101. 12/17/2003 Texas Man Finds Diagn It’s one of the more bizarre symptoms of Stiff Person syndrome, Discovered inthe ‘50s, Stiff Person syndrome is thought to be an autoimmune disorder. http://www.cidpusa.org/truck driver.htm

IVIG PAGE Home Page Texas man finds diagnosis for rare autoimmune disorder at Methodist By Susan Christensen Health and Research News Service JACKSON —When he was a long-haul truck driver, Roger Hollenbaugh of Bandera, Texas, used to pass a field of “fainting goats.” The breed falls over when startled, and Hollenbaugh couldn’t resist honking his horn and laughing as the goats swooned in unison. Now he wonders if he might be paying some dues for that devilry. Today, anything that catches Hollenbaugh unaware—from a loud rap on his door to an unexpected hand on his shoulder—sends the 36-year-old toppling to the ground like a felled tree. It’s one of the more bizarre symptoms of Stiff Person Syndrome, a disease his doctor calls “rarer than hen’s teeth.” “I’ve only seen one other case, and that was when I was doing my residency,” said Dr. Michael Winkelmann, a physician at Methodist Rehabilitation Center in Jackson, Mississippi, who helped put a name to Hollenbaugh’s devastating illness. “If it hadn’t been for him, who knows what would have happened to me,” says Hollenbaugh. “Every other doctor I went to would just give me pain pills and tell me it’s all in my head. He was interested in what was wrong with me.”

102. Stiff Person Syndrome - Små Och Mindre Kända Handikappgrupper Stiff person syndrome, tidigare stiff man syndrome, beskrevs första gången år1956 av Den exakta förekomsten av stiff person syndrome är svår att ange. http://www.sos.se/smkh/2002-29-153/2002-29-153.HTM

Socialstyrelsen 106 30 Stockholm Socialstyrelsen klassificerar sin utgivning i olika dokumenttyper Stiff person syndrome Sjukdom/skada/diagnos Orsak till sjukdomen/skadan Symtom Diagnostik ... Dokumentinformation: Dokumentdatum: 2002-02-21 Version: 1.0 Artikelnummer: 2002-29-153 Socialstyrelsen Detta är ett utdrag ur Socialstyrelsens kunskapsdatabas om små och mindre kända handikappgrupper. Med små och mindre kända handikappgrupper avses ovanliga sjukdomar/skador som leder till omfattande funktionshinder och som finns hos högst 100 personer per miljon invånare. Syftet med databasen är att ge aktuell information om små och mindre kända handikappgrupper och om det stöd och den service som dessa grupper behöver. För ytterligare information om aktuell diagnos hänvisas till informationsmaterial, litteratur och databaser som anges under resp diagnos. Sjukdom/skada/diagnos Orsak till sjukdomen/skadan g amma a mino b utyric a Autoimmunitet, Paraneoplastiskt fenomen Symtom Stiff trunk syndrome Stiff limb syndrome Jerking stiff person syndrome Progressiv encephalomyelit Diagnostik Praktiska tips Resurspersoner christopher.lindberg@vgregion.se

103. Treatment With Intravenous Prednisone And Immunoglobulin In A Case Of Progressiv The aetiology of both stiff person syndrome and PEMRS remains unknown althoughan autoimmune mechanism has been suggested. Therefore, plasmapheresis http://www.jnnp.com/cgi/content/full/68/3/395a

HOME HELP FEEDBACK SUBSCRIPTIONS ... TABLE OF CONTENTS Author Keyword(s) Vol Page [Advanced] This Article Extract Full Text (PDF) Submit a response ... Alert me if a correction is posted Services Email this link to a friend Similar articles in this journal Alert me to new issues of the journal Download to citation manager PubMed Articles by MOLINA, J A Related Collections Other Neurology J Neurol Neurosurg Psychiatry 395-396 ( March ) Letters to the editor Treatment with intravenous prednisone and immunoglobulin in a case of progressive encephalomyelitis with rigidity The progressive encephalomyelitis with rigidity syndrome (PEMRS) is a rare neurological disorder that can be considered as the most severe form of the "stiff person" syndrome although other authors suggest that it may be a distinct entity. Pathogenesis is far from being clearly defined, but some studies point to humoral immunity as having an important role. Antiglutamic acid decarboxylase

104. JNNP -- Sign In Page The management of stiff person syndrome is difficult and although success The patient had been diagnosed as having stiff person syndrome in August 2001. http://jnnp.bmjjournals.com/cgi/content/full/76/7/999

HOME HELP FEEDBACK SUBSCRIPTIONS ... SEARCH Author Keyword(s) Vol Page [Advanced] Access to this article requires a subscription or payment. Full Text Treatment of stiff person syndrome with rituximab Baker et al. J Neurol Neurosurg Psychiatry. To view this item, select one of the options below: Login via Athens Login for existing subscribers User Name Sign in without cookies. Can't get past this page? Help with Cookies. Need to Activate? Password Forgotten your user name or password? Subscribe Buy the article Pay per Article - You may access this article (from the computer you are currently using) for 2 days for US$12.00 SitePass - You may access all content in Journal of Neurology, Neurosurgery, and Psychiatry Online (from the computer you are currently using) for 30 days for US$30.00. Regain access to an already purchased article if the access period has not yet expired. This Article Abstract Full Text (PDF) Submit a response ... Alert me if a correction is posted Services Email this link to a friend Similar articles in this journal Similar articles in PubMed Alert me to new issues of the journal ... Download to citation manager PubMed PubMed Citation Articles by Baker, M R

105. Discussion Forum Has anyone ever taken care of a child with Stiff Person syndrome? Stiffpersonsyndrome is a disabling central nervous system disorder with http://www.child-neuro.org.uk/forums/lofiversion/index.php/t75.html

Help Search Member List Calendar Full Version: Discussion Forum Discussion Forum Child Neurology Trainees Area (1 posts) (118 posts) This is a "lo-fi" version of our main content. To view the full version with more information, formatting and images, please click here Invision Power Services, Inc.

106. Bioline International Official Site (site Up-dated Regularly) SHORT REPORT Stiff Person syndrome and Myasthenia Gravis Association ofstiff person syndrome, an immune related disorder of anterior horn cells and http://www.bioline.org.br/abstract?id=ni02026&lang=en

107. Immunotherapy Treatment Shows Dramatic Results For Rare Shows Dramatic Results For Rare Neurological Disorder Stiff Person syndrome administered to patients suffering from stiff person syndrome (SPS), http://www.pslgroup.com/dg/210dae.htm

108. Stiff Person Or Endocrine Problems Health topic area and articles about misc. Topics stiff person syndrome,syndrome,diabetes, neurologist, glucose, thoracic, hypersensitivity. http://www.medhelp.org/forums/neuro/messages/33639.html

Questions in The Neurology Forum are being answered by doctors from The Cleveland Clinic , consistently ranked one of the best hospitals in America. Stiff Person or Endocrine problems Forum: The Neurology and Neurosurgery Forum Topic: Misc. Subject: Stiff Person or Endocrine problems From To Post sdegraff In June 2004 my knees became painful when doing stairs or squatting. During physical therapy for my knees I began having mid-upper back pain. This back pain started in August 2004. Some background: I am a 47 year old female - in June 2003 I had an adrenal gland removed due to Cushings. I am still on replacement hydrocortisone. In April 2004 I was diagnosed with hypothyroid and am on Levoxyl. I have had extensive work ups including MRI’s, cat scans, bone scans for the back pain. I had been shuffled from doctor to doctor for about 8 months; including internist, physiatrist, orthopedist, endocrinologist and neurologist. In January 2005 a neurologist in Missouri suggested Stiff Person Syndrome because I tested positive for GAD65 antibody (low titer). I went to Mayo Clinic in Rochester for a second opinion. The neurologist there feels that the anti-GAD is of doubtful clinical relevance in my case. The pain is in the thoracic area and I also have hypersensitivity of the skin on my back. I also experience hypersensitivity/burning of my skin in other areas of my body. The burning seems to come and go. Twice this hypersensitivity has occurred when my TSH was low so I have just recently decreased the levoxyl. While at Mayo they did sweat tests, autonomic tests and EMG’s, none which showed any significant abnormalities. I have also had blood glucose test for diabetes since the GAD could be indicative of that. I have also had workup for tumors.

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