1. Romberg Syndrome / Family Village Library Rombergs This mailing list consists of the members of the Romberg's Connection, which is a support group for people with rombergs syndrome. http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

2. Parry Romberg Syndrome Information Page ParryRomberg syndrome information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS). http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

3. Welcome To The Romberg's Connection For more information contact Donna. Parryrombergs syndrome Information National Organization of Rare Disorders. Medical Searches http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

4. Parry-Rombergs Syndrome Information rombergs syndrome is also known as Progressive Facial Hemiatrophy (PFH). National Organization of Rare Disorders. Online Mendelian IM entry http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

5. Parry-Rombergs Syndrome The Romberg s Connection The Rombergs Connection is an international over 130individuals and families whose lives are affected by rombergs syndrome. http://www.reference.com/Dir/Health/Consumer_Support_Groups/Facial_Differences/P

Dictionary Thesaurus Encyclopedia Web Home Premium: Sign up Login YOUR AD HERE Dictionary ... Encyclopedia - Web Directory Web Directory Top Health Consumer Support Groups Facial Differences / Parry-Rombergs Syndrome The Romberg's Connection The Rombergs Connection is an international support group made up of over 130 individuals and families whose lives are affected by Rombergs Syndrome. We have come together to offer our strength, courage, support and friendship to one another. Help build the largest human-edited directory on the web. Submit a Site Open Directory Project Become an Editor Lexico Publishing Group, LLC ... Contact Us

6. Parry-Rombergs_Syndrome ParryRombergs_Syndrome 1 Parry-Rombergs_Syndrome 2 Parry-Rombergs_Syndrome 3 Parry-Rombergs_Syndrome 4 http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

7. P Parkinson´s Disease Parryrombergs syndrome Pituitary Disorders PolycysticOvarian Syndrome Post Polio Syndrome Progeria http://www.reference.com/Dir/Health/Conditions_and_Diseases/P/

Dictionary Thesaurus Encyclopedia Web Home Premium: Sign up Login YOUR AD HERE Dictionary ... Encyclopedia - Web Directory Web Directory Top Health Conditions and Diseases / P Chronic Pain Head Lice Immune Deficiency Disorders Myositis ... Respiratory Conditions Help build the largest human-edited directory on the web. Submit a Site Open Directory Project Become an Editor Lexico Publishing Group, LLC ... Contact Us

8. Directory Vaionline Siti_Mondiali/Health/Consumer_Support_G Home Siti_Mondiali Health Consumer_Support_Groups Facial_Differences ParryRombergs_Syndrome http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

9. Support Groups Parry-Rombergs Syndrome Support Groups Parryrombergs syndrome. The Romberg s Connection - The RombergsConnection is an international support group made up of over 130 individuals http://www.ability.org.uk/support_groups_parry-rombergs.html

"see the ability, not the disability" You to can help support the Ability Project by: Our Aims ... Z Support Groups Parry-Rombergs Syndrome The Romberg's Connection - The Rombergs Connection is an international support group made up of over 130 individuals and families whose lives are affected by Rombergs Syndrome. Help build the largest human-edited directory on the web. Submit a Site Open Directory Project Become an Editor Webmaster . Site Design by Ability "see the ability, not the disability" Acknowledgments

10. Parry-Rombergs SyndromeDirectory Health Support Groups Conditions Parryrombergs syndrome Directory Health Support Groups Conditions and Diseases Facial Differences Parry-rombergs syndrome Parry-rombergs syndrome http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

11. Parry Romberg Syndrome Parry Romberg Syndrome. NORD Parry Romberg Syndrome Judy s Parry-Romberg Story Marie s History With Romberg s Deformity rombergs syndrome http://www.ability.org.uk/Parry_Romberg_Syndrome.html

"see the ability, not the disability" You to can help support the Ability Project by: Our Aims ... Z Parry Romberg Syndrome NORD - Parry Romberg Syndrome Judy's Parry-Romberg Story Marie's History With Romberg's Deformity Rombergs Syndrome ... Rombergs Connection - support group for people with Romberg's. Webmaster . Site Design by Ability "see the ability, not the disability" Acknowledgments

12. 3. Romberg's Syndrome General Information, Contacts, On-line ParryRombergs-Syndrome 1. Parry Romberg Syndrome Stories from people affected by Parry Romberg syndrome, support and information. http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

13. Webeverything.co.uk Top Health Support Groups Conditions And Top Health Support Groups Conditions and Diseases Facial Differences Parryrombergs syndrome http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

14. Health Support Groups Conditions Diseases Facial Differences IndiaPress Directory powered by DMOZ of Health Support Groups Conditions Diseases Facial Differences Parry+rombergs syndrome http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

15. Welcome To The Romberg's Connection individuals and families whose lives are affected by rombergs syndrome. We havecome together to offer our strength, courage, http://www.geocities.com/rombergs/

The Romberg's Connection is an international support group made up of over individuals and families whose lives are affected by Rombergs Syndrome. We have come together to offer our strength, courage, support and friendship to one another. Parry-Romberg Syndrome Information National Organization of Rare Disorders Medical Searches Romberg's Connection News ... Frequently Asked Questions about the Romberg's Connection Photo Album (New Photo Added September 6, 2005) Our Stories (New Story Added September 3, 2005) Parent's Page Share your experiences (New Story Added September 3, 2005) Romberg's Connection Meetings (New Meeting Added July 5, 2005) Where Our Members Are Located (Updated February 10, 2005) Our Own Romberg's Survey Results Our Romberg's 2000 Survey Results Our Romberg's 2003 Survey Results Parry-Romberg: A Clinical Survey Dr. Stone's Survey Results Surgery Soundboard Other Craniofacial Disorders Sign Our Guestbook ... Read Our Guestbook Guestbook Archives We've had visitors since January 1, 2005. Past Visitors For more information about the Romberg's Connection, please e-mail us at rombergs@hotmail.com

16. Parry-Romberg Syndrome Information Listed below are links to clinic descriptions of rombergs syndrome. rombergs syndromeis also known as Progressive Facial Hemiatrophy (PFH). http://www.geocities.com/HotSprings/1018/info.html

Parry-Romberg Syndrome Listed below are links to clinic descriptions of Rombergs Syndrome. Rombergs Syndrome is also known as Progressive Facial Hemiatrophy (PFH). National Organization of Rare Disorders Online Mendelian IM entry National Institute of Neurological Disorders and Strokes Opinion on Parry Romberg Syndrome From Two Doctors ... Who Named It Please understand that Rombergs affects everyone differently. No two cases are alike. Do not substitute these descriptions for a professional diagnosis from your doctor. Back to Main Page Last Updated June 27, 2005

17. Localized Scleroderma Linear, By The International Scleroderma Neuroimaging Findings in Parry Romberg Syndrome and Scleroderma En Coup Sabre . Parryrombergs syndrome, is also known as Progressive Hemifacial Atrophy http://www.sclero.org/medical/about-sd/types/linear.html

www.sclero.org So you'd like to learn more about scleroderma? an Amazon guide by Shelley Ensz, ISN President Our site menu requires pop-ups and javascript enabled. About the ISN Join/Donate Languages Medical Scleroderma Experts Symptoms Newsroom Message Board Support Stories Support Groups SWA Sites to Surf!

18. Scleroderma Brain (Cerebral) Involvement Neuroimaging Findings in Parry Romberg Syndrome and Scleroderma En Coup Sabre . Parryrombergs syndrome, aka Progressive Hemifacial Atrophy or HFA. http://www.sclero.org/medical/symptoms/brain/a-to-z.html

www.sclero.org So you'd like to learn more about scleroderma? an Amazon guide by Shelley Ensz, ISN President Our site menu requires pop-ups and javascript enabled. About the ISN Join/Donate Languages Medical Scleroderma Experts Symptoms Newsroom Message Board Support Stories Support Groups SWA Sites to Surf!

19. Online And Offline Support: P ParryRomberg Syndrome/Romberg Syndrome. The Rombergs Connection and The Romberg sConnection People served Individuals dealing with rombergs syndrome http://www.widesmiles.org/support/p.html

P Pallister-Hall Syndrome Pallister-Hall Foundation People served: Families dealing with Pallister-Hall Syndrome Services provided: Information and referral, networking, and printed materials Address: RFD Box, 3000 Fairground Road, Bradford VT 05033 Pallister-Killian Syndrome Pallister-Killian Family Support Group People served: Individuals and families dealing with Pallister-Killian Syndrome and related syndromes Services provided: Information and support Address: 3700 Wyndale Court, Fort Worth TX 76109 Phone number: (817) 927-8854 Parry-Romberg Syndrome/Romberg Syndrome The Rombergs Connection and The Romberg's Connection Annex People served: Individuals dealing with Rombergs Syndrome Services provided: Information and support Email address: rombergs@hotmail.com Main Website: http://www.geocities.com/HotSprings/1018/ Annex Website: http://www.geocities.com/HotSprings/Spa/4818/ Pituitary Disorders Please note: Pituitary disorders can occur with craniofacial conditions. Pituitary Tumor Network Association Network People served: Individuals and families dealing with pituitary tumors or other disorders of the pituitary gland Services: Offline: Information and referral, resource guide, news on diagnosis and treatment, and support

20. Online And Offline Support: R Romberg Syndrome/ParryRomberg Syndrome. The Rombergs Connection and The Romberg sConnection People served Individuals dealing with rombergs syndrome http://www.widesmiles.org/support/r.html

R Robinow Syndrome Robinow Syndrome Foundation People served: Individuals and families dealing with Robinow Syndrome Services provided: Information and support Address: P.O. Box 1072, Anoka MN 55303 Phone number: (763) 434-1152 Email Address: kmkruger@comcast.net Contact person: Karla Kruger Romberg Syndrome/Parry-Romberg Syndrome The Rombergs Connection and The Romberg's Connection Annex People served: Individuals dealing with Rombergs Syndrome Services provided: Information and support Email address: rombergs@hotmail.com Main Website: http://www.geocities.com/HotSprings/1018/ Annex Website: http://www.geocities.com/HotSprings/Spa/4818/ Rubinstein-Taybi Syndrome Please note: Children, teens, and adults with Rubinstein-Taybi Syndrome have specific facial features that do not require reconstructive surgery. Rubinstein-Taybi Parent Group (RTPG) People served: Parents of children with Rubinstein-Taybi Syndrome Services provided: Support, parent-matching, information, and newsletter Address: PO Box 146, Smith Center KS 66967 Phone number: (785) 697-2984 Contact people: Garry and Lorrie Baxter Email address: lbaxter@ruraltel.net

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