61. Asbh, Association Spina Bifida, Incontinence Sphincterienne, Paraplegie, Handica Association de services et conseils aux personnes atteintes de spina bifida et handicaps associ©s. http://www.spina-bifida.org/

Mise à jour Ce site est optimisé pour une écran 1280 x 768 pixels - Réalisation : Olivier LOIZELET Webmaster l'ASBH a créé un numéro de téléphone qui vous est entièrement dédié. Il vous met directement en relation avec la personne qualifiée pour répondre à toutes vos questions du lundi au vendredi de 8 h 30 à 12 h 30 et de 13 h 30 à 17 h 00 N° vert - 0800 21 21 05 (appel gratuit à partir d'un poste fixe)

62. Fetal Surgery - Fetal Surgery For Spina Bifida Information on a procedure that may prevent additional damage from occurring due to the intrauterine environment. Includes research and news articles. http://www.fetal-surgery.com/

New Stuff We will be posting photos from the 2004 Fetal Surgery Reunion in Nashville. If you have photos that you want posted, send them to the WebMaster NICHD Study Read about the new NIH Study on Maternal Fetal Surgery for Spina Bifida. Click Here Check Back we will have a newsletter sign up very soon. Please email me with any ideas or articles you want to publish. Signing Time! is an excellent and exciting series of videos created by one of our Fetal Surgery Families. Get your copies today! Welcome to the newly redesigned Fetal-Surgery.Com web site! we will still house the information that you have come to rely upon regarding maternal fetal surgery for Spina Bifida (MFS4SB). Along with being a resource for people wanted to learn more about MFS4SB, we intend to raise the awarness level of the public about Spina Bifida and Fetal Surgery. Please Explore the site for amazing personal stories, incredible photos and the current state of the union.

63. SBATX Calendar Of Events Our goal for the future is to have a spina bifida Center for families affected by this If you would like to have a better understanding of spina bifida, http://www.sbatx.org/

64. Spina Bifida & Hydrocephalus Association Of BC - Home spina bifida and Hydrocephalus Association of BC. To improve the quality of life of all individuals with spina bifida and/or hydrocephalus and their http://www.sbhabc.org/

4480 Oak Street, Vancouver, BC V6H 3V4 Tel: (604) 878.7000 :: Fax: (604) 677.6608 Email: info@sbhabc.org Frequently Asked Questions How Can You Help? Links ... Home Main Menu Home About Us Board of Directors Events Calendar ... Conference 2005 Admin Login Username Password Remember me Forgotten your password? Home About Us Friday, 01 July 2005 Our Mission To improve the quality of life of all individuals with spina bifida and/or hydrocephalus and their families through awareness, education and research. The Daisy The daisy represents both the challenges of spina Bifida...The heart of the flower represents the brain, which in the case of persons living with Spina Bifida, is often affected by hydrocephalus. The daisy's petals are cloven, thereby representing the various lesions caused by Spina Bifida and hydrocephalus. The daisy's leaf and stem are irregular, and depict the unusual form of the spinal cord and backbone of a person suffering from Spina Bifida... but the beauty of a flower is equally meant to reflect the beauty of people with Spina Bifida who, in spite of their challenges, live happy and productive lives... Current Events No Latest Events Latest News Ticket Request - Banquet Registration for Non-Members Registration for SBHABC Members Conference 2005 Brochure ... About Us Site designed by Matt Pregent Privacy Statement

65. SSBA Home Scottish spina bifida Home. Family Support Services. What support is available to those affected by spina bifida and/or Hydrocephalus. Find out more.. http://www.ssba.org.uk/

Home Search Site Map Links ... About SSBA What We Do Latest News Spina Bifida Definition Types Why Does It Happen Treatment Hydrocephalus Definition Types Why Does It Happen Treatment Support Available Spina Bifida and/or Hydrocephalus Cerebral Palsy Latest News Contact Family Support FAQ Holidays Rebecca Cottage Rebecca Cottage Booking Form Photo Gallery Caravan Holidays Caravan Booking Form Fundraising Make A Difference The Gordon Ramsay Appeal Regular Giving Fundraising Events Sponsored Events Corporate Fundraising SSBA Fundraising The Weather Lottery Latest News Donate Online Library SSBA Library Feedback Comments Powered By : Home Donate Online The Gordon Ramsay Buy a Brick Appeal Buy a Brick or Donate Online Gordon Ramsay Appeal What is the Buy a Brick Appeal about? Find out more.. Family Support Services What support is available to those affected by Spina Bifida and/or Hydrocephalus. Find out more.. About SSBA Celebrating 40 years! Who we are and what we are doing in 2005. Find out more.. Scottish Spina Bifida Asscoiation

66. Wheelchairs, Mobility, Spina Bifida A page of information and links relating to spina bifida, Hydrocephalus and wheelchairs, with an emphasis on ability rather than disability. http://users.iconz.co.nz/apeacock/mobility.html

Wheelchairs, Mobility, Spina Bifida A page of information and links relating to Spina Bifida, Hydrocephalus and wheelchairs, with an emphasis on ability rather than disability. You are visitor number Last updated on February 02, 2001 -oo- [Spina Bifida Association of America] [Allegheny General Hospital Spina Bifida Centre] -oo- [Spina Bifida, Public Health Information Sheets] [Association for Spina Bifida and Hydrocephalus (UK)] [International Federation for Hydrocephalus and Spina Bifida] Spina Bifida ... , Web Resources] -oo- [Bowman Gray School of Medicine] [Children's Memorial Hospital in Chicago] [The Spina Bifida and Hydrocephalus Association of South Australia Inc] [Spina Bifida support newsgroup] -oo- [Spina Bifida Discussion List] [Help protect your baby against spina bifida] [ Batteries for your Wheelchair or Mobility Scooter ] [ NZ Taxi Federation, with list of taxis with wheelchair hoist ] ... [ Wheelchair Information ] -oo- [ Project Inspire ] [ Enable New Zealand ] -oo- [ Wheels Ltd ] [ Ability Index ] -oo- [ Climbing Wheelchairs ] -oo- [ Casali's invention ] [ http://disability.isc-br.com/intro.html ]

67. Spina Bifida - MayoClinic.com spina bifida is a birth defect in which the spinal cord doesn t close properly during the first month of pregnancy. http://www.mayoclinic.com/invoke.cfm?id=DS00417

68. Welcome To Our Continuing Journey Includes information, photos, and personal experiences. http://www.geocities.com/enchantedforest/cottage/1109

If you live in North Central Indiana and are interested in meeting with other families raising children with spina bifida or if you are an adult living with spina bifida, please visit Spina Bifida Family Support for more information. Welcome to our Journey with Spina Bifida. This website documents our continuing journey with Spina Bifida. It is my goal for this page to educate those parents who have discovered that their unborn child is affected with Spina Bifida and are desperately seeking information and for those parents who already have a child affected with Spina Bifida. I hope this page will ease some of the concerns you may have and provide hope for your child and yourselves as parents. We Begin... . I n 1991 I discovered that I was pregnant with my first child. Although it came as a shock as my husband and I were not planning on starting a family at that time, it was wonderful news to me! Me, a "MOM"! My pregnancy was going very well and I looked forward to being a "first time" mom. I went into labor on the morning of May 31 st , 1992. My labor was minimal and after nearly 20 hours I went to the hospital. (Boy, wouldn’t it be great if labor was "always" that easy!) Dr. Sutherland was paged and I was prepped for a c-section as to avoid any unnecessary trauma to my son during birth.

69. Spina Bifida, The Institute For Neurology And Neurosurgery, New York Myelomeningocele, commonly referred to as spina bifida, is a congenital condition where the spinal cord is exposed to the outside environment at birth. http://nyneurosurgery.org/spinabifida_intro.htm

The degree of neurological deficit is directly relates to the level of the spinal cord defect and its extent. If only the bottom of the spinal cord is involved (conus), there may be only bowel and bladder dysfunction, while the most extensive lesions can result in total paralysis of the legs with accompanying bowel and bladder dysfunction. It is because of the varying neurological manifestations of meningomyelocele that there has been so much controversy regarding appropriate treatment.

70. Associazione Toscana Spina Bifida E Idrocefalo (A.T.I.S.B.) L'associazione toscana spina bifida ed idrocefalo fornisce agli associati supporto medico specializzato, favorisce lo scambio di esperienze e promuove campagne di sensibilizzazione ed informazione sulle nuove tecnologie mediche, farmacologiche e chirurgiche. http://www.associazioni.prato.it/atisb/

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71. Hand In Hand Family & Child Development Center - Treating The Needs Of The Whole Provides speech/language services, physical therapy, counseling and other services for children with Autism, Down Syndrome, Cerebral Palsy, spina bifida, developmental disorders. http://www.handinhandonline.org

Hand In Hand Family And Child Development Center - Treating the needs of the whole child Sorry your browser does not support Iframes. In order to view this site properly you'll need Internet Explorer 5+ is a non-profit organization offering a wide variety of therapy programs for children with special needs and their families. Since 1997, our dedicated team of clinicians have worked "hand in hand" with children, families, medical professionals, Regional Center staff, teachers and other care providers to ensure that developmental and rehabilitative goals are achieved. Our warm, comfortable environment provides children of all ages with the support and motivation they need to meet their unique challenges. Through our innovative programs, Hand In Hand enables children to learn to participate meaningfully in self-care, independent play and group activities, in order to reach their fullest potential. We work with children from birth through school age whose diagnoses include: Developmental delay Premature infants Torticollis Cerebral Palsy Autism Spina bifida Post surgical rehab Downs syndrome Hemiplegia Muscular dystrophy Scoliosis/postural disorders Spinal cord injuries/ diseases Injuries/conditions of skeletal joints Patello Femoral syndrome Anthrogryposis Post-fracture Guillain-Barre syndrome Athletic injuries Pervasive developmental disorders Sensory dysfunction Cleft Palate Apraxia Dysarthria Speech and Language delays Fine motor weakness.

72. AZSBA The Arizona spina bifida Association enhances the quality of life for those living with spina bifida by providing services and information. http://www.azspinabifida.org/

PROGRAMS The Arizona Spina Bifida Association enhances the quality of life for those living with spina bifida by providing services and information. The Arizona Spina Bifida Association is a nonprofit 501(c)(3)organization. 100% of funds raised in Arizona stay in Arizona 1001 East Fairmount Avenue Phoenix, Arizona 85014 HOLIDAY PHOTOS Volunteers Needed Toque aqui-para leer esto pagina en espanol *Notice: The information provided here is for informational, educational and entertainment purposes only. It is not intended to replace, and should not be interpreted or relied upon as, medical or professional advice. Your use of this site means that you agree to the terms and conditions detailed in our SB FACTS Welcome Baby Housing CRS Lunch Urinary Supplies ... En Espanol Information Provided by SB Association of America Hydrocephalus Association Association for Spina Bifida and Hydrocephalus ... NEWSLETTER

73. Welcome To Kimbers Spina Bifida Site Personal stories, pictures and poems. Links to informational sites. http://kimber.cjscreations.com

Welcome to Kimber's Spina Bifida Site! On this site you will see how Kimberly is progressing as she gets older and you may learn a few things about Spina Bifida. There is a F.A.Q. page, links to other personal Spina Bifida sites, Links to Spina Bifida sites that are not personal for you to learn from, Kimber's Guest book ( please sign ), Some pictures of her when she was born that show what her back looked like, a description of Spina Bifida, other medical links, and much more. Kimber's Progress Requires a Java Enabled Browser. ENTER var site="sm5kimber" CJs Creations

74. Neuroscience For Kids - In The News - Fetal Surgery For Spina Bifida spinal bifida META NAME= spina bifida is a relatively common birth defect which occurs in 1 to 2 of every 1000 babies born in the United States. http://faculty.washington.edu/chudler/spibi.html

75. Florida Department Of Children & Families Information and links for those with mental retardation, autism, cerebral palsy, spina bifida, and PraderWilli syndrome. http://www5.myflorida.com/cf_web/myflorida2/healthhuman/ddp/

directory contact us newsletters first time user Programs Abuse Hotline Adoption Foster Care Adult Services ... Mental Health Health Agencies Elder Affairs Health Health Care Veterans' Affairs The Developmental Disabilities site has moved ! The new location is : http://www.dcf.state.fl.us/apd/ Please update your bookmarks to this new location. Thank you. Privacy Statement

76. SPINA BIFIDA : Contact A Family - For Families With Disabled Children: Informati Contact a Family is a UK charity for families with disabled children. We offer information on specific conditions and rare disorders. http://www.cafamily.org.uk/Direct/s42.html

printer friendly SPINA BIFIDA home how we can help medical information index of conditions ... how you can help Did you find this page helpful? yes no Spina bifida is a neural tube defect and is a developmental anomaly which occurs very early in pregnancy. The neural tube develops to form the spinal cord, brain and spine. When Spina Bifida occurs, the tube is split and one or more vertebrae (small bones of the back) fail to form properly, thus leaving a gap. There are three main types of spina bifida. Spina bifida occulta where the only sign of the malformation is a dimple or hair at the site of the defect on the skin of the back. This condition is very mild and is usually symptomless although occasionally there may be continence problems and difficulties with mobility. In Spina bifida cystica a sac or cyst is visible on the back covered by a thin layer of skin. There are two forms: a meningocele and a myelomeningocele. In a meningocele the sac contains tissues which cover the spinal cord and cerebro-spinal fluid. The nerves are not normally badly damaged and there is little or no malfunction. This is the least common form of spina bifida. Myelomeningocele is the most common and severest form and is characterised by the inclusion in the sac of nerves and part of the spinal cord as well as tissue and cerebral-spinal fluid. Some degree of paralysis and loss of sensation occur below the site of the defect. The extent of the disability is dependent upon the extent of nerve damage.

77. Web Forwarding Information on a little girl, as well as a newsletter and support group portal. http://home.comcast.net/~mommy2ashlyn_n_skylyn/wsb/index.html

78. Spina Bifida spina bifida General Information. spina bifida occulta, or hidden spina bifida, occurs when there is a small defect or gap in a few of the vertebrae http://www.shrinershq.org/patientedu/spinabifida.html

Home Shrine Shriners Hospitals Hospital Directory ... Next Spina Bifida: General Information This information was provided by the Houston Shriners Hospital 6977 Main St. Houston, TX 77030-3701 Telephone 713-797-1616 Fax 713-797-1029 By Cathy Moniaci, R.N., M.S. Director of Patient Care Contents Introduction Terminology New day, new hope for children with spina bifida Common problems in spina bifida ... A chance for a better life Introduction Each year in this country, 4,000 children, or an average of 11 children a day, are born with neural tube defects (NTDs) that occur when the spinal column fails to develop and close properly during the first month of pregnancy. The neural tube in a developing fetus later becomes the spinal cord, the backbone that protects the spinal cord, and all the nerves in the body, and any defect in the neural tube can lead to serious health consequences. Spina bifida accounts for half of all neural tube defects, and occurs when part of the spinal cord protrudes through the backbone and fails to develop normally. Thanks to improved medical and surgical care, most children born with spina bifida survive, although they may experience varying degrees of paralysis, loss of sensation in the lower limbs, difficulties with bowel and bladder management, hydrocephalus, learning disabilities, and latex allergies. Anencephaly, which accounts for the remaining 50 percent of neural tube defects, results from the failure of the neural tube to close properly at the upper end, causing a fatal condition in which most of the brain is absent. Infants born with anencephaly usually die at birth or within the first days after birth.

79. Page D'accueil FFASB site officiel. http://membres.lycos.fr/FFASB/

Page d'accueil

80. Spina Bifida - DrGreene.com Learn about neural tube defects and what an expectant mother can do before conception to help prevent such birth defects. http://www.drgreene.com/21_1191.html

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