41. Sickkidslinks rombergs syndrome Anon fiberous dysplagia Matt crohns ChinaRose Endometrosis Kristie KleinLevin syndrome Shirley http://hometown.aol.com/sharonw1124/page15.html

htmlAdWH('93212816', '728', '90'); Main My First Home Page Allison scolosis ... malformation Do you know a site that I should add? ****EMAIL ME**** back to Sharon's page page created with Easy Designer

42. LOG OPENED Wed Jan 13 190005 1999 - Participants Disabled Kaz Has anyone got Parry rombergs syndrome here? Its quite rare. eve in ithink communications is the key In my hubby does not treat me any differant http://www.disabilities-r-us.com/meetings/view/01-13-1999.txt

*** LOG OPENED: Wed Jan 13 19:00:05 1999 - Participants: disabled ChanServ (nanook@eskimo.com) Lily Lonewolf Mooooooo (azdse@uswest.net) deadheadf - *** In has joined #Disabled-RT *** T_J has joined #disabled-rt *** MsAmazin has joined #disabled-RT *** cher has joined #disabled-rt *** sweet-e has joined #Disabled-RT *** HelloKit has joined #Disabled-RT ok are e ready to begin? yep yes yes Being disabled effects everything we do, who we are and how we handle our lives. When the disability is present most of our lives, we often enter into relationships with all the problems out front so to speak. For discussion's sake, let's divide our relationships into 3 groups: a: family b: friends c: mates 1. If your disability has been present for most of your life: Has it effected your family life? What has the effect been on friendships-harder to make friends? Have you been able to find a mate or does your disability prevent this? Let's start at the beginning Those of you that have had a disability for life how has it effected your family life *** wacky has joined #Disabled-RT over protection parents?

43. Home Health Support Groups Conditions And Diseases Apert Syndrome, Cleft Lip and Palate, Craniosynostosis, LangerGiedion Syndrome,Parry-rombergs syndrome, Stickler s Syndrome, more http://www.weisspinselaffen.de/EN/Health/Support-Groups/Conditions-and-Diseases/

44. PillSupplier.com - Health Resources "P" Paroxetine Parryrombergs syndrome Passive-Aggressive Pathological Gambling Pathology Pathology Patient Patient Education Patient Education http://www.pillsupplier.com/dir/index_P.html

Health Resources "P" HOME ABOUT US ORDER STATUS BMI CALCULATOR ... Login Welcome to the Health Resources section of PillSupplier.com! Use our search function to find what you're looking for quickly, or browse our listings alphabetically below. Search Resources Looking for something in particular? More search options Alphabetical Listings "P" P P Paclitaxel Paget's Disease ... Health Resources

45. Excite Italia - - P > Conditions And Diseases > Health (Directory) Parryrombergs syndrome@ ( 4) Passive-Aggressive Personality Disorder@ ( 5)Patellofemoral Disorder@ ( 7) Pathologic Nystagmus@ ( 6) http://www.excite.it/directory/Health/Conditions_and_Diseases/P

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46. RockyMountainNews.com HI SWEETIE, I AM THE MOTHER OF A CHILD WITH rombergs syndrome. I have readyour article your mom sent me on the Parry Romberg Syndrome and your story. http://cfapp.rockymountainnews.com/kelley/messages.cfm

Classifieds Autos Jobs Homes ... Yellow Pages Search site for: HOME NEWS SPORTS BUSINESS ... Obituaries Top stories Special reports and ongoing coverage from the Rocky Mountain News. Ward Churchill The North Side Iraq war Kobe Bryant ... West Nile Denver Square See Colorado life through the pen of News editorial cartoonist Ed Stein. Click here Special reports In-depth and investigative reports from the pages of the Rocky Mountain News. Click here Multimedia Video, photography and other multimedia news coverage. Click here E-newsletters Sign up for daily e-News updates and receive the latest local news. Click here Beyond the mirror Click Here to enter a message. Sort messages by: Sender To: Kelley From: Sarah Hi kelley!! I have had parry-romberg since I was 2. I know what it feels like to have people stare. However just keep in the back of your mind that God made you special for a reason. People stare because they are curious. You are a very beautiful girl. Keep your head high and always know that even though you may look different you a a person just like everybody else. Sarah Forrest Age 21 To: Kelley From: wkaresARK.-USA

47. Differences Facial Diseases And Conditions Groups Support Health LangerGiedion Syndrome (2). Parry-rombergs syndrome (4). Stickler s Syndrome (4).Treacher Collins Syndrome (6). Web Sites. Beneath the Surface - Offers http://odp.webwombat.com.au/WW58483.HTM

Entertainment Finance Games Lifestyle ... Auctions You are here: Home / World Directory Daily Resources Holiday Ideas Daily Horoscopes Weather by the hour What's on TV ... Hot Links Web Wombat Advanced Submit a Site 20,000,000+ Australian Pages: Supporting Open Directory since 1999 World Directory Top Health Support Groups Conditions and Diseases Categories Apert Syndrome Cleft Lip and Palate Craniosynostosis Langer-Giedion Syndrome ... Treacher Collins Syndrome Web Sites Beneath the Surface - Offers support and understanding to individuals of facial difference. The Personal Side of Craniofacial Differences - Personal accounts of living with craniofacial conditions, and related webrings. Cancer Of The Eye Linkline (CELL) - UK-based helpline for people whose lives are affected by loss of an eye through cancer or trauma. Support, information and links. The Craniofacial Foundation of Arizona - Provides information and support for people with head and face disfigurement. Happy Faces Family Network is a non-medical organization of volunteers, aiming to raise public awareness of craniofacial problems, promoting community acceptance and understanding. AboutFace - International organization providing information and emotional support to individuals and their families affected by facial differences and disfigurements.

48. NORD - National Organization For Rare Disorders, Inc. rombergs Connection RothmundThomson syndrome Pages Sarcoidosis Online Sites Society for Progressive Supranuclear Palsy http://www.rarediseases.org/nord/programs/links/disease

Database Subscriptions Many libraries, schools, universities, and hospitals subscribe to NORD's Rare Disease Database for unlimited access to reports on more than 1,150 diseases. Index of Rare Diseases This is the list of diseases currently covered in the Rare Disease Database. Rare Disease Database Search this database for reports on more than 1,150 diseases. View sample report Index of Organizations This is the list of organizations in NORD's Organizational Database. Organizational Database Read about more than 2,000 patient organizations and other sources of help. NORD's Washington Office Read about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC. Disease-specific Organizations Are you interested in getting your site listed or linking to NORD? Visit our link exchange page Adenoid Cystic Carcinoma Foundation Alpha-1-Antitrypsin Deficiency Association The Arc ... HOME Last modified Thursday, August 25, 2005

49. Rombergs Connection Our primary purpose is to locate other people with Romberg s syndrome, (alsoknown as ParryRomberg s syndrome or Progressive Facial Hemiatrophy ) and http://www.pslgroup.com/dg/3d7b2.htm

50. Page 2 Parryrombergs (rombergs) National Organization of Rare Disorders Online Mendelian NINDS rombergs Connection. Pfeiffer syndrome MacKenzie s Page http://members.tripod.com/~Craniofacial/page2.htm

setAdGroup('67.18.104.18'); var cm_role = "live" var cm_host = "tripod.lycos.com" var cm_taxid = "/memberembedded" Search: Lycos Tripod Murderball Share This Page Report Abuse Edit your Site ... Next J - Z The Craniofacial Disorders indexed on this page are: Jackson-Weiss, Langer-Geidon, Parry-Rombergs, Pfeiffer, Pierre-Robin, Russell-Silver, Saethre-Chotzen, Sagittal Synostosis, Shprintzen-Goldberg, Stickler, and Treacher-Collins. Page 1 includes Antley-Bixler, Apert, Arhinia, Baller-Gerold, Carpenter, Craniosynostosis, Crouzon and Goodman. Jackson-Weiss National Organization of Rare Disorders OMIM Langer Giedion Langer-Giedion Syndrome Association National Organization of Rare Disorders Parry-Rombergs (Rombergs) National Organization of Rare Disorders Online Mendelian IM entry NINDS Rombergs Connection Pfeiffer Syndrome MacKenzie's Page Haley's Page National Organization of Rare Disorders OMIM ... Ped Database Pierre-Robin Syndrome/Sequence Garland Neal's PRS Story Pierre Robin Network National Organization of Rare Disorders Ped Database Russell-Silver The Magic Foundation NORD OMIM Saethre-Chotzen (Chotzen) NORD OMIM Ped Database Sagittal Synostosis Sagittal Synostosis Cranio Support Group Sagittal Synostosis Homepage Shprintzen-Goldberg NORD Search their database, articles are available.

51. Canadian Directory Of Genetic Support Groups rombergs Connection (Parry Romberg syndrome) (Romberg syndrome) RubinsteinTaybisyndrome (Canada) (Rubinstein-Taybi syndrome) http://www.lhsc.on.ca/programs/medgenet/r_sup.htm

Index by support group Canadian Directory of Genetic Support Groups Reaching Out: The WAGR Syndrome Network (Chromosome 11 Deletion, WAGR- (W) ilms tumor; (A) niridia; (G) enitourinary anomalies/ gonadblastoma; Mental (R) etardation) Restless Legs Syndrome Foundation (Restless Legs Syndrome, Nocturnal Myoclonus) Retinoblastoma Family Association (Retinoblastoma) Rombergs Connection (Parry Romberg Syndrome) (Romberg Syndrome) Rubinstein-Taybi Syndrome (Canada) (Rubinstein-Taybi Syndrome) Russell-Silver Syndrome Network (Russell-Sivler Syndrome) Page revised: February 3, 2005 Maintained by: Janice Little Index by disease/ disorder Return to Programs and Services Questions? Comments? Contact Janice Little London Health Sciences Centre . Please read our

52. Let's Face It: Resources For Specific Conditions Proteus syndrome. rombergs. Scleroderma. Sjogren s syndrome. Stickler. TMJ.Treacher Collins syndrome. Trigeminal Neuralgia. Vascular Birthmarks http://www.faceit.org/spc_org.html

SUPPORT AND INFORMATION FOR: RESOURCES FOR SPECIFIC CONDITIONS This section contains organizations and resources grouped by condition (i.e., cleft palate, crouzon syndrome, moebius syndrome, cancer, etc.). ACOUSTIC NEUROMA Acoustic Neuroma Association Over 56 support groups and a quarterly newsletter. Their September 2002 newsletter had a very interesting article titled, Modern Management of Rehabilitation of the Eye in Facial Paralysis Lois White, Executive Director 600 Peachtree Pkwy, Ste. 108 Cumming, GA 30041-6899 (770) 205-8211 - Phone (770) 205-0239 - Fax E-mail: anausa@aol.com Web: http://www.anausa.org ANA/NJ - Acoustic Neuroma Association of New Jersey Web: http://www.ananj.org ALBINISM AND HYPOPIGMENTATION National Organization for Albinism and Hypopigmentation (NOAH) Chapters, newsletter, information packets, and conferences. P.O. Box 959, East Hampstead, NH 03826-0959 E-mail: webmaster@albinism.org Web: http://www.albinism.org ALOPECIA AREATA National Alopecia Areata Foundation Bimonthly newsletter and 50 support groups in North America.

53. Neuro Call for Abstracts First International Angelman syndrome Medical and ScientificSymposium rombergs Disorder Sensation Disorders Sensation Disorders http://www.fortunecity.com/roswell/spells/260/neuro.html

web hosting domain names photo sharing Neurology ADHD ALS The Amyotropic Lateral Sclerosis Association Ammyotrophic Lateral Sclerosis (ALS) Angelman Syndrome Angelman Syndrome Call for Abstracts - First International Angelman Syndrome Medical and Scientific Symposium Arachnoiditis Arnold Chiari Malformation Bells Palsy Trigeminal Neuralgia Brain Abscess Brain Abscess Carpal/Cubital Tunnel Syndorme Carpal Tunnel Syndrome Cerebellar Ataxia Cerebral Palsy Cerebral Palsy Charcot Marie Tooth Chronic Fatigue Syndrome Chronic Fatigue Syndrome Congenital Fiber Type Disproportion Corticobasal Ganglionic Degeneration Creutzfeldt Jakobs Cri du Chat Syndrome Cri du Chat Syndrome CSF Leak Dandy Walker Dementia Evaluation of Dementia DeMorsiers Syndrome Down Syndrome Down Syndrome Health Care Guidelines for Individuals with Down Syndrome Dyslexia Dystonia Ehlers Danlos Syndrome Encephalitis Epilepsy Epilepsy Erythromelalgia FSH Society Fibromyalgia Gangliosidosis Gangliosidosis Gaucher Disease Guillain Barre Syndrome Guillain-Barre Syndrome Notice and Warning Huntingtons Disease Caring for Huntington's Disease Facing Huntington's Disease Research highlights on Huntington's disease Huntington's Disease ... Huntington's Disease - Research Highlights Hydrocephalus Hydrocephalus Association Homepage Landau Kleffner Syndrome Leukodystrophy Introduction to Leukodystrophy Lewy Body Disease Lyme Disease MSUD (Maple Syrup Urine Disease) Meningitis MENINGITIS Genetic Key To Muscular Dystrophy Neurology Web Forums At Massachusets General Hospital Dizziness, Loss Of Balance Caused By Brain Abnormalities

54. 04.26.2004 Romberg syndrome. Romberg s syndrome, anyone(art1995) rombergs DisorderNeurologyWebForum Page Romberg s disease-complications(abs1995) http://genetics.rusmedserv.com/catalog/syndlist/

Genetic Catalog SYNDROMES (alfabetical list) Genetic Catalog GENERAL ASPECTS HISTORY EUGENICS ... PRIVATE SYNDROMOLOGY SYNDROMES (alfabetical list) SCREENING OF THE INHERITED METABOLIC DISEASES GENETIC COUNSELLING PRENATAL DIAGNOSIS PREIMPLANTATION DIAGNOSIS ... Case Genetic Reports Search Genetics: åíåòèêà ÷åëîâåêà online Genetic Center E-mail: SYNDROMES (alfabetical list) A B C D ... Z A Aarskog syndrome Aarskog-Scott syndrome-OMIM 305400 Aarskog syndrome-Online and Offline Support A Aarskog syndrome-support groups-Kansas Univ. AARSKOGS syndrome-PedBase ... Aarskog syndrome-Support Groups Aase syndrome Aase syndrome - Pediatric Encyclopedia Acanthosis Nigricans Acanthosis Nigricans Maligna-DermIS Online Atlas Acanthosis Nigricans Benigna-DermIS Online Atlas Achondrogenesis Achondrogenesis - NORD Achondroplasia Achondroplasia Achondroplasia-Baby Net Achondroplasia (rev1998) Achondroplasia-Photo-Medical Genetics ... Health Supervision for Children With Achondroplasia (RE9514) Acrodermatitis Enteropathica Acrodermatitis enteropathica-DermIS Online Atlas Acrodysostosis Acrodysostosis - Pediatric Encyclopedia Acrodysostosis - NORD Acromegaly Acromegaly-DermIS Online Atlas Acromesomelic Dysplasia Acromesomelic Dysplasia - NORD (abstract) Acromicric Dysplasia Acromicric Dysplasia - NORD ADAM COMPLEX

55. Ro : On Medical Dictionary Online RomanoWard syndrome Romanomermis Romberg Disease Romberg Facial Hemiatrophy rombergs Disease Rompun Rondex Rondomycin Roniacol Ronicol http://www.online-medical-dictionary.org/ro.asp?q=~Ro

56. BrainTalk Communities - Moebius Syndrome Threads in Forum Moebius syndrome, Forum Tools, Search this Forum RepetitiveStrain Injury, Restless Leg syndrome, rombergs Disorder, Schizophrenia http://brain.hastypastry.net/forums/forumdisplay.php?f=177

57. BrainTalk Communities - Ramsey Hunt Syndrome Threads in Forum Ramsey Hunt syndrome, Forum Tools, Search this Forum Repetitive Strain Injury, Restless Leg syndrome, rombergs Disorder, Schizophrenia http://brain.hastypastry.net/forums/forumdisplay.php?f=219

58. Abortion Abortion (spontaneous) Abortion Habitual Abortion syndrome romanoward syndrome romberg atrophy romberg disease romberg facial romberg s disease romberg s syndrome romberg s trophoneurosis rombergs http://www.sims.berkeley.edu/~rosario/is290/tables/Sensitive_Diseases_names_from

renal failure chronic uremia renal failure following crushing injury renal failure secondary to liver disease renal failure secondary to liver disease hepatorenal syndrome renal failure syndrome renal failures renal glucosuria renal glycosuria renal hyperchloremic acidosis renal hypertension renal hypertensions renal insufficiencies renal insufficiency renal insufficiency acute renal insufficiency chronic renal insufficiency syndrome renal medullary necrosis renal neoplasia renal neoplasm renal neoplasms renal oculocerebrodystrophy renal osteodystrophies renal osteodystrophy renal papillary necrosis renal papillitides renal papillitis renal papillitis necrotising renal papillitis necrotizing renal rickets renal sclerosis renal shutdown acute renal stone renal stones renal syndrome renal thrombotic thrombocytopenic purpura < gangliosidosis type 1 hereditary sensory autonomic neuropathy type 1 mea type 1 men type 1 multiple endocrine adenomatosis type 1 multiple endocrine neoplasia type 1 neurofibromatosis type 1 osteoporosis type 1 spinocerebellar ataxia type 1s type 2 type 2 [acoustic neurofibromatosis] neurofibromatosis type 2 autosomal dominant disease polycystic kidney type 2 diabetes mellitus type 2 duane retraction syndrome type 2 gangliosidosis gm1 type 2 gaucher disease type 2 gm2 gangliosidosis type 2 gm>2 < deficiency anaemia vitamin b>12

59. COST Of Testing For Fragile X Syndrome ? - BrainTalk Communities What is the usual fee charged for the Fragile X syndrome test(s)? RepetitiveStrain Injury, Restless Leg syndrome, rombergs Disorder, Schizophrenia http://neuro-mancer.mgh.harvard.edu/ubb/Forum245/HTML/000031.html

60. NBCCS/ GORLIN SYNDROME MEETING - BrainTalk Communities - Neurology Medical Conferences and Meetings NBCCS/ GORLIN syndrome MEETING RepetitiveStrain Injury, Restless Leg syndrome, rombergs Disorder, Schizophrenia http://neuro-mancer.mgh.harvard.edu/ubb/Forum187/HTML/000017.html

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