21. Neurofibromatosis Resources - Photographs Photographs. Photos which demonstrate different visible aspects of neurofibromatosis, Type 1 http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

22. MedlinePlus Medical Encyclopedia: Neurofibromatosis-1 NF1; von Recklinghausen neurofibromatosis. Definition Return to top. neurofibromatosis1 is an inherited disorder characterized by formation of http://www.nlm.nih.gov/medlineplus/ency/article/000847.htm

@import url(/medlineplus/images/advanced.css); Skip navigation Medical Encyclopedia Other encyclopedia topics: A-Ag Ah-Ap Aq-Az B-Bk ... Z Neurofibromatosis-1 Contents of this page: Illustrations Alternative names Definition Causes, incidence, and risk factors ... Prevention Illustrations Neurofibroma Alternative names Return to top NF1; Von Recklinghausen neurofibromatosis Definition Return to top Neurofibromatosis-1 is an inherited disorder characterized by formation of neurofibromas (tumors involving nerve tissue) in the skin, subcutaneous tissue, cranial nerves, and spinal root nerves. Causes, incidence, and risk factors Return to top NF1 is an autosomal dominant trait, meaning that if either parent has NF1, their children have a 50% chance of inheriting the disease. NF1 also appears in families with no previous history of the condition, as a result of a new genetic mutation in the particular sperm or egg that created the child. NF1 is caused by abnormalities in one of the genes encoding a protein called neurofibromin. Neurofibromatosis causes unchecked growth of neurofibromatous tissue in nerves, which can put pressure on affected nerves and cause pain and severe nerve damage. This leads to loss of function in the area served by the nerve. Problems with sensation or movement can occur as a result, depending on the particular nerves affected.

23. Associació Catalana De Les Neurofibromatosis - Pàgina Principal Informaci³ sobre aquesta malaltia i possibilitat de contactar amb grups d'ajuda mºtua. Activitats de l'associaci³, tauler d'anuncis i llocs web d'inter¨s. http://www.acnefi.com/catala/gamhome.htm

Les Neurofibromatosis (NF) son un conjunt de desordres genètics causants d'innumerables tumors que creixen al llarg de diversos tipus de nervis i que, també poden afectar al desenvolupament de teixits no nerviosos com ara ossos i pell. Cercar dins la web: Les Neurofibromatosis GAM Contactar Activitats ... Agraïments ACNefi és membre de Eurordis FEDER WebMaster

24. Neurofibrmatosis - Symptoms Diagnosis - Neurologychannel Symptoms of neurofibromatosis are initially external and visible. http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

25. Neurofibromatosis Resources Lots of links to understandable information about NF and acoustic neuroma, conditions associated with those disorders, personal stories, and hardto-locate http://neurosurgery.mgh.harvard.edu/nfr/

http://neurosurgery.mgh.harvard.edu/NFR/ Please read this Important Information before accessing this web site. One stop shopping for the BEST Neurofibromatosis information on the Web! Welcome! My name is Carol, and my life partner, Gene, has Neurofibromatosis, Type One. We've collected links to some of the finest sources of information about NF on the Internet. There is a great deal of information out there! Unfortunately, a lot of it was not written with regular people in mind. On these pages, you will find carefully selected sites - only the best. We hope that this information will help answer your questions and that you'll find it helpful. INFORMATION: general information on both types of Neurofibromatosis, most including in-depth discussion of Type 1, also known as Peripheral Neurofibromatosis or von Recklinghausen's Disease MORE INFORMATION ON NF-2 AND ACOUSTIC NEUROMA: information on the more rare Type 2, also known as Central Neurofibromatosis or Bilateral Acoustic Neurofibromatosis CHILDREN AND ADOLESCENTS: links pertaining specifically to children and teenagers who have NF (includes scoliosis, epilepsy, and learning disability links, among others)

26. Department Of Neurology | Washington University School Of Medicine Offering specialist services for patients with epilepsy, neurofibromatosis and cerebral palsy. Includes contact and staff details. Located at the Washington University, St Louis, Missouri, USA. http://www.neuro.wustl.edu/divisions/pediatric.html

Pediatric Neurology Division Edwin Trevathan , Division Chief Overview The Pediatric Neurology Division provides care for a large number of children with acute and chronic neurological diseases affecting brain, peripheral nerves and muscle. Members of the Division play an important role in the Pediatric Epilepsy Center , the Cerebral Palsy Center , and the Neurofibromatosis Program at Washington University and St. Louis Children's Hospital. To make an appointment, you may call the programs listed above or you may call the Pediatric Neurology Clinic at (314) 454-6120. In conjunction with our clinical activity, we teach Washington University medical students and the house staff at St. Louis Children's Hospital. Division members also have a variety of clinical and basic research interests including epilepsy physiology, pharmacology, and epidemiology; disorders of higher cortical function in children; magnetic resonance spectroscopy; brain tumors; the chemistry of neurofilaments; the pathophysiology of CNS injury; and the sequelae of meningitis. Faculty Full Time Faculty Clinical Faculty Residents Residency Training The Department of Neurology offers a comprehensive pediatric neurology residency training program. Please visit the

27. Neurofibromatosis Association UK The neurofibromatosis Association UK is a registered charity that works to provide help, support, information, funding, and encourage awareness of http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

28. Neurofibromatosis Webring Home Page Welcome to the neurofibromatosis Webring home page! This ring promotes neurofibromatosis education, enlightenment, and encouragement. http://neurosurgery.mgh.harvard.edu/NFR/webring.htm

Join Edit Neurofibromatosis Webring Home Page Welcome to the Neurofibromatosis Webring home page! This ring promotes Neurofibromatosis education, enlightenment, and encouragement. It is open to NF organizations, medical sites, and personal homepages. Sites pertaining to all aspects of NF 1 and 2 are welcome, including associated conditions such as learning disabilities, scoliosis, epilepsy, acoustic neuroma, cancer, deafness, blindness, etc. NF information is too scarce, and public awareness is practically non-existent. Let's get together and make ourselves known! TOP Submit a site to Neurofibromatosis Webring Site Title: Site URL: Site Owner: EMail Address: Password: Keywords: Enter up to 20 keywords to describe your site. Be sure to include any diseases or conditions discussed in your site or on your page. Site Description: Enter a short description of your site, including which conditions or diseases are discussed within your site or page. If you are selling a product or service on your site, your site description must begin with the words

29. The Children's Tumor Foundation (CTF) Ending Neurofibromatosis What's New. neurofibromatosis A Handbook for Patients, Families, and Health Care Professionals Order Online Print Order Form (pdf) http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

30. Arch Neurol Abstract Magnetic Resonance Imaging Lesion Topic Collection Alerts Magnetic Resonance Imaging Lesion Analysis in neurofibromatosis Type 1 Francis J. DiMario, Jr, MD ; Gale Ramsby, MD http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

31. Neurofibromatosis Association UK The neurofibromatosis Association UK is a registered charity that works to provide help, support, information, funding, and encourage awareness of http://www.nfauk.org/

home publications Nf specialist advisors volunteers ... guest book Welcome to the Neurofibromatosis Association UK Take the Ben Nevis Challenge in association with the Neurofibromatosis Association (7th-8th October) Do something different this weekend – join us for the Ben Nevis Challenge Join our team climbing to the highest point in the UK! This is a great team building opportunity and a great social weekend Your chance to help combat one of the most common inherited disorders in the country A demanding challenge but the sense of achievement and stunning views make it all worth while Call me, Sally May on or email nfaevents@zetnet.co.uk We’d love to have you on our team! more... The Neurofibromatosis Association Quayside House 38 High Street Kingston on Thames Surrey KT1 1HL tel: 020 8439 1234 fax: 020 8439 1200 minicom: 020 8481 0492 email: info@nfauk.org Registered charity No 1078790 CLICK TO MAKE A DONATION New telephone helpline! Monday and Thursday 9am - 4pm phone National Doodle Day Click here for the latest information and to get your Doodle Day notecard... Three Peaks Ascend the highest peaks in Scotland, England and Wales... ... Research projects web site proudly designed by ::

32. MedlinePlus Neurofibromatosis neurofibromatosis http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

33. Neurofibromatosis Resources - Photographs Photos of cafe au lait spots and external neurofibroma tumors. http://neurosurgery.mgh.harvard.edu/NFR/photos.htm

Photographs Photos which demonstrate different visible aspects of Neurofibromatosis, Type 1 Note: The photos on this page are amateur photos, taken by me. They are intended solely to give the average person an idea of what some of these aspects of the disease look like, and should not be used as references for making a diagnosis of NF-1. Cafe au Lait Spots This image shows a rather large cafe au lait (CAL) spot which extends nearly to the first knuckles on the back of the hand, and about 2 inches above the wrist. Click on picture for a larger image. Here is the same CAL, from the palm side of the hand and arm. Many CALs resemble large freckles, and aren't as extensive as this one. Click on picture for a larger image. Neurofibroma Tumors This photo shows a moderate number of small to medium neurofibroma tumors. Another condition sometimes associated with NF-1 is pectus excavatum , or sunken chest, which is a congenital deformity of the ribcage. For more information on pectus excavatum, visit this very informative site.

34. EMedicine - Neurofibromatosis : Article By Jennifer R Kam, MD neurofibromatosis neurofibromatosis is an autosomal dominant disorder that affects the bone, the nervous system, soft tissue, and the skin. http://www.emedicine.com/derm/topic287.htm

(advertisement) Home Specialties Resource Centers CME ... Patient Education Articles Images CME Patient Education Advanced Search Consumer Health Link to this site Back to: eMedicine Specialties Dermatology Pediatric Diseases Neurofibromatosis Last Updated: May 4, 2005 Rate this Article Email to a Colleague Synonyms and related keywords: AUTHOR INFORMATION Section 1 of 10 Author Information Introduction Clinical Differentials ... Bibliography Author: Jennifer R Kam, MD , Staff Physician, Department of Radiology, Rochester General Hospital Coauthor(s): Thomas N Helm, MD , Director of Buffalo Medical Group Dermatopathology Laboratory, Clinical Associate Professor, Departments of Dermatology and Pathology, State University of New York at Buffalo Editor(s): Ponciano D Cruz Jr, MD , Vice-Chair, JB Shelmire Professor, Department of Dermatology, University of Texas Southwestern Medical Center; David F Butler, MD Edward F Chan, MD , Clinical Assistant Professor, Department of Dermatology, University of Pennsylvania School of Medicine; Catherine Quirk, MD

35. NINDS Forwarding Page Information page compiled by NINDS, the National Institute of Neurological Disorders and Stroke. http://www.ninds.nih.gov/health_and_medical/disorders/neurofibro.htm

NINDS has redesigned its website and the URL for the page you were seeking has changed. The new URL for this page is /disorders/neurofibromatosis/neurofibromatosis.htm . Please update your bookmark to this page. You will be automatically taken to this page in 5 seconds, or you can click the link to go there now.

36. EMedicine - Neurofibromatosis Type 1 : Article By Ali Nawaz Khan, MBBS, FRCP, FR neurofibromatosis Type 1 neurofibromatosis (NF) is an autosomal dominant disorder, probably of neural crest origin, that affects all 3 germinal layers; http://www.emedicine.com/radio/topic474.htm

(advertisement) Home Specialties Resource Centers CME ... Patient Education Articles Images CME Patient Education Advanced Search Consumer Health Link to this site Back to: eMedicine Specialties Radiology Brain/spine Neurofibromatosis Type 1 Last Updated: February 10, 2004 Rate this Article Email to a Colleague Synonyms and related keywords: NF, NF1, NF-1, von Recklinghausen disease, von Recklinghausen syndrome, von Recklinghausen's disease, von Recklinghausen's syndrome, elephant man, nerve sheath tumor, neurofibromas AUTHOR INFORMATION Section 1 of 12 Author Information Introduction Differentials X-ray ... Bibliography Author: Ali Nawaz Khan, MBBS, FRCP, FRCR , Consultant Radiologist, Department of Diagnostic Radiology, North Manchester General Hospital Coauthor(s): Ian Turnbull, MD , Lecturer, Department of Radiology, University of Manchester; Consulting Neuroradiologist, Hope Hospital, Salford, Manchester and North Manchester Hospital; Sumaira Macdonald, MBChB, MRCP, FRCR, PhD , Lecturer, Sheffield University Medical School; Endovascular Fellow, Sheffield Vascular Institute;

37. Neurofibromatosis Information Page: National Institute Of Neurological Disorders neurofibromatosis information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS). http://www.ninds.nih.gov/disorders/neurofibromatosis/neurofibromatosis.htm

Accessible version Science for the Brain The nation's leading supporter of biomedical research on disorders of the brain and nervous system More about Neurofibromatosis Studies with patients Research literature Press releases Search NINDS... (help) Contact Us My Privacy NINDS is part of the National Institutes of Health You are here: Home Disorders Neurofibromatosis NINDS Neurofibromatosis Information Page Synonym(s): Von Recklinghausen's Disease Condensed from Neurofibromatosis Fact Sheet Get Web page suited for printing Email this to a friend or colleague Table of Contents (click to jump to sections) What is Neurofibromatosis? Is there any treatment? What is the prognosis? What research is being done? ... Additional resources from MEDLINEplus What is Neurofibromatosis? Is there any treatment? What is the prognosis? In most cases, symptoms of NF1 are mild, and patients live normal and productive lives. In some cases, however, NF1 can be severely debilitating. In some cases of NF2, the damage to nearby vital structures, such as other cranial nerves and the brainstem, can be life-threatening. What research is being done?

38. Las Neurofibromatosis: National Institute Of Neurological Disorders And Stroke ( Información sobre neurofibromatosis del Instituto nacional de desórdenes y del movimiento neurológicos/Spanishlanguage fact sheet on neurofibromatosis http://www.ninds.nih.gov/disorders/spanish/las_neurofibromatosis.htm

Accessible version Science for the Brain The nation's leading supporter of biomedical research on disorders of the brain and nervous system More about Neurofibromatosis Studies with patients Research literature Press releases Search NINDS... (help) Contact Us My Privacy NINDS is part of the National Institutes of Health You are here: Home Disorders Spanish Las Neurofibromatosis Prepare la pagina Web para imprimir Solicite por correo un folleto gratuito English version Tabla de Contenido escoliosis aguda (curvatura de la espina dorsal); uno de los padres, o hermanos o hijos con neurofibromatosis tipo 1 (NF1). tumores del octavo nervio bilateral, uno de los padres, un hermano o un hijo con NF2 y un tumor en el octavo nervio unilateral; o uno de los padres, un hermano o un hijo con NF2 y dos de las condiciones siguientes: glioma, meningioma, neurofibroma, schwannoma o catarata en una edad precoz. Aquellas personas interesadas en donar tejidos pueden comunicarse con: Human Brain and Spinal Fluid Resource Center Neurology Research (127A) W. Los Angeles Healthcare Center

39. University Of Chicago Comer Children's Hospital: Neurofibromatosis This information will explain what NF is, what causes NF, what your family will need to do about it, and who can help you. From the University of Chicago Comer Children's Hospital. http://www.uchospitals.edu/peds-neurology/neurofibromatosis/

@import "/css/style.css"; Home Contact Us Pediatric Specialties Neurology ... Patient Guides Neurofibromatosis This information is for families who have recently been told that one member may have neurofibromatosis (NF). When you were first told about NF, you may only have heard the word neurofibromatosis and nothing else. As some of the initial shock wears off, you will want to know more about this disorder or group of disorders, because NF really is more than a single disorder. This information will explain what NF is, what causes NF, what your family will need to do about it, and who can help you. The University of Chicago Hospital Ambulatory Program for Neurofibromatosis is the largest NF program in the country and is a comprehensive clinic for children and adults. More Information Understanding NF How Do I Know if My Child Has NF? NF-1 NF-2 ... Neurology FAQ Neurofibromatosis EEG Seizure Glossary Contact the program Find a physician ... The Children's Tumor Foundation: Ending Neurofibromatosis Through Research Pediatric Neurology 5721 S. Maryland Avenue, MC3055

40. Neurofibromatosis Clinics Association - Links To Other Relevant Sites If you have a child who has been newly diagnosed with neurofibromatosis, The NF2Crew is a discussion group for individuals with neurofibromatosis Type 2 http://www.nfpittsburgh.org/links.html

Home What's NF About NFCA Clinic Info ... Links Links to Other Relevant Sites If you have a child who has been newly diagnosed with Neurofibromatosis, the American Academy of Pediatrics has issued a policy statement entitled, Health Supervision for Children With Neurofibromatosis. This set of guidelines is designed to assist the pediatrician in caring for the child in whom the diagnosis of neurofibromatosis has been made. Additionally, there is a printable (landscape format ) table: Health Supervision Guidelines for Children With Neurofibromatosis to be used as a checklist for your child's appointments. For more information, please follow this link to the American Academy of Pediatrics. If you would like to read recent articles (or past articles) related to Neurofibromatosis, material may be found: Journal of American Medicine (and search using keyword: Neurofibromatosis) New England Journal of Medicine (and search using keyword: Neurofibromatosis). The NFCA is an independent organization, not affiliated with national organizations related to Neurofibromatosis. Defining the Future of Neurofibromatosis Research Generation Hope Learning Disabilities Association National Neurofibromatosis Foundation ... Neurofibromatosis, Inc.

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