1. Web Forwarding Support group for individuals and families affected by SWS. http://home.insightbb.com/~gnethi

2. Main Sturge-weber Syndrome, Port Wine Stain, Klippel-trenaunay A support site for individuals and professionals dealing with SturgeWebersyndrome, port-wine stains and Klippel Trenaunay. The Foundation acts as clearing http://www.sturge-weber.com/

User Log -In Haven't registered yet? Click here to register . As a registered user you have many advantages The SWF is a U.S. 501 (c)(3) tax exempt organization SWS Worldwide Alliances The Sturge-Weber Foundation PO Box 418 Mt. Freedom, NJ 07970 Welcome! This website is designed to address your questions and concerns and help connect you with individuals, families, and professionals within the medical community that can offer continued hope, support, and information. With SWF behind you, we hope you will feel more confident about your ability to assess treatment options and deal with the choices one must make to live a healthy and full life with a disorder The SWF Mission: To improve the quality of life for individuals with Port Wine Stains (PWS) , Sturge-Weber Syndrome (SWS), and Klippel-Trenaunay Syndrome (KT) by providing education and support worldwide and by facilitating the necessary research to discover improved treatments and, ultimately, a cure. The Many Faces of SWS: A Picture is Worth a Thousand Words.. Children may not always be able to explain SWS,KT or PWS, but their artwork can speak for them. This is raising awareness on the most basic level. We encourage the children to share their feelings and thoughts as they create a self-portrait for our gallery. Please mail pictures to the SWF.

3. Sturge-Weber Syndrome Information Page National Institute Of Information about sturgeweber syndrome, also known as encephalotrigeminal angiomatosis. http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

4. About SWS sturgeweber syndrome (encephelotrigeminal angiomatosis) is a congenital, non-familial Each case of sturge-weber syndrome is unique and exhibits the http://www.sturge-weber.com/aboutsws.htm

Sign-In Donate Contact Us About PWS ... Secondary Manifestations What is Sturge-Weber Syndrome? Sturge-Weber Syndrome (encephelotrigeminal angiomatosis) is a congenital, non-familial disorder of unknown incidence and cause. It is characterized by a congenital facial birthmark and neurological abnormalities. Other symptoms associated with Sturge-Weber can include eye and internal organ irregularities. Each case of Sturge-Weber Syndrome is unique and exhibits the characterizing findings to varying degrees. Facial Birthmark The most apparent indication of Sturge-Weber Syndrome is a facial birthmark or "Port Wine Stain" present at birth and typically involving at least one upper eyelid and the forehead. Much variation in the size of the stain has been reported and may be limited to one side of the face or may involve both sides. The stain, varying from light pink to deep purple, is due to an overabundance of capillaries just beneath the surface of the involved skin. In persons with dark pigmentation, the stain may be difficult to recognize. In rare instances, there is an absence of a Port Wine Stain. Neurological Abnormalities Neurological concerns relate to the development of excessive blood vessel growth on the surface of the brain (angiomas). These are located typically on the back (occipital) region of the brain on the same side as the port wine stain. These angiomas create abnormal conditions for brain function in the region. Seizure activity is the most common early problem, often starting by one year of age. The convulsions usually appear on the opposite side of the body from the Port Wine Stain and vary in severity. Vigorous attempts are made to control the seizures with medication. A weakening or loss of the use of one side of the body (hemiparesis), may develop opposite to the port wine stain. Developmental delay of motor and cognitive skills may also occur to varying degrees.

5. Hopkins Sturge-Weber Syndrome Center Clinical center dedicated to the treatment and study of SWS at Johns Hopkins Hospital in Baltimore. Find disease information, diagnosing, and treatment as well as details about the facility. http://www.neuro.jhmi.edu/HopkinsSWSCenter/index.htm

The Johns Hopkins Department of Neurology has established a center of excellence dedicated to caring for patients with Sturge-Weber syndrome (SWS). We have gathered expert physicians and health care professionals in a variety of disciplines neurology, ophthalmology, dermatology, neuroradiology, rehabilitation medicine and physical, occupational, and speech and language therapy with the express goals of providing a comprehensive diagnostic evaluation, patient and family education, and maximizing patient function. The Johns Hopkins - Kennedy Krieger Institute Sturge-Weber Syndrome Center (JHKKISWSC) is the only such center in the United States.

6. Main Sturge-weber Syndrome, Port Wine Stain, Klippel-trenaunay A support site for individuals and professionals dealing with sturgeweber syndrome, port-wine stains and Klippel Trenaunay. The Foundation acts as http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

7. EMedicine - Sturge-Weber Syndrome : Article By James J Riviello, Jr, MD sturgeweber syndrome - The sturge-weber syndrome (SWS), also called encephalotrigeminalangiomatosis, is a neurocutaneous disorder with angiomas involving http://www.emedicine.com/neuro/topic356.htm

(advertisement) Home Specialties Resource Centers CME ... Patient Education Articles Images CME Advanced Search Consumer Health Link to this site Back to: eMedicine Specialties Neurology Pediatric Neurology Sturge-Weber Syndrome Last Updated: October 12, 2001 Rate this Article Email to a Colleague Synonyms and related keywords: encephalotrigeminal angiomatosis, encephalofacial angiomatosis, Sturge-Weber-Dimitri syndrome AUTHOR INFORMATION Section 1 of 10 Author Information Introduction Clinical Differentials ... Bibliography Author: James J Riviello, Jr, MD , Director of Epilepsy Program, Associate Professor, Department of Neurology, Division of Epilepsy and Clinical Neurophysiology, Children's Hospital, Harvard University Medical School James J Riviello, Jr, MD, is a member of the following medical societies: American Academy of Neurology American Academy of Pediatrics American Clinical Neurophysiology Society American Epilepsy Society , and Child Neurology Society Editor(s): Robert Baumann, MD

8. NINDS Forwarding Page Information about sturgeweber syndrome, also known as encephalotrigeminal angiomatosis. http://www.ninds.nih.gov/health_and_medical/disorders/sturge_doc.htm

NINDS has redesigned its website and the URL for the page you were seeking has changed. The new URL for this page is /disorders/sturge_weber/sturge_weber.htm . Please update your bookmark to this page. You will be automatically taken to this page in 5 seconds, or you can click the link to go there now.

9. Sturge-Weber Syndrome sturgeweber syndrome (also called encephalotrigeminal angiomatosis) is a congenital disorder characterized by a birthmark and neurological http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

10. EMedicine - Sturge-Weber Syndrome : Article By Monte A Del Monte, MD sturgeweber syndrome - sturge-weber syndrome (SWS) belongs to a group of disorderscollectively known as the phakomatoses ( http://www.emedicine.com/oph/topic348.htm

(advertisement) Home Specialties Resource Centers CME ... Patient Education Articles Images CME Advanced Search Consumer Health Link to this site Back to: eMedicine Specialties Ophthalmology Phakomatoses Sturge-Weber Syndrome Last Updated: June 9, 2005 Rate this Article Email to a Colleague Synonyms and related keywords: encephalotrigeminal hemangiomatosis, SWS AUTHOR INFORMATION Section 1 of 10 Author Information Introduction Clinical Differentials ... Bibliography Author: Monte A Del Monte, MD , Director of Pediatric Ophthalmology and Strabismus, Skillman Professor, Department of Pediatrics and Communicable Diseases, WK Kellogg Eye Center, University of Michigan Medical School Monte A Del Monte, MD, is a member of the following medical societies: Alpha Omega Alpha American Academy of Ophthalmology American Association for Pediatric Ophthalmology and Strabismus American Diabetes Association ... American Medical Association , and Association for Research in Vision and Ophthalmology Editor(s): Gerhard W Cibis, MD

11. Main Sturge-weber Syndrome, Port Wine Stain, Klippel-trenaunay A support site for individuals and professionals dealing with sturgeweber syndrome, port-wine stains and Klippel Trenaunay. The Foundation acts as clearing house for information and a focus for research. http://www.Sturge-Weber.com

User Log -In Haven't registered yet? Click here to register . As a registered user you have many advantages The SWF is a U.S. 501 (c)(3) tax exempt organization SWS Worldwide Alliances The Sturge-Weber Foundation PO Box 418 Mt. Freedom, NJ 07970 Welcome! This website is designed to address your questions and concerns and help connect you with individuals, families, and professionals within the medical community that can offer continued hope, support, and information. With SWF behind you, we hope you will feel more confident about your ability to assess treatment options and deal with the choices one must make to live a healthy and full life with a disorder The SWF Mission: To improve the quality of life for individuals with Port Wine Stains (PWS) , Sturge-Weber Syndrome (SWS), and Klippel-Trenaunay Syndrome (KT) by providing education and support worldwide and by facilitating the necessary research to discover improved treatments and, ultimately, a cure. The Many Faces of SWS: A Picture is Worth a Thousand Words.. Children may not always be able to explain SWS,KT or PWS, but their artwork can speak for them. This is raising awareness on the most basic level. We encourage the children to share their feelings and thoughts as they create a self-portrait for our gallery. Please mail pictures to the SWF.

12. Hopkins Sturge-Weber Syndrome Center An overview of the sturgeweber syndrome Center at Johns Hopkins http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

13. Sturge-Weber Syndrome_Discussion sturgeweber syndrome. sturge-weber syndrome (or disease) is a congenital vascularmalformation affecting the head, face, and brain. http://radlinux1.usuf1.usuhs.mil/rad/home/cases/sw_dis.html

Last update Wednesday, May 07, 1997 5:47:26 PM STURGE-WEBER SYNDROME Find out more about Sturge-Weber from OMIM Database Online Mendelian Inheritance in Man The Sturge-Weber Foundation General Information, Patient and Family Support Return to the Case of the Week

14. STURGE WEBER Foundation UK/index provides support and information to Sturge Weber syndrome sufferers and their families. Information on Epilepsy, Port Wine Stains and Glaucoma http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

15. Sturge-Weber Syndrome sturgeweber syndrome and craniofacial resources, clinics with genetic counselorsand geneticists, links to national and international support groups. http://www.kumc.edu/gec/support/sturge.html

Sturge-Weber syndrome The Sturge-Weber Foundation P.O. Box 418 Mount Freedom, NJ 07970-0418 Telephone: 1-800-627-5482 (US) or (973) 895-4445 Fax: (973) 895-4846 E-mail: swfoffice@aol.com Web Site: http://www.sturge-weber.com About Sturge-Weber Syndrome Norwegian Foundation for Sturge-Weber syndrome Norsk Forening for Sturge-Weber syndrom (NFSW), see also English version Sturge-Weber Syndrome Support Group of New Zealand Sturge-Weber syndrome family web page, regarding Sturge-Weber Syndrome (SWS), Kippel-Trenaunay Weber Syndrome (KTWS), and Port Wine Stains (PWS) Sturge Weber Foundation , UK Also See: National organizations information on genetic conditions / birth defects Breezy's Sturge-Weber Home Page Sturge Weber Syndrome: Jordan's Story Craniofacial conditions / anomalies support groups AboutFace International ... Sturge-Weber Syndrome Information Page , National Institute of Neurological Disorders and Stroke To locate a genetic counselor or clinical geneticist in your area: Professional Genetics Societies Genetic clinics, centers, departments

16. Sturge-Weber-Dimitri Syndrome a CHORUS notecard document about SturgeWeber-Dimitri syndrome http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

17. Introduction: Sturge-Weber Syndrome - WrongDiagnosis.com Introduction to sturgeweber syndrome as a medical condition including symptoms,diagnosis, misdiagnosis, treatment, prevention, and prognosis. http://www.wrongdiagnosis.com/s/sturge_weber_syndrome/intro.htm

Home Symptoms Diseases Risks ... Diseases Search our medical database Subscribe to our free Newsletter sample Send this page to a friend Condition Lists By Organ By Symptom By Class By Prevalence ... List A-Z Current chapter: Sturge-Weber Syndrome Next sections Basic Summary for Sturge-Weber Syndrome Prognosis of Sturge-Weber Syndrome Symptoms of Sturge-Weber Syndrome Complications of Sturge-Weber Syndrome ... Treatments for Sturge-Weber Syndrome Next chapters: Subacute Sclerosing Panencephalitis Syncope Syringomyelia Tardive Dyskinesia ... Feedback Introduction: Sturge-Weber Syndrome Sturge-Weber Syndrome: Rare birth defect with birthmark and brain effects. Sturge-Weber Syndrome: Sturge-Weber syndrome (also called "encephalotrigeminal angiomatosis") is a congenital disorder characterized by a vascular birthmark and neurological abnormalities. Researching symptoms of Sturge-Weber Syndrome: Further information about the symptoms of Sturge-Weber Syndrome is available including a list of symptoms of Sturge-Weber Syndrome , or alternatively return to research other symptoms in the symptom center Treatments for Sturge-Weber Syndrome: Various information is available about treatments available for Sturge-Weber Syndrome , or research treatments for other diseases.

18. EMedicine - Sturge-Weber Syndrome Article By James J Riviello sturgeweber syndrome - The sturge-weber syndrome (SWS), also called encephalotrigeminal angiomatosis, is a neurocutaneous disorder with angiomas http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

19. Symptoms Of Sturge-Weber Syndrome - WrongDiagnosis.com Symptoms of sturgeweber syndrome including signs, symptoms, incubation period,duration, and correct diagnosis. http://www.wrongdiagnosis.com/s/sturge_weber_syndrome/symptoms.htm

Home Symptoms Diseases Risks ... Sturge-Weber Syndrome Search our medical database Subscribe to our free Newsletter sample Send this page to a friend Condition Lists By Organ By Symptom By Class By Prevalence ... List A-Z Current chapter: Sturge-Weber Syndrome Next sections Complications of Sturge-Weber Syndrome Treatments for Sturge-Weber Syndrome Articles about Sturge-Weber Syndrome Glossary for Sturge-Weber Syndrome Next chapters: Subacute Sclerosing Panencephalitis Syncope Syringomyelia Tardive Dyskinesia ... Feedback Symptoms of Sturge-Weber Syndrome General information about symptoms of Sturge-Weber Syndrome: The symptom information on this page attempts to provide a list of some possible symptoms of Sturge-Weber Syndrome. This symptom information has been gathered from various sources, may not be fully accurate, and may not be the full list of symptoms of Sturge-Weber Syndrome. Furthermore, symptoms of Sturge-Weber Syndrome may vary on an individual basis for each patient. Only your doctor can provide adequate diagnosis of symptoms and whether they are indeed symptoms of Sturge-Weber Syndrome. List of symptoms of Sturge-Weber Syndrome: The list of symptoms mentioned in various sources for Sturge-Weber Syndrome includes: Facial birthmark - like a port wine stain, usually touching eyelid and forehead, colored from light pink to deep purple

20. Sturge-Weber Syndrome_Discussion sturgeweber syndrome http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

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