81. Health/Support Groups/Conditions And Diseases/Facial Differences/Parry-Rombergs Stories from people affected by Parry Romberg syndrome, support and information.url www.cannylink.com/diseaseparryromberg.htm; Parry Romberg syndrome http://www.thedoctorslounge.net/dir/Health/Support_Groups/Conditions_and_Disease

Advertisement Powered by Careerbuilder Search for: Home Humor Advertising Contact ... Links Specialties Cardiology Chest diseases Dermatology Endocrinology ... Urology Other Sections Membership Research Tools Medical Tutorials Medical Software ... Specialized Centers Headlines: The Medical Website Directory Popular Categories Popular Links Web Sites Parry Romberg Syndrome Stories from people affected by Parry Romberg syndrome, support and information. url: www.cannylink.com/diseaseparryromberg.htm Parry Romberg Syndrome Information Page Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Definition, treatment, prognosis, research and details of relevant organizations. url: www.ninds.nih.gov/health_and_medical/disorders/par... The Romberg's Connection International support group for families whose lives are affected by Romberg's syndrome. url: www.geocities.com/HotSprings/1018/ Romberg's Syndrome General information, contacts, on-line discussion groups and links. url: www.familyvillage.wisc.edu/lib_rombs.html

82. Neurology -- Sign In Page Parry–Romberg syndrome (PRS) is a rare neurocutaneous disorder characterized by ParryRomberg syndrome—Clinical characteristics of 205 respondents* http://www.neurology.org/cgi/content/full/61/5/674

HOME HELP FEEDBACK SUBSCRIPTIONS ... SEARCH QUICK SEARCH: [advanced] Author: Keyword(s): Year: Vol: Page: This item requires a subscription to Neurology Online. Full Text Stone Neurology. This Article Abstract Figures Only Full Text (PDF) ... Alert me if a correction is posted Services Email this article to a friend Similar articles in this journal Similar articles in PubMed Alert me to new issues of the journal ... Download to citation manager PubMed PubMed Citation Articles by Stone, J. Related Collections All Clinical Neurology To view this item, select one of the options below: Sign In User Name Sign in without cookies. Can't get past this page? Help with Cookies. Need to Activate? Password Forgot your user name or password? Purchase Short-Term Access Pay per Article - You may access this article (from the computer you are currently using) for 1 day for US$20.00 Regain Access - You can regain access to a recent Pay per Article purchase if your access period has not yet expired. Sign Up Subscribe to the Journal - Subscribe to the print and/or online journal.

83. Burn Support Groups Database ParryRomberg s syndrome International Support Group. The Parry-Romberg s syndromeis a degenerative disease thats eats away the tissues, muscles and bones http://www.burnsupportgroupsdatabase.com/files/south-af.htm

South Africa Correponder? Est ce qui'l y a quelqu 'un qui veut corresponder en Français par e-mail avec Evelyne en Africe-du-Sud? (Evelyne a 24 ans et elle etait brûler en Gabon) E-mail: firechildren@icon.co.za Parry-Romberg's Syndrome International Support Group The Parry-Romberg's Syndrome is a degenerative disease thats eats away the tissues, muscles and bones of the face. The newly founded group's goal is to find people with Romberg's disease all over the world to offer support and friendship. Although the group is still relatively small and very new, they have faith that people will contact them through this database. Anyone out there who would like to join? Very little is still known about Romberg's ....so right now, all they have is each other. To contact my friend Theresa's group, e-mail or link: Auntie_5@hotmail.com Rombergs@hotmail.com Link to the Parry Rombergs Syndrome web site in the USA To the top of this page Return to Home page Return to database

84. Burns/Disfigurement Etc. Support Group Database ParryRomberg s syndrome. The Parry-Romberg s syndrome is a degenerative diseasethats eats away the tissues, muscles and bones of the face. http://www.burnsupportgroupsdatabase.com/files/australi.htm

Australia Parents of Burn Survivors Lisa Smith is looking to share support and information with other parents of burns surviors. Anybody out there? You can contact her by e-mail: Lisa Burn Camp: Camp Oz Location: Brisbane, Australia Contact: Sandra King, OT, Director of Burn Camp Royal Children's Hospital 9 Roseby Avenue, Clayfield Queensland 4011 Australia Tel: 011 617-3262-7242 Fax: 011-617-3262-8247 Affiliation: Royal Children's Hospital Information: Season Length (days) # Kids Age Range Spring/October Burn Camp: Camp Oz II Location: Brisbane, Australia Contact: Sandra King, OT, Director of Burn Camp Royal Children's Hospital 9 Roseby Avenue, Clayfield Queensland 4011 Australia Tel: 011 617-3262-7242 Fax: 011-617-3262-8247 Affiliation: Royal Children's Hospital Information: Season Length (days) # Kids Age Range Spring/October 13 and up Burn Camp: Children's Burn Camp Location: Sydney, Australia Contact: Cheri Templeton, Coordinator

85. World Craniofacial Foundation Parry Romberg syndrome, I am Marilyn Neal. I would like to make you aware of theRomberg s Connection Support Group. http://www.worldcf.org/support_groups.cfm

About Us Treatable Conditions International ... Ways to Help The World Craniofacial Foundation is dedicated to helping children and familes who experience deformities of the head and/or face by providing support and access to life-changing procedures. Reconstruct a face; create a new life. Today, we have the knowledge and technology to make these children look and feel normal. It is now possible to acheive excellent outcomes in the treatment of even the most complex craniofacial deformities. For the task ahead, support and participation is needed from all of us in order to transform the lives of those who need help. World Craniofacial Foundation 7777 Forest Lane Ste C-621 P.O. Box 515838 Dallas, TX 75251-5838 fax 972-566-3850 www.worldcf.org Need Assistance? Support Groups Media Resources ... Links Support Groups CRANIOFACIAL TREATMENT CENTERS University of California - Los Angeles Director: H.K. Kawamoto, Jr. MD, DDS UCLA School of Medicine Division of Plastic Surgery 10833 Le Conte Ave.

86. Rocky Mountain News: State ParryRomberg syndrome. • What is it? A rare disease characterized by the slow Some doctors refer to the disease as Romberg syndrome, Romberg s, PRS, http://www.rockymountainnews.com/drmn/state/article/0,1299,DRMN_21_3847292,00.ht

GetAd('11', false, 'h1', 115, 60, 'STATE_ARTICLE_DETAIL', ''); GetAd('12', true, 'h2', 468, 60, 'STATE_ARTICLE_DETAIL', ';dcopt=ist'); Classifieds Autos Jobs Homes ... Travel Deals Search site for: Home News Sports Business ... AP wire Top stories Special reports and ongoing coverage from the Rocky Mountain News. Ward Churchill The North Side Iraq war Kobe Bryant ... West Nile Special reports In-depth and investigative reports from the pages of the Rocky Mountain News. Click here Denver Square See Colorado life through the pen of News editorial cartoonist Ed Stein. Click here . Stein also draws "Stein's View" for the opinion page. Click here. E-newsletters Sign up for daily e-News updates and receive the latest local news. Click here RELATED LINKS Special section: Kelley Sperry Video Essays: Kelley Sperry's story. ... E-MAIL THIS STORY Disorder forces teen to travel a rare path Windsor girl doing her best to cope while coming of age By Joe Garner, Rocky Mountain News June 11, 2005 WINDSOR - Kelley Sperry packed heavily so she could shine this weekend: Seven outfits for four days, including a new pink-and-white dress to wear with her first heels, which lift her only a nudge but still require practice so she won't stumble. There's also makeup to match every mood, along with three irons to curl her hair and another to straighten the waves, just in case.

87. Face Value It was a challenge, because ParryRomberg syndrome is so rare that we don tlearn about it in medical school, says the Lithuanian-born family physician, http://www.rd.com/content/openContent.do?contentId=15796

88. Welcome To The Romberg's Connection Guestbook Comments Hello, Just found out today that I have Romberg syndrome and I had never heard of ParryRomberg syndrome. I was well informed by your site. http://guestbooks.pathfinder.gr/read/rombergs01?pass=&page=1

89. Welcome To The Romberg's Connection Guestbook Comments Hello, Just found out today that I have Romberg syndrome and found yourweb site because I wanted to know more. Thanks for all the effort put into http://guestbooks.pathfinder.gr/read/rombergs01?pass=&page=0

90. Scleroderma (in Children) Scleroderma (in children) Perry Romberg syndrome P Perry Romberg syndromefrom OMIM This syndrome, described in the last century by Perry (1825) and http://ibis-birthdefects.org/start/sclerode.htm

Tips for printing Scleroderma (in children) Perry Romberg Syndrome About I.B.I.S. Home Search Topics Search all contents ... "In the News" Messages... Questions/comments Report Dead Links S.O.S. - Exchange Join I.B.I.S. ... Etchings Please Explore: Peters Plus S. Werner S. Support Groups Professional Associations ... Key Information Sources Contents include Titles and Centromeric Protein C1 Centromeric Protein C1 Pseudogene Coup De Sabre Crest Syndrome Crst Syndrome Hemifacial Atrophy Progressive HFA Increased Chromosomal breakage rate of Scleroderma Localized Scleroderma Morphea Morphoea PCNT Pericentrin Progressive Hemifacial Atrophy Raynaud's Romberg Perry Scleroderma (in children) Systemic Sclerosis Special Resources Scleroderma (in children) A Selection of Internet Sites [*] Outstanding [P] For Professionals [S] Support Group [**] [S] Scleroderma (in Children) An article by Thomas J.A. Lehman MD Scleroderma Foundation in Watsonville, California Scleroderma in childhood may occur as localized morphea, linear scleroderma, progressive systemic sclerosis or the CREST syndrome ... begin as areas of either increased or decreased pigmentation which are reddish at first and then become progressively hardened and "shrunken" ... no intervention is warrented unless the area of involvement overlies a joint ... progressive tightening of the skin and underlying tissues may produce flexion contractures ... Sclerodermatomyositis is an infrequent, but well - described entity ... characteristic changes of linear scleroderma accompanied by a dermatomyositis - like rash, weakness, and muscle inflammation ... Progressive systemic sclerosis and CREST syndrome are potentially severe, life threatening illnesses in children ...

91. Parry-Romberg Syndrome Online. Founded 1997. Mutual support for persons affected by Parry Romberg ssyndrome (aka progressive facial hemiatrophy or Romberg s syndrome), a rare, http://hw.healthdialog.com/kbase/shc/shc29par.htm

document.write(''); var hwPrint=1; var hwDocHWID="shc29par"; var hwDocTitle="Parry-Romberg Syndrome"; var hwRank="1"; var hwSectionHWID="shc29par"; var hwSectionTitle=""; var hwSource="us6.0"; var hwProdCfgSerNo="wsh_html_003_s"; var hwDocType="SHC"; Self Help Clearinghouse Parry-Romberg Syndrome The Romberg's Connection Online. Founded 1997. Mutual support for persons affected by Parry Romberg's Syndrome (aka progressive facial hemiatrophy or Romberg's Syndrome), a rare, genetic disorder, their families and friends. Aim is to locate affected persons and offer strength, hope, courage and friendship. Pen pal program online and via mail. Some face to face meetings. Phone support network in U.S. Future newsletter planned. E-MAIL: Rombergs@hotmail.com WEBSITE: http://www.geocities.com/HotSprings/1018/ VERIFIED: 5/19/2003 The above information is based upon information available through the "verified" date at the end of each listing. Since American Self-Help Group Clearinghouse's resources are limited; it is not possible to keep every entry in the American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information. For additional information and assistance about self-help groups, please contact the American Self-Help Group Clearinghouse in Cedar Knolls, New Jersey, by email at: info@selfhelpgroups.org

92. Medical Science: Reference, Search & Databases Resources for Chronic Fatigue syndrome (CFS) Fibromyalgia (FMS) RombergsDisorder * Schizophrenia New 1/6/98 * Shy Drager * Silicone Related http://graham.main.nc.us/~bhammel/med.html

THE MEDICAL SCIENCES PAGE A collection of professional and nonprofessional links to sites of medical interest, educational and research; journals, surgery, pharmacology, etc. Pertinent essays and news affecting medicine and the medical profession, organized below by category Angel Wing Lyme Disease Support Group A very informative site that is still growing. Health and Laughter We knew it was good, but .... then also, there is Patch Adams with Health Care at the Gesundheit Institute Perhaps bringing back into medicine what it has lost under tryanny of insurance, HMO's, and governmental meddling, and adding what all Old Wives knew but what modern medical science couldn't prove until recently. It seems to me that there is a very general message there. Physicians Need To Fight The Business Model Of Medicine Bernard Lown, M.D, Hippocrates 12(5): 25-28, 1998. Physicians Who Care A National Organization of Physicians and Patients who've had enough of HMOs and "Mangaged Care". The Medical Records Privacy Protection Act [Link] Fascism and the Art of Medicine [Essay] [Biology Bookmark File] [New] Medical Whore Alert Any sugesstions for additions to this page are welcome. I've tried to weed out crackpot left and right nonscience and pseudoscience while retaining alternative points of view in terra incognita. Quackery is, I hope, avoided while not throwing out possibly cutting edge advancements. This amounts to judgment call on my part; I'm not infallible. Email and Page Information Medical science, in spite of over 4000 years of physicians, has gotten real only within the past 150 years. Though the body of medical knowledge is now staggering, it is still only in its infancy. As in physics, the hardest of hard sciences, despite the number of answers, they are outweighed by questions and unknowns.

93. (?) Translate this page The summary for this Korean page contains characters that cannot be correctly displayed in this language/character set. http://www.chi2ko.com/tool/yixue-1.htm

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