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         Rombergs Syndrome:     more detail
  1. The Official Patient's Sourcebook on Parry-Romberg Syndrome: A Revised and Updated Directory for the Internet Age by Icon Health Publications, 2002-10
  2. Beneficial effect of immunosuppressive drugs on Parry-Romberg syndrome: a case report and review of the literature.(Case Report): An article from: Southern Medical Journal by Cengiz Korkmaz, Baki Adapinar, et all 2005-09-01

21. Health/Conditions And Diseases/P -- The Doctors Lounge(TM)
Parryrombergs syndrome@ 4; Passive-Aggressive Personality Disorder@ 4;Patellofemoral Disorder@ 5; Pathologic Nystagmus@ 5
http://www.thedoctorslounge.net/dir/Health/Conditions_and_Diseases/P/index.cgi
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    22. CleftClub.com - Cleft Lip & Palate Support Group And Information Center - Web Li
    Support site for those facing the condition......Category Main/Other Craniofacial Conditions/Parryrombergs syndrome The Romberg s Connection
    http://www.cleftclub.com/modules.php?name=Web_Links&l_op=viewlink&cid=51

    23. Friendly Faces :: Resource Links
    NORD Entry for Oral Facial Digital Syndrome. PARRYrombergs syndrome The Romberg sConnection NORD Entry for Parry-Romberg Syndrome. PIERRE ROBIN SEQUENCE
    http://www.friendlyfaces.org/resources.html
    Friendly Faces a resource for, and network of, individuals with facial differences, parents, families, friends, and health care professionals
    Resource Links
    These links are continuously updated. If you wish to have your site linked here, please contact us The American Cleft Palate-Craniofacial Association
    Cleft Palate Foundation

    AboutFace International
    ...
    The Florida Cleft Palate-Craniofacial Association
    APERT SYNDROME
    apert.org (Teeter's page)
    ATRESIA/MICROTIA
    Reconstructive Ear Surgery for Microtia

    Microtia Resource Guide

    The Microtia And Aural Atresia Division
    BECKWITH-WIEDEMANN SYNDROME
    The Beckwith-Wiedemann Support Network

    Beckwith-Wiedemann Syndrome Website

    NORD Entry for Beckwith-Wiedemann Syndrome
    BELL'S PALSY National Institute of Neurological Disorders and Stroke (NINDS) Entry Trigeminal Neuralgia Association BURNS The Phoenix Society for Burn Survivors Inc. CANCER National Cancer Institute Cancer Resources Guide The Oral Cancer Information Center Support for People with Oral and Head and Neck Cancer ... National Coalition for Cancer Survivorship (NCCS) CHARGE SYNDROME/ASSOCIATION CHARGE Syndrome Foundation NORD Entry for CHARGE Syndrome The American Cleft Palate-Craniofacial Association Cleft Palate Foundation ... cleft.NET Cleft Lip - Cleft Palate Resource

    24. CCDD: Physician: References: Links: Syndromes
    Romberg s Connection, An international support group made up of over 200 individualsand families whose lives are affected by rombergs syndrome
    http://www.hopkinsmedicine.org/craniofacial/References/LinkList.cfm?Category=Phy

    25. The Personal Side Of Craniofacial Differences
    JacksonWeiss; Langer-Geidon; Parry-rombergs syndrome; Pfeiffer Syndrome;Pierre-Robin Syndrome/Sequence; Saethre-Chotzen Syndrome; Sagittal Synostosis
    http://members.tripod.com/~Craniofacial/
    setAdGroup('67.18.104.18'); var cm_role = "live" var cm_host = "tripod.lycos.com" var cm_taxid = "/memberembedded" Search: Lycos Tripod Star Wars Share This Page Report Abuse Edit your Site ... Next
    To the Personal Side of Craniofacial Differences
    This page is dedicated to all of the people whose lives are affected by Craniofacial Disorders. If you are one of these people - this page is for you. Please look upon this page as "yours." I will need assistance from everyone to help locate as many personal pages on these disorders as we can find. We are starting out with just 15 disorders, so please feel free to e-mail me with any craniofacial disorders that are not listed here. Thanks to all who have sent me links already. Page 1
    • Antley-Bixler Syndrome
    • Apert Syndrome
    • Arhinia
    • Baller-Gerold Syndrome
    • Carpenter Syndrome
    • Cranio-Synostosis
    • Crouzon Syndrome
    • Goodman Syndrome
    Page 2
    • Jackson-Weiss
    • Langer-Geidon
    • Parry-Rombergs Syndrome
    • Pfeiffer Syndrome
    • Pierre-Robin Syndrome/Sequence
    • Saethre-Chotzen Syndrome
    • Sagittal Synostosis
    • Shprintzen-Goldberg
    • Stickler Syndrome
    • Treacher-Collins
    * Website updated March 18, 2002 *

    26. Welcome To Friends' Health Connection - Friends' Make All The Difference
    Parry rombergs syndrome PelizaeusMerzbacher Pelvic Inflammatory Disease (PID)Pericarditis Perimenopause Peripheral Neuropathy
    http://www.friendshealthconnection.org/illnesses.php
    Items: Total: $ 0.00 About Us Find a Friend (Join) Affiliate Hospitals Promotional Items ... Home List of Illnesses
    Below is a list of the health problems for which we currently have members. New members join daily. Please feel free to fill out a membership application even if your health problem is not listed. As new members join with your health problem we will connect you. A B C D ... W X Y Z A
    Abdominal Adhesions
    Abdominal Pain
    Abherrant Regeneration
    Accident survivors
    Achalasia
    Acid Reflux
    Acne Rosacea
    Acoustic Neuroma
    Acute Disseminated Encephalomyelitis Adenocarcinoma Addisons Disease Agoraphobia Adrenal Dysfunction Agnogenic Myeloid Metaplasia AIDS Alcoholism (recovering) Allergic Broncho Pulmonary Aspergillosis Allergies (General) Allergies (Bee) Allergies (Food) Allergies (to chemicals) Allergies (to mold) Alloimmunthrombocytopenia Alopecia Areata Alzheimer's Amputations Amyotrophic Lateral Sclerosis (ALS) Anaphylaxis Anemia Anemia (Hemolytic) Anemia (Pernicious) Angina Angiodema Angogenic Metaplasia Ankylosing Spondylitis (see also Arthritis) Anorectal Problems Anorexia Antiphospholipid Antibody Syndrome Anxiety Aorta Pulmonary Window Aortic Valve Replacement Aphasia Apnea (Sleep) Archnoiditis Arnold-Chiari Malformation Arteriovenous Malformation (AVM) Arteritis (Giant Cell Temple) Artheroclerosis Arthralgia Arthritis Arthritis (Adult Onset) Arthritis (Degenerative) Arthritis (Juvenile Rheumatoid) Arthritis (Non-Rheumatoid Inflammatory) Arthritis (Osteo) Arthritis (Zero-negative)

    27. Craniofacial Anomalies
    Goodman Syndrome Page 2 Jackson – Weiss Langer – Geidon Parry – rombergs syndromePfeiffer Syndrome Saethre – Chotzen Syndrome Sagittal Synostosis
    http://ibis-birthdefects.org/start/craniofa.htm
    Report Broken Links Exchange Banners Contact Us Craniofacial Anomalies See I.B.I.S in English Spanish Russian Ukranian Search
    Craniofacial Anomalies
    Craniostenosis Craniosynostosis
    Page Includes: Craniosynostoses
    [*] Outstanding
    [P] For Professionals
    [S] Support Group
    [Hungarian]
    [Ukrainian]
    CRANIOFACIAL ANOMALIES (Nicely illustrated)

    by Neil Feldstein MD, a pediatric neurosurgeon at Columbia - Presbyterian Medical Center in New York City
    from Pediatric Neurosurgery
    Craniofacial Anomalies Extramural Information Center [P] The Journal Of Craniofacial Surgery from The Journal Of Craniofacial Surgery An international journal dedicated to the art and science essential to the practice of craniofacional surgery ... Official ... [P] Society of Craniofacial Genetics from Society of Craniofacial Genetics Founded in 1975 to promote education, research, and communication in normal and abnormal development of the craniofacies ... Society for Craniofacial Morphometry from Society for Craniofacial Morphometry Ours is an interdisciplinary group, including:

    28. Facial Difference / Disfigurement / Scars Deformity - Dr.Bermant's Plastic Surge
    The Rombergs Connection http//www.geocities.com/HotSprings/1018/ internationalsupport group for people whose lives are affected by rombergs syndrome.
    http://www.plasticsurgery4u.com/web_links_folder/facial_difference.html
    PlasticWeb - websites of interest to plastic surgery patients.
    Explore PlasticWeb sites of interest to our plastic cosmetic hand and reconstructive surgery patients having concerns of facial difference. Learn about cleft lip and palate, makeup, deformity, scar treatment, prosthetics, and many other resources. Michael Bermant, MD
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    American Board of Plastic Surgery Reconstructive Hand Cosmetic Congenital Breast Skin Cancer Microsurgery
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    Search Barnes and Noble for Plastic Surgery and Cosmetic Surgery
    Ability OnLine
    www.ablelink.org
    E-mail: craig.mabee@ablelink.org
    Tel: (416) 650-6207
    Fax: (416) 650-5073 " Ability OnLine is an electronic mail system that connects young people with disabilities or chronic illness to disabled and non-disabled peers and mentors. This easy-to-use network gives "wings" to thousands of children and adolescents by removing the social barriers that can come with having a disability and illness, and by providing opportunities to form friendships, build self-confidence, exchange information, and share hope and encouragement through E-mail messages

    29. All Showcase - Health Disease And Health Conditions
    Parryrombergs syndrome (4). Passive-Aggressive Personality Disorder (4).Patellofemoral Disorder (5). Pathologic Nystagmus (5). Pathological Gambling (28)
    http://www.allshowcase.com/Health_and_Fitness/Conditions_and_Diseases/P/
    Health Disease and Health Conditions
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    30. Gigablast Search Results
    Paresthesia@ (2); Parkinson s Disease@ (92); Parryrombergs syndrome@ (4);Passive-Aggressive Personality Disorder@ (4); Patellofemoral Disorder@ (5)
    http://dir.gigablast.com/Health/Conditions_and_Diseases/P/
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    31. The Info Service
    Rombergs Connection rombergs syndrome Smiles Spina Bifida Association ofAmerica Spina Bifida Association of Greater New Orleans
    http://info-s.com/birthdefects.html
    Birth Defects Info Service
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    Amie's Treacher Collins Home Anencephalic Infant Donor Protocol Anencephaly Support Foundation (ASF) ... [Our Awards]

    32. FND / PEN Library Listing
    171, Craniofacial syndromes or anom, Parryrombergs syndrome, HTML (online). 172,Craniofacial syndromes or anom, Pfeiffer Syndrome, HTML (online)
    http://fndfl.org/PEN/Library/library_COM_DEA.htm
    FND / PEN RESOURCE LIBRARY LISTING OF PUBLICATIONS From "COMMUNITY AWARENESS" to "DEAF / DEAF-BLIND / DEAFNESS" Note: You can click on "Edit" and "Find" to search for key words. If you would like to "check out" item(s) from the FND / PEN library, and you live in Florida, place a checkmark next to the item(s) you want, then scroll to the bottom of the page. SUBJECT (first 30 characters) TITLE FORMAT Going Public: Introducing Your Child to the Community ARTICLE Going Public: Introducing Your Child to the Community ARTICLE Community Consolidated School Q & A: Has the "poisoned waters" doctrine of the 7th Circuit's 1991 decision, which gave hostile parents an "absolute veto" against a ...district...spread widely? ARTICLE Inclusive Recreation: At the Pool, Playground, Little League, or Ballet Lessons ARTICLE Community integration Beyond Benevolence: Creating a Community Where ALL Belong WORKSHOP Community integration Communitas Community Inclusion Series and Whole Community Catalogue CATALOG Community integration Mainstreaming Your Child FACT SHEET Community integration Materials on Integrated Education BIBLIOGRAPHY Resources and Reports on Community Integration BIBLIOGRAPHY Culturing Commitment ARTICLE Unfolding Capacity: People with Disabilities and Their Allies Building Better Communities Together

    33. JustCan.com Disability Directory
    Paresthesia@ (2); Parkinson s Disease@ (78); Parryrombergs syndrome@ (4);Passive-Aggressive Personality Disorder@ (4); Patellofemoral Disorder@ (5)
    http://directory.justcan.com/odpphp/odp.php?browse=/Health/Conditions_and_Diseas

    34. Casa Limiar
    The children who now have come to CASA LIMIAR have many needs and concernsrombergs syndrome, Muscular Dystrophy, epilepsy, hearing loss, congenital birth
    http://www.limiar.org/our_work/projects/CasaLimiar_000.html
    Casa Limiar Sao Paulo
    In September 2003, the first child entered CASA LIMIAR, a home for 15 abandoned and/or disabled children in Sao Paulo city.  That date marked the culmination of a dream that began 21 months earlier: to create a home for the most forgotten child and to nurture and nourish until he has reached his physical potential, seeing that a future with promise lies ahead.
    The home is located in the southern part of the city.  It contains 5 bedrooms, 4.5 bathrooms, living room, dining room, and more plus a beautiful yard with fruit trees, singing birds and even an occassional small monkey!  Our vision had been to rent a house, but  because of the generosity of many, we were able to puchase this building and property!  The last several months have been spent in modifications to the building - widening doorways and walkways, lowering sinks, mounting handrails and window protection, and building ramps at entrances.
    The children who now have come to CASA LIMIAR have many needs and concerns: Rombergs Syndrome,  Muscular Dystrophy, epilepsy, hearing loss, congenital birth defects such as club feet or open palate.  Each child sees various medical specialists, some need surgery, some need therapies, some need special classes at school...but each needs a chance to be a child.  What we do for our children, we will do for these children.  There will be birthday parties, outings to the zoo and beach, summer camps, Sunday School attendance, school uniforms and supplies, good manners taught and encouragement given. The objective is to put them on the parth to good health, education and independence  with the knowledge that God loves them and that God's people care for them.

    35. Opera Directory
    Craniosynostosis LangerGiedion Syndrome Parry-rombergs syndrome Stickler s Syndrome Moebius Syndrome support, information and resource site.
    http://portal.opera.com/directory/?cat=58483

    36. HEALTHMEDNET ILLNESS DISEASE URL DIRECTORY
    Parryrombergs syndrome http//directory.ansme.com/health/168.html. Parry-RombergsSyndrome (4) http//directory.google.co.nz/Top/Health/
    http://www.healthmednet.com/PARE-PEP.htm

    37. The World Diseases A 2 Z Names By Countrylinks And Dr Impex
    Parryrombergs syndrome. Patellofemoral Disorder. Pathological Gambling Robinow Syndrome. Rocky Mountain Spotted Fever. Romberg s Syndrome. Rosacea
    http://www.countrylinks.biz/diseases.htm

    Country Links
    Dr Impex free on-line Services Note: search with CTRL + F A Aarskog Syndrome Aase Syndrome Abetalipoproteinemia Ablepharon-Macrostomia Syndrome Achilles Tendonitis Achondroplasia Acoustic Neuroma Acromegaly Activated Protein C Resistance Acute Idiopathic Polyneuritis ADD and ADHD Addiction and Recovery Addison's Disease Adiposis Dolorosa Adjustment Disorders Adrenoleukodystrophy Agnosia Agoraphobia Aicardi Syndrome AIDS Alagille Syndrome Albinism Alcoholism Alexander Disease Alkaptonuria Allergies Alopecia Alpers' Disease Alpha1 Antitrypsin Deficiency Alport Syndrome Alstrom Syndrome Alternating Hemiplegia Altophobia Alzheimer's Amblyopia Amputee Amyloidosis Amyoplasia Congenita Amyotrophic Lateral Sclerosis Anal Fissures Anemia Anencephaly Aneurysm Angina Pectoris Anophthalmos Anorexia Anosmia Anterior Knee Pain Syndrome Antiphospholipid Syndrome Anxiety Aortic Valve Disease Apert Syndrome Aphasia Aplastic Anemia Apnea, Sleep Appendicitis Arrhythmia Arteriohepatic Dysplasia Arthritis Arthrogryposis Asbestosis Asperger's Syndrome Aspergillosis Asthma Atherosclerosis Athlete's Foot Atrial Fibrillation Attachment Disorder Attention Deficit Disorder Autism Auto Immune Disorders Aviophobia Aviatophobia B Bacillary Angiomatosis Back Disorders Bad Breath Balanitis Baldness Barth Syndrome Bassen Kornzweig Syndrome Batten Disease Beckwith-Wiedemann Syndrome Behcet's Syndrome Bell's Palsy Benign Breast Lumps Benign Prostatic Hyperplasia Berger's Disease Beriberi Beryllium Disease

    38. ScienceDaily -- Browse Topics: Health/Support_Groups/Conditions_and_Diseases/Fac
    Parryrombergs syndrome Smith-Magenis Syndrome Stickler s Syndrome Moebius Syndrome - Moebius Syndrome support, information and resource site.
    http://www.sciencedaily.com/directory/Health/Support_Groups/Conditions_and_Disea
    @import "/styles/navbar.css"; @import "/styles/tabStyles.css"; Set home page Bookmark site Add search
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    Symbols Can Help Children Control Impulses, Get More Of What They Want (September 8, 2005) full story NASA's Deep Impact Team Releases First Snapshot Of Comet Tempel 1 (September 7, 2005) Science and presented at the Division for Planetary Sciences meeting. Peter Schultz, professor of geological sciences at Brown University, was a co-investigator on the mission team. full story Flipped, Expelled, Copied, And Shrunk: Researchers Document Dramatic Genome Alterations During Primate Evolution (September 6, 2005) Genome Research presents a series of studies that provide insight into the evolution and variation of primate genomes. The issue will appear online and in print on September 1, concomitant with the publication of the chimpanzee genome sequence in the journal Nature full story Big Differences In Duplicated DNA Distinguish Chimp And Human Genomes (September 2, 2005)

    39. Discovery Health :: Infopop :: Community
    No New Content, Discussion Topic Need help in getting Perry rombergs syndromeRecognised! firehotsw23, 0, 156. 0405-05 0429 PM
    http://community.discovery.com/groupee/forums/a/frm/f/585109341
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    setLocalVars("leftnav","dhc"); setLocalVars("banners","dhc"); Forums Plastic Surgery Personal Experiences with Plastic Surgery Page
    Moderators: Go New Find Notify Tools Admin New PM! My Space Forums Profile Buddies ... Photo Album Keyword Search
    Search current forum only Advanced Search New Since your Last Visit Today's Active Topics in this Category Help ... Login/Join Welcome, Logout Topic Topic Starter Replies Views Rating Last Post Breast Reduction Post Op Problems auntilu document.write(''+ myTimeZone('Fri, 19 Aug 2005 16:33:02 GMT-0700', '08-19-05  07:33 PM')+''); 08-19-05 07:33 PM
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    Just had lipo
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    has your tummy tuck lasted? Are you still thin?

    40. CleftClub.com - Cleft Lip & Palate Support Group And Information Center - Web Li
    Crouzon Syndrome, · Crouzon Syndrome. · Parryrombergs syndrome, · Pierre Robin.· Temporo-Mandibular Joint Syndrome - TMJ, · Treacher Collins Syndrome
    http://cleftclub.com/modules.php?name=Web_Links&l_op=viewlink&cid=7

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