81. Little Ana's Page Provides a personal look at a families experience with spina bifida and fetal surgery. http://www.geocities.com/auroracall/

Baby Sister Grace is here! New Family Pictures 5/20/2003 - Going for a walk! - Two Sisters! Click here for Baby Gracie's Page - The Lyons Family's Newest Addition! Click here for info about our new home - We are building a new home! Click here to view construction progress - Watching our new home go up, brick by brick! Welcome to Ana's Page From Our Family to Yours! Ana's story has been featured on the Discovery Health Channel (January 2001), MSNBC Weekend Magazine (March 1999) and Dateline NBC (January 1999). Our special little girl, Mary Anastasia, or "Ana" for short, was born at St. Joseph's Women's Hospital in Tampa, Florida, on Wednesday, 9/23/98, at 10:12a. She was delivered in her 31 st gestational week. She weighed 3lbs and 4.6 oz. (Click here to see her early pictures)! Ana had been diagnosed with Spina Bifida and Hydrocephalus in June during a routine ultrasound in her 17 th week of gestation. On 8/19/98, She was the 11 th baby to undergo maternal fetal (in-utero) surgery to close the SB lesion at Vanderbilt University Hospital, in an innovative procedure developed by Dr. Joseph Bruner and Dr. Noel Tulipan. (Click here for Vandy's official fetal surgery site).

82. Spina Bifida Association Of Jacksonville At the spina bifida Association, we respond to the needs of new parents of babies who are born with spina bifida, families who are growing up with the http://www.sbaj.org/

Spina Bifida Association of Jacksonville HOME Make a Gift Location Information Join SBAJ Your browser does not support script DON'T MISS OUR NEXT EVENT: "MARK YOUR CALENDARS" At the Spina Bifida Association, we respond to the needs of new parents of babies who are born with spina bifida, families who are growing up with the challenges of spina bifida, teens who are transitioning toward newfound independence and adults who are leading productive and fulfilling lives. We offer an extensive network of doctors, nurses, parents and medical literature to help with questions about spina bifida. SBAJ provides employment programs, enrichment events, scholarships and educational programs promoting self-esteem and independence for children and adults with spina bifida. This Web Site Was Designed By CRSJAX

83. Spina Bifida Family Support North Central Indiana group that assists families in providing ongoing emotional support. Provides practical information and education. http://www.spinabifidasupport.com

Web Hosting by Netfirms Free Domain Names by Netfirms Spina bifida facts According to the Spina Bifida Association of America more children are born with spina bifida than muscular dystrophy, multiple sclerosis and cystic fibrosis combined. Spina Bifida occurs in 7 out of every 10,000 live births in the United States. Spina Bifida is considered to be underreported on birth certificates so the drop in the rate could be due to lack of reporting, not an actual decrease in occurence. In addition, a number of Spina Bifida pregnancies are voluntarily terminated and thus can't be determined how many pregnancies are terminated versus carried to term. Facts about Neural Tube Defects INDIANA RESOURCES Family Voices IN*Source Indiana State Resources SBA Central IN ... Elkhart SB Chapter FREE "Understanding Hydrocephalus" . 14 pg. booklet explains what hydro is, causes and types, etc. (Limited Quantity-contact SBFS here indiana parents-imp. issues!

84. AllRefer Health - Myelomeningocele (Children) (Spina Bifida) Myelomeningocele (Children) (spina bifida) information center covers causes, prevention, symptoms, diagnosis, treatment, incidence, risk factors, signs, http://health.allrefer.com/health/myelomeningocele-children-info.html

AllRefer Channels :: Yellow Pages Reference Health Home ... Contact Us Quick Jump ADD/ADHD Allergies Alzheimer's Disease Arthritis Asthma Back Pain Breast Cancer Cancer Colon Cancer Depression Diabetes Gallbladder Disease Heart Attack Hepatitis High Cholesterol HIV/AIDS Hypertension Lung Cancer Menopause Migraines/Headaches Osteoporosis Pneumonia Prostate Cancer SARS Stroke Urinary Tract Infection 1600+ More Conditions Alternative Medicine Health News Symptoms Guide Special Topics ... Medical Encyclopedia Web health.allrefer.com You are here : AllRefer.com Health Myelomeningocele (Children) Myelomeningocele (Children) Definition Prevention Treatment Expectations or Prognosis ... Go To Main Page Alternate Names : Spina Bifida Definition Myelomeningocele is a congenital disorder (birth defect) where the backbone and spinal canal do not close before birth. This can result in the spinal cord and its covering membranes to protrude out of the infant's back. Spina Bifida Spina Bifida (Degrees of Severity) Myelomeningocele is one of the most common birth defects of the central nervous system . It is a neural tube defect in which the bones of the spine do not completely form, and the spinal canal is incomplete. This allows the spinal cord and meninges (the membranes covering the spinal cord) to protrude out of the child's back.

85. Index.html Features photos and information about a girl who underwent fetal surgery for spina bifida. http://www.homestead.com/angelinemarie/files/index.html

Updated on October, 2003! Check out our new pictures and updates! " Eye has not seen, nor ear heard, nor have entered into the heart of man the things which God has prepared for those who love Him. " 1 Cor 2:9 (NKJV ) Angeline Marie is a very special girl for a lot of reasons. If you want to learn more, please click on the picture or click here  Please, keep us in your thoughts and prayers and we will keep you in ours. Feel free to contact either of us at: EmilyEGA@aol.com or Manny@nova.edu For more information about Spina Bifida please visit the Spina Bifida Association of America website.

86. Spina Bifida Penn State Hershey Medical Center provides world class care and services to patients. http://www.hmc.psu.edu/healthinfo/s/spinabifida.htm

87. SBA Of NC Provides social and recreational activities. Lending library on current medical and psychosocial issues. http://sbanc.home.mindspring.com/

Spina Bifida Association of North Carolina Serving people living with spina bifida, the most frequently occurring permanently disabling birth defect. sbanc@mindspring.com 1-800-84-SBANC (7-2262) 3915 Grace Court Indian Trail, NC 28079 SBANC is a tax-exempt, non-profit 501 (c)(3) charity organization serving people living with spina bifida and their families. All donations are tax-deductible* www.sbanc.org How to Help Upcoming Events News Local Support Groups ... About SBANC N E W S Donate Your Vehicle to Help SBANC More detail can be found here Spina Bifida Family Weekend at Victory Junction February 18-21, 2005 We are working with Victory Junction in providing an education day during the spina bifida family weekend. More details coming soon. Parents should sign up early as only 32 families will be accepted. Anyone interested may visit the Victory Junction website for more information. Summer Camps for 2005 Victory Junction is July 17-22, 2005 Camp Carefree is July 3-9, 2005 Joni and Friends is August 1-5, 2005 For more information contact us at sbanc@mindspring.com

88. Neural Tube Defects Spina Bifida Anencephalus or encephalocele and meningomyelocele or spina bifida with a Table of National Center for Health Statistics, Trends in spina bifida and http://ibis-birthdefects.org/start/ntdfact.htm

Report Broken Links Exchange Banners Contact Us Neural Tube Defects (NTD) - Anencephaly - Spina Bifida See I.B.I.S in English Spanish Russian Ukranian Search Neural Tube Defects (NTD)- Anencephaly - Spina Bifida Page Includes: Anencephaly Encephalocele Folic Acid or FA Hydrocephalus ... Support groups [*] Outstanding [P] For Professionals [S] Support Group [French] [Spanish] [Ukrainian] [*][P] Folic Acid for the Prevention of Neural Tube Defects Policy Statement - American Academy of Pediatrics (1993). "NTDs are among the most common birth defects that result in infant mortality and serious disability ..." Knowledge and Use of Folic Acid by Women of Childbearing Age (Requires Acrobat Reader) JAMA Women's Health and MMWR report. Results of the 1998 March of Dimes Birth Defects Foundation sponsored Gallup Organization survey of 2115 women. Folic Acid National Campaign - CDC, March of Dimes ... National Campaign on Folic Acid - Gate Page Folic Acid for Healthy Babies Prevention Model and Resource Guide NTD - Frequently asked Questions " ... how can women get folic acid? ... " [Spanish] Forma para solicitar materiales educativos...

89. Gingerblue.com Information about a 27 year old woman with spina bifida. Includes photos, information about depression, and detailed personal experiences. http://gingerblue.com/koyaanisqatsi

: evolution : ...Two weeks after birth I underwent the first of many operations that were to come- a ground breaking procedure in which the neurosurgeons opened my back up by a horizontal incision on the small of my back from one side to the other, unraveled a "tumor" full of knotted nerves at the base of my spine and "plugged" each nerve back into my spine... : scar tissue : ...I stood in front of the many mirrors in my bathroom, naked, and studied all of my scars. I looked at them, touched them, saw them. I never do this because it makes things too real, because I can recall every scar, when it was made. If I don't look at the scars, then I can escape from everything and pretend that that is another girl. That's another person, another life, another set of emotions : images : Various images and x-rays. : depression : ... I think understanding comes only when you realize that depression is its own living and breathing thing, and that it has its own free will, and there is very little you can do to intercept it or prevent it. The scariest part of it is when you come to terms with those facts. It's so hard when you realize you have nothing in your current life to "blame" it on. Nothing you can fix to make it all better. It's just there, lurking...

90. Spina Bifida Occulta And Open Spina Bifida - A Patient's Guide The term spina bifida covers malformations that always include deformities of certain parts of the vertebrae, the spinous process and vertebral arch. http://www.spineuniverse.com/displayarticle.php/article234.html

The World Leader in Back Pain Care Home Patients Professionals Find a Doctor ... Pain Management SEARCH Make SpineUniverse my Home Page patient>conditions>other Use FREE SpineUniverse Tools. Enter your Zipcode and we'll show you the best doctors and treatments in your area. Spina Bifida Occulta and Open Spina Bifida - A Patient's Guide John M. Shutack, M.D. Neurosurgeon Medical College of Virginia Introduction to Spina Bifida Spina bifida is a defined as any abnormal development of the bones of the spine that display a typical pattern, with or without the involvement of the brain, nerves or covering of the nerves (meninges). It is the most common congenital spine abnormality. The term spina bifida covers a range of malformations that always include deformities of certain parts of the vertebrae, the spinous process and vertebral arch. Some have described this process as a failure of these bones to fuse during early fetal development. Most common locations are the lower thoracic, lumbar, and sacral spine. The cause behind this congenital malformation is not well understood. Data suggests that genetic factors play a predominant role, but nutritional and environmental factors may also contribute to the development of spina bifida. Classification Spina bifida is broken down into two categories: spina bifida occulta and open spina bifida. These subtypes are distinguished by the absence or presence of nerves, fluid that surrounds the nerves (CSF), and the meninges that are included within the deformity. See Table 1.

91. Kristin Carroll.Com - Site Index Site in memory of a woman with spina bifida. http://www.kristin-carroll.com/site_index.html

Site Index Kristin's Birthday Celebration Kristin's Birthday Celebration Pictures Donation List Dr. Levey's Letter ... Site Index Site Design AKA Systems WebWorkx and

92. NeurosurgeryToday.org | What Is Neurosurgery | Patient Education Materials | Spi spina bifida is a rare birth disorder, affecting approximately 1 in 121400 live births, spina bifida occurs when a portion of the fetal spinal cord, http://www.neurosurgerytoday.org/what/patient_e/spina.asp

Search: Home What is Neurosurgery AANS National Neurosurgical Procedural Statistics Report Camera Ready Feature Articles ... Find a Board-Certified Neurosurgeon Legislative Activities Library Media Center Research ... Professional Information: AANS.ORG Site Map View Printer Friendly Adult Onset Hydrocephalus Anatomy of the Brain ... Trigeminal Neuralgia Spina Bifida March, 1998 Spina Bifida is a rare birth disorder, affecting approximately 1 in 12-1400 live births, although fortunately its incidence appears to be declining with each decade. It is the most serious birth disorder affecting the nervous system compatible with life. Spina bifida occurs when a portion of the fetal spinal cord, during the third and fourth weeks of pregnancy, fails to properly close. As a result, the child is born with a part of the spinal cord exposed on the back. There appear to be both genetic and environmental influences that contribute to spina bifida. The child born with spina bifida needs to have the exposed part of the spinal cord repaired, to prevent further injury to the spinal cord and to prevent infection. The malformation is usually closed during the first 24-48 hours after birth. The 80-85% of children with spina bifida who develop hydrocephalus will require a ventricular shunt to control the build-up of spinal fluid. Fortunately, with the proper medical care, children with spina bifida can lead active and productive lives. These children are a testament to the human spirit; most are successful in school and many are actively involved in modified sports activities despite their physical challenges. Twenty year follow-up studies of children with spina bifida show that they enter college in the same proportion as the general population, and many are actively employed. With recent improvements in care for these children, their outlook continues to improve.

93. IRSC - Neurological Disorders, Hydrocephalus Association for spina bifida and Hydrocephalus http//www.asbah.org Information about spina bifida, hydrocephalus, the services offered by the Association http://www.irsc.org:8080/irsc/irscmain.nsf/sub?readform&cat=Neurological Disorde

94. T.J.'s Page Information about living with a disability due to spina bifida and Hydrocephalus. Includes a photo album, informative links and personal experiences. http://members.cox.net/johnsonclan1

95. The Irish Association For Spina Bifida & Hydrocephalus Provides an information resource, news, contact details and links. http://www.iasbah.ie/

The IASBAH website is currently under construction. We apologise for the inconvenience caused. If you would like additional information about IASBAH please contact us on Lo-call 1890 20 22 60 About Spina Bifida Hydrocephalus Contact Us

96. Spina Bifida Foundation Of Victoria Offering services and information to the families of affected children, with contact details and educational material. http://www.sbfv.org.au/

Join our mailing list Email us with your name to be added to our mailing list. You will receive updates and information from the Spina Bifida Foundation of Victoria Spina Bifida Foundation of Victoria The SBFV was founded in the late 1990's by a group of parents, physiotherapists and doctors concerned about improving services and life chances for Victorians with spina bifida. Red Carpet Premiere See the pictures here 2004 Annual Event The Spina Bifida Foundation of Victoria held its annual Night of Celebration to mark Spina Bifida Awareness Week on 4th September 2004 with over $7000 raised. See the pictures here Continence Management Straight forward and comprehensive information about effective continence management strategies for young people with spina bifida and for clinicians. To read more click here SPINE SPINE provides information for individuals and families in Victoria who have experienced spina bifida or other neural tube defects. To do this SPINE is developing a confidential register of interested people. Register here 2003 Annual Event Upcoming Events Annual General Meeting 2004 (Including Annual Report) For further information please contact: Spina Bifida Foundation Victoria Ross House 4th Floor

97. Youth With Special Needs: Spina Bifida Professor Nicholas Tulp gave spina bifida its name and gave the first Most children with varying degrees of spina bifida usually go through some type of http://www.urbanext.uiuc.edu/specialneeds/spinebif.html

Cerebral Palsy Deaf/Hearing Impaired Epilepsy Learning Disability ... Other Health Impairments Spina Bifida Spina (spine) bifida (split or divided) is a "condition resulting when the bones of the spine form abnormally and fail to unite in the midline of the back" (Woodburn, 1975). If this split occurs, the spinal cord and its coverings may bulge out through the opening and cause a lump on the back. This malforming of the spine takes place within the first 28 days of pregnancy and varies in severity from a simple lump on the back to severe malformation of the back and lower limbs. Professor Nicholas Tulp gave spina bifida its name and gave the first formative description of the disability. Although the term and real medical description are somewhat recent, it is estimated that spina bifida occurred almost 12,000 years ago. It is also worth noting that it wasn't until 1761 that a man named Morgagni linked lower-limb deformity and hydrocephalus (an excessive amount of cerebro-spinal fluid within the head) with spina bifida. As a result of this finding, much has been done to find a "cure" for hydrocephalus, one of the major problems associated with spina bifida. One such discovery was in the late 1950s; the Spitz-Holter valve and the ventriculatrial shunt (a bypass or replacement of a major cavity between the brain and spinal cord implanted to control the flow of the cerebro-spinal fluid, so as to prevent pressure on the brain). Because of this find and other developments, an increasing number of children survive the more severe forms of spina bifida. Of these children, about 70 percent have normal intelligence (Menelaus, 1971).

98. Spina Bifida And Anencephaly - Healthy Kids And Pediatrics - Health And Medical A complete listing of health information about kids and teens, including acne, AIDS awareness, allergies and asthma, attention deficit disorders and http://www.medicinenet.com/spina_bifida_and_anencephaly/article.htm

document.writeln(''); MedicineNet Home Healthy Kids Home Page > Spina Bifida and Anencephaly Search Tips Printer-Friendly Format FREE Newsletters Email to a Friend ... Next Spina Bifida and Anencephaly (Neural Tube Defects) What are spina bifida and anencephaly? How does spina bifida occur? What problems does spina bifida cause? How does anencephaly occur? ... How can women get enough folic acid? What are spina bifida and anencephaly? Spina bifida and anencephaly are neural tube defects (NTDs), which are common birth defects that affect thousands of babies each year in the United States. The neural tube is an early stage of the developing nervous system in the embryo. How does spina bifida occur? Spina bifida results from the failure of the spinal column to close, usually near the bottom of the spinal cord. What problems does spina bifida cause? Persons with spina bifida usually have serious disabilities. Legs and feet are often paralyzed, and there are problems with bowel and bladder control. Learning disabilities are common and mental retardation sometimes occurs. How does anencephaly occur?

99. Spina Bifida Social Centre Community group to ask or give advice, share problems, or discuss topics that affect everyday life. http://groups.msn.com/SpinaBifidaSocialCentre

var nEditorialCatId = 102; MSN Home My MSN Hotmail Shopping ... Money Web Search: document.write(' Groups Groups Home My Groups Language ... Help Spina Bifida Social Centre SpinaBifidaSocialCentre@groups.msn.com What's New Join Now Messages General ... Recommend This Group to a Friend Spina Bifida Social Centre A place to socialise and make friends This is a friendly community group where people and relatives of people who have Spina Bifida/Hydrocephalus can meet to ask/give advice, share problems, discuss topics that affect everyday life, let off steam and above all Have Fun and make new friends Although primarily a Spina Bifida/Hydrocephalus group, people and relatives of people with other disabilities are more than welcome So join now and get posting http://www.asbah.org New Messages View all Hi, I;m new here Hi Dee, Welcome to the group! Sounds like a ... PurpleQuesera new recruit Hi Kev, I'm the mum of a 17 year old daughter with SB, but no shunt. Welco... PurpleQuesera hydrocephaulis Hi allive not got Hydro but my understanding of it is exactly as April says below.:)IM if anyone wants to chat about anything doesnt have to be SB or Hydro. The cat from next d... Hi, I;m new here

100. Untitled Support group serving individuals and families. http://www.northindianaspinabifida.com/

SBANI - Spina Bifida Association of Northern Indiana - Home Page Home Page Schedule of Events Guest Book and Contact Page Resource Links ... Slide Show Page CHECK OUT THE NEW PHOTO SLIDE SHOWS Spina Bifida of Northern Indiana is a support group serving individuals and families dealing with Spina Bifida. WHAT DO WE DO Educational materials Spring Pizza Party Silverhawks Baseball game Bowling Parties Rollerskating Parties Newsletters Family Camp in August Fall Parties (hay rides, Pumpkin Patch) Family Christmas Party Meetings- Speakers and Net-working PHOTOS WANTED We would love to post your photos on the upcoming photo gallery. E-mail your photos with a small caption to photos@northindianaspinabifida.com If you need to mail them to the P.O. Box, they can be returned at the many SBANI social events. We would love to see your pictures! WHAT'S NEW.... CHECK OUT HOW YOUR ELECTED OFFICIALS ARE VOTING On the link below, you can send e-mails to your elected officials in Washington D.C., as well as see how they have been voting. www.congress.org

A  B  C  D  E  F  G  H  I  J  K  L  M  N  O  P  Q  R  S  T  U  V  W  X  Y  Z

Page 5     81-100 of 137    Back | 1  | 2  | 3  | 4  | 5  | 6  | 7  | Next 20