1. Sagittal Synostosis Homepage sagittal synostosis is a condition in infants where the sagittal suture (the softspot or fontanelle on top of the head between the left and right sides of http://www.geocities.com/HotSprings/6751/

There are over 100 links "buried" in our site. We've put the top ones all in 1 place for your convenience. Click Here! Dig deep and learn more about this condition, surgical options, and the future. Recent genetics research estimates that sagittal synostosis appears in 1 in 4000 to 1 in 8500 live births, with a 2 - 6% chance of being hereditary. In other words, there is only a 1 in 133,333 to 1 in 850,000 chance of having two children with this rare condition. Well, our two children each have it. Our daughter, Shauna, was born in July, 1997. Although the doctors and literature available in 1994 advised us that sagittal synostosis is not genetic, we now believe otherwise. At one week of age, Shauna was also diagnosed with sagittal synostosis. She ended up having the surgery in November, 1997, when she was 15 weeks old. In June, 2002, we had a third child, Melanie. She is almost 2 years old and has shown no signs whatsoever of sagittal synostosis. She has a perfectly round head and has passed all her developmental milestones. It has been almost 10 years since our first child was diagnosed with sagittal sysnostosis and 7 years since our daughter had the surgery. Our 3 children are all happy and healthy. The issue never seems to come up because all our children "look normal". We are truly grateful to to doctors and staff at the Toronto Hospital for Sick Children, who performed the surgery on our children and have enabled them to lead happy, healthy, and normal lives.

2. Sagittal Synostosis Homepage sagittal synostosis is a condition in infants where the sagittal suture (the soft spot or fontanelle on top of the head between the left and right http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

3. Sagittal Synostosis Homepage sagittal synostosis Homepage Home About Sagittal Our Story Common Questions 19972000 sagittal@geocities.com All rights reserved. http://www.geocities.com/HotSprings/6751/top10.htm

Most Useful Links: Common Questions Stored Searches Useful Links Case Studies ... What to Expect After the Surgery [ Home ] About Sagittal Our Story Common Questions sagittal@geocities.com

4. Devin's Craniosynostosis Page Devin was born with a condition called Craniosynostosis (sagittal synostosis) and underwent surgery (craniotomy or craniectomy), at the Hospital for Sick Kids in Toronto, Canada. http://www.geocities.com/mikayla_cutiepatootie/Devin3_cranio.html

Devin's Craniosynostosis Page CRANIOSYNOSTOSIS Craniosynosotosis is the premature closing of one or more of the sutures in the skull. More specifically Devin was diagnosed with Sagittal Synostosis, which is the premature closing of the Sagittal Suture (the suture that runs front to back). Because it had fused prematurely his skull would not be able to grow properly. As the brain was developing his skull would only be able to grow where the sutures were open (the front and the back). Hence Devin's skull was growing in a boat shape - very long and narrow with a bossing forehead and back on the head. Sagittal Synostosis is the most common form and occurs in approx. 1 out of every 2000 births. There is debate as to the cause and the effects that it may have (is there pressure on the brain?), no one really knows for sure but what they do know is that it can have profound psychological effects on the individual (looking abnormal, teasing etc). And that's when we knew we had to do something, something to give Devin the best possible childhood and the best possible chance for a healthy and happy future. To us that meant proceeding with the surgery. Although we were given the choice, to us it hardly seemed like a choice, how could we opt not to have the surgery. I hope as Devin grows up he realizes that everything we did and all the choices we made for him are because we love him so much. When deciding we asked ourselves - At 10, 15 or 20 years old would Devin be happy with the choices we made for him? and the only answer we could come to was YES

5. Devin's Craniosynostosis Page Devin was born with a condition called Craniosynostosis (sagittal synostosis) and underwent surgery (craniotomy or craniectomy), at the Hospital for http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

6. Sagittal Synostsis The particular infants with sagittal synostosis characteristically have normal In sagittal synostosis or scaphocephaly we most frequently perform total http://www.erlanger.org/craniofacial/book/craniosynostosis/cranio_2.htm

7. Sagittal Synostosis Also known as scaphocephaly or dolicocephaly, the sagittal suture closes early and restricts groth of the head in the side to side direction. http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

8. Introduction sagittal synostosis Metopic Synostosis Unilateral Coronal Synostosis Bicoronal Synostosis 3D scan of sagittal synostosis. http://www.erlanger.org/craniofacial/book/craniosynostosis/cranio_1.htm

9. Craniosynostosis Types of Craniosynostosis In sagittal synostosis (scaphocephaly), the sagittal suture is closed. http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

10. Sagittal Synostosis (Craniostenosis, Craniosynostosis, Dolicocephaly, Scaphoceph sagittal synostosis (Craniostenosis, Craniosynostosis, Dolicocephaly, Scaphocephaly,Sagittal Craniostenosis, Sagittal Craniosynostosis) http://www.bdid.com/sagittal.htm

HOME Sagittal Synostosis (Craniostenosis, Craniosynostosis, Dolicocephaly, Scaphocephaly, Sagittal Craniostenosis, Sagittal Craniosynostosis) scaphocephaly CRANIOSTENOSIS - PROTRUDING EYES (Includes Image) CRANIOSTENOSIS - MALE PROFILE (Includes Image) Craniofacial Surgery...David Herz, M.D. Sagittal Synostosis Homepage craniofacial diseases CRANIOSYNOSTOSIS ... Craniosynostosis (Includes Photos and a Diagram) Brynne and craniosynostosis CRANIOSYNOSTOSIS CRANIOSYNOSTOSIS, TYPE 1; CRS1 Craniosynostosis ... Isolated Craniosynostosis (Includes Photos) HOME

11. Sagittal Synostosis (Craniostenosis, Craniosynostosis sagittal synostosis (Craniostenosis, Craniosynostosis, Dolicocephaly, Scaphocephaly, Sagittal Craniostenosis, Sagittal Craniosynostosis) http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

12. Craniofacial Center | Dallas, Texas Single Suture Craniosynostoses. Scaphocephaly (sagittal synostosis). Scaphocephalyinvolves fusion of the sagittal suture. This sutures runs from front to http://www.thecraniofacialcenter.org/synostoses_scaphocephaly.html

Single Suture Craniosynostoses Scaphocephaly (Sagittal synostosis): Scaphocephaly involves fusion of the sagittal suture. This sutures runs from front to back starting at the fontanel, at the top of the head, and extends backwards along the middle of the skull to the back of the head. Often the fontanel, or soft spot, is absent or closed. A ridge can be seen, or felt running along the top of the head, in between the right and left half of the skull. When viewed from above, the skull is wider near the forehead and gets narrower towards the back of the skull (which is the opposite of what is normal: that is, the back of the skull is wider than the front). When looking straight on at the child's face, the forehead seems quite big, or prominent, and the sides of the skull look narrow. The incidence of scaphocephaly is one in 2,000 births. It is the most common form of craniosynostosis. In general, a single operation is all that is necessary to treat this condition. A small percentage of children (roughly 2%) end up undergoing a second smaller operation, later in life to correct residual deformities. It is unclear whether or not this is due to an inadequate initial correction, an inherent growth disturbance (the bones are not growing normally afterwards), or a combination of the two.

13. Sagittal Synostosis sagittal synostosis. This article submitted by Jim Butler on 8/1/96. Author's Email JBBBUTLER@aol.com http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

14. Sagittal Synostosis sagittal synostosis. This response submitted by Linda on 2/24/97. Author s Emaillreitz@waonline.com. Our son had cs surgery at 4 months. http://neuro-www.mgh.harvard.edu/neurowebforum/ChildNeurologyArticles/sagittalsy

sagittal synostosis This response submitted by Linda on 2/24/97. Author's Email: lreitz@waonline.com Previous Article Return to Main Article Article complete. Click HERE to return to the Neurology Web-Forum Menu.

15. Support Groups Sagittal Synostosis sagittal synostosis Homepage sagittal synostosis (also known as scaphocephaly, dolicocephaly, sagittal craniostenosis, or sagittal http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

16. Sagittal Synostosis sagittal synostosis. This article submitted by Jim Butler on 8/1/96. I havea 14 month old son diagnosed with sagittal synostosis. There are no http://neuro-www.mgh.harvard.edu/neurowebforum/ChildNeurologyArticles/SagittalSy

Sagittal Synostosis This article submitted by Jim Butler on 8/1/96. Author's Email: JBBBUTLER@aol.com I have a 14 month old son diagnosed with sagittal synostosis. There are no problems apart from a long, narrow head shape, i.e., head is symmetrical, no facial deformities, etc. Condition was not apparent until he was 9 months old. Drs. also assure us there is no present health threat we've had CT scans, opthamological exams, etc. However, surgery (major cranial reconstruction) is recommended to restore a "normal" head shape and avoid teasing and problems with self-esteem in later childhood. Surgery is scheduled for September 5. But the trauma and risks associated with surgery are giving us second thoughts. Primary question is: how serious is the problem the surgery will prevent? I'm hoping to hear from parents or Drs. familiar with children with similar condition at a later age. What was the impact? Was surgery subsequently done to prevent social problems? Also interested in hearing about recovery from surgery in an older (> 1 yr) child. Son is extremely active, and we don't know how we're going to keep him quiet for the

17. Sagittal Synostosis Homepage sagittal synostosis Homepage. Information (including details of genetic research) and support for people affected by this condition. http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

18. Craniosynostosis Metopic Synostosis. Bicoronal Synostosis. Unilateral Coronal Synostosis.Synostotic Plagiocephaly. sagittal synostosis http://www.fpnotebook.com/NIC71.htm

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19. Pre- And Postoperative Developmental Attainment In Sagittal Pre and postoperative developmental attainment in sagittal synostosis M Bellew1 , P Chumas2 , R Mueller3 , M Liddington1 and J Russell4 http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

20. Sagittal Synostosis sagittal synostosis Homepage sagittal synostosis (also known as scaphocephaly,dolicocephaly, sagittal craniostenosis, or sagittal craniosynostosis), http://www.reference.com/Dir/Health/Consumer_Support_Groups/Facial_Differences/S

Dictionary Thesaurus Encyclopedia Web Home Premium: Sign up Login YOUR AD HERE Dictionary ... Encyclopedia - Web Directory Web Directory Top Health Consumer Support Groups Facial Differences / Sagittal Synostosis Sagittal Synostosis Homepage Sagittal synostosis (also known as scaphocephaly, dolicocephaly, sagittal craniostenosis, or sagittal craniosynostosis), is a condition in infants where the sagittal suture (the ‘soft spot’ or fontanelle on top of the head between the left and right sides of the skull) closes early and restricts growth of the head in the side to side direction. This forces the head to grow in a front to back direction, leading to a narrow elongated head. Help build the largest human-edited directory on the web. Submit a Site Open Directory Project Become an Editor Lexico Publishing Group, LLC ... Contact Us

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