21. Fight For Sight Ireland : Eyecare Awareness And Protection Irish charity promoting eyecare awareness and the prevention of sight loss, with information on eye diseases including AMD, Cataracts, Diabetic Retinophaty and retinitis pigmentosa. http://www.fightforsight.ie

The Fight For Sight Campaign We are Fight for Sight An Irish charity devoted to the prevention of Sight Loss. The Irish Fight for Sight Campaign is the only national voluntary organisation solely concerned with the prevention of sight loss. For further information on the work of Irish Fight for Sight and details of your local group please contact us by clicking here or through your local organiser. We aim to save sight by increasing public awareness of everyday risks and by raising money for research into eye disease and to purchase eye equipment for our hospitals. In Ireland our hospital facilities are as good as anywhere in the world. Our doctors are dedicated and highly skilled. But it is no secret that money is constantly required to continue and increase this good work. The Irish Fight for Sight Campaign was founded specifically to work against sight loss. You can help us in this important task.

22. News - Omega-3 Fatty Acid Therapy Does Not Slow Progression Of Omega3 Fatty Acid Therapy Does Not Slow Progression Of retinitis pigmentosa In Patients Receiving V http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

23. BRPS Home Page - London, United Kingdom British retinitis pigmentosa Society a self help group fighting blindness in the UK through direct research. Over £1m a year raised for research and http://www.brps.org.uk/

Welcome to The Home Page of The British Retinitis Pigmentosa Society This Web Site aims to provide a better understanding of the inherited Retinal Disorders known as Retinitis Pigmentosa (RP), Macular Degeneration, Usher Syndrome and other allied Retinal Dystrophies. The content of this web site has been written by people who have many years experience of living with RP and by very knowledgeable professionals in the field of Ophthalmology. It is hoped that this web site will be helpful to people who have RP, and also their relatives and friends. In addition it should provide valuable information to those whose work brings them into contact with people who have RP. This Web Site covers such areas as Who is the British Retinitis Pigmentosa Society, Understanding RP and the Changes brought about by RP, Genetics and Inheritance Patterns of RP, Young People with RP, Tests and Questions concerning the Diagnosis of RP at the Eye Clinic, Articles of Interest and Information about RP, Events Happening in the RP World, A RP Email Chat Forum, and an Extensive Lists of Questions and Answers about RP. This Web Site is Viewable as Either Graphics and Text OR Black Text on White Background OR Yellow Text on Black Background Web Site Designed and Created by Jonathan M. Abro

24. Retinitis Pigmentosa / Family Village Library retinitis pigmentosa See also Usher Syndrome http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

25. A Guide To Retinitis Pigmentosa retinitis pigmentosa is the name given to a group of disorders of the Retina, The name retinitis pigmentosa was applied by a Doctor Donders in 1857. http://www.brps.org.uk/Graphics/G_Guide.html

A Guide to Retinitis Pigmentosa Black Text on White Background ] or [ Yellow Text on Black Background LIVING WITH RETINITIS PIGMENTOSA. Accepting Retinitis Pigmentosa Some Effects Of Retinitis Pigmentosa ... Inheritance Patterns LIVING WITH RETINITIS PIGMENTOSA Accepting Retinitis Pigmentosa You may have been told recently or you have known for some years that you have Retinitis Pigmentosa (RP). This diagnosis could well help to explain the months or years of not being able to see properly in the dark, of stumbling into things and of falling over objects which you did not see. You will possibly have been told that, at present, there is no cure for RP and that you have to face the prospect of slowly deteriorating sight. Slow loss of sight is a difficult disability to live with, especially as you may not receive the immediate sympathy and understanding usually shown to the totally blind. Indeed many people will not believe that you have a loss of sight because you have no obvious sign of visual impairment. The first and hardest step towards living positively with a disability is accepting it. If you have RP this means knowing the limitation of your vision and learning to use intelligently the visual clues you still receive. In certain circumstances a normally sighted person must also do this. For example, the driver who suddenly plunges into fog has two alternatives. He can panic and perhaps cause an accident or he can recognise his visual limitations, take note of what he can see and move cautiously down the road. Likewise those with RP can panic or they can adjust to their changed circumstances and move on down the road of life.

26. Maggy´s Traumwelt Liebe, Gedichte, M¤rchen, Reiki, Krankheit, retinitis pigmentosa, Liebesgr¼sse, Gifs, Privates und Familie. http://www.maggy1.at

Lichtermeer für Toleranz und Menschenachtung Tritt ein in meine Traumwelt ! Sonntag, 27 Februar 2005 Sollte sich auf meiner HP ein Bild befinden, das geschützt ist und nicht im Internet verwendet werden sollte oder dürfte, bitte ich um eine Mail mit einer Benachrichtigung, damit ich dieses umgehend von meiner HP entfernen kann.

27. RP International Despite the millions who have retinal degenerative diseases, names like retinitis pigmentosa (RP) Macular Degeneration and Usher's Syndrome http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

28. Texas Association Of Retinitis Pigmentosa (TARP) A nonprofit support group for people with RP and other retinal diseases. Includes articles, support, links and general information. http://www.geocities.com/HotSprings/7815/front.htm

Main Founder Ushers Syndrome Getting Support ... Contact Us This page last updated 4/25/1999 Created by John Wenberg http://www.jwen.com What is TARP? The Texas Association of Retinitis Pigmentosa, Inc., TARP is a nonprofit, 501 (c) (3) organization based in Texas. It serves as a national information sharing center to provide services to persons with progressive vision loss. What are our goals? Since the conception of TARP in 1979, our purpose has been to educate the public in general about eye diseases that cause blindness, and in particular, to assist individuals and their families who have just received a prognosis of Retinitis Pigmentosa and "impending blindness." Once a person leaves the doctor's office with the "bad news," their lives are changed forever. However, with better understanding, guidance, emotional support and connecting with others who have lived with it, the experience need not hold a bleak future for the individual. What are the symptoms of RP? Difficulty seeing in the dark or dim light Bumping into objects which seem to appear out of nowhere Missing steps and curbs Tripping, stumbling and fumbling

29. BRPS Home Page - London, United Kingdom British retinitis pigmentosa Society a self help group fighting blindness in the UK through direct research. Over 1m a year raised for research http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

30. R.P. Retinitis Pigmentosa Synproblem Näthinnan Ögon Ögonsjukdom Om Annika, som har retinitis pigmentosa. http://www.abc.se/~m10039/annika.htm

Hjälp mig innan det är försent. Hej, jag heter Annika Wistrand/Högel och är 26 år. Jag föddes med en sjukdom som heter R.P. ( Retinitis Pigmentosa ). Läkarna trodde först att jag var skelögd och gav mig lapp för ögat och glasögon för översynthet. Först vid 14 års ålder märkte jag själv att något inte stämde. Innan dess hade jag kunnat läsa en tidning utan glasögon och blev förskräckt över hur mycket min syn hade försämrats. Nästa gång jag märkte en försämring var när jag och en kamrat kastade freesbe, först såg jag den och i nästa stund var den borta. Det var då jag kontaktade min ögonläkare för kontroll av synen, och fick bekräftat att en kraftig försämring hade inträffat. Sjukdomen består av så kallade fläckar på näthinnan, och i dessa fält som fläckarna utgör, försvinner min syn. Idag har jag en syn som ligger på ca 5 % av det normala men den försämras allt eftersom. På det här sättet hoppas jag få kontakt med forskare världen över som studerar denna sjukdom, Retinitis Pigmentosa; Läkare, Professorer, Universitet eller Sjukhus och/eller personer som är i samma situation som jag. Läkarnas diagnos är : Progredierande retinal degenerativ sjukdom.

31. MedlinePlus Medical Encyclopedia Retinitis Pigmentosa retinitis pigmentosa Contents of this page Illustrations. Alternative names. Definition. Causes, incidence, and risk factors. Symptoms http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

32. Retinitis Pigmentosa Home Page Joe Hollyfield s successful visit to South Africa. Stargardt Gene tracking project enrolling now. For more information click here http://www.rpsa.org.za/

Joe Hollyfield's successful visit to South Africa Stargardt Gene tracking project- enrolling now For more information click here Created and maintained by Intekom works Intekom

33. Retina Suisse Die Schweizer Selbsthilfeorganisation von Menschen mit retinitis pigmentosa (RP), Makuladegeneration, Usher Syndrom und anderen degenerativen Netzhauterkrankungen informiert ¼ber die Erkrankungen und die Organisation. http://www.retina.ch/home_d.php

Weiter zu Retina Suisse Weiter zu Retina Suisse

34. Retinitis Pigmentosa / Family Village Library retinitis pigmentosa International supports research to end blindness from retinitis pigmentosa International publishes a quarterly newsletter The Night http://www.familyvillage.wisc.edu/lib_retp.htm

Retinitis Pigmentosa See also Usher Syndrome Who to Contact Where to Go to Chat with Others Learn More About It ... Search Google for "Retinitis Pigmentosa" Who to Contact Retinitis Pigmentosa International (HPI) P.O. Box 900 Woodland Hills, California, USA, 91365 818-992-3265 (fax) E-mail: info@rpinternational.org Web: http://www.rpinternational.org/ Retinitis Pigmentosa International supports research to end blindness from degenerative eye disease, promote a public awareness and education campaign, and provide human services programs to better the quality of life for those with vision loss. Retinitis Pigmentosa International publishes a quarterly newsletter The Night Lighter, and offers many pamplets on current treatments, and research in progress. They have available "How to Survive Losing Vision" in print and audio versions. Call for charges for these and any other information. Retinitis Pigmentosa International has local support groups and will provide materials and assistance to individuals wishing to start a group in their area. They also provide services for the visually impaired of all kinds, and in all states. Where to Go to Chat with Others Retinitis Pigmentosa A place for people with Retinal Degnerative diseases. Retinitis Pigmentosa, Ushers Syndrome, Macular Degeneration and others.

35. Prevent Blindness America - Retinitis Pigmentosa Prevent Blindness America is the nation s leading volunteer eye health and safety organization dedicated to fighting blindness and saving sight. http://www.preventblindness.org/eye_problems/rpFAQ.html

Living with Low Vision Other Eye Problems ... work! Frequently Asked Questions about Retinitis Pigmentosa Q: What is retinitis pigmentosa? A: Retinitis pigmentosa (RP) is the name for a group of eye diseases. RP causes the thin layer of tissue in the back of the eye, which is called the retina, to deteriorate. RP diseases are genetic and are passed down from one or both parents. RP damages the cells in the retina that sense light. These cells are known as rods and cones. The rods are associated with side vision and night vision. Clear central vision and color vision are associated with the cones. RP mutates the genes of the rod cells and they slowly stop working. As the rod cells stop working, peripheral vision is slowly lost until you can only see a small tunnel of vision straight ahead. RP can cause serious vision loss. Q: How common is RP? A: Roughly 400,000 Americans have retinitis pigmentosa and other related retinal disorders. Q: What are the signs of RP I should watch for?

36. RP International Despite the millions who have retinal degenerative diseases, names like retinitis pigmentosa (RP) Macular Degeneration and Usher s Syndrome are unfamiliar http://www.rpinternational.org/

Your donation to RP International will help to fight blindness. R.P. = BLINDNESS It's as simple as that! This equation is the unfortunate reality for millions of children and adults with degenerative diseases of the retina. With your help, we at RP INTERNATIONAL can continue our fight against blindness and change the equation to read: We have found a cure for R.P. WHO NEEDS YOUR GIFT? CHILDREN: Like other diseases, RP strikes people of all ages. Unfortunately children are most commonly diagnosed. Day by day, children slowly lose a little more of their vision. ADULTS: While some people with RP will be totally blind by the age of 20, others are able to maintain partial sight into later years. These people make up a group called: "The Sighted Blind" WHERE YOUR MONEY GOES! RESEARCH: Our research advisory board invites requests for funds from prestigious research centers, then evaluates them and awards the most promising. We are determined to stop RP within this generation. INFORMATION SERVICES: It is more difficult to raise funds for diseases which are little known to the public. Despite the millions who have retinal degenerative diseases, names like Retinitis Pigmentosa (RP) Macular Degeneration and Usher's Syndrome are unfamiliar to most ears. We're spreading the word.

37. Retinitis Pigmentosa retinitis pigmentosa is a term coined by Donders in 1855. It is not one disease, Condensered.gif (846 bytes) A Guide to retinitis pigmentosa http://www.lowvision.org/retinitis_pigmentosa.htm

Retinitis Pigmentosa and Usher's Syndrome Understanding the Visual Problems of Retinitis Pigmentosa Richard L. Windsor, O.D., F.A.A.O. Laura K. Windsor, O.D., F.A.A.O. Published in Vision Enhancement Journal Retinitis pigmentosa is a term coined by Donders in 1855. It is not one disease, rather a group of retinal diseases with common attributes. The incident seems to be about one in every 4,000. It can be inherited by at least three different methods. Severity and speed of vision loss vary with each form of inheritance. The following are problems common to RP. Tunnel Visual Field Progressive loss of visual fields is a hallmark of RP. The visual field loss often begins as a donut like ring in mid-periphery. As it progresses both centrally and peripherally, the resultant tunnel vision begins to affect the patient’s activities, driving and mobility. Many patients still drive automobiles in the early stages of RP, but the risks for accidents increase as the field reduces. The functional field will be worse at night and in bad weather. Even RP patients in the early stages should not drive in these situations. As the field loss progresses, daytime driving must be curtailed. Studies suggest that on average, the visual field of the RP patient declines by 5% of the remaining field per year.

38. Retina International Seeking a cure for retinitis pigmentosa (RP),. Macular Degeneration, Usher Syndrome. and allied retinal distrophies. Click this Image to enter the Retina http://www.retina-international.org/

Retina International Seeking a cure for Retinitis Pigmentosa (RP), Macular Degeneration, Usher Syndrome and allied retinal distrophies Retina International Scientific Newsletter An extensive collection of integrated data on retinal disorders, proteins and genetics for both, the researcher and clinician. The Newsletter also features a number of useful web links to other associations, researchers, databases as well as off-/online software. Retina International Learn more about retinal degenerations including the ways in which a person with a retinal degeneration sees his world. Find out what Retinal International does and about its member societies together with contacts in your country.

39. Retinal Degenerative Diseases - Retinitis Pigmentosa (RP) Retinal degenerative diseases. What is retinitis pigmentosa (RP). An Explanation. http://www.retina-international.org/rp.htm

Retina International Seeking a cure for Retinitis Pigmentosa (RP), Macular Degeneration, Usher Syndrome and allied retinal distrophies Retinitis Pigmentosa (RP) Retinitis Pigmentosa Frequently Asked Questions What is RP? Retinitis Pigmentosa (RP) is the name given to a group of degenerative diseases of the retina. The retina, at the back of the eye, is a thin sheet of interconnected nerve cells including the light sensitive cells (rods). It is here that light is converted into electrical signals to the brain where "seeing" takes place. In RP the rod and cone cells degenerate. Depending on the type of RP, the rate of progression varies. What are the symptoms? Usually the rod cells are the first to be affected. They are concentrated away from the centre of vision in the retina and are responsible for seeing in dim light. Thus, one of the earliest symptoms is often night blindness followed by loss of peripheral vision leading to "tunnel vision". Cone cells in contrast are concentrated in the centre of the retina and are responsible for brightly detailed colour vision. In cases where the cone cells degenerate first, central vision becomes blurred and loss of colour perception occurs. Peripheral vision is initially retained. Although the majority of people with RP do not suffer from associated disabilities, it does happen. Deafness associated with RP in a condition known as Usher syndrome is one such disability.

40. Retinitis Pigmentosa Or RP - AllAboutVision.com retinitis pigmentosa a guide to causes, symptoms and treatment. http://www.allaboutvision.com/conditions/retinapigment.htm

Retinitis Pigmentosa By Gretchyn Bailey ; reviewed by Dr. Vance Thompson Retinitis pigmentosa is a rare, inherited disease in which the light-sensitive retina of the eye slowly and progressively degenerates. Eventually, blindness results. Retinitis Pigmentosa Symptoms and Signs Usually the first signs of this disease occur in early childhood. Vision at night is poor and becomes worse; also there is a narrowing of the field of vision. During later stages of retinitis pigmentosa, only a small area of central vision remains, along with slight peripheral vision What Causes RP? Not much is known about the cause of retinitis pigmentosa, except that it is inherited. If neither of your parents have retinitis pigmentosa, at least one of them must be a carrier. A shrinking field of vision is one of the early warning signs of retinitis pigmentosa. Retinitis Pigmentosa Treatment There is no treatment for retinitis pigmentosa, although some practitioners believe that vitamin A may slightly delay vision loss. Occupational therapy may be wise before much of vision is lost. It may be easier to learn how to work around vision loss while vision is still available. Researchers are looking into ways to treat RP in the future, such as retinal implants and drug treatments.

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