21. Disability Info: Spina Bifida Fact Sheet (FS12) spina bifida means cleft spine, which is an incomplete closure in the spinal column. In general, the three types of spina bifida (from mild to severe) are http://www.nichcy.org/pubs/factshe/fs12txt.htm

NICHCY Our Publications Disability Info A publication of the National Dissemination Center for Children with Disabilities Spina Bifida Table of Contents Definition Incidence Characteristics Educational Implications ... Organizations Fact Sheet 12 (FS12) January 2004 Approx. 4 pages when printed. PDF version Definition Spina Bifida means cleft spine, which is an incomplete closure in the spinal column. In general, the three types of spina bifida (from mild to severe) are: Spina Bifida Occulta: There is an opening in one or more of the vertebrae (bones) of the spinal column without apparent damage to the spinal cord. Meningocele: The meninges, or protective covering around the spinal cord, has pushed out through the opening in the vertebrae in a sac called the "meningocele." However, the spinal cord remains intact. This form can be repaired with little or no damage to the nerve pathways. Myelomeningocele: This is the most severe form of spina bifida, in which a portion of the spinal cord itself protrudes through the back. In some cases, sacs are covered with skin; in others, tissue and nerves are exposed. Generally, people use the terms "spina bifida" and "myelomeningocele" interchangeably. Back to top Incidence Approximately 40% of all Americans may have spina bifida occulta, but because they experience little or no symptoms, very few of them ever know that they have it. The other two types of spina bifida, meningocele and myelomeningocele, are known collectively as "spina bifida manifesta," and occur in approximately one out of every thousand births. Of these infants born with "spina bifida manifesta," about 4% have the meningocele form, while about 96% have myelomeningocele form.

22. FFASB FFASB. Repr©sentante officielle des spina bifida fran§ais aupr¨s des instances fran§aises, europ©ennes et mondiales. http://ffasb.tripod.com/

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23. SB&H - The Spina Bifida Hydrocephalus Association Of Ontario Information, resources, support. http://www.sbhao.on.ca/

Download Flash Player CLICK to ENTER WEBSITE Charitable Registration #10799 9310 RR0001

24. ASBAH - Association For Spina Bifida And Hydrocephalus A series of three articles on hydrocephalus and its treatment by Dr Roger Bayston, honorary consultant of Association for spina bifida and http://tmsyn.an.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

25. ASBAH Home Page Welcome to the Association for spina bifida and Hydrocephalus sample image Occuring early in pregnancy spina bifida causes damage to the spinal cord and http://www.asbah.org/default.html

Site Search Site Search About ASBAH Contact Us Hydrocephalus Hydrocephalus can occur in anyone, anytime but what are the causes and how is it treated? Find out more Spina Bifida Occuring early in pregnancy spina bifida causes damage to the spinal cord and nerves of the unborn child. Find out more Folic Acid ASBAH is actively campaigning to introduce the compulsory addition of folic acid into UK flour products. Find out more About ASBAH How ASBAH is structured, the regional network of offices and who’s who within the charity. Find out more Registered charity no 249338 Site last updated Home Page Site Map Privacy Statement Contact Us Printed from the ASBAH website at http://www.asbah.org Email equiries to enquiries@asbah.org

26. Documento Senza Titolo Roma Presso l'Istituto di clinica pediatrica dell'universit  cattolica del Sacro Cuore ¨ attivo il Centro per lo studio e l'assistenza al bambino affetto da questa patologia. Le attivit  di cura, di prevenzione, d'orientamento e di informazione. http://www.centrospinabifida.it/

sito in costruzione

27. Fetal Surgery - Fetal Surgery For Spina Bifida Features various information regarding fetal surgery for spina bifida. http://tmsyn.an.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

28. ASBAH - What Is Spina Bifida? Explanation of different types of spinabifida andd neural tube defects myelomeningocele, meningocele, occulta, anencephaly, encephalocele. http://www.asbah.org/Spina Bifida/default.html

Site Search Site Search About ASBAH Contact Us Spina Bifida Hydrocephalus ... Folic Acid What is spina bifida? Spina bifida means ‘split spine’. The backbone usually provides a protective tube of bones with the nerves (spinal cord) running down the middle. In spina bifida, the bones do not close round the spinal cord and the nerves can bulge out on the unborn baby’s back and become damaged. This happens very early on in pregnancy – often before the woman even knows she is pregnant. Find out more (downloadable PDF) Spina Bifida Definition Latex Allergy Epilepsy Medication Sensible Eating Disabled User Group Continence Living with Spina Bifida Registered charity no 249338 Site last updated Home Page Site Map Privacy Statement Contact Us Printed from the ASBAH website at http://www.asbah.org Email equiries to enquiries@asbah.org

29. March Of Dimes Home Page Welcome to the March of Dimes National Web site! Inside you will find information and answers about pregnancy, your baby, folic acid, prematurity http://tmsyn.an.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

30. Information On Spina Bifida Offers information about spina bifida, complete with diagrams and links. http://www.fortunecity.com/millenium/plumpton/268/sb.htm

web hosting domain names photo sharing Information On Spina Bifida I also have some great links on Spina Bifida What is Spina Bifida ? Spina bifida is the most frequently occurring permanently disabling birth defect. It affects approximately one out of every 1,000 newborns in the United States. More children have spina bifida than have muscular dystrophy, multiple sclerosis, and cystic fibrosis combined. Spina bifida, the most common neural tube defect (NTD), is one of the most devastating of all birth defects. It results from the failure of the spine to close properly during the first month of pregnancy. In severe cases, the spinal cord protrudes through the back and may be covered by skin or a thin membrane. Surgery to close a newborn's back is generally performed within 24 hours after birth to minimize the risk of infection and to preserve existing function in the spinal cord. Because of the paralysis resulting from the damage to the spinal cord, people born with spina bifida may need surgeries and other extensive medical care. The condition can also cause bowel and bladder complications. A large percentage of children born with spina bifida also have hydrocephalus, the accumulation of fluid in the brain. Hydrocephalus is controlled by a surgical procedure called "shunting" which relieves the fluid build up in the brain by redirecting it into the abdominal area. Most children born with spina bifida live well into adulthood as a result of today's sophisticated medical techniques.

31. ASBAH Home Page A series of three articles on hydrocephalus and its treatment by Dr Roger Bayston, honorary consultant of Association for spina bifida and Hydrocephalus. http://www.asbah.org/

Site Search Site Search About ASBAH Contact Us Hydrocephalus Hydrocephalus can occur in anyone, anytime but what are the causes and how is it treated? Find out more Spina Bifida Occuring early in pregnancy spina bifida causes damage to the spinal cord and nerves of the unborn child. Find out more Folic Acid ASBAH is actively campaigning to introduce the compulsory addition of folic acid into UK flour products. Find out more About ASBAH How ASBAH is structured, the regional network of offices and who’s who within the charity. Find out more Registered charity no 249338 Site last updated Home Page Site Map Privacy Statement Contact Us Printed from the ASBAH website at http://www.asbah.org Email equiries to enquiries@asbah.org

32. Spina Bifida And Hydrocephalus Association Of Canada -= Welcome! =- Since its inception in 1981, the spina bifida and Hydrocephalus Association of Canada (SBHAC) has been working on behalf of people with spina bifida http://tmsyn.an.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

33. Spina Bifida Inside your spine is the spinal cord, which is like a closed tube made up of nerves. spina bifida can occur when there is an opening in the cord. http://kidshealth.org/kid/health_problems/birth_defect/spina_bifida.html

KidsHealth Kids Kids' Health Problems Andrea is 12 years old and in the 6th grade. She likes to go swimming, play with her dog, and have friends over. She's been in three dance recitals, and she even received a standing ovation once. She's traveled to Canada and many places in the United States, and next summer she hopes to go to Scotland. When she's older, Andrea wants to be a chef. Like you, Andrea is interested in many things and can do a lot of stuff. What might be different from you, though, is the fact that Andrea can't walk. Andrea has spina bifida (say: spy -nuh bih -fuh-duh) and uses a wheelchair to get around. What Is Spina Bifida? Someone born with spina bifida has an opening in the spine. A healthy spine is closed to protect the spinal cord, a bundle of nerves that send messages back and forth between your brain and the rest of your body. The messages tell your muscles to move so you can kick a soccer ball or pick up a pencil. The messages also tell you about sensations on your skin , so you know to pull your hand away from a hot pot.

34. Listing Of Directory: /jimceleste/cond_ed/ Learn about this unique system of teaching and learning for children with motor disorders such as Cerebral Palsy and spina bifida. http://members.aol.com/jimceleste/cond_ed/

Listing of directory: /jimceleste/cond_ed/ FileName Last Modified Size Parent Directory cace 24-Feb-1999 00:38 face 04-Jan-2002 12:39 08-Jan-1996 01:09 mcce 07-Apr-2001 19:58 spokane 21-Mar-1998 00:32 bignew.gif 19-Apr-1996 00:20 cenews.html 09-Nov-1996 01:15 chicago.html 01-Jun-1998 13:31 count.html 04-Feb-1996 01:12 hornsey_info.html 18-Jul-1998 11:36 index2.html 09-Jan-2002 14:15 literature.html 04-Aug-1997 16:23 malta.html 20-Jan-1998 20:31 marchdimes.html 08-Dec-1998 00:39 millbroc.html 04-Jan-2002 12:31 peto.html 20-Jan-1996 15:45 plinth.jpg 04-Nov-1997 20:00 tsadlogo_sm.jpg 04-Nov-1997 20:00 twice_logo.jpg 01-Dec-1997 18:39

35. Spina Bifida And Hydrocephalus Association Of Nova Scotia Information about these conditions, and a calendar of events scheduled by the Association. http://tmsyn.an.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

36. Samuel's Spina Bifida Surgery In Utero Miraculous photograph of a twentyone week old fetus reaching out of his mother's womb to grasp the hand of his surgeon. http://www.michaelclancy.com

A Moment ... From a Child (Click picture to launch slideshow) During a spina bifida corrective procedure at twenty-one weeks in utero, Samuel thrusts his tiny hand out of the surgical opening of his mother's uterus. As the doctor lifts his hand, Samuel reacts to the touch and squeezes the doctor's finger. As if testing for strength, the doctor shakes the tiny fist. Samuel held firm. At that moment, I took this "Fetal Hand Grasp" photo. As a photojournalist, my job is to tell stories through pictures. The experience of taking this photograph has had a profound effect on me, and I'm proud to share this moment with you. Michael Clancy Order a Print E-mail Michael Clancy http://www.michaelclancy.com

37. Spina Bifida spina bifida is a birth defect that involves the incomplete development of the spinal cord or its coverings. The condition can typically be detected before http://kidshealth.org/parent/system/ill/spina_bifida.html

KidsHealth Parents Caring for a Seriously or Chronically Ill Child Spina bifida is a birth defect that involves the incomplete development of the spinal cord or its coverings. The term spina bifida comes from Latin and literally means "split" or "open" spine. Spina bifida occurs when, at the end of the first month of pregnancy, the two sides of the embryo's spine fail to join together, leaving an open area. In some cases, the spinal cord or other membranes may push through this opening in the embryo's back. The condition can typically be detected before a baby is born and treated right away. Types of Spina Bifida The causes of spina bifida are largely unknown. Some evidence suggests that genes may be involved, but in most cases there is no familial connection. A high fever during pregnancy may increase a woman's chances of having a baby with spina bifida. Women with epilepsy who have taken the drug valproic acid to control seizures may have an increased risk of having a baby with spina bifida. There are two forms of spina bifida; they are known as the

38. EESSCF Le Trèfle Tournai - Chièvres Etablissement d'Enseignement Secondaire Sp©cialis© de la Communaut© Fran§aise du Hainaut occidental (Belgique). Offre un enseignement secondaire de types occupationnel, professionnel ou de qualification   des adolescent(e)s IMC, spina bifida, myopathes, h©mi, bi- ou t©trapl©giques. http://users.skynet.be/letrefle/

Etablissement d'Enseignement Secondaire Spécialisé de la Communauté Française Le Trèfle Tournai - Chièvres Veuillez cliquer sur le bouton de mode d'affichage correspondant au paramétrage de votre écran pour entrer

39. Spina Bifida Association Of Connecticut, Inc. Provides support, information and promotes local programs. http://www.sbac.org/

Spina Bifida Association of Connecticut 2005 SBAA Outstanding Website 2004 SBAA Outstanding Website In September of 1991, a group of caring and dedicated parents, and adults with spina bifida, were brought together with this mission: To educate the public about spina bifida and issues affecting people who have this very common disability. To provide support and information and to promote programs that will help people with spina bifida. The motivation and determination of these individuals resulted in the birth of the Spina Bifida Association of Connecticut.... R ead More Spina Bifida News SBAC Awards 3 Scholarships The SBAC is please to announce the recipients of this years $1,000.00 Educational Scholarships. Mary-Christine Beck graduates from Bristol Central High School this year and will attend The University of Arizona where she plans to pursue a degree in Sociology. Hannah Kristan will be graduating from Wilbur Cross High School this year and will attend Southern Connecticut State University to study to be a social worker or special education teacher. Lauren Roseman will graduate from Daniel Hand High School in Madison this year and will attend The University of Arizona. Lauren is considering Nursing as her major.

40. Spina Bifida And Hydrocephalus Association Of Canada -= Welcome! =- Since its inception in 1981, the spina bifida and Hydrocephalus Association We aspire to reduce the incidence of spina bifida and hydrocephalus and to http://www.sbhac.ca/

Déclic ici pour visualiser ce site en français Since its inception in 1981, the Spina Bifida and Hydrocephalus Association of Canada (SBHAC) has been working on behalf of people with spina bifida and/or hydrocephalus and their families. The Association's purpose is simple - to make life better for those born with spina bifida and/or hydrocephalus and for those not yet born. Mission Statement "To improve the quality of life of all individuals with spina bifida and/or hydrocephalus and their families, through awareness, education, research and advocacy, and to reduce the incidence of neural tube defects". Vision Statement The Spina Bifida and Hydrocephalus Association of Canada strives to be the leading national voluntary health organization, setting the standard for education, public awareness and research of spina bifida and hydrocephalus. We aspire to reduce the incidence of spina bifida and hydrocephalus and to promote independence of people living with spina bifida and hydrocephalus. Statement of Purpose: To foster and promote the human rights and well-being of those with spina bifida and/or hydrocephalus To promote research into cause, improved treatment and prevention of these conditions

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