21. Myositis NW Information and resources about inflammatory myositis diseases. Accessible gardens, emergency preparedness for the disabled, support groups plus the http://www.myositisnw.org/

Diagnosed a long time with Myositis? Check out my NEW message board for LONG TIMERS!!! WELCOME - This is my personal website and is a compilation of information and links to many resources that I hope you will find useful in educating yourself about the Myositis Diseases and provide you with important resources and any necessary support. Whether you are the one that is sick or a family member or friend, remember you do not need to be alone in dealing with these diseases. As a long term survivor of my disease, Dermatomyositis, I wanted to share with you my experiences and my thoughts and I wish you find this site hopeful as well as helpful. I was diagnosed in April 1971, 1 month after I turned 16. Wow, what a journey. I have my ups and downs but despite my disability and lack of mobility I lead a very rich and happy life. I am surrounded by friends and family and by my very loving, very considerate, very helpful and very PATIENT husband, Tom, whom I've been married to for almost 15 years. I stay active as a KIT Leader in the Washington State Myositis Support Group and I work part-time from my home doing income taxes, bookkeeping and website design. I also help my husband run the business end of our painting business. Please DO sign my guest book AND mark your location on the map.

22. Facts About Inflammatory Myopathies (PM/DM/IBM) MDA Publications Dermatomyositis (DM), Polymyositis (PM) InclusionBody myositis (IBM) Muscular Dystrophy Association http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

23. About Myositis About myositis. Resources Information on the Inflammatory myositis Diseases Dermatomyositis, Polymyositis Inclusion Body myositis http://www.myositisnw.org/about_myositis.htm

Diagnosed a long time with Myositis? Check out my NEW message board for LONG TIMERS!!! About Myositis Inflammatory Myopathies are a group of rare muscle diseases that result in the degeneration and inflammation of skeletal muscle tissue, resulting in discernible muscle weakness. The muscle weakness usually develops slowly over weeks to months and often years. Inflammatory Myopathies are thought be autoimmune in nature as the inflammatory cells surround, invade and destroy healthy muscle fibers as though they were foreign to the body. Inflammatory Myopathies include Dermatomyositis (DM), Juvenile Myositis (JM/JDM) or Polymyositis (PM) and Inclusion Body Myositis (IBM). Each different disease results in muscle weakness though each has its own characteristics, development and treatment. Myositis diseases are very rare and affect about 10 out of one million people each year. It is estimated that about 40,000 people in the U.S. may have this type of disease. Many cases go undiagnosed for years. Dermatomyositis (DM) which has a skin rash and Polymyositis (PM) affects mostly women in their 40-50's but can show up in men and in children, some at a very young age. In children this disease is called Juvenile Myositis (JM) or Juvenile Dermatomyositis (JDMS), one common characteristic of JDMS is the formation of calcium deposits in the muscle. Inclusion Body Myositis (IBM) is mostly found in men after the age of 50-60. It is quite different from the other Myositis diseases as it doesn't respond much to drug therapy. Treatment options vary depending on the type of Myositis and its severity.

24. HealthBoards Bulletin Board Health related message board for myositis patients, families, friends, and caregivers http://www.healthboards.com/cgi/forumdisplay.cgi?action=topics&forum=Myositi

25. Muscular Dystrophy Association Diseases - Dermatomyositis (DM) 1/05 ThyroidRelated Myopathy and Statin-Related myositis 5/04 Nodules in myositis 7/03 Genetics and Environment in myositis 7/03 http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

26. Myositis (Polymyositis Dermatomyositis) myositis is a term that describes several illnesses including polymyositis, dermatomyositis and inclusion body myositis. Polymyositis involves inflammation http://www.arthritis.org/conditions/DiseaseCenter/myositis.asp

Welcome! Log In Create Profile Search Arthritis.org Keyword advanced search Español Questions and Answers Assess Your Joint Health ... 51 Ways to Be Good to Your Joints Myositis (Polymyositis Dermatomyositis) If your question is not answered here, please contact one of our information specialists. What Is It? Treatment Options Who Is At Risk? Resources and Suggestions ... More Information About Myositis What It It? Myositis (my-OH-sigh-tiss) is a rare disease that involves inflammation that results in damage to muscle fibers and skin. Myositis is a term that describes several illnesses including polymyositis, dermatomyositis and inclusion body myositis. Polymyositis involves inflammation of the muscles and can affect many parts of the body. When inflammation of skin involved it is called dermatomyositis Treatment Options Exercise approved by your doctor Medications: glucocorticoids; immunosuppressants Physical therapy Rest Who Is At Risk? Myositis usually affects adults between the ages of 30 and 60 and children between the ages of 5 and 15. More women than men are affected.

27. CureJM Opening Created to raise public awareness of Juvenile myositis and to fund research for a cure for JM, including Juvenile Dermatomyositis and Juvenile http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

28. Myositis (No Longer Available) myositis (No Longer Available). Muscle weakness, skin changes and other symptoms. Includes details on the course of the disease, medications and exercise to http://www.arthritis.org/AFStore/singleproduct.asp?idproduct=3327&idcat=8

29. The Myositis Association: Community Forum An active BBS for all myositis patients and their families, provided by the myositis Association of America. Membership required. http://www.myositis.org/cgi-bin/datacgi/database.cgi?file=Forum&report=Topic

30. Muscular Dystrophy Association| Diseases - Inclusion Body Myositis (IBM) Fact Sheet InclusionBody myositis Facts About PM/DM Ask the Experts Polymyositis/Dermatomyositis and IBM Neuromuscular Disease Linked to http://www.mdausa.org/disease/ibm.cfm

Search Our Site Enter Your Zip Code: Click on your state for local offices in California Florida or New York Genetics and Neuromuscular Diseases Breathe Easy: Respiratory Care for Children with MD Skills for the Job of Living: OT for Adults ... Accessing Medical Services Receive e-mail news, tips and updates from MDA or ask us a quick question. Inclusion Body Myositis (IBM) Definition Cause Onset Symptoms Progression Inheritance Facts About Inflammatory Myopathies Disease-Specific Materials Fact Sheet: Inclusion-Body Myositis Facts About PM/DM "Ask the Experts" Polymyositis/Dermatomyositis and IBM Neuromuscular Disease Linked to Chromosome 9 with Paget Disease of Bone - Gene Identification Quest Research-Medical Articles Fatigue: Where Has Your Get-Up-and-Go Gone?

31. CureJM Opening Created to raise public awareness of Juvenile myositis and to fund research for a cure for JM, including Juvenile Dermatomyositis and Juvenile Polymyositis. Find disease details, news stories, research, and a message board. http://www.curejm.com

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32. MDA / Quest Vol 8 No 2 / Advances In Inclusion-body Miositis The myositis part of the name carries the prefix myo, In inclusionbody myositis, bubblelike spaces called vacuoles and clumps of proteins form, http://www.mdausa.org/publications/Quest/q82ibm.cfm

Current Issue Back Issues Stories by Topic Research Stories ... Advertise QUEST Volume 8, Number 2, April 2001 ADVANCES IN INCLUSION-BODY MYOSITIS The least understood inflammatory myopathy is finally yielding to researchers' probes by Margaret Wahl On winter mornings in icy Prescott, Wis., Ed Bankston gets up early, and, as he has done for many years, drives to his office in St. Paul, Minn. Bankston, 55, has been an attorney with the St. Paul District of the U.S. Army Corps of Engineers since 1988, and he now heads the district's legal department. But getting to his desk requires a little more planning than it once did. Nowadays, Bankston drives an adapted Dodge Caravan with hand as well as foot controls to an underground garage, where a staff member meets him with a power wheelchair. In the evening, he drives the chair back down to the garage and transfers into his van. Walking is something Bankston has all but given up, except to get into the shower, which requires two forearm crutches. His arms and hands are weak, making it hard to hold onto objects or to open containers. The trouble started in his late 40s, when Bankston began feeling that his muscles were no longer as strong as they once were. "If I was trying to play tennis or bicycling and tried to stop, my knee would buckle, and I would fall," he recalls. "And I couldn't walk as fast as I used to. At first, I thought I was just getting older."

33. Myositis myositis can take several forms, usually develops slowly over time and can range in myositis can affect the muscles in the front of the neck and throat, http://orthoinfo.aaos.org/fact/thr_report.cfm?Thread_ID=266&topcategory=General

34. EMedicine - Myositis Ossificans : Article By Mandar A Pattekar, MD, MS myositis Ossificans myositis ossificans is an aberrant reparative process that causes benign heterotopic (ie, extraskeletal) ossification in soft tissue. http://www.emedicine.com/ped/topic1538.htm

(advertisement) Home Specialties Resource Centers CME ... Patient Education Articles Images CME Advanced Search Consumer Health Link to this site Back to: eMedicine Specialties Pediatrics Rheumatology Myositis Ossificans Last Updated: July 1, 2003 Rate this Article Email to a Colleague Synonyms and related keywords: fibrodysplasia ossificans progressiva (hereditary type), myositis ossificans circumscripta, myositis ossificans progressiva, soft tissue ossification AUTHOR INFORMATION Section 1 of 10 Author Information Introduction Clinical Differentials ... Bibliography Author: Mandar A Pattekar, MD, MS , Staff Physician, Department of Radiology, William Beaumont Hospital Mandar A Pattekar, MD, MS, is a member of the following medical societies: American College of Radiology American Roentgen Ray Society , and Radiological Society of North America Editor(s): Barry L Myones, MD Robert Konop, PharmD , Director of Drug Programs and Utilization; David D Sherry, MD , Professor of Pediatrics, University of Pennsylvania; Director of Clinical Rheumatology, Division of Rheumatology, Children's Hospital of Philadelphia;

35. EMedicine - Inclusion Body Myositis : Article By Paul E Barkhaus, MD Inclusion Body myositis Sporadic inclusion body myositis (s-IBM) and inherited inclusion body myopathies (i-IBM) encompass a group of disorders that have http://www.emedicine.com/neuro/topic422.htm

(advertisement) Home Specialties Resource Centers CME ... Patient Education Articles Images CME Advanced Search Consumer Health Link to this site Back to: eMedicine Specialties Neurology Neuromuscular Diseases Inclusion Body Myositis Last Updated: March 14, 2003 Rate this Article Email to a Colleague AUTHOR INFORMATION Section 1 of 11 Author Information Introduction Clinical Differentials ... Bibliography Author: Paul E Barkhaus, MD , Director of Neuromuscular Diseases, Milwaukee Vets Admin Medical Center, Professor of Neurology, Department of Neurology, Medical College of Wisconsin Coauthor(s): M Isabel Periquet, MD , Director of Peripheral Neuropathy Center, Assistant Professor, Department of Neurology, Division of Neuromuscular Diseases, Ohio State University Paul E Barkhaus, MD, is a member of the following medical societies: American Academy of Neurology , and American Association of Neuromuscular and Electrodiagnostic Medicine Editor(s): Dianna Quan, MD , Director, Electromyography Laboratory, Assistant Professor, Department of Neurology, University of Colorado Health Sciences Center;

36. About - Myositis. myositis refers to several different illnesses, including polymyositis, All forms of myositis involve chronic, or persistent, muscle inflammation. http://www.orthop.washington.edu/uw/myositis/tabID__3376/ItemID__41/Articles/Def

Home Site Map Contact Us Links ... All Articles Myositis. University of Washington, Seattle Last updated Friday, February 11, 2005 About Basics of myositis Myositis is the term for illnesses that involve chronic muscle inflammation ("myo" means muscle and "itis" means inflammation). "Myositis" refers to several different illnesses, including polymyositis, dermatomyositis, and inclusion body myositis. All forms of myositis involve chronic, or persistent, muscle inflammation. This muscle inflammation almost always results in weakness, and less often in heat, swelling, and pain of the muscles. Myositis can affect many parts of the body. Sometimes the joints, heart, lungs, intestines, and skin can become inflamed. Some forms of myositis, like dermatomyositis ("dermato" refers to the skin), result in particular rashes over the knuckles, around the eyes, or sometimes in other parts of the body. Other forms of myositis occur in children. Some forms are seen with other connective tissues diseases, like lupus or rheumatoid arthritis . Still other forms may occur in people with tumors. Rarely, myositis can occur in a single part of the body, such as one arm, one leg, or just the muscles that move the eye.

37. Myositis Laboratory or dermatomyositis have specific MSA or myositis associated antibodies (MAA). MSA are almost never found in patients without myositis, even if they have http://www.omrf.org/OMRF/Core/MyositisLab.asp

Myositis Testing Laboratory Another type of autoimmune disease attacks the muscles of the body. The "myositis-specific antibodies" (MSA) can assist in the diagnosis of polymyositis and dermatomyositis in those patients who have the diseases. About 50% of patients with polymyositis or dermatomyositis have specific MSA or myositis associated antibodies (MAA). MSA are almost never found in patients without myositis, even if they have other muscle diseases of autoimmune diseases. This means that when the physician's examination and initial testing suggests the possibility of polymyositis or dermatomyositis, a positive test for an MSA can be strong supporting evidence for the diagnosis. For a long time the testing for these antibodies was only available in research studies, but it is now possible to obtain this testing clinically. The Myositis Profile, performed at the OMRF Clinical Immunology Laboratory, includes tests for 12 of the MSAs and MAAs. Additional antibodies may be detectable using this profile. Dr. Ira Targoff is the consultant to the Clinical Immunology Laboratory regarding this testing. As with the Reichlin Profile for lupus, patients with a particular antibody may have distinctive clinical pictures with certain associated problems. Identifying certain antibodies can help characterize the condition more fully. Research continues in our lab, and others around the world, to determine the nature of the relationship between the various MSAs and polymyositis and dermatomyositis.

38. InteliHealth: Myositis InteliHealth Featuring Harvard Medical School s consumer health information. For more than 550 diseases and conditions, learn What Is It?, Symptoms, http://www.intelihealth.com/IH/ihtIH/WSIHW000/9339/10399.html

chrome_imgPreload('gifChr_mid_but_home_mo_1','http://img.intelihealth.com/i/C/Chr_mid_but_home-o.gif'); chrome_imgPreload('gifChr_mid_but_comm_mo_2','http://img.intelihealth.com/i/C/Chr_mid_but_comm-o.gif'); chrome_imgPreload('gifChr_mid_but_dental_mo_3','http://img.intelihealth.com/i/C/Chr_mid_but_dental-o.gif'); chrome_imgPreload('gifChr_mid_but_drug_mo_4','http://img.intelihealth.com/i/C/Chr_mid_but_drug-o.gif'); chrome_imgPreload('gifChr_mid_but_askexpert_mo_5','http://img.intelihealth.com/i/C/Chr_mid_but_askexpert-o.gif'); chrome_imgPreload('gifChr_mid_but_medical_mo_6','http://img.intelihealth.com/i/C/Chr_mid_but_medical-o.gif'); chrome_imgPreload('gifChr_mid_but_chats_mo_7','http://img.intelihealth.com/i/C/Chr_mid_but_chats-o.gif'); chrome_imgPreload('gifchr_mid_but_news_mo_8','http://img.intelihealth.com/i/c/chr_mid_but_news-o.gif'); chrome_imgPreload('gifChr_mid_but_privacy_mo_9','http://img.intelihealth.com/i/C/Chr_mid_but_privacy-o.gif'); Advertisement Myositis What Is It? Symptoms Diagnosis Expected Duration ... Additional Info What Is It? Myositis is the medical term for muscle inflammation. In myositis, inflammation damages the fibers of a muscle. This causes muscles to be weak by interfering with the ability of the muscles to contract. Myositis also can cause muscle aches and muscle tenderness.

39. Bonetumor.org - The Web's Most Comprehensive Bone Tumor Resource myositis ossificans is an extraosseous non neoplastic growth of new bone. A synonym for myositis ossificans is heterotopic ossification. http://bonetumor.org/tumors/pages/page177.html

Myositis Ossificans Myositis ossificans is an extra-osseous non neoplastic growth of new bone. A synonym for myositis ossificans is heterotopic ossification. There are several clinical subtypes of myositis ossificans. Myositis ossificans circumscripta refers to new extra-osseous bone that appears after trauma. Progressive myositis ossificans is a rare, inherited disorder characterized by fibrosing and ossification of muscle, tendon and ligaments of multiple sites often in the upper extremities and back that is disabling and ultimately fatal. I myositis ossificans is also a recognized complication of paralysis that occurs below the level of spinal cord injury. Myositis ossificans occurs most commonly in the second and third decade in the arms and thighs of patients who have experienced some sort of trauma. The quadriceps and brachialis are the most affected. Myositis ossificans presents as a rapid enlargement and significant pain one to two weeks after injury. The patient has swelling and warmth at the site as well as an increased ESR and serum alkaline phosphatase. The clinical picture differs from that of osteosarcoma (which is often on the differential as the age groups are the same) as the pain from myositis ossificans decreases as time goes on where osteosarcoma pain increases. Myositis ossificans appears on plain-film at approximately 2-4 weeks after injury. The lesion begins to calcify at the periphery and works toward the center. At less than three weeks post-trauma, bone scan demonstrates increased uptake in the area. Osteosarcoma calcifies at the center and continues to the periphery. CT scan helps delineate a central radiolucency surrounded by a dense periphery.

40. Inclusion Body Myositis Information Page: National Institute Of Neurological Dis Inclusion Body myositis (Inflammatory Myopathy) information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS). http://www.ninds.nih.gov/disorders/inclusion_body_myositis/inclusion_body_myosit

Accessible version Science for the Brain The nation's leading supporter of biomedical research on disorders of the brain and nervous system More about Inclusion Body Myositis Studies with patients Research literature Press releases Search NINDS... (help) Contact Us My Privacy NINDS is part of the National Institutes of Health You are here: Home Disorders Inclusion Body Myositis NINDS Inclusion Body Myositis Information Page Synonym(s): Inflammatory Myopathy Get Web page suited for printing Email this to a friend or colleague Table of Contents (click to jump to sections) What is Inclusion Body Myositis? Is there any treatment? What is the prognosis? What research is being done? ... Additional resources from MEDLINEplus What is Inclusion Body Myositis? Is there any treatment? There is no standard course of treatment for IBM. The disease is unresponsive to corticosteroids and immunosuppressive drugs. Some evidence suggests that intravenous immunoglobulin may have a slight, but short-lasting, beneficial effect in a small number of cases. Physical therapy may be helpful in maintaining mobility. Other therapy is symptomatic and supportive. What is the prognosis?

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