41. Hayleys Progeria Page Information and Photos about a child with the rare genetic disorder, progeria including photographs, media articles, links to other progeria related sites. http://www.hayleyspage.com/

Welcome to Hayleys Progeria Page! This website is dedicated to our daughter, Hayley Okines who suffers from an extremely rare genetic condition called Hutchinson Gilford Progeria Syndrome, also known as HGPS or Progeria. At present there are about 40 known cases of Progeria around the world and only 4 in the UK, which is where we live. Progeria is a progressive terminal condition which mimics many of the characteristics of the normal ageing process, but faster...a lot faster...about 8 times faster in fact! A 10 year old progeria child will have the appearance of an octogenerian with symptoms including baldness, arthritis and heart problems...but with the mind of a 10 year old! The average lifespan of children with Progeria is about 13 and at present there is no cure. The purpose of this website is to educate, inform and most importantly raise awareness of this little known disease. When Hayley was diagnosed with Progeria in 1999 we had never heard of it and neither did any of our friends or family. With the help of the internet we were able to build an understanding of Progeria as well as finding organisations and individuals that can help. Correspondence can be sent to;

42. EMedicine - Hutchinson-Gilford Progeria : Article By Hans-Wilhelm Kaiser, MD HutchinsonGilford progeria - Hutchinson-Gilford syndrome (HGS) is a subset of connective tissue disease characterized by signs of premature aging. http://www.emedicine.com/derm/topic731.htm

(advertisement) Home Specialties Resource Centers CME ... Patient Education Articles Images CME Patient Education Advanced Search Consumer Health Link to this site Back to: eMedicine Specialties Dermatology Pediatric Diseases Hutchinson-Gilford Progeria Last Updated: February 15, 2002 Rate this Article Email to a Colleague Synonyms and related keywords: Hutchinson-Gilford syndrome, HGS, premature senility syndrome AUTHOR INFORMATION Section 1 of 10 Author Information Introduction Clinical Differentials ... Bibliography Author: Hans-Wilhelm Kaiser, MD , Professor, Department of Dermatology, University of Bonn, Germany Coauthor(s): Julia Hanfland, MD , Consulting Staff, Department of Dermatology, University of Bonn, Germany Editor(s): Mark A Crowe, MD , Assistant Clinical Instructor, Department of Medicine, Division of Dermatology, University of Washington School of Medicine; David F Butler, MD Robert A Schwartz, MD, MPH , Professor and Head, Dermatology, Professor of Pathology, Pediatrics, Medicine, and Preventive Medicine and Community Health, UMDNJ-New Jersey Medical School; Joel M Gelfand, MD, MSCE

43. EMedicine - Progeria (Werner Syndrome) : Article By Anna Wozniacka, MD, PhD progeria (Werner Syndrome) Otto Werner originally defined Werner syndrome (WS) in 1904 on the basis of sclerodermalike, thin, tight skin and bilateral http://www.emedicine.com/derm/topic697.htm

(advertisement) Home Specialties Resource Centers CME ... Patient Education Articles Images CME Patient Education Advanced Search Consumer Health Link to this site Back to: eMedicine Specialties Dermatology Pediatric Diseases Progeria (Werner Syndrome) Last Updated: May 1, 2002 Rate this Article Email to a Colleague Synonyms and related keywords: progeria adultorum, progeria of the adult, pangeria, WS, premature aging disorders AUTHOR INFORMATION Section 1 of 11 Author Information Introduction Clinical Differentials ... Bibliography Author: Anna Wozniacka, MD, PhD , Adjunct Lecturer, Department of Dermatology, Medical University of Lodz, Poland Coauthor(s): Camila K Janniger, MD , Chief of Pediatric and Geriatric Dermatology, Clinical Professor, Dermatology and Clinical Associate Professor, Pediatrics, UMDNJ-New Jersey Medical School Anna Wozniacka, MD, PhD, is a member of the following medical societies: European Academy of Dermatology and Venereology European Society for Dermatological Research , and Polish Association of Dermatology Editor(s): Takuo Tsuji, MD

44. ► Progeria A medical encycopedia article on the topic progeria. http://www.umm.edu/ency/article/001657.htm

var MenuLinkedBy='AllWebMenus [2]', awmBN='530'; awmAltUrl=''; Disease Nutrition Surgery Symptoms Injury ... Z Maryland Medical Center Programs UM Hospital for Children Home Medical Reference Encyclopedia (English) Toggle English Spanish Progeria Overview Symptoms Treatment Prevention Definition: Progeria is a disease that produces rapid aging starting in childhood. Alternative Names: Hutchinson-Gilford syndrome Causes, incidence, and risk factors: The exact cause of progeria is unknown, although a hereditary component may be involved. Progeria is a rare condition but has come into public awareness because its symptoms strongly resemble normal human aging as well as the appearance of several affected children in movies on national television. Progeria results in rapid aging of children, beginning with growth failure during the first year of life that results in disproportionately small bodies given the size of their heads. The children are thin with baldness , wizened narrow faces, and old-appearing skin. Children with progeria develop early atherosclerosis. The average lifespan is the early teens, some patients live up to 30 but lifespan is shortened. The cause of death is usually related to the heart or a

45. Progeria Informatie progeria portaalsite voor België. Deze artsen hebben progeria voor de eerste keer beschreven. Een ander woord is progeria Infantiles . http://www.progeria.centerall.com/custom1.php

Progeria Informatie Home Contact Identiteit Michiel Informatie Progeria ... Gastenboek PROGERIA Wedloop met de tijd Te jong om al oud te zijn Michiel is niet zomaar een dingetje, iets bloots, diep in dat dingetje verbergt zich iets groots. Er woont een wonder in, iets ongelooflijks machtig, Michiel is méér dan alleen maar prachtig, we weten wat het is, en hij maakt ons sterk, zo'n mensenkind is niet alleen maar mensenwerk. 1. Voorwoord : Omdat wij een zoontje hebben die lijdt aan deze zeldzame ziekte, Progeria, gaan wij deze dodelijke kinderziekte beschrijven en de aspecten ervan uitleggen.  Aangezien wij er dagelijks rechtstreeks bij betrokken zijn, hebben wij inmiddels een hele hoop informatie die wij met jullie willen delen.  Onze betrachting is immers om de juiste informatie naar buiten te brengen en om Progeria meer bekendheid te geven. De omgeving van de ouders en het kind weet vaak niet hoe zij zich moeten gedragen.  Het kind ziet er immers totaal anders uit dan andere kinderen, kan uiteindelijk niet meer zo spelen als andere kinderen en zal ook nog op vrij jonge leeftijd komen te overlijden.  Ook de hulpverlening schiet vaak tekort en blijkt niet altijd de steun te geven die wij, de ouders, zo nodig hebben.  Door middel van deze informatie willen wij iedereen attent maken op Progeria en de problemen die een relatief onbekende zeldzame ziekte met zich meebrengt.

46. Richland College, Biol. 2402 - Introduction To Progeria progeria is a rare genetic disease resulting in accelerated aging. Werner syndrome is commonly referred to as progeria of the adult. http://www.rlc.dcccd.edu/MATHSCI/reynolds/progeria/intro/progeria1.htm

Progeria An Introduction RICHLAND COLLEGE SPRING 2001 Class Project Web project members: Dina Hunter Katie Morgan Progeria is a rare genetic disease resulting in accelerated aging. The name stems from the Greek, and means "prematurely old" . Progeria occurs in two forms. Hutchinson -Gilford progeria syndrome was first described by English surgeons Jonathan Hutchinson in 1886 and by Hastings Gilford in 1904. It is known as the progeria of childhood and is usually diagnosed in the first or second year of life. Werner syndrome is commonly referred to as "progeria of the adult." It was first described in 1904 by general practitioner Otto Werner. Both conditions result in the appearance of symptoms, which normally occur in people who are seventy years of age or more("The Progeria Research Foundation"). Many Americans may recall seeing the children affected with Hutchinson-Gilford on television series, such as the Maury Povich Show, or perhaps, they may recall the news media reports in 1981 of the first meeting of two affected children. Wherever you may have seen these wonderful people it is hard not to notice their small stature, baldness, and aged looking skin. Despite their outward appearance, these children are happy, self-confident, and possess a spirit that serves as an example to all. The self-esteem and mental strength these children have is largely due to those who have dedicated their lives to research and to those who reach out to lend a helping hand.

47. Richland College, Biol. 2402 - Genetics Of Progeria progeria has been determined to be genetic, that is, the disease is passed along Until more research can be done on the genetic basis of progeria and http://www.rlc.dcccd.edu/MATHSCI/reynolds/progeria/genetics/progeriagenetics.htm

The Genetics Of Progeria RICHLAND COLLEGE SPRING 2001 Class Project Web project members: Megan Gardner Lindsey Leger Stacie Stricklin Progeria has been determined to be genetic, that is, the disease is passed along during cell division in the formation of a fetus. The disease is not necessarily hereditary because parents of children with progeria are not affected, nor do they carry a gene for it. We know this because of recent analysis that has been done on the chromosomes of genes with people affected by progeria.There is an inverted insertion in the long arm of Chromosome 1 in 70% of the cells studied. This evidence suggests that the gene for progeria is located on Chromosome 1. The gene is not necessarily one that is passed down from parent to child, but rather is a normal chromosome contributed by each parent that mutates during cell division. That mutation is then replicated during subsequent divisions. The cause for this mutation is unknown. This mutation was first suggested to be autosomal recessive based on studies done between 1920 and 1960, however studies done in the 1970’s show the mutation is autosomal dominant. This finding means that the mutation occurs on only one of the two chromosomes in the pair, rather than on both chromosomes like a recessive mutation would suggest. It has been suggested that the gene for Werner’s Syndrome lies on Chromosome 8

48. Progeria Among the rarest people in the world are those with progeria, Also known as HutchinsonGilford progeria Syndrome is an extremely rare genetic disease. http://www.manbir-online.com/diseases/progeria.htm

Sorry, your browser doesn't suppor Java. Progeria Among the rarest people in the world are those with progeria, or accelerated aging disease. While leaving intelligence intact, progeria ages the body many times faster than normal, leaving teens with frail bodies of people nearing 100 years old. First described by Dr. Jonathan Hutchinson in 1886 and Dr. Hastings Gilford in 1904. Also known as Hutchinson-Gilford Progeria Syndrome is an extremely rare genetic disease . In this disease the aging process of the body accelerates much faster than what it does in normal humans. This process of aging gallops to about seven times the normal rate. Because of this accelerated aging, a child of ten years would have a look of 70 years old. He or she may also have similar respiratory, cardiovascular, and arthritic conditions that a 70-year-old would have. There is no cure for this disease. The exact cause is unknown, but it is believed due to a single abnormal (mutant) gene. Normally for each gene there are two copies, one from each parent. Progeria is considered to be the result of a

49. Project Progeria PROJECT progeria September 1st 2004. Today s meeting was about the upcoming Bake Sale in University Hall during the week of Sept. 2024th. http://www.uta.edu/student_orgs/progeria/

Events About HGP Pictures Advisors ... Links Project Progeria Progeria Research Foundation Sunshine Foundation PROJECT PROGERIA September 1st 2004 Today's meeting was about the upcoming Bake Sale in University Hall during the week of Sept. 20-24th. A Food Sale will be held in mid-November. For those who are interested in helping, please contact us at project_progeria@hotmail.com.

50. Project Progeria Courtesy of the progeria Research Foundation and the families of the children with progeria. *** Pictures were taken at Sunshine Foundation s Reunion. http://www.uta.edu/student_orgs/progeria/abouthgp.html

Events About HGP Pictures Advisors ... Links Project Progeria Progeria Research Foundation Sunshine Foundation ** Courtesy of the Progeria Research Foundation and the families of the children with Progeria. Pictures were taken at Sunshine Foundation's Reunion. HGPS (Hutchinson-Gilford Progeria Sydrome) is an infrequent but terminal illness that affects 1 out of 4 million children throughout the world. Cases have been reported in Algeria, Australia, Austria, Canada, China, England, France, Germany, Mexico, Puerto Rico, South Africa, South America, Switzerland, Turkey, the United States, Venezuela and Vietnam. Currently, there's an estimated 40 individuals living with this terminal ailment. HGPS was first described by Jonathan Hutchinson, an English doctor in 1886 and shortly after by Hastings Gilford. The "old man appearance" was later termed Hutchinson-Gilford Progeria. Since Dr. Hutchinson's first sighting of a 3 year old male patient with an unusual old man appearance, a little over a 100 cases have been reported. Generic characteristics of HGPS appear a year or two after birth and include an old aged appearance, sudden loss of hair, prominent scalp veins, beaked nose, stunted growth, craniofacial disproportion, soft bones, joint stiffness, and loss of subcutaneous fat. Many of the problems associated with HGP include: mycardial infarction, atheriosclerosis, alopecia (loss of hair), hip dislocation, osteoporsis, cerebrovascular complication, and etc.

51. Introduction: Progeria - WrongDiagnosis.com Introduction to progeria as a medical condition including symptoms, diagnosis, misdiagnosis, treatment, prevention, and prognosis. http://www.wrongdiagnosis.com/p/progeria/intro.htm

Home Symptoms Diseases Risks ... Diseases Search our medical database Subscribe to our free Newsletter sample Send this page to a friend Condition Lists By Organ By Symptom By Class By Prevalence ... List A-Z Current chapter: Progeria Next sections Basic Summary for Progeria Symptoms of Progeria Doctors and Medical Specialists for Progeria Glossary for Progeria Next chapters: Convulsions Eyebrow conditions Dacryocystitis Hyphema ... Feedback Introduction: Progeria Progeria: Rare condition causing very premature aging. Researching symptoms of Progeria: Further information about the symptoms of Progeria is available including a list of symptoms of Progeria , or alternatively return to research other symptoms in the symptom center Contents for Progeria: Basic Summary for Progeria Symptoms of Progeria Doctors and Medical Specialists for Progeria Glossary for Progeria ... Diseases Did we miss something? Please provide feedback or suggestions By using this site you agree to our . Information provided on this site is for informational purposes only; it is not intended as a substitute for advice from your own medical team. The information on this site is not to be used for diagnosing or treating any health concerns you may have - please contact your physician or health care professional for all your medical needs. Please see our IMPORTANT! Use of this site is subject to our

52. GeneReviews: Hutchinson-Gilford Progeria Syndrome Your browser does not support HTML frames so you must view HutchinsonGilford progeria Syndrome in a slightly less readable form. Please follow this link to http://www.genetests.org/query?dz=hgps

53. Progeria Records - Epitonic.com: Hi Quality Free And Legal MP3 Music The premier site for independent music on the web. Downloadable and streaming music for those not satisfied with the stagnant world of popular music. http://www.epitonic.com/labels/progeriarecords.html

@import "http://www.epitonic.com/css/hideit.css"; a word from our sponsors This site may be viewed in any browser or Internet device, but looks best in one that complies with web standards genres Rock Punk ... list all genres Progeria Records other resources: message board This small Pittsburgh, Pennsylvania-based label specializes in punk rock that leans towards the hysterical and the psychotic. The blistering, ear-bleeding sounds of the bands on this label will challenge you sonically, psychically, and spirtitually. The 1985 Progeria Records message board This is violence of the most sublime variety. The 1985 are twisted and beautiful in the vein of Antioch Arrow and other San Diego art-punk heroes. track title sample full song blackbox It's My Antennae sample go to track Anonymous Gay Sex sample go to track Warning Shot sample go to track Shooting Blanks sample go to track Sophomore sample go to track R U Making Friends sample go to track this music filed under: Punk Math Rock Rock (the) Control Group ... message board This is a spastic free-association punk rock noise explosion mixed in with a funky groove, slick New Wave synths, and a dollop of soul. Are you ready to hand yourself over to (the) Control Group? The sooner you admit that you're not in charge, the easier it will be... track title sample full song blackbox His Romance Is Gone sample go to track RNNNGSHS sample go to track Leviathan sample go to track this music filed under: Punk No Wave Indie Rock Creta Bourzia ... message board Creta Bourzia represents Pittsburgh with a precise mutation of metal and math rock that sounds like the collision of Drive Like Jehu and Kyuss.

54. Clinical Trial: Clinical Studies Of Progeria This study will examine children with HutchinsonGilford progeria Official Title Clinical Investigations into Hutchison-Gilford progeria Syndrome http://www.clinicaltrials.gov/ct/show/NCT00094393

Home Search Browse Resources ... About Clinical Studies of Progeria This study is currently recruiting patients. Verified by National Institutes of Health Clinical Center (CC) August 22, 2005 Sponsored by: National Human Genome Research Institute (NHGRI) Information provided by: National Institutes of Health Clinical Center (CC) ClinicalTrials.gov Identifier: Purpose This study will examine children with Hutchinson-Gilford Progeria syndrome, a genetic disease that causes many changes to the body over time, including heart disease, bone changes, hair loss, and joint and skin changes. Often called a "premature aging" disease, progeria does not mimic aging completely. This study will examine which body systems are affected in progeria and how each system is affected over time in order to try to develop new treatments. Patients with progeria who are between 6 months and 70 years of age and who are able to travel to the NIH in Bethesda, Md., may be eligible for this 5- to 10-year study. Participants come to the NIH Clinical Center for evaluation every 2 years. Each 4-5 day visit includes the following tests and procedures: -Medical history and physical examination -Blood tests to analyze cardiovascular risk factors, blood counts, blood chemistries, and for research

55. Clinical Trial: Clinical Studies Of Progeria Patients with progeria who are between 6 months and 70 years of age and Official Title Clinical Investigations into HutchisonGilford progeria Syndrome http://www.clinicaltrials.gov/ct/gui/show/NCT00094393

Home Search Browse Resources ... About Clinical Studies of Progeria This study is currently recruiting patients. Verified by National Institutes of Health Clinical Center (CC) August 22, 2005 Sponsored by: National Human Genome Research Institute (NHGRI) Information provided by: National Institutes of Health Clinical Center (CC) ClinicalTrials.gov Identifier: Purpose This study will examine children with Hutchinson-Gilford Progeria syndrome, a genetic disease that causes many changes to the body over time, including heart disease, bone changes, hair loss, and joint and skin changes. Often called a "premature aging" disease, progeria does not mimic aging completely. This study will examine which body systems are affected in progeria and how each system is affected over time in order to try to develop new treatments. Patients with progeria who are between 6 months and 70 years of age and who are able to travel to the NIH in Bethesda, Md., may be eligible for this 5- to 10-year study. Participants come to the NIH Clinical Center for evaluation every 2 years. Each 4-5 day visit includes the following tests and procedures: -Medical history and physical examination -Blood tests to analyze cardiovascular risk factors, blood counts, blood chemistries, and for research

56. ORPHANET - Maladies Rares - Médicaments Orphelins Translate this page La progeria de Hutchinson-Gilford est une affection caractérisée par un vieillissement prématuré de début postnatal. Les signes cliniques et radiologiques http://www.orpha.net/consor/cgi-bin/OC_Exp.php?Lng=FR&Expert=740

57. GNN Profile: Progeria progeria. rank, Conscript. points, 0. location, US. blog. Michael Jackson and Postmodernism. B07665 / Mon, 25 Jul 2005 201556 / Media http://progeria.gnn.tv/

content new all articles headlines videos links ... GNN STORE Buy GNN's award-winning DVDs TRUE LIES The GNN Book "Inflammatory" - NY Observer Sign up for the GNN newsletter to get the first word on video premieres and breaking news. Check out the GNN 2.0 blog to get the latest news about site updates and features. Read the GNN FAQ for information about the site, forum rules and other GNN 2.0 information. Optimized for FireFox To download the Firefox web browser, visit mozilla.com Donate to the Hurricane Katrina Relief Effort progeria rank: Conscript points: location: US Create your own GNN profile/blog page.

58. Hutchinson-Gilford Progeria Syndrome - Genetics Home Reference What other names do people use for HutchinsonGilford progeria syndrome? Mutations in the LMNA gene cause Hutchinson-Gilford progeria syndrome. http://ghr.nlm.nih.gov/condition=hutchinsongilfordprogeriasyndrome

Home What's New Browse Handbook ... Search Hutchinson-Gilford progeria syndrome Related Gene(s) Quick links to this topic NIH Publications National Institutes of Health MedlinePlus Health Information Educational resources Information pages Patient support For patients and families Gene Reviews Clinical summary Gene Tests DNA test labs ClinicalTrials.gov Research studies PubMed Recent literature OMIM Genetic disorder catalog References Hutchinson-Gilford progeria syndrome On this page: What is Hutchinson-Gilford progeria syndrome? How common is Hutchinson-Gilford progeria syndrome? ... help with understanding Hutchinson-Gilford progeria syndrome? What is Hutchinson-Gilford progeria syndrome? Hutchinson-Gilford progeria syndrome is a genetic condition characterized by the dramatic, rapid appearance of aging beginning in childhood. Affected children typically look normal at birth and in early infancy, but then grow more slowly than other children and develop a characteristic facial appearance, hair loss (alopecia), aged-looking skin, and severe hardening of the arteries (atherosclerosis). How common is Hutchinson-Gilford progeria syndrome?

59. OMIM - HUTCHINSON-GILFORD PROGERIA SYNDROME; HGPS http://www.ncbi.nlm.nih.gov/entrez/dispomim.cgi?id=176670

60. Progeria Medical Information progeria Information from Drugs.com. Definition. progeria is a disease that produces rapid aging starting in childhood. http://www.drugs.com/enc/progeria.html

Home New Drugs Latest News Drug Interactions ... Forum Drugs.com - prescription drug and medicine information available on over 24,000 approved- medications and pharmaceuticals, including side effects and drug interactions. Log-in Register Advertisement Buy a Link Now Special Offers From our sponsors Categories Diabetes Gastro Center Weight Loss AIDS/HIV ... Sexual Health Advertisement Advanced Search Or click the first letter of a drug name: A B C D ... Z Progeria Injury Disease Nutrition Poison ... Coronary artery blockage Progeria Definition Progeria is a disease that produces rapid aging, beginning in childhood. Alternative Names Hutchinson-Gilford syndrome Causes Progeria is a rare condition that is remarkable because its symptoms strongly resemble normal human aging, but occur in young children. In addition, the appearance of several affected children in movies and on television have brought progeria to public attention. Ninety percent of children with progeria have a mutation on the gene that encodes the protein lamin A. Progeria usually occurs sporadically, and is not seen in siblings of affected children, although in very rare circumstances more than one child in a family can have progeria. Progeria results in rapid aging of a child, beginning with

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