101. Latex Allergy Links - Spina Bifida Links to latex allergy sites on the Internet, particularly those pertaining to spina bifida. http://latexallergylinks.tripod.com/sb.html

Your gateway to latex allergy information on the Internet Spina Bifida Inspiration: the girl who's had 21 operations Royston Mercury UK Jun 03 2005 re: Latex sensitivity in spina bifida patients Ask the Expert: Latex Welcoming Babies with Spina Bifida by Linda Rowley Revised Feb 2005 Spina Bifida and Latex Allergies-A Review and Recommendations for Teachers by Monica L. Parson and Helen M. Binkley Palaestra Jan 01 2005 PDF Massachusetts Spina Bifida News Massachusetts Spina Bifida Association Winter 2004 Access Needs Assessment for Parents PDF University of Kansas Medical Center Kansas, KS Spina Bifida Association of America "Latex Allergy" Spina Bifida Association of America (SBAA) 32nd Annual Conference Minneapolis, MN Jun 26-29 2005 Latex Allergy in 2004: What's Known, What's Now, What's Next PDF by Elli Meeropol, MS, RN, PNP presented at SBAA's 31st Annual Conference Jun 2004 Insights Into Spina Bifida Jul/Aug 2004 same as above PDF Latex List 2004 PDF Updated Summer 2004 same as above MS Word Latex-Safety at School PDF by Elli Meeropol, RN, MS, PNP

102. BrainTalk Communities - Spina Bifida Threads in Forum spina bifida, Forum Tools, Search this Forum Seeking information on spina bifida. bmc79. 0728-2005 1145 PM http://brain.hastypastry.net/forums/forumdisplay.php?f=235

103. Spina Bifida Connection - Powered By VBulletin Message forum to discuss related issues with others. http://spinabifidaconnection.com

Spina Bifida Connection User Name Remember Me? Password Join FAQ Members List Calendar ... Mark Forums Read Welcome to the Spina Bifida Connection. This discussion forum hopes to connect people who are in some way affected by spina bifida and it's related conditions. If this is your first visit to our community, be sure to check out the FAQ by clicking the link above. You will have to register before you can post. Don't worry, registration is free and fairly painless. Click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Forum Last Post Threads Posts Neighborhood Corner Say hello, share a story, or tell a joke. This is the area to stop by and chit chat. Welcome Mat! (2 Viewing) Please come in and introduce yourself! Hello, I'm New Here by 18 Minutes Ago The Playground You finally have a place to share that funny email, tell a new joke, or share your latest story! Mothers Of Handicapped Kids by 22 Hours Ago Spina Bifida Health related discussions about all topics related to spina bifida. Bowel and Bladder Can There Ever Be Dry Days...

104. ClinicalTrials.gov - Information On Clinical Trials And Human Research Studies: Search results for spina bifida ALLFIELDS are shown below. Recruiting, Genetics of spina bifida Condition spina bifida http://www.clinicaltrials.gov/search/term=Spina Bifida

Home Search Browse Resources ... About Search results for Spina Bifida [ALL-FIELDS] are shown below. Include trials that are no longer recruiting patients. 2 studies were found. Recruiting Genetics of Spina Bifida Condition: Spina Bifida Recruiting Management of Myelomeningocele Study (MOMS) Conditions: Meningomyelocele; Spinal Dysraphism U.S. National Library of Medicine Contact NLM Customer Service National Institutes of Health Privacy ... Freedom of Information Act

105. AZSBA Programs include housing, urinary supplies, and free cycles. http://azspinabifida.org

PROGRAMS The Arizona Spina Bifida Association enhances the quality of life for those living with spina bifida by providing services and information. The Arizona Spina Bifida Association is a nonprofit 501(c)(3)organization. 100% of funds raised in Arizona stay in Arizona 1001 East Fairmount Avenue Phoenix, Arizona 85014 HOLIDAY PHOTOS Volunteers Needed Toque aqui-para leer esto pagina en espanol *Notice: The information provided here is for informational, educational and entertainment purposes only. It is not intended to replace, and should not be interpreted or relied upon as, medical or professional advice. Your use of this site means that you agree to the terms and conditions detailed in our SB FACTS Welcome Baby Housing CRS Lunch Urinary Supplies ... En Espanol Information Provided by SB Association of America Hydrocephalus Association Association for Spina Bifida and Hydrocephalus ... NEWSLETTER

106. Spina Bifida national and international spina bifida resources, support groups, genetic clinics with genetic counselors and geneticists. http://www.kumc.edu/gec/support/spinabif.html

Spina Bifida (lipomeningocele, meningocele, myelomeningocele, anencephaly, neural tube defects) Spina Bifida Association of America 4590 MacArthur Blvd., NW, Suite 250, Washington, DC 20007-4226 Phone: 800.621.3141or 202.944.3285 - Fax: 202.944.3295 E-mail: sbaa@sbaa.org SBAA Chapters Real Stories Section Spina Bifida Association of Canada (L'Association de spina-bifida et d'hydrocéphalie du Canada) Association for Spina Bifida and Hydrocephalus ASBAH House, 42 Park Road, Peterborough, PE1 2UQ England Web site: http://www.asbah.org/ International Federation for Hydrocephalus and Spina Bifida ("if") Cellebroerstraat 16, B-1000 Brussels, Belgium Tel: +32 (0)2 502 0413 - Fax: +32 (0)2 502 1129 E-mail: if@wanadoo.be Queensland Association for People with Spina Bifida or Hydrocephalus 21 Tillot St., Dutton Park, QLD 4102 Australia Spina Bifida Association of Western Australia Arbeitsgemeinschaft Spina bifida und Hydrocephalus (ASbH e.V.) Bundesverband Münsterstr.13, D-44145 Dortmund, Germany Telefon (0231) 86 10 50-0 - Telefax (0231) 86 10 50-50 Scottish Spina Bifida Association Also See: National organizations information on genetic conditions or birth defects Anencephaly information Arnold Chiari Malformation Association Association for Spina Bifida and Hydrocephalus of England Associazione Piemontese Spina Bifida e Idrocefalo , Italy Arbeitsgemeinschaft Spina bifida und Hydrocephalus (ASbH e.V.), Germany

107. Standing Frames, Standers, Assistive Technology Made By Altimate Medical Standers and mobility aids for persons with cerebral palsy, muscular dystrophy, spina bifida, and multiple sclerosis. http://www.easystand.com

Home Products Case Studies Press Room ... Tell me More The Ovation Strap Stand is different from other Altimate Medical standers. It is considered a "sit to stand" stander even though a padded strap lifts the user into the standing position instead of seat. Here is how it works: the user places the strap underneath their buttocks, positions their wheelchair so their feet and knees are secure in the Ovation, attaches the strap to the Ovation's lifting arms, and pumps up to standing! It is ideal for nursing homes, rehab facilities, and individuals who do not require a lot of additional support options. Ovation Strap Stand Altimate Medical's new EasyStand Evolv with Shadow Support Tray option follows and supports the user in all positions from sitting to standing. As the user rises to the standing position, the tray and chest pad follow, creating a "shadow" effect. EasyStand Evolv Shadow Support Tray Visit our Booth at Medtrade in Atlanta Attend a Standing 101 Seminars in Your Area New EasyStand Evolv - literature now available. ... Demonstration models for sale at reduced prices- Contact Kevin Markgraf for details 800-342-8968 ext. 32 "Standing is important to me because of the physical, cognitive, and emotional benefits it provides. Physically, standing helps my bones, muscles, posture, and circulation. It also is a pain management strategy and benefit for me. Mentally and emotionally, standing helps me because I am not sitting all the time. I am able to look at people in the eyes while I am standing and I feel delighted to be on my feet."

108. Disability Awareness Kit spina bifida is a developmental defect which occurs within the first six weeks of pregnancy, Many children with spina bifida attend regular preschool, http://www.openroad.net.au/access/dakit/physical/phhandout4.htm

HOME DISABILITY AWARENESS PRINT ... MAP Physical Disability Core information SECTION HOME What causes physical disability? Spina Bifida Spina Bifida is a developmental defect which occurs within the first six weeks of pregnancy, caused possibly by a combination of genetic and environmental factors. Some of the spinal bones which normally protect and cover the delicate nerves of the spinal cord do not close. Consequently the spinal nerve tissue protrudes through this gap and forms an open swelling on the back. This could occur anywhere from the back of the head to the lowest part of the spine. Even though surgery at birth closes the gap, the damage to the spinal nerve tissues can never be repaired. The degree of paralysis will depend on the extent of damage to the spinal cord and the position of the lesion. Usually there is some paralysis and loss of sensation in the legs and lower trunk. This could result in: a need to use a mobility aid such as callipers, crutches, a walking frame, walking sticks or a wheelchair various degrees of bowel and bladder incontinence. There are several methods available to manage this problem.

109. Massachusetts Spina Bifida Association Sponsors social events, clothing and equipment program and scholarships. Includes map to locate other members. http://www.msbaweb.org/

LEARN ABOUT MSBA About MSBA Strategic Plan Volunteer Opportunities Facts ... Contacts SUPPORT MSBA Make a Contribution Recent Special Contributions and Bequests Hot Topics Summer Camp Search Assistance See also Summer Camps under Links for more camps in the Massachusetts area Easter Seals Offers Three Options for Campers with Special Needs Items for Sale, Donation or Trade MSBA Information Benefits Programs Board Meeting Notes Board Meetings Sept. 12, 2005 Oct. 3, 2005 Nov. 7, 2005 Dec. 5, 2005 Discussion Groups MSBA Newsletter Current Issue Letter from the President Bits and Pieces MSBA Member Spotlight MSBA Youth and Adults Group (MSBAYA) Focus Archive Back Issues Quick Links Assistive and Adaptive Technology / Universal Design Children's Groups and Connections Conference Information Family Vacations ... Jump to the Links Page Library Visit the MSBA Lending Library and Borrow Items Find books related to spina bifida Other Written and Audio/Video Resources Announcements The MSBAYA Planning Committee needs your help! With the recent growth in MSBAYA membership and participation, the MSBAYA Planning Committee is looking for volunteers to assist with activities including coordinating events, transportation, flyer preparation and moderating its online Yahoo!Group

110. InteliHealth: Spina Bifida InteliHealth Featuring Harvard Medical School s consumer health information. For more than 550 diseases and conditions, learn What Is It?, Symptoms, http://www.intelihealth.com/IH/ihtIH/WSIHW000/9339/9619.html

chrome_imgPreload('gifChr_mid_but_home_mo_1','http://img.intelihealth.com/i/C/Chr_mid_but_home-o.gif'); chrome_imgPreload('gifChr_mid_but_comm_mo_2','http://img.intelihealth.com/i/C/Chr_mid_but_comm-o.gif'); chrome_imgPreload('gifChr_mid_but_dental_mo_3','http://img.intelihealth.com/i/C/Chr_mid_but_dental-o.gif'); chrome_imgPreload('gifChr_mid_but_drug_mo_4','http://img.intelihealth.com/i/C/Chr_mid_but_drug-o.gif'); chrome_imgPreload('gifChr_mid_but_askexpert_mo_5','http://img.intelihealth.com/i/C/Chr_mid_but_askexpert-o.gif'); chrome_imgPreload('gifChr_mid_but_medical_mo_6','http://img.intelihealth.com/i/C/Chr_mid_but_medical-o.gif'); chrome_imgPreload('gifChr_mid_but_chats_mo_7','http://img.intelihealth.com/i/C/Chr_mid_but_chats-o.gif'); chrome_imgPreload('gifchr_mid_but_news_mo_8','http://img.intelihealth.com/i/c/chr_mid_but_news-o.gif'); chrome_imgPreload('gifChr_mid_but_privacy_mo_9','http://img.intelihealth.com/i/C/Chr_mid_but_privacy-o.gif'); Advertisement Spina Bifida What Is It? Symptoms Diagnosis Expected Duration ... Additional Info What Is It? Spina bifida occulta Meningocele Myelomeningocele Meningoceles and myelomeningoceles may appear as saclike structures on an infant's back at birth. When most people refer to spina bifida, they are referring to the most severe form, myelomeningocele, which occurs in about one in 1,000 births.

111. Spina Bifida Includes and updated directory of spina bifida associations, a glossary of It is important to understand the impact that spina bifida has on sexuality. http://www.eplibrary.com/spinabifida/

Caution! Visit Microsoft's Web site to obtain the newest version of Internet Explorer, or visit Visiting this web site without first upgrading your browser may result in unreliable behavior. COMPANY Additional Resources Additional Resources Frequently Asked Questions Our Product Links Site Overview Sitemap Contact Us Exceptional Parent Library eplibrary@aol.com Children With Spina Bifida A Parent's Guide Marlene Lutkenhoff, R.N., M.S.N. A compassionate easy to understand volume that provides parents with information, guidance, and support to help meet their child's needs from birth through childhood. Living With Spina Bifida A Guide For Families and Professionals Adrian Sandler, M.D. This revised edition is a comprehensive guide written for families and professionals who care for children, adolescents, and adults with spina bifida. While covering the key medical, habilitation, and emotional issues of each developmental stage, with special sections written for and by parents of children with spina bifida, it is balanced, accurate, and up to date, with positive and practical advice on daily living, family relationships, building a strong parent-professional partnership, education and work. Includes and updated directory of spina bifida associations, a glossary of useful terms, along with suggestions for further reading and more than 100 helpful line drawings, diagrams, and charts. Sexuality And The Person With Spina Bifida Spina Bifida Association Of America Stephen L. Sloan Ph.D.

112. Spina Bifida Article describes spina bifida, its symptoms, diagnosis, and treatment. http://rarediseases.about.com/cs/spinabifida/a/101902.htm

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113. SPINALCORD: Spina Bifida The spina bifida Assoc of American promotes the prevention of spinal bifida and Part 1 Your Health Personal Care includes effects of spina bifida, http://www.spinalcord.uab.edu/show.asp?durki=21760&site=1021&return=24203

114. National Center For Medical Rehabilitation Research (NCMRR) Funds research in the rehabilitation of impairment, disability and handicap; including that due to spinal cord injury, brain injury, stroke, amputation, cerebral palsy, spina bifida, and other disabling conditions. http://www.nichd.nih.gov/about/ncmrr/ncmrr.htm

Home Search Sitemap Contact ... Organization National Center for Medical Rehabilitation Research (NCMRR) Board Publications about NCMRR Seven Priority Areas Funding Opportunities ... Intramural Research and Training Opportunities in Rehabilitation Research Proceedings of the NCMRR Symposium , January 4-5, 2001. To view a PDF file, you will need Adobe Acrobat Reader. Get Acrobat Reader. Now Available: NCMRR Biennial Training Workshop, December 5-6, 2005, Rockville, MD Workshop to Develop a Research Agenda on Appropriate Settings for Rehabilitation (74KB in PDF Format) History and Mission The National Center for Medical Rehabilitation Research (NCMRR) was established within the National Institutes of Health (NIH) by legislation (P.L. 101-613) passed in 1990. The Center is a component of the National Institute of Child Health and Human Development (NICHD). The mission of NCMRR is to foster development of scientific knowledge needed to enhance the health, productivity, independence, and quality of life of persons with disabilities. This is accomplished by supporting research on enhancing the functioning of people with disabilities in daily life. A primary goal of the Center is to bring the health related problems of people with disabilities to the attention of America's best scientists in order to capitalize upon the myriad advances occurring in the biological, behavioral, and engineering sciences.

115. OTdirect Occupational Therapy Revision Notes: Spina Bifida Occupational Therapy Revision Notes spina bifida. http://www.otdirect.co.uk/bifida.html

Occupational Therapy Revision Notes: Spina Bifida Please note: This is a basic revision aid, not a comprehensive and reliable statement of medical fact. These notes should not be used to guide treatment. For reliable information and advice, consult a qualified practitioner. Images on this page are used courtesy of the Association for Spina Bifida and Hydrocephalus (ASBAH) Introduction Spina Bifida is an umbrella term that covers three conditions of varying severity: Spina Bifida Occulta, Spina Bifida Cystica Menigocele and Spina Bifida Cystica Myelomenigocele. These are described in more detail below. Spina Bifida is a neural tube defect or spinal dysraphism a failure of normal closure of the neural tube during the development of the embryo. The other neural tube defect is anencephaly, but as this is fatal before or very shortly after birth, it has little relevance for occupational therapy. Types of Spina Bifida Spina Bifida Occulta , where there is only a minor deficiency of the posterior part of the vertebrae and no damage to the meninges or spinal cord. It presents no symptoms or difficulties in the vast majority of cases, though in some cases the spinal cord may become tethered against the vertebrae, with possible impairment of mobility or bladder control. This is often treated with corrective surgery. Often the only sign of spina bifida occulta is hair or a dimple at the site of the lesion. Many people live their lives unaware that they have the condition. Spina Bifida Cystica has two forms, both of which involve a blister-like sac on the back, where the meninges, or meninges and spinal cord, have ballooned out through the gap in the vertebrae:

116. Spina Bifida - Thames Valley Children's Centre spina bifida. Boy self propelling wheelchair. spina bifida or split spine is a genetic birth defect that occurs when the fetus is only 2628 days old. http://www.tvcc.on.ca/newdocs/spina.html

testCookie('mystyle'); This page has been enhanced with JavaScript. If you have a recent browser, please turn JavaScript on under Edit Menu:Preferences:Advanced. If you do not have a recent browser, go to our equivalent text only version. Disability Information Spina Bifida Site Guide Site Map Text Site ... Next Page You Are Here: TVCC Home Disability Information Home Information about ... Printer Friendly Output Go To Top Spina Bifida Spina Bifida or "split spine" is a genetic birth defect that occurs when the fetus is only 26-28 days old. The mother may not even know that she is pregnant yet. It is the second most common birth defect in man and occurs in one in every 750 babies born in Canada. The neural tube, or what will eventually develop into brain, spinal cord and vertebral column, fails to close completely, leaving an opening through which the spinal cord and/or the lining of the spinal cord may protrude. The spinal cord is the pathway for messages to be passed back and forth between the brain and different parts of the body. If the spinal cord is affected, there can be full or partial disruption of these messages. Therefore, paralysis and/or loss of sensation can occur to the areas affected, usually, but not always, below the level of lesion of the back. There can be "sparing" of some nerves, causing a confusing and mixed picture, ie., where one leg functions differently than the other. Infants often (80-90%) go on to develop hydrocephalus and may have other problems as they develop and grow.

117. Welcome Features information about spina bifida and other disabilities. http://webpages.charter.net/kpiskur/

You are entering Keith Piskur's Den...an area reserved for learning, relaxation, and fun.

118. Thames Valley Children's Centre - Spina Bifida - Spina Bifida... whl_race.gif spina bifida or split spine is a genetic birth defect that occurs when the fetus is only 2628 days old. The mother may not even know that http://www.tvcc.on.ca/gateway.php?id=31&cid=2

119. Spina Bifida Association Houston Gulf Coast The Mission of the spina bifida Association is to promote the prevention of spina bifida and to enhance the lives of all affected. http://www.sbahgc.org/

HOME ABOUT SBAHGC FAQ MEMBERSHIP ... CONTACT Sign-up for periodic updates and site news. The Mission of the Spina Bifida Association is to promote the prevention of spina bifida and to enhance the lives of all affected. Spina Bifida is the most common of the neural tube defects and is one of the most devastating of all birth defects. The National Institutes of Health state that Spina Bifida will occur in 1 of every 1000 births in the U.S. It occurs more frequently than Muscular Dystrophy and Multiple Sclerosis combined and cripples more children than Polio at its peak. It results from the failure of the spine to close properly during the first month of pregnancy. In severe cases, the spinal cord protrudes through the back and may be covered by skin or a thin membrane. Surgery to close a newborn's back is generally performed within 24 hours after birth to minimize the risk of infection and to preserve existing function in the spinal cord. Children born with Spina Bifida experience varying degrees of paralysis, loss of sensation in the lower limbs, difficulties with bowel and bladder, hydrocephalus, learning disabilities and latex allergies. The challenges brought about by Spina Bifida continue throughout life. To live independent and fulfilling lives, people with this birth defect may need extensive medical, psychological, and educational therapy.

120. SBA Of The Roanoke Valley Resource for securing necessary care, equipment and training to meet the needs of members and others throughout Virginia. http://www.sbarv.org/

Information about SB Learn! Meet! Share! ... Contact Us! Spina Bifida Association of the Roanoke Valley "Hope sees the invisible, feels the intangible, and achieves the impossible." - anonymous The Spina Bifida Association of the Roanoke Valley exists to provide encouragement, education and support for those living with spina bifida and their caregivers and families. We serve as the resource for securing necessary care, equipment and training to meet the needs of our members and others throughout Virginia who are living with spina bifida. Our membership includes children and adults with spina bifida and their caregivers, family, friends and others committed to making a difference in the lives of those with spina bifida. Next Meeting Date: Saturday, September 17, 2005 Time: 3:30 pm Place: Blue Ridge Independent Living Center in Roanoke, Virginia Directions Map Program: SBAA National Conference Recap, updates on how to help the SB Community affected by Hurricane Katrina, as well as some time for support discussion. Calendar Complete SBARV Meeting and Events Calendar Contact Us Telephone (Voice Mail): +1 (540) 342-1231, Ext. 4010

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