21. Findsupport Directory - Unclassified : : Findsupport National Directory - Direct potters syndrome Contact Group Prader Willi Association (UK) Pre RetirementAssociation Premenstrual Society (PREMSOC) http://www.findsupport.co.uk/Unclassified/

DIRECTORY - Findsupport Directory - Unclassified : To make it easier to find a relevant group, we have organised them into categories. This is still a new feature of Find support.co.uk so if you think that a group should be in a different category, or if you think categories need renaming, or restructuring, then please let us know CATEGORY Top Unclassified SUB-CATAGORIES There are no sub-categories. Please see below for a list of groups... GROUPS IN THIS CATEGORY Access Travel Act Against Bullying Active Women's Group Actors' Benevolent Fund ... Zoe's Place Baby Hospice Errors, or incorrect categories? Please let us know SEARCH Can't find what you're looking for in the directory? You could try a quick search: NEWSLETTER Subscribe to the findsupport newsletter: The contents of this website are for information purposes only, and should not be used as a basis for diagnosis or choice of treatment. For further information please go to the Conditions of Use

22. Click Here To Go Back To The Home Page looking for information on potter s syndrome. I had hoped your sight would havesome information. Please email me, as I wish to have contact with you and http://tefvater.org/board/potters syndrome.html

Click here to go back to the Home Page Click here to go back to the Topics This post by: Delores E-mail Delores looking for information on potter's syndrome. I had hoped your sight would have some information. Please email me, as I wish to have contact with you and anyone else with information or for those looking for information. Thank You, Delores. Your Name : E-Mail :

23. Baby Jessica We were told that the baby had potters syndrome and that she was not going tomake it potters syndrome is very rare. It happens at time of conception. http://sids-network.org/fp/jana.htm

Help ensure that the Global Internet services of the SIDS Network continue to grow! Donate directly to the SIDS Network securely with a major credit card Donate your used car, truck, boat or RV to the SIDS Network, Inc. and receive a tax deduction Other ways to help can be found here Baby Jessica by Jana Date: Sun, 31 Jan 1999 As I sit here and read all these heart breaking stories feeling terrible for all these people, I felt is was about time for me to open up and share my story with you. We were so excited. When the day came me, my husband, and my dad made the drive to the hospital. At that time I was given my last ultrasound to see the position of the baby. She was still breach. Also at that time I was told that her lungs looked a little under developed; that at worst she would have to stay in the hospital for an extra 2-3 weeks. But once again, "not to worry." We went into delivery all excited. All I can remember was seeing all the doctors and nurses faces. For awhile I didn't hear her cry. It seems like forever but she did. I asked if everything was ok. They said yes. She had a hard time breathing but everything would be fine. They wouldn't let me see her. She needed to be cleaned and put on oxygen. We started to get very upset but we did remember what the doctor did say about her lungs. I was put in recovery when a doctor came in to tell me that the baby's heart was in distress. HER HEART!

24. Elizabeth An They did an Ultrasound and we then told our baby had potters syndrome. Her kidneysdidn t develop, neither did her lungs. We were then told we should go a http://sids-network.org/fp/young.htm

Help ensure that the Global Internet services of the SIDS Network continue to grow! Donate directly to the SIDS Network securely with a major credit card Donate your used car, truck, boat or RV to the SIDS Network, Inc. and receive a tax deduction Other ways to help can be found here Elizabeth An by Jennifer Young Date: Thu, 21 Jan 1999 Me and my husband were married on July 25th 1997. Both of us wanted a child more than anything, or so I thought. In Oct. of that year I found out I was pregnant. My due date was June 29th 1998. In the beginning of the pregnancy everything was going so good. At about 16 weeks my doctor did a MFSP test. It came back that the baby had Downs Syndrome. We were told that we should consider an abortion. I could not and would not do that. We went to see a maternal fetal specialist. They did an Ultrasound and we then told our baby had potters syndrome. Her kidneys didn't develop, neither did her lungs. We were then told we should go a head and have the abortion. I still couldn't. My husband wanted me to. He was only concerned about when I could conceive again. I chose to continue my pregnancy. I needed to hold and see my baby. When I was 28 weeks pregnant, on April 11 1998, I went into labor. I was at home. I was in labor the whole night, but didn't think it was labor because I still had 12 weeks to go. Well to make a long story short I did get to hold her and see her, although she was stillborn. She was a beautiful little red haired girl. She was 14 in. and weighed 1lb 10oz.

25. Abundance Of The Heart born and went to Heaven on October 16, 1993 because of Potter s Syndrome. for my Daughter who I lost to a rare birth defect called potters syndrome. http://www.ringsurf.com/netring?ring=AOTH;action=list

26. Angel Of My Heart She passed away as a result of potters syndrome(which is the failure to developkidneys). She was only in our arms for a short while, but she will be in our http://www.ringsurf.com/netring?action=info&ring=aomh

27. Pregnancy And Infants' Illness Historical Posts June 1998 In Reply to Re Potter s Syndrome posted by Walt Stoll on June 02, I toohad a child with potters syndrome and although it was 14 years ago I am still http://askwaltstollmd.com/archives/preg/p061998.html

Pregnancy and Infants' Illness historical posts June 1998 Re: Potter's Syndrome Posted by Walt Stoll on June 02, 1998 at 12:18:01: Dear Georgina, Like many chronic problems, the best solution is prevention. That is a little late once the damage is done. HOWEVER, those who have had a child with this condition are a little more likely to learn how to never have something like that happen again. If everyone would read Paavo Airola, ND's classic "Every Woman's Book" (at least 2 years before conception) there would be less than 1% of the birth defects we see today. There would be much less hyperactivity, learning deficiencies and aggressive children as well. He died about 10 years ago but his family continues to keep this essential knowledge in print. There has been a lot learned in the past 10 years that, once the reader is sensitized to the process, would stick out like sore thumbs in the recent literature. Let us know what you learn. Walt Re: Potter's Syndrome Posted by Fiona Reoch on June 17, 1998 at 19:02:50: In Reply to: Re: Potter's Syndrome posted by Walt Stoll on June 02, 1998 at 12:18:01:

28. Ask Dr Stoll - Pregnancy And Infants' Illness Post Archive There have been a few posts to the Ask Dr Stoll Bulletin Board (BB) regardingPregnancy and Infants Illnesses, including potters syndrome. http://askwaltstollmd.com/archives/preg.html

Dr Stoll Home Dr Stoll BB Pregnancy and Infants' Illness Posts to Ask Dr Stoll BB regarding Pregnancy and Infants' Illness There have been a few posts to the Ask Dr Stoll Bulletin Board (BB) regarding Pregnancy and Infants' Illnesses, including Potters Syndrome. Many of them have been archived here. The archive is roughly chronological. I hope you find it useful. The archive also includes some posts on methods of contraception. Choose an archive: Jun Jul Aug Choose a thread of archived posts: April 08, 2005 - Meat Eating Problems. February 14, 2005 - Group B Strep in Pregnancy, LGS, and Antibiotics February 10, 2005 - confused over oils January 09, 2005 - Pregnant? November 08, 2004 - hemorrhoid question October 28, 2004 - premature births linked to gum infection! October 26, 2004 - Smoking while trying to conceive? October 21, 2004 - Caesareans September 11, 2004 - For Walt et al - Your Best Advice for Pregnancy... February 05, 2004 - Interstitial Cystitis and Pregnancy February 01, 2004 - morning sickness and vitamin B6 January 21, 2004 - November 24, 2003 -

29. BabyCenter | Community: BBS - Chromosome Disorders | Can Club Feet Indicate A Ch twin 2 was diagnosed with potters syndrome at 22 etc, due to the potterssyndrome. Anyway, at my 30 week u/s, the sonographer gave as http://bbs.babycenter.com/board/baby/babyills/babyconditions/1378212/thread/2178

var ACM, oPopup, oDefPopup, offsetTop=10, offsetLeft=10; You seem to have disabled JavaScript. To take full advantage of our site and functionality, we recommend you enable Javascript. How? document.write(''); Preconception Pregnancy Baby Toddler ... Chromosome disorders "Can club feet indicate a chromosomal abnormality?" Posts: Last Post: Aug 31, 2005, 8:21 AM (PDT) JOIN IN: See all Boards Create a new thread Add a message WATCHES: My watches Start watching this thread HOW TO: Getting started Community Guidelines Help victims of Hurricane Katrina Wish you could do something? Click here to donate to the American Red Cross. Back to Chromosome disorders Messages First Last Author: piperushka Jun 9, 2005 , 12:45 AM (PDT) Hi, I am 31 weeks pregnant and have had many u/s's due to the fact that I am carrying fraternal twins, and that twin 2 was diagnosed with potters syndrome at 22 weeks (non genetic disease) All of the u/s's so far have seen Twin 1 as 'normal' 'wonderful' 'big and healthy' etc, and seeings that we've had a few u/s, dh and I thought that if anything was wrong, they would have surely seen it by now, considering the appointments and u/s have all been by the senior sonographers and high risk doctors etc, due to the potters syndrome. Anyway, at my 30 week u/s, the sonographer gave as certain a diagnosis as an u/s can give, that twin 1 -the baby who is 'healthy'- has club feet. At the 22 week u/s, the feet were not clubbed, (we were given photos of its feet side by side and hand waving) and no mention of it at the 25 week u/s either. She then asked if I had had an amnio, which I didn't, as I was only 29 at the time of the IVF transfer, and was told it wasn't necessary, so I had the nuchal fold which saw thin necks etc, and a low risk.

30. Birth Defects Research For Children Pierre Robin Syndrome, Add to Shopping Cart. potters syndrome (Renal Agenesis),Add to Shopping Cart. Poland s Syndrome, Add to Shopping Cart http://www.birthdefects.org/ilmnop.htm

Fact Sheet Catalog (I-P) This page is a listing of Current Fact Sheets available for download, click the Add to Shopping Cart link to include the fact sheet in your order. Immune Deficiency Add to Shopping Cart Learning Disabilities Add to Shopping Cart Limb Reduction Defects Add to Shopping Cart Microcephaly Add to Shopping Cart Moebius Syndrome Add to Shopping Cart Neural Tube Defect (NTD) Add to Shopping Cart Neurogenic Bladder Add to Shopping Cart Obsessive Compulsive Disorder Add to Shopping Cart Omphalocele Add to Shopping Cart Pectus Excavatum Add to Shopping Cart Pierre Robin Syndrome Add to Shopping Cart Potters Syndrome (Renal Agenesis) Add to Shopping Cart Poland's Syndrome Add to Shopping Cart Polycystic Kidney Disease Add to Shopping Cart Porencephaly Add to Shopping Cart PPD Add to Shopping Cart Premature Births Add to Shopping Cart Pyloric Stenosis Add to Shopping Cart

31. Birth Defects Research For Children Obsessive Compulsive Disorder, Omphalocele, Pectus Excavatum, Pierre RobinSyndrome, potters syndrome (Renal Agenesis), Poland s Syndrome http://www.birthdefects.org/information/parents3.asp

Free Birth Defect Information for Parents To request up to three free birth defect fact sheets , fill out and submit the form below. We will e-mail the fact sheets to you usually within 3 business days. For instant 24-hours access to all fact sheets, you can become an on-line member. To participate in our National Birth Defect Registry and Parent-Matching Project Click Here. Full Name: Address: City: State/Province: Zip: Country: Phone: Email: Please send me information on: How to Advocate for Your Child How to Communicate With Health Care Providers How to Find Out More About Your Child's Birth Defect or Disability How to Get Services for Your Child How to Make Health Insurance Work for You Absence of Kidney(s) (Renal Agenesis) Adams Oliver Syndrome Agenesis of Corpus Callosum Agent Orange Allergies Amniotic Band Syndrome Anencephaly Anopthalmia/Micropthalmia Anorectal Malformations Arthrogryposis Asthma Attention Disorders Autism Biliary Atresia Bladder Exstrophy Cerebral Palsy CHARGE Syndrome Chiari Malformation Cleft Lip and Palate Cloacal Exstrophy Clubfoot Coloboma Congenital Cataracts Congenital Diaphragmatic Hernia Cortical Blindness Craniosynostosis Cystic Hygroma Dandy Walker Malformation Diabetes DiGeorge Syndrome Down Syndrome Ear Defects - Microtia/Anotia Encephalocele (NTDs) Fetal Alcohol Syndrome Gastroschisis Goldenhar Syndrome Growth Disorders Gulf War Babies Hearing Loss

32. God's Angel Nursery On A Cloud who we lost to potters syndrome (or bilateral renal agenesis). and a linkto a very helpful potters syndrome website(very informative!!) http://m.webring.com/hub?ring=godsangelnursery

33. Diet, Health, Diseases, Vitamins Iwant2bhealthy.com potters syndrome CONTACT GROUP – Mrs S Bonsall, 46 Borfa Green, Welshpool, Powys,SY21 7QF. · PRADERWILLI SYNDROME. PRADER WILLI ASSOCIATION – 33 Leopold http://www.iwant2bhealthy.com/supportgroups/index_p.shtml

location: support groups healthy iwant2b.com Support groups Parents Parkinson's disease Pelvic inflammatory disease Phobias ... Psoriasis Support groups quick finder Aids / HIV Anorexia Arthritis Asthma ... P Q R S T U ... X Y Z Information supplied by g-text FREEPOST NWW6775, BLACKPOOL. FY4 3GA. PACHYGYRIA contact Lissencephaly Contact Group PAGET'S DISEASE NARPD – 323 Manchester Road, Walkden, Worsley, Manchester, M28 3HH.  Tel 0161 799 4646/Fax 799 6511.  Funds medical research.  Offers information, support and advice.  director@paget.org.uk PAIN see also under Stress PAIN SOCIETY (THE ) – 9 Bedford Square, London, WC1B 3RE.  Tel 020 7636 2750/Fax 020 7323 2015.  General information on chronic pain/details of pain clinics in UK.  www.staff.ncl.ac.uk/r.j.hayes/painsoc.html PAIN WISE UK – Rosalie Everatt, 33 Kingsdown Park, Tankerton, Kent, CT5 2DT.  Tel/Fax 01227 277 993.  Group support and counselling for people with chronic pain.  Relaxation/stress reduction strategies. PALLID SYNCOPE contact Stars under Reflex Anoxic Seizures PANCREATITIS THE PANCREATITIS SUPPORTERS NETWORK – J A Armour, PO Box 8938, Birmingham, B13 9FW.  Tel/Fax 0121 449 0667.  Information and advice for patients, families and friends.

34. Ectopic Pregnancy Foundation - In Memory Of Our Babies due to potters syndrome. You will always be loved and missed My son CharlesRoss Seddens was lost due to potters syndrome on June 28, 2004. http://www.ectopicpregnancyfoundation.org/ourbabies.htm

Website Contents For Jessica, lost to cornual ectopic pregnancy at 13 weeks, April 25, 2003 Search EctopicPregnancyFoundation.org Website Contents.... Home Page Jessicas Story Our Babies Memorial Forums/Discussion Boards Research Questionnaire What is an Ectopic Pregnancy? E. P. F. Goals Help Us Reach Our Goals hCG Facts and Questions H.P.T. hCG Sensitivity List Submit H. P. T. for the List Poems Submit A Poem Terms Glossary Contact Us "In memory of what should have been...perhaps the world was not ready for them." "Together we may not stop the suffering but perhaps we can lessen it." Matthew R. Seddens Enter your keywords: Match Any of the Words Exact Match Search Add This Site To Your Favorites Tell A Friend About This Site Message Boards/Forums In Memory of Our Babies Jessica Gail Seddens Lost to Cornual Ectopic Pregnancy at 13 Weeks April 25, 2003 Julian Shaye Seddens 8 Weeks April 20, 2004 Hunter Lost to Miscarriage July 12, 1998

35. Ectopic Pregnancy Foundation - In Memory Of Our Babies In Ohio My son Charles Ross Seddens was lost due to potters syndrome on June 28, 2004.God Bless My Son. I will love you always! http://www.ectopicpregnancyfoundation.org/babymemoriallocations/ohioourbabies.ht

Website Contents For Jessica, lost to cornual ectopic pregnancy at 13 weeks, April 25, 2003 Search EctopicPregnancyFoundation.org Website Contents.... Home Page Jessicas Story Our Babies Memorial Forums/Discussion Boards Research Questionnaire What is an Ectopic Pregnancy? E. P. F. Goals Help Us Reach Our Goals hCG Facts and Questions H.P.T. hCG Sensitivity List Submit H. P. T. for the List Poems Submit A Poem Terms Glossary Contact Us "In memory of what should have been...perhaps the world was not ready for them." "Together we may not stop the suffering but perhaps we can lessen it." Matthew R. Seddens Enter your keywords: Match Any of the Words Exact Match Search Add This Site To Your Favorites Tell A Friend About This Site Message Boards/Forums In Memory of Our Babies in Ohio My son Charles Ross Seddens was lost due to Potters Syndrome on June 28, 2004. God Bless My Son. I will love you always! Dad Click here to have your baby's name be placed on "In Memory of Our Babies"

36. PREGNANCY.ORG :: View Topic - Prayers Needed For Lili's Kidney Transplant She was diagnosed with potters syndrome and ESRD (End Stage Renal Disease).Lili is a fighter! She is now 14 months old and STILL ALIVE! http://www.pregnancy.org/phpBB2/viewtopic.php?p=1472107&

37. JohnPetersAngelFriendsWall Cause ~ potters syndrome Parents ~ Kenneth and Chrystal and Big Sister MariaDearest Abigail, I will never ever forget your beautiful face. http://www.johnpeter.net/JohnPetersAngelFriendsWall.htm

To add your Angel please click on the graphic above. John Peter Twenty Seven Weeks Gestation Born ~ March 23rd, 2002 Flew ~ March 22nd, 2002 Cause ~ Unknown Parents ~ Ron and Kathleen You are in every breathe we take and nestled Forever in our Hearts!! We will hold you again, one day, until then our Hearts Will!! Joseph Benjamin Mazziotta Full Term Born ~ February 28th, 1981 Flew ~ February 28th, 1981 Cause ~ Thrombosis of the Cord Parents ~ JoLynn and Joe Mazziotta Among God's Rose Garden, he needs buds too. Douglas Seventeen Weeks Gestation Born ~ November 27th, 1999 Flew ~ November 27th, 1999 Cause ~ Unknown Parents ~ Amy I Love You Douglas!! William Thirty Minutes Old Born ~ March 3rd, 2001 Flew ~ March 3rd, 2001 Cause ~ Extreme Prematurity Parents ~ Johnathan and Tracy Olivia Fifty Minutes Old Born ~ October 7th, 2001 Flew ~ October 7th, 2001 Cause ~ Extreme Prematurity Parents ~ Johnathan and Tracy Nicholas Ira Garris Sixteen Weeks and Four Days Gestation Born ~ January 13th, 2000

38. OMRF Research Studies Polyneuropathy, potters syndrome. Primary Lateral Sclerosis, Prostrate Cancer.Protein S Deficiency, Psoriasis. Pulmonary Disease, Radiation http://www.omrf.org/OMRF/Admin/Development/ResearchStudies.asp

Current Research Studies Achalasia Addison's Disease Aging ADHD AIDS ALS (Lou Gehrig's Disease) Alcholism Allergies Alzheimer's Disease American Indian Children Amyloidosis Anemia Aneurysm Antiobiotic Resistance (Mechanisms) Aplastic Anemia APL Arteriosclerosis Arthritis Asthma Ataxia Atherosclerosis Autism Autoimmune Disease Bell's Palsy Biomembranes Bi-Polar (Mental Health) Birth Defects Blepharospasm (Meige Syndrome) Blood Disease Bone Cancer Bone Disease Bone Marrow Transplants Brain Diseases Brain Tumor Breast Cancer Bulimia Cancer Cardiovascular (CVA) Cerebral Hemorrhage Cerebral Palsy Cerebral Vascular Disease Charcot Marie Tooth Disease Children's Disease Fund Chronic Fatigue Immune Def. (CFIDS) Clinical Pharmacology Colon COPD - Chronic Obstr. Pulmonary Disease Cortico Basal Ganglionic Degeneration Crest Syndrome Creutzfeldt-Jakob Syndrome Crohn's Disease (Ileitus) Crystallography Cushing Syndrome Cystic Fibrosis Cystinosis Cytomegalovirus Dementia Depression Dermatomyositis Diabetes Diffuse Lewybody Disease Down's Syndrome Dystonia Emphysema Epilepsy Familial Tremors / Essential Tremors Fibromyalgia Flesh Eating Disease (Antiobiotic Resistance) Gastric Ulcer Gastrointestinal Gaucher's Disease General Research Genetics George Garrison Pediatric Research Geriatrics Goodpasture Syndrome Graves Disease Guilain-Barre Syndrome Hardening of Arteries Head Trauma Heart Heart By-pass Surgery Hematology Hemophilia Hepatitis/Hepatitis C Hodgkins Disease Huntington's Chorea

39. Honored Babies ~ Memorial, Page 1 Died during birth at 20 weeks due to potters syndrome (lack of kidneys fluid)Parents Jamie Jason Ellis Jayden I ll always be your mother, http://www.honoredbabies.org/memorial/memorial1.htm

Choose a Page ~ Home Resource Center About the Book Support Lists ... Send Email to Edit Memorial Entry Important: If you've made a mistake on your entry, please request for it to be edited. Send your baby's name AND one additional identifier along with the edits so I can find and change the correct entry. Please also tell me if your entry is on Page 1 or Page 2 as these entries are found in a different area in the database. Please allow several weeks for the edit(s) to be made. Memorial ~ Page 1 301 Babies Honored on This Memorial Page Kadin Scott William Long Born Still: July 29, 1998 Died in labor of an unveiled e-coli infection; 44 weeks and 4 Long Babies Miscarried July 2, 2000, 5.5 weeks September 1, 1994, 12 weeks July 1, 1992, 6 weeks November 1987, 6 weeks Sister: Alexandria (born 11/20/95) Brother: Christian (born 9/24/02) Thank you my precious Kadin for all the beautiful and exquisite gifts you have brought into my life and the lives of others. I love you and miss you. Mommy xo Web Sites: Kadin's Memorial and Story and Honored Babies Email: Paula ~ paula@honoredbabies.org

40. Obstetrics And Gynaecology Research, Wellington School Of Medicine & Health Scie Kitagawa H, Pringle K, Zuccollo J, Koike J, Nakada K, Moriya H, seki Y .Early fetalobstructive uropathy produces potters syndrome in the lamb. http://www.wnmeds.ac.nz/academic/OandG/research/

Home About Us Research Departments ... Jobs Obstetrics and Gynaecology : Research and Publications Research interests Professor Kevin Pringle Studies in renal dysphagia Long term follow up of antentally diagnosed hydro nephrosis Fetal diagnosis and therapy Dr Fali Langdana Optimal Management of Endometriosis Anal Incontinence after Vaginal delivery (Joint project with Dr Liz Dennett from the Department of Surgery and Anaethesia) Dr Dean Maharaj Perinatal outcomes associated with elective caesarian deliveries in uncomplicated term pregnancies. Foley catheter for induction of labour in women with post term pregnancies and a previous caesarian section Professor John Hutton Single vs double embryo transfer in IVF- Benefits and Risks Effects of delaying fertility in New Zealand women. Fertility long term follow up of antenatally endometriosis and endometrium and myometrium. Dr Andrew Murray and Professor John Hutton Joint Research into Aspects of assisted Reproduction Dr Jeremy Tuohy VitaminD, Iron and Folic Acid in child bearing women, and the effects upon pregnancy.

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