1. NORD - National Organization For Rare Disorders, Inc. Offers a general discussion, the synonyms and further resources. http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Russell Silve

2. SILVER-RUSSELL SYNDROME Contact A Family - For Families With A definition of Silver Russell syndrome, its inheritance patterns, and prenatal diagnosing. Also lists a support group in the United Kingdom. http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

3. Russell-Silver Syndrome RussellSilver syndrome. Injury Disease Nutrition Poison Symptoms Surgery Test Special Topic http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

4. ? Russell-Silver Syndrome A medical encycopedia article on the topic Russell-Silver syndrome http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

5. Russell-Silver Syndrome russell silver syndrome national and international resources, clinics with genetic counselors and geneticists http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

6. Russell-Silver Syndrome russell silver syndrome national and international resources, clinics with geneticcounselors and geneticists. http://www.kumc.edu/gec/support/russell.html

Russell-Silver Syndrome Russell-Silver Syndrome Network Division of MAGIC Foundation 6645 W. North Ave. Oak Park, IL 60302 Phone: 708.383.0808 / 800-3-MAGIC-3 Fax: 708.383.0899 E-mail: mary@magicfoundation.org Web page: http://www.magicfoundation.org Association for Children with Russell-Silver Syndrome, Inc. 22 Hoyt Street Madison, NJ 07940-1604 Phone: (201) 377-4531 or (313) 242-2219 Fax: (201) 822-2715 c/o Jodi Zwain For families with children who have Russell Silver intrauterine growth retardation Also See: National organizations , resouces for genetic conditions or birth defects Dwarfism / short stature resources University of Kansas Medical Center To locate a genetic counselor or clinical geneticist in your area: Professional Genetics Societies Genetic clinics, centers, departments Revised November 8, 2002 Genetic Societies Clinical Resources Labs Clinics ... Search Genetics Education Center Debra Collins, M.S. CGC , Genetic Counselor, dcollins@kumc.edu This site subscribes to the principles of the HONcode (Health on the Net, Code of Conduct for Medical and Health Web Sites)

7. Russell-Silver Syndrome / Family Village Library RussellSilver Syndrome http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

8. Dwarfism - Short Stature Association for Children with russell silver syndrome, Inc. Jodi Zwain, 22 HoytStreet, Madison, NJ 07940. blue line. Adoption http://www.kumc.edu/gec/support/dwarfism.html

Dwarfism / Short Stature (Skeletal Dysplasias, Achondroplasia, Jeune Syndrome constitutional delay , other conditions) Organizations Clinics International Specific Syndromes ... Little People of America (LPA) , Inc. P.O. Box 745, Lubbock, TX 79408 E-mail: LPADataBase@juno.com Web Site: www.lpaonline.org Little People of America Teen Page, Books Organization Links Types of Dwarfism and Definitions LPA Parents' Forum (not currently active, web only), Mayeux family, jmayeux@gte.net LPA Parents' Committee - Rob and Betty Jacobsen, 3010 Olympia Way, Longview, WA 98632, Voice: 360.636.0276, BBS/fax: 360.578.1948, E-mail: jacobsen@aone.com Frequently Asked Questions Languages: English, Spanish dwarfism.org Billy Barty Foundation, Inc. 929 W Olive Avenue, Suite C, Burbank, CA 91506 Phone: (818) 953-5410 Fax: (818) 953-7129 Web site: www.rth.org/bbf/ Educational and lobbying for individuals with dwarfism Human Growth Foundation 7777 Leesburg Pike (P.O. Box 309), Falls Church, VA 22043 Phone: (800) 451-6434 or (703) 883-1773 Fax: (703) 883-1776 Supports basic clinical research pertaining to growth disorders. Disseminates information. Encourages development of local parent support groups. Oversees a grant research program

9. The MAGIC Foundation An organization providing support and education regarding growth disorders in children and related adult disorders. Includes Growth Hormone http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

10. MedlinePlus Medical Encyclopedia Russell-Silver Syndrome RussellSilver syndrome Contents of this page Alternative names. Definition. Causes, incidence, and risk factors. Symptoms. Signs and tests http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

11. Russell Silver Syndrome (RSS) Russell Silver Syndrome is a very rare genetic disorder characterized by growthdelays before birth http://my.webmd.com/hw/health_guide_atoz/nord377.asp

var guid_source = ""; var guid_source_id = ""; //unused var encodedurl = ""; WebMD Today Home WebMD News Center XML News via RSS Member Services WebMD University My WebMD Find a Physician Medical Info Check Symptoms Medical Library Health Tools Clinical Trials ... Women, Men, Lifestyle Who We Are About WebMD Site Map You are in Medical Library Our Content Sources Ask A Question Clinical Trials Health Guide A-Z Health Topics Symptoms Medical Tests Medications ... For a Complete Report Russell Silver Syndrome (RSS) Important It is possible that the main title of the report Russell Silver Syndrome (RSS) is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report. Synonyms RSS SRS Russell Syndrome Silver Syndrome Silver-Russell Syndrome Russell-Silver Dwarfism Silver-Russell Dwarfism Disorder Subdivisions Russell-Silver Syndrome, X-linked (Partington Syndrome) General Discussion Other physical findings associated with this disorder may include permanent fixation of the fifth fingers in a bent position (clinodactyly); webbing of the second and third toes (syndactyly); underdevelopment (hypoplasia) of certain bones of the fingers (phalanges); development of smooth, coffee-colored patches on the skin (cafe-au-lait spots); and/or abnormalities of the kidney and urinary tract. Most cases of Russell-Silver Syndrome are the result of new genetic changes (mutations) that occur randomly for no apparent reason (sporadic). If this mutation were to be inherited, it would do so as an autosomal dominant genetic trait. In rare cases, it is thought that the disorder may be inherited as an autosomal recessive genetic trait. In addition, a rare form of Russell-Silver Syndrome is thought to be inherited as an X-linked dominant genetic trait.

12. ABC News Clinical Trials Update Feb. 4, 2005 on a growth chart, and who do not have growth failure associated with PraderWilli syndrome, Russell-Silver syndrome, Turner syndrome, Noonan http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

13. Russell-Silver Syndrome I created this article for two distinct purposes. First, I wanted to have a way to inform those who were unaware of RussellSilver syndrome. http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

14. Russell Silver Syndrome (RSS) RussellSilver Syndrome is a very rare genetic disorder characterized by growth delays before birth (prenatal or intrauterine growth retardation); http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

15. Russell Silver Syndrome (RSS) RussellSilver Syndrome is a very rare genetic disorder characterized by growthdelays before birth (prenatal or intrauterine growth retardation); http://www.bchealthguide.org/kbase/nord/nord377.htm

var hwPrint=1;var hwDocHWID="nord377";var hwDocTitle="Russell Silver Syndrome (RSS)";var hwRank="1";var hwSectionHWID="nord377-Header";var hwSource="en-caQ2_05";var hwDocType="Nord"; National Organization for Rare Disorders, Inc. Russell Silver Syndrome (RSS) Important It is possible that the main title of the report Russell Silver Syndrome (RSS) is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report. Synonyms RSS SRS Russell Syndrome Silver Syndrome Silver-Russell Syndrome Russell-Silver Dwarfism Silver-Russell Dwarfism Disorder Subdivisions Russell-Silver Syndrome, X-linked (Partington Syndrome) General Discussion Other physical findings associated with this disorder may include permanent fixation of the fifth fingers in a bent position (clinodactyly); webbing of the second and third toes (syndactyly); underdevelopment (hypoplasia) of certain bones of the fingers (phalanges); development of smooth, coffee-colored patches on the skin (cafe-au-lait spots); and/or abnormalities of the kidney and urinary tract. Most cases of Russell-Silver Syndrome are the result of new genetic changes (mutations) that occur randomly for no apparent reason (sporadic). If this mutation were to be inherited, it would do so as an autosomal dominant genetic trait. In rare cases, it is thought that the disorder may be inherited as an autosomal recessive genetic trait. In addition, a rare form of Russell-Silver Syndrome is thought to be inherited as an X-linked dominant genetic trait.

16. Russell Silver Syndrome Complete online version of The Encyclopaedia of Medical Imaging including textand images from The Encyclopaedia of Medical Imaging s eight book volumes http://www.amershamhealth.com/medcyclopaedia/medical/Volume VII/RUSSELL SILVER

financial services our commitment our company Search Medcyclopaedia for: Search marked text (mark text before you click) Browse entry words starting with: A B C D ... amershamhealth.com Russell silver syndrome, (Alexander Russel, 20th century, British paediatrician; Henry Silver, born 1918, American paediatrician), a syndrome in which the children are of low birth weight, have short stature, frontal bossing with a pseudohydrocephalic appearance and a small triangular face. Facial or limb asymmetry are frequent. There are variable endocrine and sexual abnormalities, and mental retardation. Radiological manifestations are variable hand abnormalities; clinodactyly, Kirner deformity ivory epiphysis and syndactyly . There is skeletal asymmetry, retarded skeletal maturation with differential skeletal maturation on both sides. Multiple other dysmorphic features of the skeleton and the renal tract are reported. HC The Encyclopaedia of Medical Imaging Volume VII Corporate Products Financial Services Our Commitment ... Terms of Conditions

17. 2005 Senate Human Services Committee: SB 2395: Russell Silver Syndrome: Testimon 2005 Senate Human Services Committee SB 2395 russell silver syndrome TestimonyPublications/Research Department of Human Services State of North http://www.state.nd.us/humanservices/info/testimony/senate-human-services/sb2395

DHS Home Contact DHS Skip Navigation Search: About DHS Services and Help Business Services Online Services ... Publications/Research 2005 Testimony Testimony Before The Senate Human Services Committee Judy Lee, Chairman SB 2395 - Russell Silver Syndrome February 2, 2005 If passed, SB 2395 would require CSHS to provide medical food and coverage for growth hormone treatment at no cost to individuals under age eighteen who have been diagnosed with Russell Silver Syndrome, regardless of income. While I recognize the importance of services for all children with special health care needs and their families, including children with Russell Silver Syndrome, there are also important implications that merit attention as this bill is considered. Eliminating the income eligibility requirement for treatment services through CSHS is setting a precedent that certain conditions receive prefferential treatment . Families that have children with asthma, diabetes, cerebral palsy, cleft lip and palate, hearing loss, cystic fibrosis, etc., would need to meet the eligibility criteria at 185% of the federal poverty level, while those with Russell Silver Syndrome would not. Is this fair to other families that have children with high medical expenses? The Legislature mandated the eligibility level currently used for CSHS treatment services in 2001. Use of private insurance coverage is not addressed . Although considered rare, the incidence of this syndrome is truly not known. Its unclear how many children might receive medical food and coverage for growth hormone treatment. Unless additional funding is made available, CSHS will need to redirect current resources to meet service needs of children with Russell Silver Syndrome. Although not a certainty, this could lead to elimination of other services that currently are provided.

18. Child Growth Foundation Russell Silver Syndrome russell silver syndrome / Intrauterine Growth Retardation Russell SilverSyndrome is very rare occurring in approximately 1/75000 births. http://www.childgrowthfoundation.org/Russell Silver Syndrome - Interuterine Grow

Child Growth Foundation 2 Mayfield Avenue, Chiswick London W4 1P W Registered Charity No: 274325 About CGF CGF History Members Information Useful Contacts ... Growth Conditions Russell Silver Syndrome / Intrauterine Growth Retardation Russell Silver Syndrome / Intrauterine Growth Retardation The information below is summarised from the booklet "Intrauterine Growth Retardation (IUGR) including Russell Silver Syndrome - A Guide for parents and patients" available from the CGF. Russell Silver Syndrome is very rare occurring in approximately 1/75000 births. Little is known about the cause of this condition, in the majority of families only one child is affected but very occasionally families do have more than one affected child, This may suggest a genetic basis for this condition and this is the subject of much research. In some children with the milder forms of IUGR a genetic irregularity has been found. Diagnosis - Intrauterine Growth Retardation A low birth weight is defined as a baby born with a weight that is inappropriately low for the duration of the pregnancy - for a baby born at term this would be a birth weight less than 2.5kg. The inappropriately low weight indicates that the growth of the baby in the womb has been unsatisfactory and this is why is is called Intrauterine Growth Retardation.

19. Silver-Russell Syndrome russell silver syndrome; Russell syndrome; RussellSilver dwarfism; Silversyndrome; Silver-Russell Federally Funded Research on Silver-Russell Syndrome http://www.icongrouponline.com/health/Silver-Russell_Syndrome_Ph.html

ICON Health Publications Official Health Sourcebooks Search ICON Health Titles: SILVER-RUSSELL SYNDROME A Bibliography, Medical Dictionary, and Annotated Research Guide to Internet References (Russell Silver syndrome; Russell syndrome; Russell-Silver dwarfism; Silver syndrome; Silver-Russell dwarfism) P A P E R B A C K Paperback Book Paperback Book Order by phone: 800-843-2665 (within USA) 1-201-272-3651 (from outside USA) Paperback Book Shipped in 3 to 5 business days E B O O K Electronic File * E-Book version sent via e-mail in 2 business days Pages Price $28.95(USD) ISBN Published Synopsis In March 2001, the National Institutes of Health issued the following warning: "The number of Web sites offering health-related resources grows every day. Many sites provide valuable information, while others may have information that is unreliable or misleading." Furthermore, because of the rapid increase in Internet-based information, many hours can be wasted searching, selecting, and printing. Since only the smallest fraction of information dealing with Silver-Russell syndrome is indexed in search engines, such as www.google.com or others, a non-systematic approach to Internet research can be not only time consuming, but also incomplete. This book was created for medical professionals, students, and members of the general public who want to conduct medical research using the most advanced tools available and spending the least amount of time doing so. Related Conditions/Synonyms Russell Silver syndrome; Russell syndrome; Russell-Silver dwarfism; Silver syndrome; Silver-Russell dwarfism

20. Resources For Genetic Counselors - Russell Silver Syndrome Association for Children with RussellSilver Syndrome, Inc. 22 Hoyt St. Chapter 20 Russell-Silver Syndrome. Management of Genetic Syndromes. http://www.genesoc.com/counseling2/article144.html

Modules Home FAQ Feedback Forums ... Your Account Who's Online There are currently, 13 guest(s) and member(s) that are online. You are Anonymous user. You can register for free by clicking here Languages Select Interface Language: Albanian Arabic Brazilian Catala Chinese Czech Danish Dutch English Euskara Finnish French Galego German Greek Hungarian Icelandic Indonesian Italian Macedonian Norwegian Polish Portuguese Romanian Russian Slovak Slovenian Spanish Swedish Thai Turkish Ukrainian Vietnamese Login Nickname Password Security Code: Type Security Code Don't have an account yet? You can create one . As a registered user you have some advantages like theme manager, comments configuration and post comments with your name. Old Articles Thursday, February 10 VATER Association Turner Syndrome Tuberous Sclerosis Trisomy 18 ... Older Articles Russell Silver Syndrome Posted on Wednesday, February 09 @ 23:53:00 CST by debi Russell Silver Syndrome Introduction Introductions What do you understand about why you are coming to genetics? What specific questions would you like to have answered today? Outline what will happen in session: Take medical and family history Doctor will perform physical exam Discussion and answer further questions Obtain Medical History Thorough pregnancy history History of maternal hypertension Teratogenic exposures Intrauterine infections Obtain Family History Birth weights and heights of parents and siblings Russell-Silver Syndrome Genetics Etiology is widely variable 10% of patients have maternal UPD of chromosome 7 autosomal dominant and autosomal recessive forms have also been seen

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