1. Osteogenesis Imperfecta Foundation: Welcome To The OI Foundation Website! Supports and encourages medical research, educates the public, and disseminates information to patients, their families, and medical professionals. http://www.oif.org/

Click on our logo at any time to return to this homepage.) (Updated 10/06/05) Welcome to the Osteogenesis Imperfecta Web Site! Osteogenesis Imperfecta (OI) commonly known as the "brittle bone" disorder is a genetic disorder characterized by bones that break easily, often from little or no apparent cause. A person with OI may break a rib while coughing, or a leg by rolling over in their sleep. OI has been documented in all ethnic groups, and affects a person throughout their lifetime. The OI Foundation is dedicated to supporting anyone needing information about OI with FREE medically-verified responses to your individual questions If you can't find what you're looking for on this site, please don't hesitate to write to bonelink@oif.org or call Our information resource staff can respond to most inquiries within one business day! The Foundation is pleased to announce the availability of our newest resource, Children with OI: Strategies to Enhance Performance This 270-page book is a guide for parents, families, and health care providers. It is focused on practical strategies provided by experienced OI clinicians in the specialties of physical therapy, occupational therapy, physical medicine and rehabilitation, and recreation. Chapters address the needs of specific age groups from infancy through adolescence. The special topics and 30-page resources sections are a handy reference for those with OI in any age group. Visit the

2. Osteogenesis Imperfecta Federation Europe - OIFE Home Page Information on osteogenesis imperfecta around Europe. http://www.oife.org/

3. Osteogenesis Imperfecta: Can Diet Help? Reviews the possible role of nutrition in this disorder. Questions whether it is solely a genetic condition. http://www.ctds.info/oi.html

Con nective Tissue Disorder Home Search Site Map ... Links Osteogenesis Imperfecta The Links to Nutrition Read my Content: Osteogenesis Imperfecta, Logic and Genetics Symptoms of Osteogenesis Imperfecta Compared to Symptoms of Nutritional Deficiencies Osteogenesis Imperfecta, Logic and Genetics Many researchers believe that osteogenesis imperfecta is an incurable genetic disorder caused solely by defective collagen genes. But is it? Many of the features of OI cannot logically be explained by defective collagen genes alone. If you consider nutrition as a factor in osteogenesis imperfecta, then there are logical explanations for many features of the disorder. If osteogenesis imperfecta were really caused solely by a defective collagen gene, then why would a collagen abnormality cause short stature, enlarged foreheads, hyaluronic acid abnormalities, flat nasal bridges, hypercalciuria (excess calcium in the urine) and heavy menstrual bleeding , all of which are common features of osteogenesis imperfecta? A defective collagen gene simply does not provide a logical explanation for many of the features we know about the disorder.

4. NIH ORBD-NRC - Osteogenesis Imperfecta Fact sheets from the National Institutes of Health. http://www.osteo.org/oi.html

Osteogenesis Imperfecta Fast Facts on Osteogenesis Imperfecta Bone Densitometry in Children and Adults with Osteogenesis Imperfecta - HTML - PDF (Spanish) (Spanish) Clinical Trials Maintaining Health During the Adult Years OI Issues: Child Abuse OI Issues: Constipation OI Issues: Dental Care for Persons with OI OI Issues: Education OI Issues: Fracture Management OI Issues: Genetics OI Issues: Hearing Loss OI Issues: Nutrition OI Issues: Obstetric Considerations for Women Without OI "NEW" OI Issues: Osteoporosis OI Issues: Pain Management OI Issues: Pregnancy Considerations for Women With OI "NEW" OI Issues: Psychosocial Needs of the Family OI Issues: Surgical Considerations OI Issues: Understanding Type I OI Osteogenesis Imperfecta: A Guide for Nurses - HTML Osteogenesis Imperfecta: A Guide for Nurses - PDF Osteogenesis Imperfecta: A Guide for Medical Professionals, Individuals, and Families Affected by OI ... Therapeutic Strategies for Osteogenesis Imperfecta: A Guide for Physical Therapist and Occupational Therapists - HTML (does not include pictures) Therapeutic Strategies for Osteogenesis Imperfecta: A Guide for Physical Therapist and Occupational Therapists - PDF Talking With Your Primary Care Doctor: A Guide for Persons With OI Understanding the Structure of Bone in Osteogenesis Imperfecta What People With Osteogenesis Imperfecta Need to Know About Osteoporosis For additional information on Osteogenesis Imperfecta contact: Osteogenesis Imperfecta Foundation 804 W. Diamond Avenue, Suite 210

5. Osteogenesis Imperfecta Resources gathered by the mother of a child with the disease. Includes a personal page about her son Jojo, his disease, treatment, and progress. http://www.ptialaska.net/~sturm/indexx.html

October 2002: Visitors: please note...this site is ANCIENT! I'll update links one of these days. Go here for information about Pamidronate, an effective therapy for kids with OI. Welcome to my OI Home Page! My name is Carone Sturm, I live in Fairbanks Alaska, and my son, Jojo, has osteogenesis imperfecta. The following sites are some that I have found while surfing for information about OI, or "brittle bone disease." This web page is not affiliated with any official organization; it's simply a collection of information you may find of interest. You'll find my son's story under " Jojo Sturm " below. Please let me know if you'd like to include information about yourself here...sharing information is what it's all about! Send me an e-mail at sturm@polarnet.com. Organizations OI Resources Listserver ... Child Abuse Issues Organizations The Osteogenesis Imperfecta Foundation The most active OI organization in the United States, the OIF's goal is to improve the quality of life for individuals affected by OI through research, education, awareness and mutual support. Lots of good information here! European Osteogenesis Imperfecta Organizations Hop the globe and visit the European Osteogenesis Imperfecta Foundation . Countries included here are Norway Germany France and Italy.

6. Osteogenesis Imperfecta-Bone Diseases And Disorders Overview of osteogenesis imperfecta. The following are the most common symptoms for osteogenesis imperfecta. However, each individual may experience http://www.umm.edu/bone/oi.htm

Bone Diseases What is Bone? Bone Cancers... Diagnostic Procedures ... Glossary Related Resources Within UMM Dept. of Orthopaedics Kernan Hospital Skeletal Radiology Bone Diseases Osteogenesis Imperfecta What is osteogenesis imperfecta? Osteogenesis imperfecta (OI), also known as brittle-bone disease, is a genetic (inherited) disorder characterized by bones that break easily without a specific cause. An estimated 20,000 to 50,000 people in the US have this disease. The disorder occurs in one out of 20,000 to one out of 60,000 live births. OI can affect males and females of all races. What causes osteogenesis imperfecta? The cause of OI is believed to be due to a genetic defect that causes imperfectly-formed, or an inadequate amount of, bone collagen - a protein found in the connective tissue. What are the types and symptoms of OI? The following are the most common symptoms for osteogenesis imperfecta. However, each individual may experience symptoms differently. Although symptoms may vary, generally they are used to classify the four forms of OI, each of which represents the severity of the condition. According to the Osteoporosis and Related Bone Diseases National Resource Center, part of the National Institutes of Health (NIH), the types of OI and their symptoms include the following:

7. Osteogenesis Imperfecta Hub Links to overviews, clinical trials, images, research articles and abstracts for osteogenesis imperfecta. http://www.genomelink.org/osteogenesis/

Osteogenesis imperfecta is a genetic disease of bone, caused by mutations in a gene for type I collagen. On this hub page, you will find reviewed and categorized links about Osteogenesis imperfecta. Acne Allergy Antibiotics Antioxidants ... Wedding Overviews - General Osteogenesis Imperfecta - from the University of Maryland Medicine. Osteogenesis Imperfecta by Johns Hopkins University Department of Orthopaedic Surgery Osteogenesis imperfecta by the Arthritis Foundation Osteogenesis Imperfecta by Catholic Healthcare West Fast Facts on Osteogenesis Imperfecta - by Scott B. Neff, D.O., William R. Boulden, M.D., Central Iowa Orthopaedics. Osteogenesis imperfecta - from Florida Birth Defects Registry. What Is Osteogenesis Imperfecta - by U.K. O.I. Foundation. Growth Hormone Therapy in Osteogenesis Imperfecta Osteogenesis Imperfecta - 32-week stillborn male fetus - by Ariane Staub Neish, MD, Carl S Winalski, MD, BrighamRAD. Osteogenesis imperfecta - Current perspectives and treatment - by Nick Bishop MBChB MRCP MD FRCPCH, Professor of Paediatric Bone Disease, University of Sheffield, Division of Child Health, Sheffield Children’s Hospital. Dual-Energy X-ray Absorptiometry (DEXA) in Osteogenesis Imperfecta - by Richard W. Kruse, D.O.,H. Theodore Harcke, M.D., Caitlin Minch, Milan Moore, M.D., Alfred I. duPont Institute, Wilmington, Delaware USA.

8. Index Of /~sturm My name is Carone Sturm, I live in Fairbanks Alaska, and my son, Jojo, has osteogenesis imperfecta. http://www.ptialaska.net/~sturm/

Index of /~sturm Name Last modified Size Description ... Parent Directory 08-Jul-2003 12:32 - Alane.gif 21-Oct-1996 21:19 3k Basilar_impression.html 23-Mar-1996 20:03 8k Broken_bone.gif 12-Mar-1996 15:40 13k Erin.gif 10-Mar-1996 15:37 32k Erin.html 27-Nov-1997 22:46 2k Indexx.html 25-Oct-2002 08:33 1k JoJo_baby.html 29-Mar-1996 20:24 1k JoJo_couch.gif 07-Mar-1996 13:30 43k JoJo_with_lunchbox.gif 07-Mar-1996 13:31 56k OI_JoJo.html 23-May-1999 09:58 8k OI_JoJo2.html 23-May-1999 09:49 8k OI_JoJo_text.html 07-Mar-1996 13:31 4k OI_mail_list.html 12-Mar-1996 15:40 1k Victorian_conf.html 12-Mar-1996 15:24 6k about.html 27-Dec-2003 12:19 1k abuse.gif 20-Mar-1996 18:04 22k abuse.html 30-Mar-1996 08:56 23k alane.gif 21-Oct-1996 21:22 1k article.html 27-Dec-2003 12:22 1k backbutton.gif

9. Deutsche Gesellschaft Für OI Betroffene E.V. Die Interessenvereinigung stellt ihre vielf¤ltigen Aktivit¤ten dar und informiert ¼ber Mitgliedschaft und Spendenm¶glichkeiten. Neben Informationen ¼ber die Erkrankung finden sich œbersichten ¼ber Ansprechpartner aus verschiedenen Bereichen und verf¼gbare Literatur sowie ein Forum. In OIOnline gibt es umfangreiche Dokumentationen und Berichte zum Thema, aber auch Unterhaltsames. http://www.oi-gesellschaft.de/

Diese Seite verwendet Frames. Frames werden von Ihrem Browser aber nicht unterstützt.

10. Schweizerische Vereinigung Osteogenesis Imperfecta - Willkommen! Bietet umfangreiche Informationen ¼ber die Erkrankung von den Symptomen ¼ber Vorkommensh¤ufigkeit und genetische Ursachen bis hin zur Therapie und zum Umgang mit erkrankten Kindern. Weiterhin werden die Vereinsaktivit¤ten dargestellt, auf Termine und Aktuelles wird hingewiesen. Das Vereinsorgan Infoblatt steht im PDFFormat bereit. http://www.svoi-asoi.ch/

Startseite Kontakt Online: 2 Users News Krankheitsbild Behandlung Verein ... Links Herzlich Willkommen bei der Schweizerischen Vereinigung Osteogenesis Imperfecta! Ein Diskussionsforum ist vorgesehen und wird bald aufgeschaltet. E-Mail entgegen. Webmaster

11. Osteogenesis Imperfecta Foundation Welcome To The OI Foundation (Click on our logo at any time to return to this homepage.) (Updated 7/7/05) Welcome to the osteogenesis imperfecta Web Site! http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

12. Osteogenesis Imperfecta Foundation: Fast Facts osteogenesis imperfecta (OI) is a genetic disorder characterized by bones that break easily, often from little or no apparent cause. http://www.oif.org/site/PageServer?pagename=FastFacts

13. Brittle Bone Society - The UK Charity For Osteogenesis Imperfecta Gives support to anyone affected by osteogenesis imperfecta, a rare genetic condition which leads to severe and painful fractures. http://www.brittlebone.org/

Welcome to the Brittle Bone Society website. We offer help, advice and information to people affected by Osteogenesis Imperfecta. Flash Site Graphical Site Text Site

14. Osteogenesis Imperfecta Foundation Fast Facts Definition osteogenesis imperfecta (OI) is a genetic disorder characterized by bones that break easily, often from little or no apparent cause. http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

15. MedlinePlus: Osteogenesis Imperfecta From the National Institutes of Health; osteogenesis imperfecta (Osteoporosis Nutrition; Nutrition and osteogenesis imperfecta (Osteoporosis and Related http://www.nlm.nih.gov/medlineplus/osteogenesisimperfecta.html

@import url(http://www.nlm.nih.gov/medlineplus/images/advanced.css); Skip navigation Other health topics: A B C D ... List of All Topics Osteogenesis Imperfecta Contents of this page: From the NIH Overviews Treatment Nutrition ... Children Search MEDLINE/PubMed for recent research articles on Osteogenesis Imperfecta You may also be interested in these MedlinePlus related pages: Bone Diseases Connective Tissue Disorders Bones, Joints and Muscles Genetics/Birth Defects From the National Institutes of Health Osteogenesis Imperfecta (Osteoporosis and Related Bone Diseases-National Resource Center) Questions and Answers about Heritable Disorders of Connective Tissue (National Institute of Arthritis and Musculoskeletal and Skin Diseases) Overviews Osteogenesis Imperfecta (Cleveland Clinic Foundation) Treatment Use of Bisphosphonates in Metabolic Bone Diseases (Osteoporosis and Related Bone Diseases-National Resource Center) Nutrition Nutrition and Osteogenesis Imperfecta (Osteoporosis and Related Bone Diseases-National Resource Center) Specific Conditions Broken Bones (Nemours Foundation) Hearing Loss and Bone Disorders (Osteoporosis and Related Bone Diseases-National Resource Center) Newsletters/Print Publications Breakthrough: Newsletter of the Osteogenesis Imperfecta Association (Osteogenesis Imperfecta Foundation) - Links to PDF Clinical Trials ClinicalTrials.gov: Osteogenesis Imperfecta

16. DFOI Bindev¦vssygdommen med medf¸lgende knoglesk¸rhed. Om foreningen, vejledere, litteratur, aktiviteter og links. http://hjem.get2net.dk/dfoi/

17. NIH ORBD-NRC - Osteogenesis Imperfecta osteogenesis imperfecta Fast Facts on osteogenesis imperfecta Bone Densitometry in Children and Adults with osteogenesis imperfecta http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

18. MedlinePlus Medical Encyclopedia: Osteogenesis Imperfecta osteogenesis imperfecta is a congenital (present from birth) condition of abnormal osteogenesis imperfecta (OI) is classified into four major types (and http://www.nlm.nih.gov/medlineplus/ency/article/001573.htm

@import url(/medlineplus/images/advanced.css); Skip navigation Medical Encyclopedia Other encyclopedia topics: A-Ag Ah-Ap Aq-Az B-Bk ... Z Osteogenesis imperfecta Contents of this page: Illustrations Alternative names Definition Causes, incidence, and risk factors ... Prevention Illustrations Pectus excavatum Alternative names Return to top Brittle bone disease Definition Return to top Osteogenesis imperfecta is a congenital (present from birth) condition of abnormal fragility of the bones. Causes, incidence, and risk factors Return to top This bone disorder is usually present at birth as an inherited disease. Osteogenesis imperfecta (OI) is classified into four major types (and further subtypes). All four types of OI are caused by defects in the amount or structure of type 1 collagen, an important part of the bone matrix. The collagen problem usually results from a dominant genetic defect. This defect may be acquired by several different mechanisms: The defect may be inherited in an autosomal dominant pattern from an affected parent. This means that a parent with a single gene for OI has a 50% chance of having a child with the disorder. Any child who inherits this gene will be affected. The defect may be acquired by a spontaneous mutation occurring in the individual egg or sperm that formed the child. In this case, neither parent carries a gene for the disorder or is affected by it. The parents, in this case, are no more at risk than the general population for having another child with the disorder.

19. Página En Español Sobre Osteogénesis Imperfecta Contiene informaci³n sobre la enfermedad, sus posibles causas, investigaciones relacionadas, y datos del hijo del autor, que sufre la llamada enfermedad de los huesos de cristal . http://osteogenesis.info/

Osteogénesis imperfecta Qué es la osteogénesis imperfecta Investigación y terapia Organizaciones Foros ... Mapa web Bienvenidos Me llamo María Barbero. Mi hijo Pablo tiene osteogénesis imperfecta, una enfermedad congénita bastante rara que afecta a los huesos y a otros tejidos del organismo. Se la suele llamar «la enfermedad de los huesos de cristal», y se abrevia internacionalmente como OI. Se trata de una dolencia con una incidencia relativamente baja entre la población. Los médicos no suelen estar familiarizados con ella; son muy pocos los que tienen experiencia con estos enfermos, y menos aún los que pueden considerarse especialistas. María y Pablo Como ocurre con tantas otras enfermedades, un tratamiento no adecuado puede ocasionar graves perjuicios a los enfermos. Mi intención al preparar mi página es ofrecer a los interesados información general en español sobre la osteogénesis imperfecta y algunos enlaces interesantes (principalmente en inglés) sobre esta enfermedad. No tengo formación médica ni pretendo sentar cátedra con mis opiniones y mis experiencias con la OI. Aunque soy miembro de varias asociaciones de OI, mi página no depende de nadie. Durante los últimos años he ido recopilando información sobre la enfermedad y me gustaría ponerla al alcance de otras familias de afectados, para que no empiecen su búsqueda dando palos de ciego, como yo empecé.

20. NIH ORBD-NRC - Osteoporosis And Related Bone Diseases Fact Sheets Health information on Osteoporosis, Paget's Disease, osteogenesis imperfecta, and Other Related Diseases/Disorders http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

A  B  C  D  E  F  G  H  I  J  K  L  M  N  O  P  Q  R  S  T  U  V  W  X  Y  Z

Page 1     1-20 of 110    1  | 2  | 3  | 4  | 5  | 6  | Next 20