81. MYALGIC ENCEPHALOMYELITIS: A BAFFLING SYNDROME WITH A TRAGIC AFTERMATH The syndrome which is currently known as myalgic encephalomyelitis in Great The third component of the diagnostic triad of myalgic encephalomyelitis http://www.25megroup.org/Information/Medical/baffling syndrome.htm

FOR YOUR DOCTOR MYALGIC ENCEPHALOMYELITIS: A BAFFLING SYNDROME WITH A TRAGIC AFTERMATH by Melvin Ramsay, M.A., M.D. Hon Consultant Physician, Infectious diseases Department, Royal Free Hospital The syndrome which is currently known as Myalgic Encephalomyelitis in Great Britain and Epidemic Neuromyasthenia in the USA* leaves a chronic aftermath of debility in a large number of cases. The degree of physical incapacity varies greatly, but the dominant clinical feature of profound fatigue is directly related to the length of time the patient persists in physical efforts after its onset: put in another way, those patients who are given a period of enforced rest from the onset have the best prognosis. *Eponyms such as ‘Akuryeru Disease’. ‘Iceland Disease’ and ‘Royal Free Disease’ have also been used in the case of particular outbreaks. These have the disadvantage that they obscure the all important fact that the disease has been reported world-wide. A second group of clinical features found in patients suffering from myalgic encephalomyelitis would seem to indicate circulatory disorder. Practically without exception they complain of coldness of the extremities and many are found to have abnormally low temperatures of 94 or 95 degrees F. In a few these are accompanied by bouts of severe sweating even to the extent of waking during the night lying in a pool of water. A ghostly facial pallor is a well known phenomenon and this as often been detected by relatives some 30 minutes before the patient complains of being ill.

82. ME Myalgic Encephalomyelitis support for people with ME myalgic encephalomyelitis. http://www.wmin.ac.uk/page-2053-smhp=595

text only print sign in You are not signed in Search: Home Students Graduates Employers ... ME Myalgic Encephalomyelitis Action for M.E. PO Box 1302 Wells Somerset Tel: 01749 670799 Fax: 01749 672561 http://afme.org.uk e-mail: admin@afme.org.uk Campaigns for more recognition, research and better care and benefits for people with M.E. Raises awareness of M.E. within the government, media, health care organisations and general public Provides information, self-help and support services to people with M.E., their carers, family and friends Association of Young People with M.E. PO Box 605 Milton Keynes, MK22XD Tel: 01908 373 300 http://www.ayme.org.uk e-mail: info@ayme.org.uk Offers advice, support, friendship and vital contact to young people with ME. Produces Cheers - a bi-monthly magazine to support the members, and includes articles regarding working and studying with ME. M.E. Association 4 Corringham Road Stanford-le-Hope Essex, SS17 0AH Tel: 01375 642466 http://www.meassociation.org.uk , e-mail: enquiries@meassociation.org.uk

83. Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Guidelines For Doctors In the UK for 45 decades, we have found that an initial illness caused by one of the enteroviruses, was the most frequent cause of the ensuing illness http://www.immunesupport.com/library/showarticle.cfm/ID/5072/e/1/T/CFIDS_FM/

Immune Support .com Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Guidelines for Doctors Health Watch Newsletter The Latest News Articles The Latest Abstracts The Latest Drug News Search Our Site Home Fibromyalgia Resources Introduction Tenderpoints ... About Us Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Guidelines for Doctors ImmuneSupport.com Journal: J of Chronic Fatigue Syndrome, Vol. 10(1) 2002, pp. 65-80 Author: John Richardson, MB BS HISTORY For those of us who are involved in the care of patients with this condition, the recorded work of Biorn Signurdsson (1913-1953) in connection with the Akureyn outbreak in Iceland which affected over 1000 patients, both children and adults was repeated by Melvin Ramsay when he was involved in the outbreak in his hospital which became known as the "Royal Free Disease" but defined by him as Myalgic Encephalomyelitis. This was followed by an excellent monograph in 1969 by Luis Leon-Sotomayor published by Pageant Press International Corp., New York and entitled, "Epidemic Diencephalomyelits; A Possible Cause of Neuropsychiatric, Cardiovascular and Endocrine Disorders." Since then many colleagues from the U.K. and other countries have demonstrated the pathological systemic consequences which may occur after a viral illness and have long term effects. All this work has been pursued by many colleagues in the U.K. and abroad since then, amongst whom are 72 who contributed to the book of more recent origin and published by the Nightingale Research Foundation, entitled, The Clinical and Scientific Basis of Myalgic Encephalomyelitis.

84. Chronic Fatigue Syndrome/Myalgic Encephalomyelitis - Quest Diagnostics Patient H Until the late 1980s, myalgic encephalomyelitis was thought to be a distinct, infectious disorder affecting the central, peripheral and autonomic nervous http://www.questdiagnostics.com/kbase/nord/nord416.htm

var hwPrint=1;var hwDocHWID="nord416";var hwDocTitle="Chronic Fatigue Syndrome/Myalgic Encephalomyelitis";var hwRank="1";var hwSectionHWID="nord416-Header";var hwSource="en-usQ2_05";var hwDocType="Nord"; National Organization for Rare Disorders, Inc. Chronic Fatigue Syndrome/Myalgic Encephalomyelitis Important It is possible that the main title of the report Chronic Fatigue Syndrome/Myalgic Encephalomyelitis is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report. Synonyms Akureyri Disease Benign Myalgic Encephalomyelitis Epidemic Myalgic Encephalomyelitis Epidemic Neuromyasthenia Iceland Disease Raphe Nucleus Encephalopathy Royal Free Disease Tapanui Flu ME CFS ME Disorder Subdivisions None General Discussion Until the late 1980s, myalgic encephalomyelitis was thought to be a distinct, infectious disorder affecting the central, peripheral and autonomic nervous systems and the muscles. Its major symptom was fatigue to the point of extended periods of exhaustion. A group of experts studying the Epstein-Barr virus first published strict criteria for the symptoms and physical signs of chronic fatigue syndrome in 1988. This case definition was further refined in 1994. The Fact Sheet for CFS published by the National Institutes of Allergy and Infectious Diseases of the National Institutes of Health states that "[T]oday, CFS is also known as myalgic encephalomyelitis, postviral fatigue syndrome, and chronic fatigue and immune dysfunction syndrome." ME/CFS is now recognized as part of a range of illnesses that have fatigue as a major symptom.

85. Chronic Fatigue Syndrome - Wikipedia, The Free Encyclopedia Chronic fatigue syndrome (CFS), also known as myalgic encephalomyelitis (ME), myalgic encephalomyelitis (ME, inflammation of the brain and spinal cord http://en.wikipedia.org/wiki/Chronic_Fatigue_Syndrome

Wikimedia needs your help in the final day of its fund drive. See our fundraising page Over US$240,000 has been donated since the drive began on 19 August. Thank you for your generosity! Chronic fatigue syndrome From Wikipedia, the free encyclopedia. (Redirected from Chronic Fatigue Syndrome Chronic fatigue syndrome CFS ), also known as myalgic encephalomyelitis ME post-viral fatigue syndrome PVFS ) and various other names, is a disorder of the central nervous system (CNS) characterized by a number of features, the most common and notable one being severe fatigue , usually made worse by even modest exertion. It is regarded by many as an organic brain disease. Its exact cause is unknown, although many theories have been advanced, and it is currently considered by most authorities to be incurable, although some cases may resolve over time and medication can bring a degree of relief in some others. Contents History Nomenclature Symptoms and course Central features ... edit History Originally studied since the late as a immunological neurological disorder under the medical term "myalgic encephalomyelitis" (ME), CFS has been classified by the World Health Organisation (WHO) as a disease of the central nervous system since . In and early the terms "post viral fatigue syndrome" (PVFS) and "chronic fatigue syndrome" (CFS) were added to ME under the exclusive ICD-10 designation of G93.3.

86. ME/CFS/CFIDS Watch: Symptoms Of Myalgic Encephalomyelitis And Post Viral Fatigue myalgic encephalomyelitis and Post Viral Fatigue Syndrome (PVFS) By Peter Ruberry (Group Secretary) Shropshire Wrekin ME Support Group Guidelines, http://abreathofhope.blogspot.com/2005/03/symptoms-of-myalgic-encephalomyelitis.

@import url("http://www.blogger.com/css/blog_controls.css"); @import url("http://www.blogger.com/dyn-css/authorization.css?blogID=8113182"); @import url(http://www.blogger.com/css/navbar/main.css); @import url(http://www.blogger.com/css/navbar/1.css); BlogThis! ME/CFS/CFIDS Watch Wednesday, March 23, 2005 Symptoms of Myalgic Encephalomyelitis and Post Viral Fatigue Syndrome (PVFS) The following information is taken from the website "The most common cause of ME/CFS is thought to be a viral infection related to polio (a whole family of viruses which affect the muscles and brain)." Dr Dowsett avers that this is the ONLY cause of [correctly defined] M.E. For those with severe M.E., I highly recommend the 25% M.E. Group, which I joined 3-4 years ago. If it weren't for them, I would think I am the only person in the world suffering as I do. Through the group, I now know there are 800 others in exactly the same situation as myself. Without each other, I think we would all feel like we were going mad. Just knowing there are others out there, experiencing the same things while knowing there is no treatment or cure - and no real good research being done in a big way - helps in a way that is very special. We are all in the same boat, experiencing the same problems, battles, ignorance and lack of understanding or appreciation what it means to be struck down with such a mysterious and complex illness. My heart goes out to the thousands of fit young soldiers who were struck down and became profoundly disabled by Gulf War Syndrome. They experience the same as us suffering from severe M.E. and also get little understanding or sympathy because nobody can really appreciate the day to day battles of living with such a devastating long term illness. Being disabled is one thing but being disabled and ILL is altogether different. I've said it before: I'd rather have both legs chopped off than this: at least with only two legs missing you can adapt and LIVE, get around on false legs, in a wheelchair or whatever, play sport and get involved in things that are invigorating, life giving and useful to others.

87. Iechyd/lles > Myalgic Encephalomyelitis (ME) | Health/welfare > Myalgic Encephal Organisation, myalgic encephalomyelitis (ME). Contact Name, Mrs. Barbara Turnbull. Contact Address, 2, Broadway,. Contact Town, Connah s Quay, Flintshire http://www.denbighshire.gov.uk/corp/Llwybr.nsf/0/E4B94B7C22A960EF80256C640054033

88. Healthfinder® - Myalgic Encephalomyelitis Carefully selected government and nonprofit health information on myalgic encephalomyelitis. http://www.healthfinder.gov/Scripts/SearchContext.asp?topic=569

89. Healthfinder® - Myalgic Encephalomyelitis Carefully selected government and nonprofit health information on myalgic encephalomyelitis. http://www.healthfinder.gov/Scripts/SearchContext.asp?topic=569&show=1

90. The One Click Group - News Archives 248 Note on the term myalgic encephalomyelitis , 16/10/2004 221039 (41) Encephalomyelitis resembling benign myalgic encephalomyelitis. SGB http://www.theoneclickgroup.co.uk/news.php?start=240&end=260&view=yes&id=275

91. Wordbank On The Mental Health Foundation Website myalgic encephalomyelitis. spacer. ME. Also known as Chronic Fatigue Syndrome. A neurological disease which affects the brain at a physical, http://www.connects.org.uk/wordbank.cfm?wordid=74&wbletter=M

92. SBMJ | Myalgic Encephalomyelitis: A Unique Medical Challenge Action For ME studentBMJ is an international magazine for students interested in medicine, healthcare and science. We cover a broad range of topical issues ranging from http://www.studentbmj.com/issues/03/02/editorials/3.php

skip navigation Need an article? student BMJ Home Current Issue - Editorials - News ... Subscribe Interactive Article Response International Experience Careers Zone Write For Us Author Guidelines How To Write About Us About student BMJ Posters Contact Us ... Accessibility Out There Links Notice Board Myalgic encephalomyelitis: a unique medical challenge Action for ME Samantha Radford looks at the controversy surrounding myalgic encephalomyelitis A collective sigh of relief was heard across the United Kingdom in January 2002 when the chief medical officer, Professor Liam Donaldson, published his working group report describing myalgic encephalomyelitis (ME) as a "real, debilitating, and distressing illness."1 The estimated 240?000 people in the United Kingdom who have ME - also known as chronic fatigue syndrome - have been holding their breath, waiting for the moment the illness would come out of the cold. Prevalence The UK government estimate of 240?000 people being affected by the condition is based on a survey done in Chicago, which suggests 4.22 cases per 1000 population. Estimates vary greatly, although the condition seems to be found mostly in advanced industrialised countries. The real extent of the problem worldwide is unknown. Under-representation of developing countries could be explained by poor health care and monitoring, as most chronically ill people are cared for in the community setting without proper medical care. Further epidemiological research is needed to clarify exactly how many people are affected and to what extent, to form a basis for health service planning.

93. GPs' Attitudes To A Self Diagnosis Of Myalgic Encephalomyelitis -- Arber 310 (69 With regard to the dangers of diagnosing myalgic encephalomyelitis, I have not come across any evidence in the literature that correct diagnosis is http://bmj.bmjjournals.com/cgi/content/full/310/6990/1330

Home Help Search Archive ... Table of Contents Author Keyword(s) Vol Page [Advanced] This article Extract Respond to this article Alert me when this article is cited Alert me when responses are posted ... Alert me when a correction is posted Services Email this article to a friend Find similar articles in BMJ Find similar articles in PubMed Alert me to new issues of the journal ... Download to citation manager PubMed PubMed Citation Articles by Arber, M. Related content Related Article BMJ Letters GPs' attitudes to a self diagnosis of myalgic encephalomyelitis Sufferers continue to be misrepresented EDITOR,Shonagh Scott and colleagues' paper on general practitioners' attitudes to self diagnosed myalgic encephalomyelitis illustrates, if nothing else, the continuing misrepresentation of this illness and those who suffer from it. Contrary to the authors' claims, Action for ME has never encouraged self diagnosis, and nor have the other "active support organisations" in Britain. Moreover, we have never advocated that patients should make unreasonable demands on their general practitioners.

94. Childhood Predictors Of Self Reported Chronic Fatigue Syndrome/myalgic Encephalo Chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) in adults is associated with higher rates of psychological disturbance http://bmj.bmjjournals.com/cgi/content/abridged/329/7472/941

Home Help Search Archive ... Table of Contents Author Keyword(s) Vol Page [Advanced] BMJ 2004;329:941 (23 October), doi:10.1136/bmj.38258.507928.55 (published 6 October 2004) This article Abstract Abridged PDF Full text PDF ... View citation map Services Email this article to a friend Find similar articles in BMJ Find similar articles in ISI Web of Science Find similar articles in PubMed ... Read articles citing this article Search for citing articles in: ISI Web of Science (1) PubMed PubMed Citation Articles by Viner, R. Articles by Hotopf, M. Related content Musculoskeletal syndromes (including chronic fatigue and Gulf war syndromes) Other Pediatrics Related Articles Paper Childhood predictors of self reported chronic fatigue syndrome/myalgic encephalomyelitis in adults: national birth cohort study Russell Viner honorary senior lecturer in adolescent medicine Matthew Hotopf professor of general hospital psychiatry Department of Paediatrics, Royal Free and University College Medical School, Middlesex Hospital, London W1T 3AA, Department of Psychological Medicine, Institute of Psychiatry, London SE5 8AF

95. Database Search Results Searched keywords for myalgic encephalomyelitis. CFIDS Association of America National Center for Infectious Diseases, Centers for Disease Control and http://www.health.gov/NHIC/NHICScripts/Hitlist.cfm?Keyword=Myalgic Encephalomyel

96. RiME - Research Into Myalgic Encephalomyelitis Campaigning for Research into myalgic encephalomyelitis. Home. Petition 1 Newsletters Petition 2 Letters ForT. Last updated 25 July 2005 http://www.erythos.com/RiME/

Home Petition 1 Newsletters Petition 2 Letters ForT Last updated 25 July 2005 Site optimised for MS Internet Explorer v5.5+ Java-enabled Please contact the if you have any problems with this Web Site By Post RiME 10 Carters Hill Close Mottingham London SE9 4RS By Email Latest RiME Newsletter March 2005 This issue is available on-line on the Newsletters page Dissatisfaction with the national ME charities during the last decade has led to a number of independent campaigning efforts. These include - 1997-2001, whose activities are described on the ForT page 2002 and continuing, whose aims are described on the Petition 1 page RiME's latest project is to do with the All Party Parliamentary Group on ME. RiME will shortly be petitioning the Committee on Public Standards re. its conduct, and asking the Parliamentary Commissioner to change the rules surrounding APPGs. Details are on the Petition 2 page.

97. Charity Glossary myalgic encephalomyelitis Action for ME to further awareness and knowledge of myalgic encephalomyelitis. myalgic encephalomyelitis Association http://www.ivillage.co.uk/ivillageuk/tools/charity_gloss/0,,4-1220-M-,00.html

var cimsCid = '165906'; var cimsUid = ''; iv_hideTacoda = true; Search iVillage for: Home Join free Horoscopes Quizzes Related Topics: Relationships Parenting more ... You are here iVillage.co.uk ivillageuk tools charity glossary Competitions Free newsletters Join iVillage Virtual makeover ... Send an eCard Beauty Health more newsletters A B C ... W M Marfan Syndrome Missing Persons/Runaways Marriage Counselling Mobility ... Myalgic Encephalomyelitis Myalgic encephalomyelitis Action for ME 4 Dean's Court, St Paul's Churchyard, London EC4V 5AA Tel: 020 7329 2299 Fax: 020 7329 3600 E-mail: info@afme.org.uk Web address: www.afme.org.uk/ Provides an information and support service to sufferers, and distributes advice and information to further awareness and knowledge of myalgic encephalomyelitis. Myalgic Encephalomyelitis Association 4 Corringham Road, Stanford-le-Hope, Essex SS17 0AH Tel: 01375 642466 Helpline: 01375 361013 (Information Mon-Friday 1.30-4pm) Fax: 01375 360256 E-mail: mea@meassociation.org.uk Web address: www.meassociation.org.uk Provides information and support to sufferers, via local groups, and a telephone helpline. send to a friend advertisers Get the latest iVillage news on your desktop Sign up for more iVillage RSS feeds iVillage Channels Community Services About iVillage Beauty Health Horoscopes Money ... Terms of Service

98. Myalgic Encephalomyelitis Myalgic Encephalomyelitus also known as ME. You found this page because you were looking Myalgic Encephalomyelitus Ramsay s defiitive definition of ME. http://basic1.easily.co.uk/036013/056064/myalgic-encephalomyelitis.htm

MYALGIC ENCEPHALOMYELITIS Neil Brown (Home) MYALGIC ENCEPHALOMYELITUS What we am I going to do for you? Give you some links that you can make your own judgement on this subject and where you can get some help if you are a sufferer. I might also copy some of my lobbying here for all to see. Useful (and thrown in for good measure one to be wary of) resources and in no particular order. Ha that makes you read them all :-). Foggy Friends A forum for sufferers, carers (that's me) and anyone interested in the disease. Very welcoming. Dr Myhill An ex-NHS Doctor's website. I don't know Dr Myhill but she appears to be sympathetic to ME/CFS. BTW Doctors more often than not only refer to CFS - Chronic Fatigue Syndrome not ME. Myalgic Encephalomyelitus Ramsay's defiitive definition of ME. Ramsay is known as definining the modern ME. The rest of the site is also a good information resource. The yahoo group is also very good but you can't mention other groups or you get banned.

99. M.E. (Myalgic Encephalomyelitis)/Chronic Fatigue Syndrome Society Of Victoria In ME (myalgic encephalomyelitis)/Chronic Fatigue Syndrome Society of Victoria Incorporated. Prev Next Volume 2, Number 2. The ME/Chronic Fatigue Syndrome http://www.moldreporter.org/vol2no2/myalCFS

Home About M.E. (Myalgic Encephalomyelitis)/Chronic Fatigue Syndrome Society of Victoria Incorporated Prev Next Volume 2, Number 2 The M.E./Chronic Fatigue Syndrome Society of Victoria is a new non-profit organization dedicated to serving the Chronic Fatigue Syndrome community in Victoria and Tasmania. It focuses on correctly managing the symptoms of the disease. The symptoms of Chronic Fatigue Syndrome include overwhelming exhaustion, both physical and cognitive, memory and concentration impairment, and intense flu like feeling, muscle pain, sleep disturbance, headaches, and disturbance of balance. In an effort to help the victims of CFS, the M.E./Chronic Fatigue Syndrome Society of Victoria runs many support groups throughout Victoria and Tasmania, publishes a quarterly magazine focusing on research updates and contributions from members, and can provide names of qualified CFS doctors. Additionally, the group is actively involved in lobbying political leaders regarding the needs of people with CFS and appropriate resource allocation, educating the public and the public health officials about CFS and raising community awareness of the disease and its effects. For more information on the ME/Chronic Fatigue Syndrome Society of Victoria visit their website at http://home.vicnet.net.au

100. Myalgic Encephalomyelitis Cure The myalgic encephalomyelitis virus can be eliminated with electricity. Read how I experienced a cure with alternative treatment. http://www.bioelectric.ws/eng/ME.html

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