61. Bomis: Mdifferencesparry-rombergs-syndrome-health Mdifferences-sagittal-synostosis-health Mdifferences-sticklers-syndrome-health http://www.bomis.com/rings/Mdivision_1-feyenoord_rotterdam/

Bomis: Build a ring Suggest URL! Email ringmaster! Ring Info! ... Ring Rankings Sneak preview of new search engine from Bomis Search Wikia for Mdivision_1-feyenoord_rotterdam does not exist, but these do: Mdi-commercio-emilia-romagna-world Mdi-commercio-trentino-alto-adige-world Mdi-commercio-unioni-regionali-world Mdiabetes-diabetes_supplies-health ... Mdiyarbakir-lodging-regional

62. Blueprints Plastic Surgery - Book Information Goldenhars syndrome. Encephaloceles. - rombergs Disease. - Fibrous Dysplasia.- Facial Trauma. Chapter 7 Breast and Trunk Reconstruction http://www.blackwellpublishing.com/book.asp?ref=1405104465

63. Guestbook - Volume I Comments My niece actually has treacher collins syndrome. rombergs isanother no treatment, no cure, we have no idea what to do with you disorder. http://www.treachercollins.org/gbook1.html

Amie's Guestbook Total: 243 guests Name Dana Rodgers Website Referred by : Just Surfed On In From : Howell, Michigan Time Comments : PRIVATE MESSAGE Name suzanne joseph Website Referred by : Net Search From : Sharpsville, PA Time Comments : Thank you for being a strong person. It is people like you that give others with genetic disorders strength. Name Bridget Romero Website Referred by : Yahoo! From : Louisiana Time Comments : I think your story is very special. You are a very beautiful person. I admire you dearly. Love, Bridget :-) Name geoffrey metz Website Referred by : Just Surfed On In From Time Comments : PRIVATE MESSAGE Name traci cremeans Website Referred by : From a Friend From : walkertown, n.c Time Comments : PRIVATE MESSAGE Name Linda Breuckman Website Referred by : Just Surfed On In From : columbus WI Time Comments : PRIVATE MESSAGE Name Robert E. Valett Website Referred by : Just Surfed On In From : Fresno, California Time Comments : I am glad you quoted me on your page ("The human heart feels what the eyes cannot see and knows what the mind cannot understand"). You may also be interested in reading my newest book SPIRITUAL GUIDES TO HOLISTIC HEALTH AND HAPPINESS available online through either Barnes and Noble or Amazon. Best wishes! Robert E. Valett Name Amanda Website Referred by : Yahoo!

64. Driscoll Children’s Craniofacial And Cleft Center + Godenhars + Proteus syndrome + Pierre Robin + Nagers + Sticklers + AmnioticBand syndrome + Beckwith Weidemann + rombergs Hemifacial Atrophy http://www.driscollchildrens.org/craniofacial/beforeafter.asp

Conditions Treated Cleft Lip and Palate + Facial Clefting Syndromes + Hemifacial Microsomia Named Syndromes: + Crouzons + Pfeiffers + Treacher-Collins + Saethre-Chotzen + Godenhars + Proteus Syndrome + Pierre Robin + Nagers + Sticklers + Amniotic Band Syndrome + Beckwith Weidemann + Rombergs Hemifacial Atrophy Abnormalities of the Skull + Positional Plagiocephaly + Craniosynostosis + Traumatic and Post Surgical Cranial Deformities Abnormalities Orbits and Midface + Orbital Hypertelorism + Vertical or Horizontal Orbital Asymmetry Abnormalities of the Jaws + Dental Disharmony + Malocclusion and Jaw Growth Anomalies Vascular Lesions + Hemangioma Vascular Malformations Tumors + Fibrous Dysplasia + Neurofibromatosis + Dermoids Ear Deformities + Prominent Ears + Absence or Malformation of Ears (Microtia, Anotia, Cryptotia, Lop Ear) A CONTINUUM OF CARE Terms of Use Privacy Policies Legal Statements Family Medical History Form ... Ronald McDonald House

65. NEUROLOGICAL SCOLIOSIS, Leg syndrome rombergs Disorder Schizophrenia Scoliosis Self Injury SensoryIntegration Disorder Preview by Thumbshots UM Spine Center Patient Kimberly http://www.digitaldesignstudio.it/scoliosis/n.asp?cerca=neurological_scoliosis

66. Support Groups ~ MGH Neurosurgical Service rombergs Disorder Schizophrenia Shy Drager Silicone Related Diseases Chronic Pain syndrome Chat Room Discussions about Chronic Pain syndrome. http://neurosurgery.mgh.harvard.edu/SptGps.htm

MGH Neurosurgical Service MGH Neurology Department Support Group Meetings Electronic Support Groups E-mail Lists Web Forums ... Support Group Links Support Group Meetings Live People-to-People Meetings Support Group for Brain AVM Patients and their Families The MGH Brain Aneurysm/ AVM Center has formed a Brain AVM Support Group for patients that have or that are about to have brain AVM embolization, brain AVM surgery and/or both. The purpose for this support group is to provide patients and their families with the educational tools and emotional support needed to get them through this difficult time. Our goal is to try and help alleviate fears and concerns through education and group discussions. Issues such as the origin of brain AVM's, the course of treatment, and overall prognosis will be among some of the topics we will be discussing. The leader's task is to support patients and their families while they recognize and hopefully resolve concerns they have regarding the procedures. Brain Tumor Support Group A drop-in support group for patients and family members with brain tumors. There are weekly speakers with group support from the MGH BTC Nursing Staff and MGH Social Services.

67. Support Organizations For Rare Disorders rombergs@hotmail.com RussellSilver syndrome Network 1327 N. Harlem Avenue OakPark, IL 60302 Fax (708) 383-0899 Toll Free 800-3-MAGIC-3 http://www.cord.ca/Support/support.asp?List=3

68. Romberg Syndrome / Family Village Library General information, contacts, online discussion groups and links. http://www.familyvillage.wisc.edu/lib_rombs.html

Romberg Syndrome Synonyms: Parry-Romberg's Syndrome, Progressive Facial Hemiatrophy Who to Contact Where to Go to Chat with Others Learn More About It Web Sites ... Search Google for "Romberg Syndrome" Who to Contact See: Craniofacial Disorders Where to Go to Chat with Others Rombergs This mailing list consists of the members of the Romberg's Connection, which is a support group for people with Rombergs Syndrome. Learn More About It Parry-Romberg Syndrome Information Page National Institute of Neurological Disorders and Stroke An Introduction to Parry Romberg Syndrome Progressive Hemifacial Atrophy from OMIM Web Sites The Rombergs Connection Back to [ Q - R Family Village Home Library Coffee Shop ... Information Last Updated 2/3/2004 by familyvillage@waisman.wisc.edu Document Source: http://www.familyvillage.wisc.edu/lib_rombs.html

69. Facial Neuralgia Resources: Template Conditions ParryRomberg syndrome is a rare disorder characterized by slowly Symptoms andphysical findings associated with Parry-Romberg syndrome usually become http://facial-neuralgia.org/conditions/romberg.html

Facial Neuralgia Resources Together, we can make a difference facial-neuralgia.org Last Updated TABLE OF CONTENTS HOME CONDITIONS Facial Neuralgias Other Cranial Neuralgias ... SITE MAP PARRY-ROMBERG SYNDROME Related Disorders DESCRIPTION CAUSES SYMPTOMS ONLINE RESOURCES The names Progressive Facial Hemiatrophy, Progressive Hemifacial Atrophy, Romberg Syndrome, PRS, HFA are synonyms for this disorder TAKE A CLOSER LOOK READ ABOUT KELLEY , an extraordinary little girl who suffers from Parry-Romberg Syndrome, in an article published in the Rocky Mountain News. Don't miss reading the MANY MESSAGES sent to her from people all over the world. The following information is excerpted from the National Organization for Rare Disorders, Inc.database on rare disorders and is posted in compliance with the FAIR USE DOCTRINE and is for educational purposes only and not for commercial use. Description Parry-Romberg Syndrome is a rare disorder characterized by slowly progressive wasting (atrophy) of the soft tissues of half of the face (Hemifacial atrophy.) It was described in the last century by Parry (1825) and Henoch and Romberg (1846).

70. Parry Romberg Syndrome Parry Romberg syndrome is a rare disorder characterized by slowly progressivedegeneration (atrophy) http://my.webmd.com/hw/raising_a_family/nord489.asp

var guid_source = ""; var guid_source_id = ""; //unused var encodedurl = ""; WebMD Today Home WebMD News Center XML News via RSS Member Services WebMD University My WebMD Find a Physician Medical Info Check Symptoms Medical Library Health Tools Clinical Trials ... Women, Men, Lifestyle Who We Are About WebMD Site Map Health Topics Symptoms ... For a Complete Report Parry Romberg Syndrome Important It is possible that the main title of the report Parry Romberg Syndrome is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report. Synonyms Progressive Facial Hemiatrophy Progressive Hemifacial Atrophy Romberg Syndrome PRS HFA Disorder Subdivisions None General Discussion Parry-Romberg syndrome is a rare disorder characterized by slowly progressive degeneration (atrophy) of the soft tissues of half of the face (hemifacial atrophy). Some individuals may experience distinctive changes of the eyes and hair; and neurological abnormalities including episodes of uncontrolled electrical disturbances in the brain (seizures) and episodes of severe pain in tissues supplied by the fifth cranial nerve (trigeminal nerve) including the mouth, cheek, nose, and/or other facial tissues (trigeminal neuralgia). Symptoms and physical findings associated with Parry-Romberg syndrome usually become apparent during the first or early during the second decade of life. In rare cases, the disorder is apparent at birth. The majority of individuals with Parry-Romberg syndrome experience symptoms before the age of 20 years.

71. Parry-Romberg Syndrome Online. Founded 1997. Mutual support for persons affected by Parry Romberg ssyndrome (aka progressive http://my.webmd.com/hw/health_guide_atoz/shc29par.asp

var guid_source = ""; var guid_source_id = ""; //unused var encodedurl = ""; WebMD Today Home WebMD News Center XML News via RSS Member Services WebMD University My WebMD Find a Physician Medical Info Check Symptoms Medical Library Health Tools Clinical Trials ... Women, Men, Lifestyle Who We Are About WebMD Site Map You are in Medical Library Our Content Sources Ask A Question Clinical Trials Health Guide A-Z Health Topics Symptoms Medical Tests Medications ... The Romberg's Connection Parry-Romberg Syndrome The Romberg's Connection Online. Founded 1997. Mutual support for persons affected by Parry Romberg's syndrome (aka progressive facial hemiatrophy or Romberg's syndrome), a rare, genetic disorder, their families and friends. Aim is to locate affected persons and offer strength, hope, courage and friendship. Communication through a group mailing list and via mail. Some face to face meetings. E-MAIL: Rombergs@hotmail.com WEBSITE: http://www.geocities.com/HotSprings/1018/ VERIFIED: 4/21/2005 The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information. For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

72. Parry Romberg Syndrome Stories from people affected by Parry Romberg syndrome, support and information. http://www.cannylink.com/diseaseparryromberg.htm

Web www.CannyLink.com Search mode: Parry Romberg Syndrome Marie's History With Romberg's Deformity Progressive Hemifacial Atrophy Rombergs Connection - support group for people with Romberg's. Rombergs Syndrome This is Kelley Sperry's story... Back to The Cannylink home page You can e-mail us at Webmaster@cannylink

73. Parry Romberg Syndrome Links to information and resources for Parry Romberg syndrome. http://rarediseases.about.com/cs/parryromberg/

zJs=10 zJs=11 zJs=12 zJs=13 zc(5,'jsc',zJs,9999999,'') zfs=0;zCMt='a70' About Rare / Orphan Diseases Rare Diseases Essentials ... Help zau(256,140,140,'el','http://z.about.com/0/ip/417/C.htm','');w(xb+xb+' ');zau(256,140,140,'von','http://z.about.com/0/ip/496/6.htm','');w(xb+xb); FREE Newsletter Sign Up Now for the Rare / Orphan Diseases newsletter! See Online Courses Search Rare / Orphan Diseases Parry Romberg Syndrome Guide picks A disorder characterized by slowly progressive wasting of the soft tissues of the face, seizures, and severe face pain. Parry Romberg Syndrome Article describes the disorder, its symptoms, diagnosis, treatment, and research. From the About.com Guide to Rare/Orphan Diseases. The Rombergs Connection Site provides information, FAQs, support, chat/message board, news, and photo album. Kelly's Story: Beyond the Mirror Rocky Mountain News article about a young girl with Parry Romberg syndromeinformative and insightful. NINDS: Parry Romberg Syndrome Fact sheet on the disorder from the National Institute for Neurological Disorders and Stroke (U.S.). NORD: Parry Romberg Syndrome Definition of the disorder, from the National Organization for Rare Disorders (U.S.).

74. Kelley Sperry Parry Romberg Syndrome Real Life Hero Celebrity News Meet Kelley Sperry, a 10 year old girl from Denver, Colorado. Her story has beenan inspiration to hundreds of people whose lives she s touched. http://rarediseases.about.com/library/weekly/aa112001a.htm

zJs=10 zJs=11 zJs=12 zJs=13 zc(5,'jsc',zJs,9999999,'') zfs=0;zCMt='a70' About Rare / Orphan Diseases Rare Diseases Essentials ... Help zau(256,140,140,'el','http://z.about.com/0/ip/417/C.htm','');w(xb+xb+' ');zau(256,140,140,'von','http://z.about.com/0/ip/496/6.htm','');w(xb+xb); FREE Newsletter Sign Up Now for the Rare / Orphan Diseases newsletter! See Online Courses Search Rare / Orphan Diseases Just Like Any Other Girl Kelley Sperry Keeps on Going From Other Guides Parry Romberg Syndrome NFL Cheerleaders Elsewhere on the Web Beyond the Mirror Beyond the Mirror - About This Story Beyond the Mirror - Messages to Kelley Kelley Gets a Surprise ... The Rombergs Connection By Adelle Vancil Tilton November 20, 2001 What makes a hero? For some people, heroism comes from an almost superhuman act of bravery. For others, heroism comes by virtue of their compassion for their fellow man. But for some, heroism simply comes from being. Recently, I had the opportunity to interview one such individual and her mother. Their family's story truly classifies them as "Everyday Heroes". I first learned of 10 year old Kelley Sperry when I received the following email, "Our daughter's face is wasting away... and she keeps going... and going... She's wonderful!" This message caught my attention more than any other I've received in recent months, and I contacted the sender, who turned out to be Kelley's mother, Donna Sperry of suburban Denver, Colorado. In my correspondence with her, it became apparent that little Kelley was something special, and someone who could serve as an example to us all. In other words, an "Everyday Hero".

75. Parry Romberg Syndrome ParryRomberg syndrome is a rare disorder characterized by slowly progressivedegeneration (atrophy) of the soft tissues of half of the face (hemifacial http://www.bchealthguide.org/kbase/nord/nord489.htm

var hwPrint=1;var hwDocHWID="nord489";var hwDocTitle="Parry Romberg Syndrome";var hwRank="1";var hwSectionHWID="nord489-Header";var hwSource="en-caQ2_05";var hwDocType="Nord"; National Organization for Rare Disorders, Inc. Parry Romberg Syndrome Important It is possible that the main title of the report Parry Romberg Syndrome is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report. Synonyms Progressive Facial Hemiatrophy Progressive Hemifacial Atrophy Romberg Syndrome PRS HFA Disorder Subdivisions None General Discussion Parry-Romberg syndrome is a rare disorder characterized by slowly progressive degeneration (atrophy) of the soft tissues of half of the face (hemifacial atrophy). Some individuals may experience distinctive changes of the eyes and hair; and neurological abnormalities including episodes of uncontrolled electrical disturbances in the brain (seizures) and episodes of severe pain in tissues supplied by the fifth cranial nerve (trigeminal nerve) including the mouth, cheek, nose, and/or other facial tissues (trigeminal neuralgia). Symptoms and physical findings associated with Parry-Romberg syndrome usually become apparent during the first or early during the second decade of life. In rare cases, the disorder is apparent at birth. The majority of individuals with Parry-Romberg syndrome experience symptoms before the age of 20 years. In individuals with the disorder, initial facial changes usually involve the tissues above the upper jaw (maxilla) or between the nose and the upper corner of the lip (nasolabial fold) and progress to involve the angle of the mouth, the areas around the eye, the brow, the ear, and/or the neck. Progressive tissue wasting can be on either side of the face. In some rare cases, the atrophy may be bilateral. Affected areas may demonstrate shrinkage and atrophy of tissues beneath the skin (subcutaneous tissue), the layer of fat under the skin (subcutaneous fat), and underlying cartilage, muscle, and bone.

76. NORD - National Organization For Rare Disorders, Inc. ParryRomberg syndrome is a rare disorder characterized by slowly Symptoms andphysical findings associated with Parry-Romberg syndrome usually become http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Parry Romberg

77. The DRM WebWatcher: Parry Romberg Syndrome This section of The DRM WebWatcher describes the best online resources aboutParry Romberg syndrome. http://www.disabilityresources.org/PARRY.html

Home Subjects States Librarians ... Contact Us The DRM WebWatcher Parry Romberg Syndrome Updated 3/2003 A B C D ... About/Hint/Link Parry Romberg syndrome (also known as progressive hemifacial atrophy or HFA) is a rare disorder characterized primarily by the wasting away of the tissue on one side of the face. Beyond the Mirror This well-written article from the Rocky Mountain News describes the impact of Parry Romberg syndrome on a 10-year-old girl and her family. Hemifacial Atrophy, Progressive A technical overview and references from the Online Mendelian Inheritance in Man (OMIM) database. NINDS Parry Romberg Syndrome Information Page A brief overview of Parry Romberg syndrome from The National Institute of Neurological Disorders and Stroke. The Romberg's Connection This personal website represents "an international support group made up of over 200 individuals and families whose lives are affected by Rombergs Syndrome [and who have] come together to offer our strength, courage, support and friendship to one another." Its contents include a message board relating to surgery, frequently asked questions, a short online newsletter, family photos and stories, and some links. Related Subjects Craniofacial Disorders Neurological Disorders Rare Disorders Resources in your state (c) 1997-2005 Disability Resources, inc.

78. Hill Health Topics A-Z - Parry Romberg Syndrome Parry Romberg syndrome. National Organization for Rare Disorders. Important Itis possible that the main title of the report Parry Romberg syndrome is not http://www.healthwise.net/hillhealth/Content/StdDocument.aspx?DOCHWID=nord489&SE

79. Parry-Romberg Syndrome, Eastern Carolina ParryRomberg syndrome - University Health Systems of Eastern Carolina servestarboro, ahoskie, edento, winsor, maxhead, dear county, outebanks counties in http://www.uhseast.com/117905.cfm

Health News Health Library Health Topics Healthy Living ... Nutrition Self-Help Resources Information about national and local self-help organizations and support groups. Parry-Romberg Syndrome This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site. The Romberg's Connection Online. Founded 1997. Mutual support for persons affected by Parry Romberg's syndrome (aka progressive facial hemiatrophy or Romberg's syndrome), a rare, genetic disorder, their families and friends. Aim is to locate affected persons and offer strength, hope, courage and friendship. Communication through a group mailing list and via mail. Some face to face meetings. E-MAIL: Rombergs@hotmail.com WEBSITE: http://www.geocities.com/HotSprings/1018/ VERIFIED: 10/11/2004 The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

80. Parry Romberg Syndrome Synonyms, Eastern Carolina Parry Romberg syndrome Synonyms University Health Systems of Eastern Carolinaserves tarboro, ahoskie, edento, winsor, maxhead, dear county, http://www.uhseast.com/113840.cfm

Health News Health Library Health Topics Healthy Living ... Nutrition Information on diseases and health concerns, including symptoms, treatment options, and prevention. Parry Romberg Syndrome Synonyms Disorder Subdivisions General Discussion Resources ... For a Complete Report Important It is possible that the main title of the report Parry Romberg Syndrome is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report. Synonyms Progressive Facial Hemiatrophy Progressive Hemifacial Atrophy Romberg Syndrome PRS HFA Disorder Subdivisions None General Discussion Parry-Romberg syndrome is a rare disorder characterized by slowly progressive degeneration (atrophy) of the soft tissues of half of the face (hemifacial atrophy). Some individuals may experience distinctive changes of the eyes and hair; and neurological abnormalities including episodes of uncontrolled electrical disturbances in the brain (seizures) and episodes of severe pain in tissues supplied by the fifth cranial nerve (trigeminal nerve) including the mouth, cheek, nose, and/or other facial tissues (trigeminal neuralgia). Symptoms and physical findings associated with Parry-Romberg syndrome usually become apparent during the first or early during the second decade of life. In rare cases, the disorder is apparent at birth. The majority of individuals with Parry-Romberg syndrome experience symptoms before the age of 20 years. In individuals with the disorder, initial facial changes usually involve the tissues above the upper jaw (maxilla) or between the nose and the upper corner of the lip (nasolabial fold) and progress to involve the angle of the mouth, the areas around the eye, the brow, the ear, and/or the neck. Progressive tissue wasting can be on either side of the face. In some rare cases, the atrophy may be bilateral. Affected areas may demonstrate shrinkage and atrophy of tissues beneath the skin (subcutaneous tissue), the layer of fat under the skin (subcutaneous fat), and underlying cartilage, muscle, and bone.

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