41. Spina Bifida And Hydrocephalus Association Of Canada -= Definitions =- What is spina bifida? spina bifida is a Latin term meaning open spine . The spina bifida defect may leave several vertebrae deformed in such a way as http://www.sbhac.ca/index.php?page=faq

42. Arbeitsgemeinschaft Spina Bifida Und Hydrocephalus E.V. (ASbH) Informationen ¼ber den Verein und seine Aktivit¤ten. Neben der Beschreibung der Krankheitsbilder finden sich wissenschaftliche Beitr¤ge, Antworten auf Sozialrechtsfragen, Hinweise auf die regionalen Selbsthilfegruppen und die M¶glichkeit zum Austausch im Forum und im Chat. http://www.paritaet.org/asbh/

Arbeitsgemeinschaft Spina bifida und Hydrocephalus e.V. (ASbH) Start Impressum Termine Selbsthilfe ... Diskussion

43. Evergreen Spina Bifida Association Support and resources for adults, children, parents, family members, friends, and professionals. Evergreen Chapter of ESBA serves the states of Washington, http://www.evergreenspinabifida.org/

Mission Statement Evergreen Spina Bifida Association promotes well being, education, and socialization of all people affected by Spina Bifida and fosters public awareness of this birth defect. ESBA serves the states of Washington, Oregon, Idaho, Montana, and Alaska. What is ESBA? Members of the Evergreen Spina Bifida Association are adults or children with spina bifida, parents, friends, relatives, and professionals with an interest in this spinal tube birth defect. We provide emotional support. Our newsletter brings medical news, therapeutic rehabilitative advances, and legislative issues. We offer a lending library Social events are held for all ages to gather, have fun, and share experiences. "New Parent Packets" are available. Scholarships are awarded to members enrolled in continuing education. ESBA is affiliated with the Spina Bifida Association of America (SBAA). How Do I Join? Memberships include $20.00 fee to the National Spina Bifida Association and its newsletter "Insights." Individual or Family membership $40.00 Professional membership $40.00

44. Pediatric Neurosurgery - Spina Bifida This site is dedicated to providing families with information regarding various aspects of the field of pediatric neurosurgery. For those that have tried to http://cpmcnet.columbia.edu/dept/nsg/PNS/SpinaBifida.html

Spina Bifida The diagnosis can of ten be made on the basis of a high resolution ultrasound or elevation of maternal alpha fetal protein levels. Other times it is not recognized until birth. It is widely accepted that most children born with spina bifida should be aggressively treated both medically and surgically. Recommendations are for early closure of the back and spinal cord as well as management of hydrocephalus if indicated. The important thing to realize is that this operation is designed specifically to prevent infection or ongoin g trauma to the exposed spinal cord and not to return function which is not present at birth. This is not an insignificant distinction. Hydrocephalus is usually present in @80-90% of children with spina bifida and should b e treated when determined, usually before discharge from the hospital. As many different parts of the body and nervous system are potentially involved, the child will need to see numerous physicians and therapists for follow up. In addition to physical therapy and early intervention, the child may need treatment for incontinence as well as bracing for the legs or spine. In many areas of the country this follow up is provided through multidisciplinary spina bifida clinics. These clinics are staff ed by the various physicians and therapists whose specialties pertain to the treatment of spina bifida.

45. Spina Bifida Association: Page Not Found NonLatex Alternative Products List - courtesy of the spina bifida Association http://www.sbaa.org/html/sbaa_mlatex.html

dqmcodebase = "../js/" //script folder location HOME SEARCH MAKE A GIFT JOIN SBA ... CONTACT US Page Not Found The page or function that you tried to access could not be found on our website. If you followed a bookmark or search engine link We've recently updated our website and many of the page addresses (URLs) have changed. If you clicked a link from another page on the SBAA site Please take a moment to email us and tell us what page you were coming from and what page you were going to so we can correct the problem. If you typed an address into your browser Please make sure you've entered the address (URL) correctly, checking for spelling and capitalization. Some of the addresses on this site are case-sensitive. Thank you for your help

46. Loving Paws Assistance Dogs Index the majority of placements are with children with spinal cord injuries, also provides Service and Social Dogs to children with Muscular Dystrophy, Cerebral Palsy, spina bifida, and other disabilities. http://www.lovingpaws.com/

This page uses frames, but your browser doesn't support them.

47. SBH Queensland Provides spina bifida and hydrocephalus services. Find information on staff, services, resources and contact details. http://www.spinabifida.org/

SBH Queensland Welcome to the site of SBH Queensland, the main provider of services to the spina bifida and hydrocephalus communities in Queensland, Australia. Where is Queensland? What's New? The 2005 Wheel and Walk fundraiser to be held in Brisbane on 9th October 2005. For more information click here or follow the Wheel and Walk link in the menu on the left of the page. If you are returning to this site looking for information on spina bifida, hydrocephalus or any similar conditions and their treatment, you will notice that all of the information has gone. It has been updated, added to and generally improved and moved to the Australian site - The Australian Spina Bifida and Hydrocephalus Association (ASBHA) If you want to know more about spina bifida and hydrocephalus please take the time to have a good look around this site. You will probably learn a lot from it. In future the information on the ASBHA site and the URL, spinabifida.org will be taken over by the International Federation for Hydrocephalus and Spina Bifida and used as part of their planned Knowledge Centre. At the moment you can visit IF at www.ifglobal.org

48. Medical References: Spina Bifida spina bifida is the most common of a group of birth defects called neural tube defects (NTDs). The neural tube is the embryonic structure that develops into http://www.marchofdimes.com/professionals/681_1224.asp

View All Chapters Find Your Local Chapter September 9, 2005 Select one Folic Acid Pregnancy Prenatal Screening Infections/Diseases Loss Concerns Newborn Information Birth Defects Polio Genetics Research Funding Perinatal Statistics Medical References Continuing Education ... Prematurity Quick Reference and Fact Sheets Spina Bifida Spina bifida is the most common of a group of birth defects called neural tube defects (NTDs). The neural tube is the embryonic structure that develops into the brain and spinal cord. Often called open spine, spina bifida affects the backbone and, sometimes, the spinal cord. It is among the most common severe birth defects in the United States, affecting 1,500 to 2,000 babies (one in every 2,000 live births) each year. Spina bifida and other NTDs occur more frequently among Hispanics and whites of European extraction and, less commonly, among Ashkenazi Jews, most Asian ethnic groups and African-Americans. How does spina bifida affect a child? In the embryo, there is a tiny ribbon of tissue that folds inward to form a tube. This structure, called the neural tube, forms by the 28th day after conception. When this process goes awry and the neural tube does not close completely, defects in the spinal cord and in the vertebrae (small bones of the spine) can result. There are three forms of spina bifida: Occulta.

49. Spina Bifida, Stoma's - Info In NL/FR/DEU/ENG In de volksmond wordt het meestal open rug genoemd. http://www.spinabifidainfo.nl/

Spina Bifida-info.nl Kies uw taal - Choisissez votre langue - Wählen Sie Ihre Sprache Choose your language Nederlands Français Deutsch English This website can be found with Teken mijn gastenboek-Sign my Guestbook-Schreibe in meinen Gästebuch- Ecrir dans mon Livre d'Or

50. Illinois Spina Bifida Association A nonprofit organization dedicated to improving the quality of life of people with spina bifida through direct services, information, referral, research, http://www.illinoisspinabifidaassociation.com/

The Illinois Spina Bifida Association® (ISBA) is a non-profit organization dedicated to improving the quality of life of people with spina bifida through direct services, information, referral, research, and public awareness For information on our upcoming charity events, please visit our Events page. Illinois Spina Bifida Association depends upon public donations to continue its work. You can help! Making a donation through our secure server is fast and easy, and when we receive your donation, we will send you an acknowledgement in the mail for tax purposes. Click the button below to make a donation. Thank you for your support! Spina bifida is the failure of the spine to close properly during the first month of pregnancy and results in varying degrees of paralysis, loss of sensation in the lower limbs, difficulty with bowel and bladder management, hydrocephalus, and learning disabilities. It takes a team of parents, doctors, therapists, teachers and others to help a person with spina bifida achieve maximum potential. But with proper attention, that person's potential is unlimited. The cause of spina bifida is unknown, and the scientific community is unable to explain whether the determinants of spina bifida are genetic or environmental. Recent scientific research, however, shows that folic acid, a common B vitamin, may prevent more than half of all spina bifida births. According to the United States Center for Disease Control, if all women of childbearing age in the United States who are capable of becoming pregnant would consume 0.4 mg. of folic acid per day, the incidence of spina bifida could be reduced by over 70%.

51. Spina Bifida Association Of Wisconsin spina bifida Association of Wisconsin, Inc. The 12th Annual Sprint for spina bifida will be on Aug. 13, 2005, at Mount Mary College in Milwaukee, http://sbawi.org/

Spina Bifida Association of Wisconsin, Inc. The 12th Annual Sprint for Spina Bifida will be on Aug. 13, 2005, at Mount Mary College in Milwaukee, Wis. starting at 9 a.m. To register, download the Sprint for Spina Bifida Registration Form Spina Bifida Association of Wisconsin SBWins Spina Bifida ... Contact SBAWI SBAWI's Mission The Spina Bifida Association of Wisconsin Inc., is committed to: Enhancing the lives and promoting the dignity and well-being of those affected by spina bifida, Educating the public about the No. 1 permanent disabler of newborns, and Fostering the prevention of spina bifida. SBAWI's Vision The Spina Bifida Association of Wisconsin Inc., will implement all programming and conduct all activities and operations with the goals of: Increasing independence among our teens and adults with spina bifida, Greater participation in society by those with spina bifida, and Decreasing the incidence of spina bifida. SBAWI's Board of Directors Mary Person R.N., B.S.N. President Andrew Niebler , Esq.; Secretary Thomas Tobin , CPA;

52. Spina Bifida Association Of Western PA spina bifida is one of the most devastating of all birth defects affecting nearly At birth, the most obvious signs of spina bifida are either a cyst or http://www.sbawp.org/

Read the Spring Newsletter and Annual Report Support the SBAWP Today MISSION: ABOUT SPINA BIFIDA: HISTORY: The Spina Bifida Association of Western Pennsylvania (SBAWP) is a charitable, non-profit organization committed to improving the quality of life for people with disabilities, especially those with spina bifida and their families, by providing a continuum of direct service, education and advocacy. Spina bifida is one of the most devastating of all birth defects affecting nearly one out of every 1,000 newborns in the U.S. It results from the failure of the spine to close properly during the first month of pregnancy exposing the nerves to damage or infection. At birth, the most obvious signs of spina bifida are either a cyst or indentation on the baby's spine. Surgery will close any opening, however, damaged nerves cannot be repaired. Individuals with this disability often suffer from loss of sensation in the lower extremities; bowel and bladder incontinence; leg and foot deformities and learning disabilities. Since 1969, the SBAWP has evolved from a parent support group to become a nationally recognized provider of direct services to individuals with spina bifida. The organization serves nearly 1000 children, teens and adults living in 28 counties within Western Pennsylvania and portions of New York, Ohio, and West Virginia.

53. Spina Bifida Association Of South Australia http://www.spinabifida.asn.au/

54. Spina Bifida And Hydrocephlus - Facts The term spina bifida is derived from the Latin words spina meaning spine In spina bifida, some of these vertebrae are not completely formed but are http://www.spinabifida.asn.au/facts.html

General Facts What is spina bifida? The term spina bifida is derived from the Latin words 'spina' meaning spine and 'bifida' meaning split or divided. The spine is made up of separate bones called vertebrae, which normally cover and protect the spinal cord. In spina bifida, some of these vertebrae are not completely formed but are split or divided and the defective spinal cord and its coverings usually protrude through the opening. There are different categories of spina bifida including: Occulta The outer part of the vertebrae is not completely joined. The spinal cord and covering (meninges) are undamaged. There are often tufts of hair found at the site of the defect. Meningocele The outer part of the vertebrae is split but the spinal cord is normal. Only the meninges is damaged and pushed out through the opening. Myelomeningocele The outer part of the vertebrae is split with the spinal cord and meninges damaged and protruding from the opening.

55. MedlinePlus: Spina Bifida From the National Institutes of Health; spina bifida (National Institute of Newsletters/Print Publications; Insights Into spina bifida (spina bifida http://www.nlm.nih.gov/medlineplus/spinabifida.html

@import url(http://www.nlm.nih.gov/medlineplus/images/advanced.css); Skip navigation Other health topics: A B C D ... List of All Topics Spina Bifida Contents of this page: News From the NIH Overviews Prevention/Screening ... Children Search MEDLINE/PubMed for recent research articles on Spina Bifida You may also be interested in these MedlinePlus related pages: Neural Tube Defects Brain and Nervous System Genetics/Birth Defects Latest News Genes Found That May Improve Knowledge of Spina Bifida (09/05/2005, Reuters Health) Spina Bifida Parents Suffer Psychological Distress (08/25/2005, United Press International) From the National Institutes of Health Spina Bifida (National Institute of Neurological Disorders and Stroke) Spina Bifida (National Institute of Neurological Disorders and Stroke) - Short Summary Overviews Patient Guide to Spina Bifida (Johns Hopkins Dept. of Orthopaedic Surgery) Spina Bifida (Nemours Foundation) Spina Bifida (Mayo Foundation for Medical Education and Research) Spina Bifida: General Information (Shriners Hospitals for Children) Prevention/Screening Amniocentesis (March of Dimes Birth Defects Foundation) Also available in: Spanish MedlinePlus: Folic Acid (National Library of Medicine) Also available in: Spanish Prenatal Testing: What's Involved and Who Should Consider It?

56. Spina Bifida Association Of The Tri-State Region spina bifida is the most common, permanently disabling birth defect in America. The incidence of spina bifida could be prevented up to 70% if all women http://www.sbatsr.org/

Serving, New Jersey, Metro New York and Southern Connecticut 84 Park Avenue, Flemington, New Jersey 08822 (908) 782-7475 or Fax (908) 782-6102 email - info@sbatsr.org TEAM Log In About Us History ... Donate Now Welcome to the All-New Spina Bifida Association of the Tri-State Region's (SBATSR) Web Site! We have many new areas for you to explore including events, programs, resources and newsletters - right at the click of your mouse! About Spina Bifida... Did You Know... UPCOMING EVENTS.... The September 2005 Newsletter has arrived! Click here to view! PROGRAMS.... Mentoring Program for Teens Check out TEAM eMentoring Newsletters! Family Support Program Click here to find out about our services! TELECOMMUNITY Click here for upcoming Teleconferences! SBATSR RESOURCES Folic Acid in the News! What is Folic Acid? Click here for additional Resources CLICK HERE TO READ ABOUT US IN THE NEWS! BECOME A MEMBER OF THE SBATSR OUR MISSION is to empower the lives of people with spina bifida and promote the prevention of spina bifida through advocacy, education, collaboration, public awareness, research and programs. A chapter of the Spina Bifida Association of America www.sbaa.org

57. Spina Bifida Association Of WA spina bifida Association of WA (Inc.). Established in 1970, it s main aim is to provide support for individuals with spina bifida and their families. http://www.sbawa.asn.au/

The Spina Bifida Association of WA Inc. ) was established in 1970. The main aim of the Association is to provide support for individuals with spina bifida and their families. Please use the links found at the left of the page to learn more about spina bifida and the services that we are able to provide. Sponsers: F or further information, please contact: The Spina Bifida Association of WA Inc. Centre for Neurological Support - The Niche Suite B, 11 Aberdare Road Nedlands WESTERN AUSTRALIA 6009 Tel : (08) 9346 7520 or +61 8 9346 7520 (international) Fax: (08) 9346 7519 or +61 8 9346 7519 (international) E-mail: info@sbawa.asn.au

58. Spina Bifida http://www.geocities.com/HotSprings/2474/

59. SBA Of GREATER PA Information and support for those with spina bifida and/or their families/friends. Knowledge about spina bifida is changing rapidly, and the information http://www.geocities.com/sbaofgpa/

Spina Bifida Association of Greater Pennsylvania (formerly SBA of Lancaster County) 209 E. State St. Quarryville, PA 17566 Updated 6/22/05 We have changed our name to reflect our expanding service area. While you are here, we want you to explore...learn....have fun....and when you are through, realize that spina bifida is a multi-faceted disability.....but the people affected by it are equally multi-faceted, with much to contribute to our world. So continue through these pages, and meet our members...learn about our chapter, and have some fun while you are here! These pages are provided solely for informational purposes. They are not intended to be medical advice on the management and care of persons with spina bifida. Knowledge about spina bifida is changing rapidly, and the information contained on these pages is subject to change without notice. Inclusion of products/services on this web site does not imply endorsement by SBA of Greater Pennsylvania. This site was developed by Sue C. Any comments can be sent to SBA of Greater Pennsylvania Welcome Spina Bifida- Our Association SpineLine Online What Is It? Updated 6/22/05

60. Information | Find It Here At Infohiway.com www.infohiway.com/spinabifida/ spina bifida Wikipedia, the free encyclopediaspina bifida describes birth defects caused by an incomplete closure of one or spina bifida may be associated with other malformations as in dysmorphic http://www.infohiway.com/spinabifida

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