage/index.html

setAdGroup('67.18.104.18'); var cm_role = "live" var cm_host = "angelfire.lycos.com" var cm_taxid = "/memberembedded" Search: Lycos Angelfire Dating Search Share This Page Report Abuse Edit your Site ... Next Karine's Chiari Page for Teens Medical News Hi! My name is Karine and I started this website when I was 16 years old. I am now 21 and a senior in college. I was first diagnosed with Chiari I malformation in 1994 when I was 11. At that time, I was suffering from headaches, nausea, and vomiting. I had an MRI performed which revealed that I had a Chiari I malformation. Following that diagnosis, I have had 6 surgeries. My first surgery, a standard decompression and laminectomy, was in December of 1994. My second surgery, in July 1995, was for the removal of scar tissue and part of the cerebellar tonsils. A dural graft was also placed. My third surgery, in October 1995, was for the insertion of a pressure monitor. My fourth surgery was performed in March 1999 by Dr. Milhorat, who removed a calcified pseudomeningocele. In other words, bone had grown around a pocket of fluid. Dr. Milhorat described it as looking like a chicken egg filled with water. He also performed a larger decompression by removing a 5x4 piece of occipital bone and placing a titanium plate over the opening. (This created more room for my brain.) My fifth surgery was a cardiac ablation. I had this done because I developed an atrial flutter with 2:1 block along with runs of supraventricular tachycardia. (My heart beat really fast and I would become lightheaded and faint whenever I stood up.)

9. Syringomyelia Information Page National Institute Of Neurological syringomyelia information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS). http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

10. Syringomyelia syringomyelia Spina bifida (10%) ? cervical rib; ArnoldChiari malformation Familial syringomyelia; Prior trauma or hematomyelia; Spinal cord gliomas http://www.neuro.wustl.edu/neuromuscular/spinal/syrinx.htm

Front Search Index Links ... Patient Info SYRINGOMYELIA Definition Location Spinal cord: Usually cervical or thoracic Medulla Course: Chronic Clinical syndrome Epidemiology Onset: Most commonly between ages 25 to 40 Clinical features: Variable depending on anatomical involvement Anterior horns Fasciculations Distribution: Usually "suspended" Sparing legs Pain: Occasional; Boring or lancinating Large fiber sensations: Usually preserved Autonomic pathways Horner's syndrome Skin: Trophic changes Neurogenic bladder Corticospinal tracts: Variable involvement Other Scoliosis Tendon reflexes: Reduced or absent in arms Cranial nerve involvement: With syringobulbia Most often unilateral IX - X: Dysphagia; Dysarthria VII: Facial paresis Descending tract of V: "Onion skin" distribution Course: Very slow progression Radiology: A B Associated disorders Spina bifida ? cervical rib Arnold-Chiari malformation Familial syringomyelia Prior trauma or hematomyelia Spinal cord gliomas Return to Spinal disorders

11. NINDS Forwarding Page Information sheet compiled by the National Institute of Neurological Disorders and Stroke. http://www.ninds.nih.gov/health_and_medical/disorders/syringomyelia_short.htm

NINDS has redesigned its website and the URL for the page you were seeking has changed. The new URL for this page is /disorders/syringomyelia/syringomyelia.htm . Please update your bookmark to this page. You will be automatically taken to this page in 5 seconds, or you can click the link to go there now.

12. Welcome To The American Syringomyelia Alliance Project Helping Our Mission To improve the lives of persons affected by syringomyelia, Chiari Malformation and related disorders while we find a cure. ASAP is a http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

13. MedlinePlus: Syringomyelia syringomyelia. From the National Institutes of Health; syringomyelia (National Institute of Information from the Medical Encyclopedia; syringomyelia http://www.nlm.nih.gov/medlineplus/syringomyelia.html

@import url(http://www.nlm.nih.gov/medlineplus/images/advanced.css); Skip navigation Other health topics: A B C D ... List of All Topics Syringomyelia Contents of this page: From the NIH Overviews Dictionaries/Glossaries Directories ... Information from the Medical Encyclopedia Search MEDLINE/PubMed for recent research articles on Syringomyelia You may also be interested in these MedlinePlus related pages: Spinal Cord Diseases Brain and Nervous System From the National Institutes of Health Syringomyelia (National Institute of Neurological Disorders and Stroke) Syringomyelia (National Institute of Neurological Disorders and Stroke) - Short Summary Overviews Syringomyelia (Mayo Foundation for Medical Education and Research) Disease Management Exercise Concepts for Individuals with Syringomyelia (American Syringomyelia Alliance Project) Specific Conditions Chiari Malformation (National Institute of Neurological Disorders and Stroke) - Short Summary What Is the Chiari Malformation? (American Syringomyelia Alliance Project) Clinical Trials ClinicalTrials.gov: Syringomyelia

14. Chiari/Syringomyelia Index, Wake Forest University School Of Medicine Internet Links on Arnold Chiari Malformation and syringomyelia from the Department of Neurosurgery, Wake Forest University School of Medicine, Wake Forest University, WinstonSalem, North Carolina. http://www.bgsm.edu/bgsm/surg-sci/ns/chiarisyrinx.html

Arnold Chiari / Syringomyelia Index Department of Neurosurgery Wake Forest University School of Medicine Links to information about Arnold-Chiari malformation, Dandy-Walker malformation, and syringomyelia (spinal syrinx). Syringomyelia/Syrinx and Arnold-Chiari Malformation Links World Arnold Chiari Malformation (ACM) Association Homepage Arnold Chiari Malformation/Syringomyelia FAQ Syringomyelia Facts (from dataprompt.com) Information on Syringomyelia from the (US) National Institutes of Neurological Disorders and Stroke Workshop Summary: Syringomyelia June 20-21, 1994 from the (US) National Institutes of Neurological Disorders and Stroke Chiari Malformation from the (US) National Institutes of Neurological Disorders and Stroke Dandy-Walker Syndrome from the (US) National Institutes of Neurological Disorders and Stroke Canadian Syringomyelia Network Information from Columbia University College of Physicians and Surgeons Chiari Malformation Chiari Surgery Syringohydromyelia Beth Israel Hospital (New York City) Pediatric Neurosurgery Arnold Chiari Malformation Syringomyelia / Hydromyelia General Pediatric Neurosurgery Links Related Indexes from Wake Forest University School of Medicine Neurosurgery The WFUSM Spina Bifida Index The WFUSM Chiari/Syrinx Index The General Disability Links The WFUSM Brain Tumor Index WFUSM Pediatric/Developmental Neurosurgery Homepage with general peditric neurosurgery links Click on the Medical Center logo at right to go to the Medical School Homepage or the Neurosurgery logo at left to return to the Wake Forest University School of Medicine Neurosurgery Homepage.

15. Syringo My What? Last Updated 211-05 (Click here for printable version) What is syringomyelia? http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

16. MedlinePlus Medical Encyclopedia: Syringomyelia syringomyelia is damage to the spinal cord, caused by a formation of a syringomyelia may occur in certain developmental abnormalities of the nervous http://www.nlm.nih.gov/medlineplus/ency/article/001398.htm

@import url(/medlineplus/images/advanced.css); Skip navigation Medical Encyclopedia Other encyclopedia topics: A-Ag Ah-Ap Aq-Az B-Bk ... Z Syringomyelia Contents of this page: Alternative names Definition Causes, incidence, and risk factors Symptoms ... Prevention Alternative names Syrinx Definition Return to top Syringomyelia is damage to the spinal cord, caused by a formation of a fluid-filled cavity within the cord. Causes, incidence, and risk factors Return to top Syringomyelia is caused by a formation of a fluid-filled cavity within the spinal cord. This fluid build-up may be a result of spinal cord trauma , tumors of the spinal cord, or congenital defects. The cavity most often begins in the neck area. It expands slowly, causing progressive damage to the spinal cord due to the pressure exerted by the fluid. Symptoms result from the spinal cord damage. Syringomyelia may occur in certain developmental abnormalities of the nervous system, including Chiari malformations. Symptoms Return to top Numbness or decreased sensation Neck, shoulders, upper arms, trunk in a cape-like distribution

17. SM/ACM Community - Information, stories, and support for people who have either syringomyelia, Arnold Chiari Malformation or both. Includes a support forum. http://sm-acm.com

(Domain made possible by PTC Hosting) Awards Message Board Chatroom Links ... Web Rings Welcome to the SM/ACM Community Friday, September 09 2005 @ 03:31 PM EDT Menu Home General Info Stories Support Groups SM/ACM E-mail Check/Sign up for an sm-acm.com E-Mail account! UserID: Password: Don`t have an account? Sign up here! Guestbook Please Sign Our Guestbook View Our Guestbook Site Information Old site counter Page Created 11/28/99 New Site Counter var site="sm3acm" Welcome to the SM/ACM Community This site was created for people who have SM, ACM or BOTH and for those who are interested in these rare disorders, it is in no way attempting to take the place of a physician or his/her advice, this is only a source page. The sources and information on this page has been obtained from my personal experience and the experiences and advice of others who have this/these terrible diseases. I would like to thank Vicki (Pumpkin) and others who played a major role in the idea of getting this page started, without their inspiration it would never have been built. Please use the "Menu" on the left or on the "Top" of the page to navigate the site.

18. Canadian Syringomyelia Network We have built the following webpages in the hopes that they will answer some of your questions about the Canadian syringomyelia Network (CSN), as http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

19. American Syringomyelia Alliance Project Inc, To Improve The Lives Of Persons Aff To improve the lives of persons affected by syringomyelia, Chiari malformation and related disorders while we find the cure. http://www.asap.org/

Home About Us Message Board Research ... Contact Us RESOURCES Free info packet Expert Advisor Informational Videos Shop Our Store ... Other Resources RESEARCH Member Surgery Outcome Study Duke Genetic Research Study CNS Neurosurgical Fellowships More Information... INFO FOR PROFESSIONALS Medical Alliance Research Grant Guidelines Technical Articles OUR ORGANIZATION Organization / History Board of Directors Medical Advisory Board Professional Staff Our Mission To improve the lives of persons affected by syringomyelia, Chiari malformation and related disorders while we find the cure. So You’ve Just Been Diagnosed What is Syringomyelia? Syringomyelia is a chronic disorder involving the spinal cord. Cerebrospinal fluid enters the spinal cord, forming a cavity known as a syrinx. This syrinx often expands and elongates over time, destroying the center of the spinal cord. More...

20. Erika's Chiari Home Page Her diagnosis and treatment of Chiari Malformation, syringomyelia, and Basilar Invagination. Includes medical information, pictures, and links for further information. http://www.angelfire.com/hi5/figgyminute/

setAdGroup('67.18.104.18'); var cm_role = "live" var cm_host = "angelfire.lycos.com" var cm_taxid = "/memberembedded" Search: Lycos Angelfire 40 Yr Old Virgin Share This Page Report Abuse Edit your Site ... Next Erika's Chiari Homepage When One Door Closes Another Opens but we often look so long and so regretfully upon the closed door that we do not see the one which has opened for us Alexander Graham Bell A Little Bit Of History I had a normal, healthy childhood. Then in September of 1986, I turned 15 years old. My symptoms came on rather suddenly- I was nauseous and vomiting violently, extremely dizzy, unsteady gait, blurred vision, and sweating profusely. I was immediately admitted to my local hospital for a week where they ran tests but couldn't figure out what was wrong. The local doctor decided it was psychological and discharged me feeling worse than I did on the way in. After countless doctors and specialists, I happened to be seen by a Neurosurgeon who recommended an MRI. Finally I was properly diagnosed! I was told that I had Arnold Chiari Malformation Basilar Invagination Hydrocephalus , and Syringomyelia . I needed to have brain surgery. Surgery Procedures I was quite fortunate that I had no residual effects from surgery and I was able to get on with my life. I graduated from high school on time, went to college, graduate school, and started on my career.

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