1. TMA: Home A nonprofit organization committed to helping people with inflammatory myopathies through a variety of information and support services. http://www.myositis.org/

HOME DONATE CONTACT US INTERNATIONAL ... Surveys Myositis Awareness Day! Celebrate Myositis Awareness Day on September 21st by contacting your local media or creating an awareness event. Contact TMA to find out how! To find out more about Myositis Awareness Day, click here CA Symposium Celebrates Myositis Awareness Day! The Keep In Touch support groups of Los Angeles, Northern California, and San Diego are holding a one-day symposium to observe Myositis Awareness Day in California. The Symposium will be held on Saturday, September 24th at the Crowne Plaza Hotel near Los Angeles International Airport. Topics will cover motivation, education and therapy and there will be time for individual attendees to meet and share their personal experiences. There is no charge to attend the symposium except for parking ($4). Detailed information about the symposium and registration can be found here . Registration deadline is September 10th. TMA Events! 2005 Annual Conference Tentative Agenda and Speakers Cleveland, OH October 6-9, 2005

2. Myositis Support Group Discussion Forum Hosted by myositisSupportGroup.org http://www.myositissupportgroup.org/discussion.htm

This page uses frames, but your browser doesn't support them. Home About Us Myositis and Myositis Diseases "Coping with Myositis" ... Myositis Support Group and Webmasters of East Texas Web Design and hosting by Kelly P. Miller of Webmasters of East Texas

3. Welcome To The Myositis Support Group Website A place to learn more about the mysteries of myositis and meeting other individuals who have been diagnosed. Offers a bulletin board and links to further http://www.myositissupportgroup.org/

Through the Discussion Forum Bulletin Boards (Use above link) Cure JM Foundation www.curejm.com This is the largest Myositis Support Group on the Internet offering a place to learn more about the mysteries of a Myositis disease and meeting other individuals who have been diagnosed with one of the diseases: Dermatomyositis (DM) Polymyositis (DM) Inclusion Body Myositis (IBM) Juvenile Dermatomyositis (JDM) If you do not have a local Support Group, please consider this website as your Myositis extended family. Dr. Aziz Shaibani Visit the Nerve and Muscle Center of Texas Website James R. Kilpatrick ( IBM) CureJM Advisory Council Click below to see excerpts as presented on Amazon.com's website Myositis Support Group - James R. Kilpatrick, 205 Laurel Road, Athens, TX 75751 903-675-6825 - Fax 903-675-6823 You are visitor number to this site This Website is NOT UNDERWRITTEN. Your donations are appreciated for the expenses of the website, the Discussion Forum Bulletin Boards and monthly Myositis Newsletter.

4. Necrotizing Fasciitis/Myositis ("flesh-eating Disease") - Information - April 19 Factsheet from Health Canada. http://www.phac-aspc.gc.ca/publicat/info/necro_e.html

Information Sheets INFORMATION Necrotizing Fasciitis/Myositis ("flesh-eating disease") The Issue Flesh-eating disease is rare. When it does occur, it is very serious and can lead to death. It is important to know the symptoms, and how to minimize your risks. Background Flesh-eating disease is the common name for necrotizing fasciitis (nek-roe-tie-zing fah-shee-eye-tis), an infection that works its way rapidly through the layers of tissue (the fascia) that surround muscles. It destroys tissue and can cause death within 12 to 24 hours. It is estimated that there are between 90 and 200 cases per year in Canada, and about 20 to 30 percent of these are fatal. The symptoms of flesh-eating disease include a high fever, and a red, severely painful swelling that feels hot and spreads rapidly. The skin may become purplish and then die. There may be extensive tissue destruction. Sometimes the swelling starts at the site of a minor injury, such as a small cut or bruise, but in other cases there is no obvious source of infection. Flesh-eating disease can be caused by a number of different bacteria, including group A streptococcus (GAS). GAS is a very common bacteria. Many people carry it in the throat or on their skin without getting sick. It is the same bacteria that causes strep throat, and can also cause impetigo, scarlet fever and rheumatic fever. In rare instances, GAS will cause serious illnesses, including pneumonia, meningitis, blood poisoning (bacteremia), streptococcal toxic-shock syndrome and flesh-eating disease.

5. Myositis Forum - Powerforum Plus+ Pro (www.hotboards.com) Hosted by Sharon's myositis site http://www.hotboards.com/plus/plus.mirage?who=myositisforum

6. The Myositis Support Group UK For information and practical advice about this family of diseases. Formerly known as the Dermatomyositis and Polymyositis Support Group http://dspace.dial.pipex.com/town/avenue/ye72/

7. Myositis Association Of America (MAA) The myositis Assocation, Home http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

8. TMA: About Myositis The myositis Assocation, About myositis. myositis is used in the medical terms of dermatomyositis (DM), polymyositis (PM), inclusionbody myositis (IBM) http://www.myositis.org/about_myositis/index.cfm

HOME DONATE CONTACT US INTERNATIONAL ... Surveys About Myositis HOME Printer-Friendly What is myositis? (my oe SIE tis) Myositis is the general term used to describe swelling of the muscles. Injury, infection, and even exercise can cause muscle swelling. The swelling will go away once the injury or infection is treated, or once you rest your muscles from exercise. Certain medicines can also cause some muscle swelling that goes away once you stop taking the medicine. Often people who have temporary myositis from one of these causes become concerned when they find the TMA web site and read about the serious, chronic form of myositis. When we talk about myositis, we mean the inflammatory myopathies. What are inflammatory myopathies? (in FLAM uh TOR ee mie OP uh theez) Myositis is used in the medical terms of dermatomyositis (DM), polymyositis (PM), inclusion-body myositis (IBM), and juvenile forms of myositis (JM or JPM). These are all considered inflammatory myopathies. Inflammatory myopathies are diseases of the muscle where there is swelling and loss of muscle. Inflammatory myopathies are thought to be autoimmune (OT oe i MYOON) diseases, meaning the body's immune system, which normally fights infections and viruses, does not stop fighting once the infection or virus is gone. The immune system then attacks the body's own normal, healthy tissue through inflammation (IN fluh MAY shun), or swelling. All of these diseases can cause muscle weakness, but each type is different.

9. Myositis NW Information and resources about inflammatory myositis diseases. Accessible gardens, emergency preparedness for the disabled, support groups plus the author's personal site. http://www.myositisNW.org/

Diagnosed a long time with Myositis? Check out my NEW message board for LONG TIMERS!!! WELCOME - This is my personal website and is a compilation of information and links to many resources that I hope you will find useful in educating yourself about the Myositis Diseases and provide you with important resources and any necessary support. Whether you are the one that is sick or a family member or friend, remember you do not need to be alone in dealing with these diseases. As a long term survivor of my disease, Dermatomyositis, I wanted to share with you my experiences and my thoughts and I wish you find this site hopeful as well as helpful. I was diagnosed in April 1971, 1 month after I turned 16. Wow, what a journey. I have my ups and downs but despite my disability and lack of mobility I lead a very rich and happy life. I am surrounded by friends and family and by my very loving, very considerate, very helpful and very PATIENT husband, Tom, whom I've been married to for almost 15 years. I stay active as a KIT Leader in the Washington State Myositis Support Group and I work part-time from my home doing income taxes, bookkeeping and website design. I also help my husband run the business end of our painting business. Please DO sign my guest book AND mark your location on the map.

10. MedlinePlus Myositis myositis http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

11. UK Myositis Support Group http://www.myositis.org.uk/

12. NINDS Forwarding Page Also known as inflammatory myopathy, an information sheet compiled by National Institute of Neurological Disorders and Stroke. http://www.ninds.nih.gov/health_and_medical/disorders/inclusion_doc.htm

NINDS has redesigned its website and the URL for the page you were seeking has changed. The new URL for this page is /disorders/inclusion_body_myositis/inclusion_body_myositis.htm . Please update your bookmark to this page. You will be automatically taken to this page in 5 seconds, or you can click the link to go there now.

13. ~ Myositis Information Links ~ This is an information site on myositis. Inflammatory Muscle Disease. myositis Overview What Happens ~ What can be done ~ DM ~ http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

14. MedlinePlus: Myositis myositis. Overviews; myositis (American Academy of Orthopaedic Surgeons); myositis FAQ (myositis Association of America) http://www.nlm.nih.gov/medlineplus/myositis.html

@import url(http://www.nlm.nih.gov/medlineplus/images/advanced.css); Skip navigation Other health topics: A B C D ... List of All Topics Myositis Contents of this page: Overviews Diagnosis/Symptoms Treatment Nutrition ... Teenagers Search MEDLINE/PubMed for recent research articles on Myositis You may also be interested in these MedlinePlus related pages: Muscle Disorders Bones, Joints and Muscles Overviews Myositis (American Academy of Orthopaedic Surgeons) Myositis FAQ (Myositis Association of America) Diagnosis/Symptoms Creatine Kinase Test (Muscular Dystrophy Association) Getting Diagnosed (Myositis Association of America) Treatment How Rheumatologists Use Chemotherapy (Cleveland Clinic Foundation) Prednisone (Myasthenia Gravis Foundation of America) - Links to PDF Standard Treatments (Myositis Association of America) Nutrition Polymyositis: Can a Gluten-Free Diet Improve Signs and Symptoms? (Mayo Foundation for Medical Education and Research) Specific Conditions Dermatomyositis (Mayo Foundation for Medical Education and Research) Dermatomyositis (National Institute of Neurological Disorders and Stroke) - Short Summary (Muscular Dystrophy Association) Frequently Asked Questions (FAQ) about Inclusion Body Myositis (Muscular Dystrophy Association) Inclusion Body Myositis (National Institute of Neurological Disorders and Stroke) - Short Summary Polymyositis (Mayo Foundation for Medical Education and Research) Polymyositis (National Institute of Neurological Disorders and Stroke) - Short Summary Related Diseases (Myositis Association of America)

15. Welcome To The Myositis Support Group Website A place to learn more about the mysteries of myositis and meeting other individuals who have been diagnosed. Offers a bulletin board and links to http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

16. MedlinePlus Medical Encyclopedia: Myositis myositis is an inflammation or swelling of the voluntary (skeletal) muscles, often caused by injury or infection. Update Date 10/24/2003 http://www.nlm.nih.gov/medlineplus/ency/article/001245.htm

@import url(/medlineplus/images/advanced.css); Skip navigation Medical Encyclopedia Other encyclopedia topics: A-Ag Ah-Ap Aq-Az B-Bk ... Z Myositis Contents of this page: Alternative names Definition Alternative names Myitis Definition Return to top Myositis is an inflammation or swelling of the voluntary (skeletal) muscles, often caused by injury or infection. Update Date: 10/24/2003 Updated by: Stanford Peng, M.D., Ph.D., Division of Rheumatology, Washington University School of Medicine, St. Louis, MO. Review provided by VeriMed Healthcare Network. Home Health Topics Drug Information Encyclopedia ... U.S. National Library of Medicine , 8600 Rockville Pike, Bethesda, MD 20894 National Institutes of Health Page last updated: 18 August 2005

17. Inflammatory Myopathy Inflammation myositis + Collagen vascular diseases. Charcot. General U1RNP antibody myositis + Mitochondrial abnormalities in muscle 42 http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

18. Inclusion Body Myositis Information Page National Institute Of Inclusion Body myositis (Inflammatory Myopathy) information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS). http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

19. The Neurology Webforums At MGH - Myositis A forum for discussing all forms of this disease hosted by the Massachusetts General Hospital http://neuro-mancer.mgh.harvard.edu/cgi-bin/forumdisplay.cgi?action=topics&f

20. UK Myositis Support Group a recent article on IBM at "Advances in InclusionBody myositis" Well click the globe icon below myositis Support Group http://tmsyn.wc.ask.com/r?t=an&s=hb&uid=24312681243126812&sid=343126

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