21. Vehicle Fund Woman born with spinal muscular atrophy, needs help purchasing a vehicle specialized for her needs. http://members.cox.net/vehiclefund/

Vehicle Fund What is the Vehicle Fund? Why support the fund? Who Is Laura? Frequently Asked Questions ... Pictures Updates June 6, 2004 May 24, 2004 April 25, 2004 March 21,2004 The Goal Goal = $30,000 Received = $9,057 Need = $21,943 What is the Vehicle Fund? Why support the fund? In all modesty, you should support this fund because I am a fabulous person! No, all kidding aside, this fund is designed to give back to the community. First, the initial vehicle purchased with the fund, for me, will enable me to continue working with members of the disability community. My primary job will be to assist individuals with disabilities to increase or maintain their independence through the use of service animals. Top Who Is Laura? My name is Laura, and like Martin Luther King Jr., I have a dream. My dream is to be as independent and self-sufficient as I possibly can be. I was born in 1961 with Spinal Muscular Atrophy. The doctors told my parents that I would not live past the age of 3. I had other plans. On the other hand, I consider myself to be very independent. I left home at the age of 18 and moved across the country to attend the University of Arizona. I have lived on my own since that time. I hire people to assist me with the things I cannot do for myself. I would love to offer you the opportunity to help me make my dreams come true. I will need at least $30,000 in order to drive. I plan to purchase a 2004 Dodge Grand Caravan.

22. Spinal Muscular Atrophy / Family Village spinal muscular atrophy http://tmsyn.an.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

23. Jennifer Trust For Spinal Muscular Atrophy Home page of the Jennifer Trust for spinal muscular atrophy http://tmsyn.an.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

24. Home Page Information and resources for spinal muscular atrophy. http://www.believe-miracles.com/

Cassie Believe in Miracles That's What Makes Them Come True Skylar We are twins - this makes us special. We are also very special because we have Spinal Muscular Atrophy (SMA) Type 1. We surprised everyone when we turned eight years old this year. This is pretty amazing for kids like us. SMA is a very serious neuromuscular disease. It has taken the lives of many little children. Doctors say we were born with a bad gene. Scientists from all over the world are trying to fix our bad gene. If they do we could do more things. We have some really good news . Dr. Burgess from Ohio State University said he has some mice who have SMA just like us. Dr. B. says that when he gives these mice a protein called SMN2 they get better. Also, scientists at John Hopkins just gave some mice these little stem cells and guess what - some of them could move a little more. There are lots of scientists looking for a cure and they are getting closer everyday. Our Mommy and Daddy say that we need to raise money to help the scientists. Some of our friends and family have started a charity called

25. SMN, The Spinal Muscular Atrophy Protein, Forms A Pre-import SnRNP SMN, the spinal muscular atrophy protein, forms a preimport snRNP complex with snurportin1 and importin Usha Narayanan , Jason K. Ospina http://tmsyn.an.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

26. Key Facts About SMA spinal muscular atrophy (SMA) is a neuromuscular condition causing weakness of the muscles. How spinal muscular atrophy is Inherited. Genes Inheritence http://www.jtsma.org.uk/mdi/sma0.html

You are here: Information and Support Fact Sheets Key Facts about SMA Background to Spinal Muscular Atrophy Search JTSMA Site: Home Information and Support Fact Sheets Key Facts about SMA Management Personal Stories - Type 1 Personal Stories - Type 2 Personal Stories - Type 3 ... How You Can Help Background to Spinal Muscular Atrophy What is spinal muscular atrophy? Spinal Muscular Atrophy (SMA) is a neuromuscular condition causing weakness of the muscles. Is SMA Hereditary? The gene for SMA is passed from parents to their children, but SMA can only affect a child if both parents carry a defective gene (this is called an autosomal recessive pattern). Genes come in pairs, one from each parent. If a person has one normal and one affected gene they do not show the symptoms of SMA but are carriers. If both genes are affected they will have SMA. How Spinal Muscular Atrophy is Inherited. Each child of carrier parents has a 1 in 4 chance of being affected by SMA, a 2 in 4 chance of being a carrier themselves, and a 1 in 4 chance of being completely clear of SMA. Boys and girls are affected equally. Is There More Than One Type SMA?

27. Muscular Dystrophy Association The Muscular Dystrophy Association is a voluntary health agency a dedicated partnership between scientists and concerned citizens aimed at http://tmsyn.an.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

28. Understanding Spinal Muscular Atrophy Offers extensive information for parents about the three forms of this disease type I (WerdnigHoffman disease), type II, and type III (Kugelberg-Welander). http://www.fsma.org/booklet.htm

Understanding Spinal Muscular Atrophy This page has been renamed. Your browser should automatically redirect you, but if it does not please click http://www.fsma.org/booklet.shtml Thank you, Families of SMA

29. SMA.net Main Page prevention and treatment of spinal muscular atrophy (SMA). spinal muscular atrophy is a hereditary disorder of the spinal and bulbar motoneurons causing http://www.affari.com/smanet/

Medical Information What is SMA? References Genetics of SMA ... Browse Public List Welcome to SMAnet The purpose The purpose of SMA .net is to provide a source of information for research, prevention and treatment of Spinal Muscular Atrophy (SMA). Spinal muscular atrophy is a hereditary disorder of the spinal and bulbar motoneurons causing muscle atrophy and weakness, which is usually symmetrical, affects the legs more than the arms and the proximal muscles more than the distal; facial muscles are spared and intellect is normal or advanced. SMA.net is intended to provide information for both the medical and non-medical communities. These pages will be continually updated. SMA.net contents: SMA.net contains local pages as well as pointers to remote sites that contain information related to SMA. SMA database DEMO (public access with username and password = demo) A. Medical information 1. Definition, research and references

30. Wishes For William Fundraising and informational site for a young boy with spinal muscular atrophy (SMA). Features updates, forthcoming events and details on this medical condition. http://www.wishesforwilliam.org/

Wishes for William About WFW About SMA William's Corner Fund Raising ... Archives Search William's Site Recently Updated: William's Corner Check It Out! Calendar Info Farm Fest 6/26/04 Golf Tournament 7/6/04 Welcome to wishesforwilliam.org! Events FarmFest 2004 a Benefit Concert held on June 26 was a huge success. check out the photos Golf Tournament The annual Andover Country Club will be held July 6. This is always a fun event. Check the calendar page for details. Recently Completed Events Walk-n-Roll , an FSMA fundraiser, was held on Saturday May 15 at Waompatuck Park in Hingham. As you can see from the pictures , this was a great event with a huge turn out. Thanks to all who participated.

31. SMA.net Families of SMA (spinal muscular atrophy). Address PO Box 196, Libertyville, IL 600480196, USA; Contact Audrey N. Lewis, Executive Director http://www.affari.com/smanet/smagroups.html

SMA groups around the world Families of S.M.A. (Spinal Muscular Atrophy) Address: P.O. Box 196, Libertyville, IL 60048-0196, USA Contact: Audrey N. Lewis, Executive Director Marilyn Naiditch, Secretary Phone number: Number of members: approximatly 1500 Activity: Spinal Muscular Atrophy funds research .... provides family networking .... publish quarterly newsletter, "Direction" ... provide equipment pool ... promotes public awareness ... Jennifer Trust for Spinal Muscular Atrophy (JTSMA) Address: 11 Ash Tree Close, Wellesbourne, Warwick CV35 9SA Contact: Anita J Macaulay, Executive Director Phone number: Activity: publish quarterly newsletter, "Holding Hands" Mail comments to merlini@ior.dsnet.it

32. Sma:Irina's Cozy- Corner In Saratov,travel-culinary-book-psychology. Personal web page of a Russian woman living with spinal muscular atrophy. Includes information on travel, recipes and psychology. English, Russian and Italian versions. http://www.cozy-corner.com/

Irina's cozy-corner français italiano in this site the web Add to your HomePage Your faves var url = (parent.location.href); document.write('Tell to all friends'); Make a donation SMA Utilities Something Tasty Book ... Banner exchange Site map Forum Sign my Guest Book View my Guest Book Russian ... a.s.a. m.s.i. Raduga Creations Webmaster Webdesigner I want this site to be a comfy meeting place to exchange thoughts, advice s , and resources about life with or without SMA. Wherever you live, come here and see that we have a lot of things in common. BD: Location: Saratov (Russia) Languages: Russian, English, Italian, Polish, French (2 last understand but don't write) Interests: Psychology, Literature, Music, History, Culinary, Art

33. Spinal Muscular Atrophy / Family Village The Families of SMA (spinal muscular atrophy) organization promotes and funds research, The International spinal muscular atrophy Patient Registry http://www.familyvillage.wisc.edu/lib_spma.htm

Spinal Muscular Atrophy See Also: Muscular Dystrophy Who to Contact Where to Go to Chat with Others Learn More About It ... Search Google for "Spinal Muscular Atrophy" Who to Contact Families of S.M.A. (Spinal Muscular Atrophy) PO Box 196 Libertyville, Illinois, USA 60048-0196 Website: http://www.fsma.org/ The Families of S.M.A. (Spinal Muscular Atrophy) organization promotes and funds research, provides families with the use of their equipment pool to help alleviate the high cost of medical equipment, promotes public awareness, provides networking, and funds a roster at Indiana University, enabling researchers a central location from which to access necessary family information. They also provide families who have little or no insurance with financial assistance in the purchase of necessary equipment. Families of S.M.A. has local support groups with a directory available. They will provide assistance to individuals who wish to start a chapter in their area, and provide parent-to-parent matching through network listings. SMA publishes a quarterly newsletter, Directions , which is included in membership fees, and offer a brochure that describes the organization. They offer a new parent packet that includes; back issues of the newsletter, information on daily management of affected persons, research updates, and networking. There is also a bibliography of books, a lending library and a video that are available to members. Call or write for further information.

34. SMA Spinal Muscular Atrophy The spinal muscular atrophy (SMA) Webring allows individuals and families affected by SMA to join there homepages together. http://p.webring.com/hub?ring=smatrophy&list

35. SMA Angels Support Site | Homepage A place for people to find support for spinal muscular atrophy (SMA) / WerdnigHoffman. http://www.smaangels.com

My site is down for maintenance. Please check back again soon.

36. EMedicine - Spinal Muscular Atrophy : Article By Bryan Tsao, MD spinal muscular atrophy The spinal muscular atrophies (SMAs) are a clinically and genetically heterogeneous group of disorders. They are characterized by http://www.emedicine.com/NEURO/topic631.htm

(advertisement) Home Specialties Resource Centers CME ... Patient Education Articles Images CME Patient Education Advanced Search Consumer Health Link to this site Back to: eMedicine Specialties Neurology Pediatric Neurology Spinal Muscular Atrophy Last Updated: November 13, 2003 Rate this Article Email to a Colleague Synonyms and related keywords: bulbospinal muscular atrophy, Davidenkow syndrome, Fazio-Londe disease, hereditary motor neuronopathy, Kennedy syndrome, progressive muscular atrophy, Vialetto-van Laere syndrome AUTHOR INFORMATION Section 1 of 9 Author Information Introduction Clinical Differentials ... Bibliography Author: Bryan Tsao, MD , Clinical Associate, Department of Neurology, Section of Neuromuscular Disorders, The Cleveland Clinic Foundation Coauthor(s): Carmel Armon, MD, MHS , Professor of Neurology, Tufts University School of Medicine, Chief, Division of Neurology, Baystate Medical Center, Springfield, Massachusetts Bryan Tsao, MD, is a member of the following medical societies: American Academy of Neurology Editor(s): Robert Baumann, MD

37. Joe And Rami's Home On The Web - Home A detailed description, news and links with information about spinal muscular atrophy. A personal story of a baby, Ilsa. http://www.smaangel.com

Home SMA Photos Vizslas Vegas ... Contact Joe, Rami, Odo Edmonton, AB Welcome to our Home on the Web Our Favorite Websites (In no particular order)

38. EMedicine - Kugelberg Welander Spinal Muscular Atrophy : Article By Mary Louise Kugelberg Welander spinal muscular atrophy Kugelberg Welander spinal muscular atrophy is a rare inherited disorder that causes progressive degeneration of http://www.emedicine.com/pmr/topic62.htm

(advertisement) Home Specialties Resource Centers CME ... Patient Education Articles Images CME Advanced Search Consumer Health Link to this site Back to: eMedicine Specialties Physical Medicine and Rehabilitation Disorders Of The Motor Unit Kugelberg Welander Spinal Muscular Atrophy Last Updated: February 13, 2002 Rate this Article Email to a Colleague Synonyms and related keywords: juvenile types III and IV spinal muscular atrophy, Wohlfart-Kugelberg-Welander syndrome, mild spinal muscular atrophy, adult onset spinal muscular atrophy AUTHOR INFORMATION Section 1 of 9 Author Information Introduction Clinical Differentials ... Bibliography Author: Mary Louise Caire, MD , Consulting Staff, Department of Physical Medicine and Rehabilitation, Wise Regional Medical Center Coauthor(s): Stephen Kishner, MD , Director of the Electromyography Laboratory, Louisiana Rehabilitation Institute; Associate Professor, Department of Medicine, Section of Physical Medicine and Rehabilitation, Louisiana State University School of Medicine Mary Louise Caire, MD, is a member of the following medical societies:

39. Tori's Buddies Canadian Chapter of Andrew's Buddies, fighting spinal muscular atrophy SMA. http://www.fightsma.ca/

40. Nouvelle Page 1 A personal story of a family with a son Theo, suffering from spinal muscular atrophy. Site also in French. http://www.mysunrise.ch/users/af.mast/

Ce site est consacré à l'histoire de notre petit Theo qui était atteint d'une terrible maladie génétique ... This website is dedicated to our little Theo who was suffering from a terrible genetic disease ... Voici quelques liens vers des sites qui vous informerons plus précisément sur l'amyotrophie spinale infantile ou maladie de Werdnig-Hoffmann : Here are some links to websites that will give some more information about spinal muscular atrophy or Werdnig-Hoffmann's disease : http://http://www.fsma.org/ http://maruja.sener.free.fr/myonet/index.html http://www.our-sma-angels.com mailto:af.mast@mydiax.ch Vous êtes le visiteur no / You are visitor nr :

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