1. The Scleroderma Research Foundation Information about the organization, research, mailing list and resources. http://www.srfcure.org/

2. Scleroderma Foundation - Home Page The scleroderma Foundation is a national nonprofit health organization dedicatedto a threefold mission of Support, Education, and Research to help fight http://www.scleroderma.org/

<% dim url = "http://www.scleroderma.org" Response.Redirect (url) %> Welcome! Sign Up for Our Free Email Newsletter! Search our site using keywords: Sign Up for Our Free Email Newsletter! Get Connected! Bulletin Board Health Professionals Contact Us ... "Living Well with Scleroderma" video We subscribe to the HONcode principles. Verify here Next Chat: Weds., Sept. 14, 9:30 p.m. Eastern Time This will be an open Chat. Learn more about our twice-monthly online Chats. October 24 National Gala Being Held in New York City "Shedding Light on Pulmonary Arterial Hypertension" Check other locations 2004 Annual Report Now Online! Raynaud Phenomenon, from the "American Journal of Nursing." Read story . (Once on this page, please disregard "Gateway Server Unavailable" and proceed to select the pdf version.)

3. Scleroderma - MayoClinic.com scleroderma is a rare, progressive disease that involves hardening and thickeningof the skin and may damage internal organs as well. http://www.mayoclinic.com/invoke.cfm?id=DS00362

4. Scleroderma scleroderma is chronic, which means it can last a long time. There are two typesof scleroderma. Localized scleroderma mainly affects the skin. http://www.arthritis.org/conditions/DiseaseCenter/scleroderma.asp

Welcome! Log In Create Profile Search Arthritis.org Keyword advanced search Español Questions and Answers Assess Your Joint Health ... 51 Ways to Be Good to Your Joints Scleroderma If your question is not answered here, please contact one of our information specialists. What Is It? What Are the Symptoms? What Causes It? How Is It Diagnosed? ... More Information About Scleroderma What Is It? Scleroderma (sclaire-row-DER-ma) is a disease that can cause thickening, hardening, or tightening of the skin, blood vessels and internal organs. Scleroderma is chronic, which means it can last a long time. There are two types of scleroderma: Localized scleroderma mainly affects the skin. There are two types of localized scleroderma: Morphia (hard, oval shaped patches on the skin. The patches usually are whitish with a purplish ring around them.) Linear (lines or streaks of thickened skin in areas such as the arms, legs or forehead.) Generalized scleroderma may affect many parts of the body. There are two types of generalized scleroderma:

5. I HAVE SCLERODERMA Stories of real people who have scleroderma. Living and coping with scleroderma.A site by people with scleroderma, for people with scleroderma. http://www.ihavescleroderma.com/

Our stories: Form to submit story Art Excuse me Links Post its Post it archives Kate's original Post its Who we are Privacy statement ... Translation New on our site... Diffuse stories: Kim I battle flare-ups on what is almost a monthly basis and can almost predict the weather by the way my body feels. Kim Stuurman My own doctor was telling me over and over again it was because of my puberty. Dutch and English Joanne At this time I was so sick I couldn’t even open my mouth to eat... Michelle The disease spread so quick throughout my body. CREST/limited stories: 'Nita After all, I appear, on first glance, healthy, active and normal. Becky Instead of Aloha it has changed to HOWDY since i now live in central Texas. Sarita Who would want to nurse my ulcer ridden body? Jeanna It was not during the summer time when I had a problem. It was winter that bothered me. Morphea/linear stories Briana This condition has taken a huge toll on my self-esteem and body image.

6. EMedicine - Scleroderma : Article By Sergio Jimenez, MD scleroderma scleroderma is derived from the Greek words skleros (hard orindurated) and derma (skin). Hippocrates first described this condition as http://www.emedicine.com/med/topic2076.htm

(advertisement) Home Specialties Resource Centers CME ... Patient Education Articles Images CME Patient Education Advanced Search Consumer Health Link to this site Back to: eMedicine Specialties Medicine, Ob/Gyn, Psychiatry, and Surgery Rheumatology Scleroderma Last Updated: May 21, 2005 Rate this Article Email to a Colleague Synonyms and related keywords: systemic sclerosis AUTHOR INFORMATION Section 1 of 11 Author Information Introduction Clinical Differentials ... Bibliography Author: Sergio Jimenez, MD , Vice-Chairman for Research, Director, Dorrance H Hamilton Professor Endowed Chair, Department of Medicine, Division of Rheumatology, University Hospital, Thomas Jefferson University Coauthor(s): Andrew S Koenig, DO , Consulting Staff, Department of Internal Medicine, Division of Rheumatology, Rancoccas Hospital; Sergio Jimenez, MD , Vice-Chairman for Research, Director, Dorrance H Hamilton Professor Endowed Chair, Department of Medicine, Division of Rheumatology, University Hospital, Thomas Jefferson University Sergio Jimenez, MD, is a member of the following medical societies:

7. Edgar Cayce's Scleroderma Treatment: Case Studies Two case studies (one with morphea) demonstrating the efficacy of Edgar Cayce's approach to treating scleroderma. http://www.webspawner.com/users/sclerodermacases/

Edgar Cayce's Scleroderma Treatment: Case Studies CASE STUDY #1: MARGIE Summary A 13 year old girl suffering from scleroderma with morphea (lesions on the skin) achieved reduction of symptoms within one month of starting a therapy recommended by Edgar Cayce and continued gradual improvement during a three year follow-up period. Background Margie was a 13 year old girl who first came to the A.R.E. Clinic in October, 1980, with a diagnosis of scleroderma with morphea. Previous treatment by a dermatologist and family physician failed to provide results. Margie's parents were alarmed by the poor prognosis given for this progressively debilitating illnessan 80% chance of death within ten yearsand were anxious to find help for their daughter. Medical History In May, 1979, Margie's mother noticed a tiny spot on the skin overlying her upper breastbone. As it looked like ringworm, they applied some anti-fungal ointment and promptly forgot about it. In August, it was still present and had enlarged. Their family physician discovered a similar lesion on her back and agreed that it was fungal in origin. She did not respond to the medication he prescribed. Her hands became very sore, swollen, cracked, and bleeding. In September, he referred her to a dermatologist who biopsied the lesion on her back and diagnosed morphea. He told them "it wasn't leprosy and it wasn't cancer, but it wasn't something you'd want for Christmas either." He gave her a dry skin cream for her hands and recommended vitamin E to slow down the morphea. Margie began to feel sick, fatigued, and complained of headaches and backaches often. Both hands and feet became affected.

8. Scleroderma Lupus Information - Scleroderma Hunter Area Pathology Service, Australia, The Hunter Region s quality pathologyprovider. http://www.haps.nsw.gov.au/patrsrcs/patsclero/scleroderma.htm

Home Patient Resources Scleroderma Information Sheets Scleroderma Lupus Information Sheets Scleroderma Scleroderma is one of a group of chronic autoimmune diseases including systemic lupus erythematosis and Sjögren's syndrome. These diseases form a spectrum, and feature various combinations of the same set of symptoms. Skin thickening is the hallmark of the disease. Traditionally, the term "scleroderma" has encompassed two groups: "localised scleroderma", where problems are confined to the skin, and "systemic sclerosis", where internal organs and vessels are involved as well as the skin. Localised Scleroderma Localised scleroderma includes a heterogeneous group of conditions characterised by circumscribed, patchy, or linear scleroderma without the typical serological and visceral manifestations of systemic sclerosis (see below). This condition should not be confused with limited cutaneous scleroderma (CREST), which is a systemic variety of scleroderma. Localised scleroderma primarily affects children and young adults, especially females. Morphoea Localised scleroderma is characterised by one or more erythematous or violaceous areas of the skin which evolve to become sclerotic and waxy. Plaques may grow during the active phase up to several centimetres in diameter with violaceous inflammatory borders, before spontaneously softening after several months to a few years.

9. The Scleroderma Society Offers support and information. Includes an introduction, news and a message board. http://www.sclerodermasociety.co.uk/

The Scleroderma Society The Scleroderma Society

10. Handout On Health: Scleroderma In some forms of scleroderma, hard, tight skin is the extent of this abnormal Localized types of scleroderma are those limited to the skin and related http://www.niams.nih.gov/hi/topics/scleroderma/scleroderma.htm

En español Health Information Health Topics Order Publications Studies with Patients Patient Research Registries ... NIAMS Coalition Members Health Topics PDF version Publication Date: May 2001 Handout on Health: Scleroderma This booklet is for people who have scleroderma, as well as for their family members, friends, and others who want to find out more about the disease. This booklet describes the different forms of scleroderma and provides information on their symptoms, diagnosis, and treatment, including what patients can do to help manage their disease and the problems associated with it. It also highlights current research efforts into the understanding and treatment of scleroderma, many of which are supported by the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) and other components of the National Institutes of Health (NIH). If you have further questions after reading this booklet, you may wish to discuss them with your doctor. What Is Scleroderma?

11. Scleroderma Clinical Trials Consortium Information about this international organization which is dedicated to finding a better treatment for this disorder. Includes current studies and a newsletter. http://www.sctc-online.org

Contact Existing members: Pay dues here Welcome The EULAR Scleroderma Trials and Research group (EUSTAR) - www.eustar.org What is OMERACT Are you a scleroderma patient looking for support and information? See our Links page SCTC Research Study Application (Word) Latest issue! Scleroderma Care and Research journal Contact webmaster with corrections. Last update - 6/20/2005

12. Sklerodermie Selbsthilfe | Scleroderma Liga E.V. Informationen zur Sklerodermie und Vorstellung der Selbsthilfevereinigung mit Verzeichnis der Regionalgruppen. In einem Diskussionsforum ist Austausch zum Thema m¶glich. http://www.scleroliga.de/

NEU Aktuelles Umfrage FORUM/CHAT Forum Chat SKLERODERMIE Sklerodermie Adressen Glossar Buchtipps SELBSTHILFE Scleroderma Liga Medizin. Beirat Regionalgruppen Infomaterial Termine Sponsoren Mitgliedschaft KONTAKT Kontakt Postkarten Impressum MITGLIEDER Mitgliederbereich Sklerodermie Selbsthilfe Sklerodermie: Kranke helfen Kranken Aufruf an alle Sklerodermie-Betroffenen Machen Sie mit: zur Umfrage . Vielen Dank! Beinverlängerung mit Fitbone oder Albizzia , Daniela Sarah-Cortison , Tanja an Gabi Cortison , Sarah MTX , Sarah Sarah , Sarah Peneccilin an Hilde = an Gabi an ClaudiaT , Trudi Alle Aktuelles 19. Mai Paul Klee und die Medizin Infos: www.medizin-museum.unizh.ch arte 08. April Der neue Scleroderma Infobrief Die Seite 2 Einladung zur Therapietagung Sklerodermie Manuelle Lymphdrainage Organisationsreform in der Rentenversicherung Tag der rheumakranken Kinder und Jugendlichen Aus den Regionalgruppen Ab sofort ist der Infobrief im Mitgliederbereich 11. Januar Vortrag: Zur Krankheit von Paul Klee Donnerstag, 20. Januar 2005, 18.15 - 19.30 h Sammlung Suter 08. Januar

13. International Scleroderma Network Resource for medical and support information including symptoms, treatments, clinical trials, and support group listings. http://www.sclero.org/index.html

www.sclero.org So you'd like to learn more about scleroderma? an Amazon guide by Shelley Ensz, ISN President Our site menu requires pop-ups and javascript enabled. About the ISN Join/Donate Languages Medical Scleroderma Experts Symptoms Newsroom Message Board Support Stories Support Groups SWA Sites to Surf!

14. Kids Get Scleroderma Too!!! Organization that is working to provide educational programs about JSD, and to help children and their families to gain a better understanding. http://www.jsdn.org

A Message From Kathy... If you are looking for emotional reassurance, look no further! You will find it here with the JSDN! Our network is set in a positive environment. We are keeping our literature updated to ensure that families are provided with the best coverage on JSD. Most of all we know what every parent is going through having a child diagnosed with JSD. I have a son, BJ, who was diagnosed with JSD in August 1996. Living with JSD can be exhausting mentally and physically for both of us with trips to the pediatric rheumatologist, blood tests, PT/OT. Sometimes it is stressful just getting your child to take their medication. It is a helpless feeling not knowing what to do for your child. We are here to help you as much as we can for each and every one of you. We may not be close by, but we are a phone call or email away when you need us. Please feel free to call or email us at anytime to let us know what we can do for you. Our thoughts and prayers are with you and your family. Founder/President How?

15. Scleroderma Foundation - Home Page The scleroderma Foundation is a national nonprofit health organization dedicated to a threefold mission of Support, Education, and Research to help http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

16. Scleroderma Foundation - Research Grant Application Introduction The scleroderma Foundation is the leading nonprofit supporter of sclerodermaFoundation Announces $1 Million in New Research Grants for 2005! more http://www.scleroderma.org/research/researchhome.htm

Membership dues are $25/year. Details. Introduction Research Objectives Grant Application ... Marta Marx Fund Introduction Grant Application Deadline: Sept. 15, 2005 allotting over $1 million each year to find the cause and cure of scleroderma. Research News Scleroderma Foundation Announces $1 Million in New Research Grants for 2005! more Research Grants Awarded, 1989-2005. more The Challenge of Scleroderma Scleroderma, which literally means "hard skin," can cause thickening and tightening of the skin, as well as serious damage to internal organs including the lungs, heart, kidneys, esophagus, and gastrointestinal tract. It is often life-threatening. Scleroderma occurs three to four times more often in women than in men.

17. SCLERODERMA FAQ The scleroderma FAQ is a comprehensive document about scleroderma and CREST targeted at patients family members, and physicians. http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

18. Pediatric Rheumatology Home Page A resource for families and physicians caring for children with arthritis, lupus, scleroderma, Kawasaki disease and other rheumatic diseases. http://www.goldscout.com/

id=13897 All information is provided as a public service and no warranty is expressed or implied. KEY WORDS: arthritis scleroderma childhood arthritis dermatomyositis JRA juvenile rheumatoid arthritis Kawasaki Disease pediatric rheumatology polyarteritis nodosa SLE systemic lupus erythematosus vasculitis CLICK for Patient and Family Information Information about juvenile rheumatoid arthritis More Information about childhood arthritis Information about systemic lupus ... CLICK for Books on Childhood Arthritis Is your child getting the best care My book It’s not just growing pains. A guide to childhood muscle, bone ... A guide for parents and professionals Reviewer’s comments Dr. Tom Lehman’s experience and compassion are evident on every page of this book, and they help guide the reader—child, parent, and healthcare professional alike – through the world of childhood arthritis. This book is an absolute gem written with a single goal in mind: improve the lives of kids with arthritis. Jack Klippel , M.D. President and CEO of the Arthritis Foundation “Dr. Lehman has given parents and families of children with arthritis the first book that speaks to the parent and child as equals.

19. MedlinePlus Scleroderma scleroderma http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

20. Raynauds & Scleroderma Association Information about the organization, contact information, publications and the latest research. http://www.raynauds.demon.co.uk/

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